I'm all well as I've just posted on FB but for the record...I am getting fed up with Anastrazole! Just had a really good few days, working and playing hard, but then I discovered I'd forgotten to take the tablets. Yikes! I took it and almost immediately was plunged into joint pains in my upper hips and knees- places where I was really fine all day, and marvelling at it. i know that these tablets are making a big difference to my life-actually wiping out so many doubts about recurrence- but I do so resent them. By the time I come off them I'll be at least 70 and probably so unfit it will affect my life chances. I will try to change the manufacturer if I can, but even so I need to summon up that energy to get me through getting ready for Thanksgiving (which BTW is my cancerversary) and Christmas!
So glad they gave you what you needed Zuzy - sometimes it feels like I will worry forever about this or that. It's good to know they listen and respond appropriately. x
Just had a thought though - I have now been back at work longer than I was off! Yeah - long may it continue...
How are the reduced hours going Marie?
I have an appointment with the lymphodema clinic towards the end of the month. The swelling is not terrible, and it does vary from day to day. Today they almost look normal, other days you could easily tell if you compared both hands but not necessarily just by looking at the one hand. Have you got it too then Barbara?
Any news from those of you waiting for results?
I feel like I am back on the hospital trail this month - Echo next Saturday, Onc later in the month as well as this latest appointment...
Phoned the BCN first thing today and I have been referred to a community lymphodema nurse who will come to me and support me with how to improve things. So simple - why didn't I do that in the first place?!
How are things with everyone else? xx
Waited over a week for a drs appt - then half hour wait at the surgery, just to be fobbed off. Now I am no further forward and cannot contact the Breast Care Nurse until Monday. My hand is no worse, and seems to be better some days than others. Think it is definitely lymphodema.
Also they want to increase my bp tablets again! Came out feeling very frustrated and close to tears!
How was the exam Sarah?
Any more news Marie?
Thank you Barbara.
How you feeling Marie, when do you see gyny? how long had it been since you had a period?
Dodo, how is your hand?
All this fuss about the NHS today. I just filled in another one of the questionnaires from the Fast Forward (Radiotherapy) study. It asks: How many visits have you had from your GP? Your Macmillan/Breast Care nurse? LOL! Maybe my standards are too low.
Hello ladies, have just read posts. Such good news Rachel xx
To you all who are not feeling 100% i hope it soon passes. It is hard and seems to take so long to feel our old selves. I have recently been told i am anaemic and they wonder why so have to have tests for polyps and celiac desease. I have also had x-ray of ribs because i have some pain so waiting for results too.
Got upset because hospital cancelled treatment for today and gave me Thursday (When i have an exam) so cancelled that and am on 'pending' list, feel so close yet so far away from finishing and some sort of normality. Still, things can always be worse, Moan over! lol
Take care all
So pleased Rachel. xxxxxx
I am pretty sure my hand is lymphodema but it deosn't seem to be getting any worse so fingers crossed it can be managed easily. It's my right hand so I need it.
What is wrong with Trish - have I missed something?
You could also call the helpline at BCC. They'd be able to help put your mind at rest. It might be something entirely unrelated to breast cancer, but talk to BCC first, then get it seen next week.
Too late Jane! It is definitely a bit swollen and tender in the middle three fingers and on the back of my hand. Not sure what else it would be. Will it get worse if I don't do something then? And is there anything I can do myself?
Jo, if you have any problems with the hand swelling, get onto your breast care nurse right away. It may be nothing, but if it is lymphoedema (and that's a big if of course) then the sooner they see it the more likely it is they can minimise it. Do it before the weekend, if only for your peace of mind!
My fingers in affected hand are a bit swollen and tender - is this likely to be lymphdema? If so, what should I do about it, if anything?
Rachel, any news yet? They are really taking their time! x
We are getting the smoke again tonight. Hardly surprising when half the sky seems to be falling. I think I will curl up in bed now. Sweet dreams all especially you Rachel. I expect some lab assistant had a cool date and snuck out of work early.
Barbara take it easy...and do mention it. My pet med at the moment is voltarol 12 hour. Great for backs and hips and seems to work with whats left of the chemo pains.
Oh I see. Cyclophos is its nickname. How could I ever forget the C? Every time I see something long and thin and red I think of it with a shiver.
Smoking ghosts? Hmm, getting ready for Halloween??
(Cyclophosphamide is the C in FEC. It's the one that makes the back of your nose sting if they inject it too fast. Like when you eat too much mustard or horseradish.)
Jane-What is cyclephos when it's at home? Sounds dreadful. Hope your sister is bearing up ok.
Now I still can't face hula hoops. I'm not too keen on cream of tomato soup which was another big comfort during chemo. I still get taste distortion but not always aware of it...just when I cook something that doesn't taste quite right.
For about 6 weeks this summer we had this tobacco smoke smell coming down our chimney. or so I thought- my OH couldn't smell it but his sense of smell is far from reliable. We have a strong downdraft so it isn't unusual to have smoke or BBQ smells coming down our chimney (we live on the side of a hill so we get thermals too) but tobacco? The closest smokers to us live 50-100 meters away. I thought next door's lad was having a crafty fag in secret but turns out he's been preparing for singing auditions and his voice sounds great when the windows are open - no smoky hoarseness. I really was beginning to wonder whether it was chemo when next door's Mum asked me over the garden wall if I've been smelling smoke down the chimney....!! So it isn't just me! Do ghosts smoke does anyone know?
My sister had her third (of 4) cyclophos and taxotere today. She's been struggling, but says it's easier than her FEC schedule of 13 years ago. I told her you were all remembering her tip about Hula Hoops. Don't think I'll ever look at them in the same way again!! They are so rubbish when you're well, but so great when you're post-chemo.
Do any of you have any food changes since last year? Or things that just bring it all back? Food post traumatic stress disorder???!!!
Jo, so glad your port is out. That must feel good and real progress.
Rachel, waiting with you for your results.
Hugs and love to you all