Hello, last year I used the aloe vera plant (can't get more 100% than that!). Just cut the thick stemmy leaves off, rinse quickly, then slice it down the side and spread out - slaver over the boob. Did have to use more than one leaf, depends on boob size. It was SO soothing. I also drank a bottle of calorie free coca cola daily - which has something to do with free radicals attacking electrolytes or some such, might well be the other way round - can't remember. This advice was from a friend who had been there, done that about 9 years ago. I had absolutely no problems with rads, told the nurses what I was doing and they were happy and had heard of using the plant and cola! Hope you all get through ok.
My oncologist said to try aloe Vera but to make sure it was 100% aloe and this was the only one I found; https://www.amazon.co.uk/gp/product/B0128PJ7T4/ref=oh_aui_detailpage_o07_s00?ie=UTF8&psc=1
like I said, it more runny I expected for a gel but it's ok other than that.
It it was the Macmillan radiotherapy nurse who said to try Aveeno, although she said they don't normally mention brands, she obviously has had good feedback for Aveeno. I chose the particular one mentioned in my previous post, http://www.boots.com/en/Aveeno-Skin-Relief-Lotion-200ml_983786/ as it seemed appropriate but there are many other types. I would suggest getting some and using on the area to be radiated straight away, just to check it out.
Both onc and nurse said use whatever you chose (and don't be afraid to experiment...aqueous cream also got a mention) from the beginning of rads, don't wait until your skin starts protesting!
Amanda, can I ask.....those skin lotions you mentioned were those recommended by BCN ? I'm starting in just over a week, and on the lookout to be prepared in advance as my skin is pale and reactive to lots of things....I was even spotty from the dressings after lumpectomy. I started the June thread for rads, but realised that it is you guys who are currently using lotions and potions to ease symptoms....so after some advice from anyone who is using off the counter things....
Fab news Tina........I will see you there 👍👍👍
Although I don't start rads until Monday, I have got 'artnaturals Aloe Vera gel, 100% pure & natural cold pressedl' ( from the 'bookseller') it's a bit more runny than I expected. I also have Aveeno 'Skin Releif' with Shea butter, moisturising lotion... for extra dry, irritable and sensitive skin, it seems very nice.
I'm told to start using the lotions straight away, don't wait for problems to begin. Loose fitting cotton type tops, I may resort to using a vest under things if it gets too sore to wear a bra, not a great look with one breast, but if it comes down to needing to, then I'll have to!
Thanks Kerry, I think I've found it and sent a request to join 👍🏼☺️
Well 3 days after finishing and my boob is a lovely shade of mottled Crimson with a touch of the prickly heat look 😱😱😱. Only slightly itching and no broken skin so keeping my fingers crossed that remains the case. I'm still using the Diprobase cream and seems to be the right cream for me. But have got aloe Vera and E45 on standby and to take away with me.
regarding hard nipples......mine is rock hard and haven't had any recon (lumpectomy only) so I think it might be part of the zapping process. Very very sensitive too. Feels like I've been breast feeding for 24 hours non stop!! I took to watching TV topless last night to get some air to it lol
Vicky, I'm 10 years too old for that group (God damn it!!) so definitely wasn't me.
Tina, FB group I use is called UK BREAST CANCER SUPPORT GROUP - FOR SUFFERERS AND SURVIVORS. If you can't find it and want to join I will ask admin how you do it. I was added by a friend already in the group. PM me.
Enjoy your rest from zapping ladies this weekend. The end is nearly there
Hi guys..... Second one down today. Not sure if it's my imagination.... Is it too early to feel slight 'nipping' and warm sensation on chest area??? Up Side of neck too.
Ibwas told by staff not to use anything special/different, just use usual moisturiser???!! Anyone using Aveeno? Or should I buy E45?? Xx
Hi Tina, yes, the SE'drag on but as we were having chemo for around four moths, I guess we'll be feeling the effects for a good few months yet!
I'm not sure which Facebook group you are looking for but there is a closed group called Flat Friends.
Ha Amanda! 😂 You'll still be finished before me!!!! My last one on the 14th June! I've not had any meds yet.... I've questioned the ones given so doubt I'll start till after rads as with the zoladex! Xx
whats the FB page called..... I can't find any closed groups? Xx
Just realised I started my rads a year ago today!! Where has the time gone !? Good luck to you all the end is in sight lovely ladies Xx
Well you're off Tina, well done! My first is on Monday, the last one is 13th June, should have been the 10th but it is the 'odd one' that won't be done on the 30th May because of the bank holiday!
Well done to those who have finished already...quite jealous, can hardly wait to get it over with!
So pleased for you Vicky, that you got the tattoo issue sorted out finally!
I am a week into taking Tamoxifen now, no side effects so for but it may be that they don't kick in for a while!
Great news Vicky....L must be such a relief to finally get someone who's listening to you and on your side xx
number 1 done, I'm in my room in CLAN Haven, feeling but tired and I know I'm gonna be bored stupid!! So I need to find things to do next few weeks!!
Is the FB page a closed group? I found the BCC. One. Is this it? Xx Tina
Vicky: Glad you've got your tattoo issues more sorted and your mind can rest a little easier. None of us need the added stress through this. No I'm not on YBCN but I am part of the Uk Breast cancer support Facebook group and did pop a photo up on there .......did you see it there maybe?
Ann: well done to you too. Fab feeling to have this chapter over and done with 😀. And as you say just the tablets to content with now
Tina: good luck today as you start off. It is a nervous time as it's an unknown but it will go quick but I know you are having more than me. Give yourself a few treats during the time. I booked a few freebie alternative therapies from the cancer charity at the hospital and it really helped.
Although not too sore just yet I can see better the effected area so I'm going on bikini top hunt today to find some that will give a bit more coverage for my hols in 4 weeks. Most of mine are underwired and taking a guess they my rub. Fingers crossed I find something suitable 👍
Yay! Brilliant news KM! 👏🏼 I'm just about to start mine tomorrow!...... Nervous, but know a month from now it'll be finished! 🙏🏼
Vicky...... Oh I'm so sorry you're feeling so upset Hun! That's awful what that nurse said to you!?! And not only insensitive but inaccurate?!? I was told I could have my dots removed by laser when finished on the NHS. I'd jeep asking if I were you. It's affecting your mental health and you don't need any more stress!!!!
Im still waiting to hear back from onc nurse re prescription I've been given and not had prescription for zoladex yet either..... Am I the only one who's not started meds yet!? Last chemo was April 1st.
Well done, Kerry!
Had my last zap this am, nice appointment with follow-up by the breast specialist radiographer, said goodbye & left cake for the team. Overall, since getting the 'recall' letter in February, on return from holiday & all that goes with it, I have been very happy with the care & grateful my case has been straight forward.
Now I feel relieved this part is over & side effects, to date, have not been a problem.
And now tamoxifen...
Do take care all
I DID IT!! Last rads this morning and I rang the bell to signal my end so hard I nearly pulled it off the wall. Emotions are sky high right now and the tears keep coming....... But I did it. I chuffing DID IT!! 😀😀😀😀😀😀
I'm sorry you are feeling so upset about your tattoos, they are a constant reminder of what we have had to go through and I'm sure I've read of people having them removed, the comment about needing to keep them in case of reacurrance is both harsh and I would imagine incorrect, unless you had it come back in the exact same place what use would they be!? In all honesty mine don't bother me and I can only ever see the one in my cleavage but as they are making you so unhappy then it should be your choice if want them removing, hopefully you will have a more understanding team looking after you tomorrow xx
Thanks Kim. I was just worried in case it resolved by the time of the start of rads.....then that would alter the depth or something of the treatment ? I don't know anything about RT, but mentioned it when I went for my prassessement yesterday, the radiographer said it was only relevant if it 'changed up or down' in amount.....but would they know that or would I need to say I think it has? 😕😕😕
Hi all..... Amanda and Vicky.... I'm here too now......
I start my rads Thursday 19th finishing 14th June. I'm getting worried as my scar, boob and underarm are really sore lately! 😒 Also, paranoid shout lymphodaema! Waking with hand feeling numb as if I've slept on it, hold it over bed and it comes back to life! Top of arm feeling more numb..... FFS!
Im also concerned why I've been given EXEMESTANE to take when I've read leaflet and online that thus us usually given 2-4 years after being on TAMOXIFEN?! I've to have ZOLADEX injections every 3 mth too. I picked up prescription Saturday but nit started yet, I need to speak to onc nurse for answers..... I expected a blood test to clarify where I was with menopause but this hasn't happened I've just been told I'd have this..... Reading side effects.... Jesus are we ever going to feel well again!?! 😖
Kathy, i wouldn't like to think I had to work an 8 hour shift as rads as gone on. I've worked 5 per day up to Thursday last week and now only doing 3. More from tiredness than anything else. I've 3 more zaps to go and will only work 3 hours on these days too. As for emotions.......I've been to opposite to how I normally am and I've shed more tears than I ever expected but I have a lot of other things going on in life that are stressful so for me I thing it's a combination. Everyone is different, and everyone reacts differently.
Charys, I haven't had lymphodeama in my boob but I had a seroma and I think it's just filling up again. I found a small pea sized lump in my armpit on Thursday night and my armpit is sore. Spoke to radiotherapists and they told me to speak to my consultant at my review on Tuesday. They didn't seem too concerned so I'm trying not to be.
Hi all. Interesting discussion about tattoo removal. One on my left side is huge 2.5 X 3.5 mm, cleavage one is 1mm diameter dot and right side a tiny speck! I had a student radiographer and she started on my left side and, I guess, used up ink as she went across! Never thought about asking to have them removed, but I had an mx without recon, so absolutely no cleavage in the mx side. Add to that being 51, adjusting my wardrobe to only higher necklines is by far the easiest option for me. Hope everyone is making the most of their weekend off rads. Hugs, tat xx
Hello all, I'm popping into your May rads...even though I am resident on the (soon to come) June rads. Hope this ok. I have a query for you ladies here.....if you have had lymphodaema of the breast following sentinel node removal and lumpectomy....did it affect the start of your RT? I'm hoping it makes no difference at all to treatment onset....but just wondering.
Great to see so many of you joined me on the "May Rads" thread. I had my first of 20 today, 15 + 5 boost. Went well and feeling ok which is as I expected as I have only just started. I am hoping to continue working through the next four weeks, but as I work eight hour shifts varying from a 7am start to a 2pm start where I can be on my feet for most of the time I may be being a bit optimistic. My work days are Tuesday to Saturday so only have one day of "rest" before next rads week starts. Had the results of my bone density scan as well this week, which shows that I have osteopenia, so at possible risk of osteoporosis. I now have another prescription for daily calcium and vitamin D on top of the Letrozole. Thank goodness for the free prescriptions card!
I am 55, and have never had anything wrong health wise till now. Funny how you think that it will never happen to you. I am not going to let it beat me though. Since diagnosis in February, through surgery in March and all the tests, scans and now rads I have not shed a tear or got angry about having BC. Is there something wrong with me? I feel like I should have broken down or something which is what friends and work colleagues say they would have done if it had been them.
Anyway, enough from me for now, feeling another hot flush starting - oh the joys of Letrozole side effects!
Hope everyone has a restful weekend ready for the next week of zapping.
to all try asking your gp for aveeno.
I mentioned your tattoos to my radiographer today and she said if my tattoos turn out too big then they could be removed on the NHS later. I'm sure that would apply to anyone not just people at my hospital.
Fingers crossed for you.
Hi everyone, coming over from December chemo thread.
I'm 53, my cancer was found by my second routine mammogram. Had a WLE but then needed a MX. First FEC-T chemo was Christmas Eve and finished 21st April. Rads start on the 23rd. I have three small marks; they are blue and look like they were made with the tip of a biro. I have to start tamoxifen this Thursday, three weeks after chemo finished. It was to have been after rads, but my onc said new research has shown there is no interactions between it and rads. Can't say I'm looking forward to tamoxifen and I'd pushed it to the back of my mind as I wasn't expecting to be taking it until mid June but never mind, it is there to help me and any side effects will just have to be dealt with the best I can!
I do feel for you ladies who have to work through this, I am very fortunate not to have to. It's a time when your partners will have to do their best to help and you need to take every opportunity to rest, I've been told it gets tiring after the second week onwards.
I was recommended Aveeno and also Aloe Vera but to be sure it was 100% aloe, I'm going to try this one: https://www.amazon.co.uk/gp/product/B0128PJ7T4/ref=oh_aui_detailpage_o01_s00?ie=UTF8&psc=1
Well today has been a very positive radiotherapy day. Firstly it's my hump day (on top of the hil half way through and all down hill to the end now) and secondly, I was the first ever ever person to be zapped in the new machine in the new suite at the hospital. Feeling quite chuffed with myself 😃👍
still no soreness thankfully and it's review day tomorrow so keeping my fingers crossed they are as pleased as I am so far.