Orienne where r u ? Hi Orienne,
I have left a messge for you on your original posting when you where looking for me.
Hope it all makes sense
x x x
For Orienne Hi Oriene,
Lisa has just sent me a message on the other site
www.phpbbserver.com/breastcancer/ (sign up, its great!)
I had my op 5 weeks ago, and feel great, the relief is unbelievable.
I was due to have my op with reconstruction last year but 2 days before they found i had a rare form of haemophilia!
So after a lot of problems with scardy cat surgeons they were all frightened i would bleed to death on the operating table, my new Haemophilia consultant put me in touch with a wonderful surgeon who specialises in people like me with bleeding problems. Anyway it was decided that reconstruction is out of the question as the bleeding would be too difficult to control. After i weighed up the reasons, what else could i do? I wanted rid of my nasty boobs! i didnt want to find out in years to come that i had cancer!
I am lucky i have a very supportive husband, who i think we forget about, it effects them too!
I was more scared of bleeding to death then about my operation but when i woke up i just felt so happy and relieved.
This is a very personal thing and only you can make the decision that is best for you. Take your time, it is a very scary time for you but you will get through this, i promise.
I am now boobless but happy, i dont always wear my foam (temporary) boobs, but the bras available are now really good.
If you pop onto the other site go onto the genetics link & we can send each other messages, there are a few women there in the same position, and they are all very supportive.
x x x
p.s. I go on forever, sorry (haha)
For Sandra You are one brave lady!!!!!
I say this as I know how difficut it is to face the decisions that you are facing at the moment - the only thing that pushes me is that nagging thought in my head \'I have the gene\' - otherwise I think I would put my head in the sand - a skill I never used to do before all this came along - lol!
So to do this and then have the gene test - I think you are remarkable.
Im so sorry you have lost your sister - its dreadful to face all of this in the shadows of losing someone you love.
I have been lucky in some respects as my mum is the only living relative that has had cancer - to date - she has had it twice - but always found it early and not had to have chemo etc... she has been lucky to have nine years (and counting) after her first cancer.
I hope all is well with you for the 27th - and thank you so much for offering me advice and comfort when you are still facing many hurdles.
There is no one way to cope with all of this - it is such a horrible bombshell - that if we all survive through it I think sometimes it would be a bloody miracle!!!
Keep chin up,
Hi Oriene In answer to your question about not wearing a prostetic, I always wore them because I did not feel confident without them, sometimes even if I put on my nightwear and I had company, I always wore my prostetics but that was how I felt perhaps because people knew what I had had done, I did not want them staring at me (perhaps that was just me thou) As for clothes they always seemed to be ok, but I did not wear any low cut tops, as I always felt that I was going to loose my \'chicken fillets\' if I lent forward, I know what you mean about looking at other womens breast, I too done the same lol.
I am now having my ovaries removed on the 27th of this month so another hurdle out of the way, then I will go for the genes testing (my sister tested positive for the brca1 gene, she had the test just before she died and we found out 2 years later.) This is my way of coping with it all.
For Sandra I don\'t mind at all!!! It was lovely to hear from you!!!
Thankyou for your honest and open answer - and I\'m glad everything is ok with you. You are right it does take alot of soul searching - and I know I\'m still in that stage at the mo - so although I want surgery to get rid of the ticking time bomb - I know I can\'t rush it until I have faced all the options and the demons that come with them.
Can I ask did you feel confident not wearing a prostectic? Or did you always wear them? And is it really difficult to get clothes to fit properly - I wonder how hard this may be?
I keep trying to work out whether people would stare at me if I was completely flat chested - or whether I would imagine them staring which is probably the most realistic one really. I also keep looking at other women\'s breasts - (which is a habit I need to stop - lol!!!! ) just to way up how I would look compared to everyone else.
I also realise that , like you, if I go for no reconstruction now it limits my options if I change my mind later on - so then the circus goes round again and Im back to square one!!!!!!!!
I know I\'ll get there in the end - and speaking to people like yourself really helps - so thank you for posting back - I really appreciate it!!!
Hi Orienne Hope you dont mind me posting back to you, but I too had preventative surgery 3 years ago, due to a strong history of breast cancer, I had a double mastectomy, and no reconstruction, which at the time felt right for me, as I just wanted to get rid of my \'ticking time bombs\' but after a while I found the prostectics to be hot and heavy, and 2 1/2 years later I decided to go for reconstruction, so in March this years, I had reconstruction, using becker implants, which are filled with saline, every couple of weeks. I am quite happy with the results, but looking back I wished that I had had reconstruction at the same time, as I would of been able I think to have had a different kind of reconstrution, but everyone is different, this year on holiday was the first time in 3 years that I have worn a bikini, and I must admit that I have felt a lot more confident, but you must do whatever is right for you, and only you can make the decision, which takes a lot of soul searching. I was not left with any dents, I was completely flat across my chest, and just have a scar going across, where my boob had been, I was not in any pain at all, and the relief was great and still is.
I hope you didnt mind me posting to you, and if I can help you in any way, please do not hesitate to ask.
Message for angelarob1 Hi Angela,
Hope you don\'t mind me contacting you - but I put a post out about not having reconstruction and Lisa1974 said you opted for no reconstruction.
I just wondered why you made that choice and how have you found it?
I am BRCA1 positive - and don\'t like the thought of implants and them being replaced every 10-15 years - more if things go wrong. I don\'t like the thought of taking muscles out of my back, and my surgeon said I was too small for any removal of fat from my hips and stomach (although I disagree!).
I just wonder if you are left with dents and that women with no reconstruction have to wear prosthesis or not?
I have spoken to my hospital to ask if anyone there has opted for no reconstruction - but they don\'t - so Im starting to think i am strange.
Would love to hear from you and your thoughts,