Hope you dont mind but theres a lady on here asking if anyone knows of nursing agency in Marbella .. my geography of Spain not great . But I thought of you straight away ...Im sure youre in Spain , forgive me if Iv got it wrong . Shes on the just diagnosed thread .
Glad to hear you sounding positive and in good spirits . Fab news that all is going well . Big hugs xxx
Just a correction to my post below. No fibrosis was taken, it was the fibroadoema that had previously been talked about removing.
The surgeon said before i went into theatre more surgery may be needed depending on the result. There are other ladies on the forum who had a quadrantectomy and i note one says they can move tissue around so i guess its just a waiting game (again!) to see what it looks like after the swellings gone down/healing and ofcourse the pathology results. But yes i think a re construction of some sort is possible if needed.
Im really glad to here you are getting some independence back, that will help you feel better im sure. Great that you love your new boob!
Im moving back to England this year so hoping this is all resolved by then.
First off glad you ok . However wow ..youve been throught a lot ! As you say so much more than you expected . I must admit Iv never heard of a quadrantectomy ..can they reconstruct that at all . ?
Im really not surprised youre emotional .. You do need to take time to recover and let hubby give you loads of TLC .
I appreciate you letting me know how you are I was actually thinking of you yesterday .
As for me I think Im doing pretty good now . Seven weeks post op .. Im driving again , managing to cook meals , light housework and pretty much independent again . Im bit cautious about lifting heavy objects and pushing hoover over carpets . I think Im nervous about doing too much as its a big op to take risks and mess anything up . So far my new boob looks fab ... skin around both suture lines has been very itchy and has drove me mad . But hey if that s all Iv got to complain about its not bad !
Be kind to yourself . Big hugs Steph xxxx
Hi Steph , Surgery went well on Wed.
Allocated my bed by 08:30 and taken down to radiology for 2 wire localisations done via digital mammogram and the other via ultrasound completed by mid morning with radiologist and then wheeled straight up to operating theatre floor to be prepared for surgery.
Discussions between the radiologist & surgeon prior to going into theatre resulted in the surgeon telling me he had decided to take a larger tissue area than he originally thought and after surgery he told my husband and friend he had to remove even more so i ended up with a quadrantectomy.
Was back on the surgical ward by about 3ish from recovery. Slick processes, excellent organisation, medical staff &porters. (Spanish NHS hospital.)Very impressed.
Im strapped up like a mummy!!! Which is very supportive. i have a drain and have to go to Drs every 2 days and hospital revision on Monday. Before i went into theatre the surgeon said 3-4 weeks for pathology results. Glad its out of the way and can get on with recovery. Wasnt expecting the bandaging or drain but i guess it was a bigger op than originally expected.
Feeling quite weak and was abit emotional this morning.
Looking forward to seeing surgeon to see why so much was taken. I understand he decided to take some fibrosis aswell as everything else which had never been talked about.. Im sure during the ultrasound aswell i heard the radiologist and other doctor present pointing out something they thought was an abscess and they zoomed in to take a photo. I didnt question it as id spent along time clamped in the mammogram more pain from the ultrasound one etc.
Time will tell i guess
How are you?
Iv been looking out for a post from you . Glad youve got your date and yes itll be good for you to get it out of the way . Good luck for next Wednesday xx
Im doing ok Im six weeks post op from mastectomy and recon . Results for me were very good no radio or chemo . So Im just concentrating on getting back on my feet and return to work as soon as I can .
Ill be looking out for your posts to see how youre getting on . Big hugs Steph xxx
so sorry to hear all what youre going through ..it really does sound that you would have been better with a mastectomy . If Id had to go through the same as you Id have been round the bend .. I think because of my personality I cope better with just get rid and get on ha .. might sound a bit drastic but thats me . I think the problem you have been faced with is that low grade DCIS is controversial whether to treat or not , and depending on the belief of your surgeon and policies within the hospital really does dictate your treatment options . I have already told you I was offered the trial to monitor or because mine was widespread over an area of 59mm it was too big an area to remove without me being disfigured . So I was asked what my thoughts were .. you know what my decision was ..and I was very glad that I didnt have anyone making further suggestions that would have confused me . It was my choice all the way , and I knew the risk of feeling Id been over treated and I have to be honest since Iv had the final histology it turns out that although the area was widespread I did only have 13mm of low grade DCIS ...Has this made me feel different NO it has not because it is only by taking the complete breast tissue that the final result can be 100% accurate ...and when I have read about the amount of excisions and shaves ladies like yourself have to endure and the mental stress that goes with it I feel I was really given the best option and Im feeling fine .
I had to have three lymph nodes removed before the mastectomy because apparently it is difficult to test them after a mastectomy ..and no I have not got any arm swelling . I have had immediate reconstruction and yes it was a diep from my stomach ...it is very tight and uncomfortable at present but it has only been since 5th Dec .. as its major abdominal surgery its similar recovery to that of a hysterectomy so it could be up to 3 months and for first 6 weeks no hoovering or lifting , driving ..not even changing your bed . So Im afraid it really is sit and do nothing . Im guessing that would be something very difficult for you with your son . The DCIS was all contained within the ducts so no radiotherapy or chemotherapy . My surgeon did discuss Tamoxifen with me but I have declined it ... we both agreed the side effects were so risky and because any problems in my left breast will be picked up in my yearly mammogram, also I have access to an email system they have which links me to the breast clinic 24/7 if I have any concerns . Im happy with that . I can lift my arm easily ...not quite at full range yet . I have my exercises to do.. must admit Iv been a bit lazy with them .. I do them but not the three times a day ... I will be now though ...New Year resolution lol . Im not surprised that you hit a low because we all want the light at the end of the tunnel . Please be assertive when you speak to your Consultants and say what you want .. it does sound though as next move could be mastectomy .. not sure what your boob looks like at present with the procedures youve had but even without mx you may need some form of reconstruction ..NHS are still funding this type of surgery . I now will be referred to some sort of Holistic therapy group in my area I believe very soon . Iv actually been treated outside my area because the surgeons in my local cancer hospital dont have any plastic surgeons only oncoplastic surgeons who only do recon with implant . Iv been very lucky with my Consultants I only wish you had . You can private message meif you can work it out . I will try and join you so you dont have to look for the threads .I must admit Iv wanted to see how some ladies are and had same problem . Try and hang in there honey Im here to talk to anytime . Iv been worried about a lady called Sudzi if you spot her on here please tell Iv been asking about her . Massive hugs for you ..and speak to me anytime . I frequently have a look on here late at night to see how the girlies are getting on . I dont like to say too much because I certainly havent had it tough like some of you .. but I am very interested and more than happy to chat . Take care Coralie and try and keep upbeat ... youve had some bad days but it doesnt mean its a bad life . More hugs xxxxx Steph
Wishing you a lovely Christmas . I hope youve got a break from your treatment and can enjoy it . Iv had good news as you may have read and Im very grateful . so Im looking to have a nice Christmas albeit I wont be doing much and thats a big change for me .
Hopeflly catch up soon .Best Wishes Big hugs Steph xxx
I hope you have a lovely Christmas and can put your surgery to the back of your mind . I know thats a tough challenge but I hope you can . It wont be long now for the surgery and hopefully youll get a good result . It goes without saying that Ill be looking to see how youre doing .
Theres not much else to say as youve read my other post to Coralie , but I wish you well . Enjoy the festivities and speak soon . Big hugs Steph xxx
Hi Ali and Poppyfields
Would you mind reading my reply to Coralie and youll be up to speed with me . I will speak later to you both Im just going to have something to eat and write some Christmas cards to my neighbours ha ..the joys of Christmas eh .
Thank you both for your thoughts and taking the time to write .. I do appreciate the support . Speak later ..hugs to you both xxx
Hi Coralie please dont worry about speaking . Just fire away its good to talk . First off a BIG THANK YOU for your thoughts .
Sorry that youve had a few upsetting liasons you really dont need nor deserve . I suppose its the reality of life that not everyone has the best communication skillls required for the jobs they do . Dont take it personal xx
Ok I have had low grade DCIS like yourself , it was sold to me that I had two choices participate in a trial to monitor and see . Low grade does not always move outside the ducts but there is no guarantee that it wont and in some cases it can become invasive over time . I had no sentinel node involvement . I was told I had 59mm of widespread DCIS . To remove it would mean Id be left with a disfigured breast ( because it wasnt in one area) so the alternative was mastectomy , which I came to that decision myself before I went back to speak to Consultant ..my mind said widepread is widespread and regardless of how much I said low grade and might or might not become invasive I ended up back to the same conclusion ....But its not normal tissue and that means something is not right ! Do I want to participate in a trial to see if it becomes invasive ..hell no ! I have the chance to prevent it spreading ...well take the chance !!! It was a no brainer for me .
I had my mastectomy on 5th Dec .. I will need my nipple construction at later date ( was offered nipple sparing but that made no sense to me as DCIS is in the ducts and to risk leaving nipple which could have cells in was pointless to me ... ) So at moment I just have a bit of skin in place of nipple till its sorted and I will also be having a mastoplexy to lift my other boob so its equal height of my reconstructed one . Obviously this will all be reassessed by my plastic surgeon in a few months time . But at present this in the plan .
Surgery went well for me , I did have a post op complication with a haematoma but it was all dealt with the next day , unfortunately it did mean a second trip to theatre but I was fast asleep , and staff were fab and I felt so safe and looked after . I was very weak for prob first 5 days but this doesnt happen for every woman . Im now 17 days post op ...Im managing my exercises ok , wounds are fine , still slowly pottering around . I am getting breathless but I did have low BP and low HB ..and two lots of anaesthetic so hey ...Iv got to be patient . I dont feel weepy but I have been incredibly lucky . I was picked up early and results yesterday showed there was only 13mm of malignant cells and these have now gone ...Do I feel there was overkill ....hell noooo . My DCIS was widespread there was no way of determining how much of it needed to be removed ( if it had been in the form of a lump it may have been different ) . I still have same mindset there was abnormalities in my breast and they needed to be gone !
I dont need any further treatment . We did discuss Tamoxifen but Im on yearly screening now so not a lot of point taking a med which could give me lousy side effects .. Im willing to take the risk and go without . So now its recovering after my surgery and staying positive .. I am so grateful I was picked up early and will be monitored for next five years .
As for the pain ... my breast has never bothered me I was on codeine and paracetamol in hospital , and still need a couple of paracetamol occasionally . In hospital I was also on a slow release anaeasthetic pump .. but thats instead of the PCA because hospital found women who have had DIEP reconstruction fair better with pain and recovery having the anaesthetic pump rather than the morphine pump . Because I had problems with the internal bleed I did have to have some oral morphine for a couple of days ..but as already said not everyone has complications . And the pain was in my tummy not breast . The important part was I was kept as painfree as possible.
I know Iv been incredibly lucky and I will do my best to follow all the stay healthy advice that I can because a scare is a scare . Not sure how long recovery time is .
Please speak to me anytime Coralie . Big hugs Steph xxx
Glad to hear you have a plan . I think your anxiety over anaesthetic is natural if you have not undergone one before . I think its the being out of your own control but you really will be looked after . And I think if you tell the anaesthetist how scared you are he/she will get you prepped and asleep as quickly as possible . You will only be aware of going into the anaesthetic room and the next will be when you are being woken up .
Cant really advise you what to ask as what is important for you to know may not be as important to me . If anything like the UK all risks and benefits will be highlighted to you . Just write down anything that you think you would like to know and ask .
Im home now after my mastectomy and recon , the staff who cared for me have been fab . I get my histology results next Wednesday so itll either be more treatment or just concentrate on recovering after my surgery .. Obviously I would not have chosen this journey but i cannot complain about the care that I have received it has been first class from everyone involved and I am very grateful .
Hope you have a lovely Christmas with your family and thank you for sharing your journey . Take care . Big hugs xxx