Sarah you have not only defeated cancer but chemo brain so I take my hat off to you. You done good.
Marie hope you are not too exhausted after these first couple of weeks. I expect you could use a long weekend. Don't turn round and tell me you're on shifts and have to work this Monday after all!
Rachel I think I can be in Oxford about 3:00pm on the Saturday.
I had my first cold since Xmas; we took the grandkids to a circus and a tiny tot (not related!) sneezed all over us. I had a fever for exactly 12 hours, fine now. Glad to see my immune system is giving me support. It was almost a year ago I was in hospital with neutropaenia and UTI, watching the last night of the proms and the first Strictly and in floods of tears. Glad to put that all behind me. Joy of joys- my radiation site rash seems to be going. Washing is less of a trial. Back to swimming soon. Another tiny step forward.
Your hard work has paid off - well done Sarah. Now relax and enjoy yourself for a while before the next adventure starts...
Marie - so sorry to hear about your friend. It is always hard when you hear bad news from other people. Keep strong.
Just got back from Italy - lovely and relaxing time. Heart scan later today and hopefully my last Herceptin next week. Hope everyone else ok. x
Hello again, well that's dissertation finished and handed in today. woop woop.
Marie, i'm so, so sorry to hear of your friend. You never know what life will throw at you, how awful.
Can't wait to see you all, Marie we will have to do lunch x x
Take care all
Marie I am so sorry to hear about this. Sometimes it is worse when you see this happening not just to friends but friend's nearest and dearest. She is blessed to have you as a friend; you have strength to offer...not least your experiences. Praying for you all.
Yes Barbara, California. (Husband is a green card holder so we have to be out of the UK a certain amount of the year - he lived here for 30 years and has an apartment here.) I'll blow a kiss for you Penny!
My sister is now home, 48 hours after surgery, with district nurse cover over the weekend and trip to the hospital on Monday for removal of axillary drain. Sore, but seems to be in good spirits.
Should we meet Saturday afternoon??
Yeah swimming. My radburns are still giving me gyp so even showers and baths are something to avoid right now. I am perfecting the art of the strip wash. To music, too.
I'm so glad the neck tie was helpful Rachel!
I'm celebrating the end of my Herceptin - had the last one on Monday. Seems strange not to have the next 3 weekly appointment in the diary after chemo then H. So we're back in the US to celebrate our freedom.
I've asked the chemo unit who are selling the neck ties if they'd be willing to post them out if any of you want one before I get home.
My sister had her mastectomy yesterday, and apparently the surgeon was happy with how it had gone. She had a scan that was negative, but the final decision about chemo won't be made until the axillary nodes are studied.
Great to hear from you Namaste. When I saw the CS she was emphatic that normal is feeling tired, sick, pathetic etc for a year, But she made it clear that one year means one year from the end of all treatment. So for me that means January 2015. That really made me re-evaluate my expectations of myself. I'm still having two siestas a week, especially in this heat. It's a regime which works for me. I'm not sure how to increase my fitness as my chemo feet have got mixed up with a bunion which decided to flare up. Still managing to walk a lot though. Working part time but in two different jobs, and then there's the housework and shopping.....Every so often I have to stop and have a strop with myself about not caring for myself as I should. That's my excuse for the piles of washing still sitting in the conservatory!
Q: How do you get a piano through a keyhole?
A Splinter by Splinter.
(over 60's (or people like me who were daft teenagers in the 1960's)
usually know the answer to this one.)
Keep on taking care! And hope to meet you in September!
Morning Moonbeams 🙂 Just spent an hour catching up with you all.... plenty of ups and downs as usual! I do so admire those of you who've been able to do the run/walks, kudos to you. And Jane, hugs for your sister, I can't imagine the emotional fallout but I'm sure you'll keep each other going through treatment etc. Never ends does it?
I've had my end of treatment mammogram and everything seems good. I still have that niggling fear (you all know that one!) but I'm trying not to let it overwhelm me. Easier said than done though. So on top of my hip pains and peripheral neuropathy in my hands and feet I've now been diagnosed with arthritis in my shoulder. I'm only 52 but sometimes I feel blerdy ancient. I'm sure I'll find a way to deal with all this leftover physical stuff but's it's soooo frustrating not being able to do what I want. I'm still only p/t at work and I know I had a full year of treatment but still, I want to be back to 'normal' ~ whatever that is!
It's great a meet up's finally coming. I may be able to come up for the day but not sure yet. Would be lovely to meet you all, especially Barbara who's in my neck of the woods. Anyway, hope you're all enjoying the sun and not struggling too much with flushes etc. Take care x
Aww gee Jane. The feeling is mutual. You and your sister! Where would I have been without the hula hoops?
I've just seen this today. It's horrible when your own family has it. But perhaps better for you both, you having been through it too. Thinking of you both.
So sorry to hear that Jane. It must be devastating for your family to have to deal with this so close to the end of your treatment and of course it will reinforce your silent worries about recurrence too. Is there a genetic link or is it just terrible luck? Try to remember that this doesn't mean it will come back for you, and as my surgeon told me - it isn't a recurrence in the breast you need to be worried about. That they can deal with - fingers crossed that when your sister has her surgery that will be the end of treatment for you both and you can both move on - together. Thinking of you and sending you my love. x
I've been pondering whether or not to share this, but actually I need your support please. My younger sister, who had breast cancer 13 years ago and was hugely supportive of me last summer (it was she who recommended the hula hoops!), has been diagnosed with a new primary in the same breast. She has a mastectomy with immediate reconstruction at the end of this month. I feel like the ceiling has fallen in. It seems so unfair for her. I have my last Herceptin due 2 days earlier, and the whole family was on countdown to end of hospitals for a bit. Funnily enough I’m weepy for her in a way I never was for myself. It seems there’s no end to all this rubbish.
Well done Jo - what an amazing achievement.
Marie I'll be there in September although sadly not for Saturday night just Sunday for lunch.
I think at the moment we have:
Is that right??
Let me know if I've missed anyone off - and of course goes without saying anyone whose not been on for a while and wants to join us is absolutely more than welcome. Just PM me and I can send you the details.
Hotel is booked and a nice place for lunch the next day - I'll PM you all the latest. I also need full names from everyone for the hotel room list, I've got some but not everyone.
Hope you're all well and enjoying the sunshine - meeting Zuzy for lunch on Friday which will be lovely.
Hope this picture works! Yes 5K in 1 hour. Still exhausted today - especially as been on a school trip to the farm...
I am going in September Marie. Looking forward to seeing you all there. x