Thanks for all your replies ladies. I must admit how shocked I am, having spent a lot of time reading through posts on here, just how many women have been dismissed time after time or misdiagnosed before finally receiving a definitive diagnosis. It is scary to say the very least..
I almost think at times that the medical professionals are of the opinion that a lot of us women are melodramatic or 'wishing' ourselves ill. Which yes sounds ridiculous, but why else turn us away until sometimes it is too late?
The waiting game for my new appointment to come through is turning me into an obsessive post box checking freak!
If (fingers and toes crossed) the unwelcome visitor that has set up camp in my boob does transpire to be benign, I will have NO regrets about pushing for a removal. I don't care if I have a visable scar. All I care about is finding out for sure exactly what it is that is lurking. Once upon a time i'd have buried my head in the sand in the hope that the little blighter would jog-on.com by itself, but thanks to ladies like yourselves and the ever increasing press attention and awareness, I now understand that the sooner these things are discovered the better chance we have of fighting them.
I realise I digress - forgive me, i'm a Gemini and like to talk! However, I wanted you all to know that regardless of the outcome of my situation I have been truely educated by this forum and have, and will, endeavor to educate those around me, young and old, to ensure that they realise that ignorance is not always bliss.
hi jaimie i found a small lump in may 07 a biopsy came back clear, nothing showed up on a mammagram and the radiologist that did the ultrasound said it looked like a lymph gland it was only when i saw one of the senior surgeons in july 07 and he said that he would prefer to remove it ( my partner who was waiting for me heard the surgeon and the radiologist talking about me and the radiologist said to him she was sure it was only a lymph gland!!) thank god the surgeon wanted to be sure and removed it anyway because when we went back for the results in aug 07 i had a grade 3 tumour her2+ with no clear margins ( we were so shocked as was the surgeon ) i went back sept for another wle (which i chose over mastectomy) and node clearance (7/21 positive ) and have had 6 x chemo 25 rads and 18 x herceptin. i was 50yrs when diaganosed but i am shocked that so many young women are getting bc and that even now some docs are still not taking breast lumps seriously, but you did the right thing by "trying" to getting it checked out, ask to see a different surgeon or ask to be refered to another hospital, i hope you get the treatment you deserve and that everything turns out to be ok
GOOD LUCK.. MIZZY XXX
Jaimie, you are very persistent and clear thinking young lady and it sounds like you are up against arrogance and assumptions, same as Evie and Bethy. Fortunately you also seem to know intuitively when something isn't right and you follow through. Good luck to you!
Yes, I had an ultrasound and a mammogram. I think it was a cyst back then but, apparently, they can disguise a cancer.
Julia, did you have an ultrsound when you were misdiagnosed with a cyst?
The consultant wont do a biopsy in case he pierces my implants, he said I would have to have it removed but wasn't willing to do it...grrr.
good on you I think you have been treated very badly and the doctor should have done a biopsy there and then time is everything so make sure you go back and demand a biopsy zelah 52
you often read here as well about people who have a cyst or fibroid removed and a tumour was underneath... which was presumably causing them to "grow" but biopsys were coming back as benign...:(
I am 32 and went back to my gp 3 times over nine months with my lump. they were sure it was hormonal as i had just had a baby and i was eventually refered to the clinic. when it had grown to the size of a satsuma. The consultant said 99% its a benign fibroid. It wasnt. He was gutted when he told me and so was i seeing as i had come alone to the follow up appt as he was so certain it was nothing. I had a 2cm grade 3 tumour and i have finished chemo and started rads now.
Dont let anyone say you dont fit the profile. Sometimes you dont and look what happened to me! Its a good job i persisted with my gp as i could be in a very different place now.
Thanks for getting back to me.
They won't do the biopsy as the lump is too close to my implant and they are scared of piercing it. The consultant said that the only way is to remove it but he wouldn't agree to do it 😞
Did you have an ultrasound when they diagnosed you with a cyst?
I would advise anyone to have ANY lump removed. For 2 years I visited a Breast consultant surgeon and had mammograms & ultrasounds and was continually told I had a fibrodenoma... I then moved house and went to a new hospital and surgeon... the said fibrodenoma was then removed ... I had invasive lobular BC and sadly it had spread to my lymph nodes.You can imagine the shock and devastation we all felt...
Don't settle for fob offs!!
What a nightmare! I'm older than you (42) but was told I had a cyst last year. It grew and I was diagnosed in Sept with cancer. You are young but, after my experience, I would advise everyone to have any lumps and bumps investigated. They can take a biopsy, which wont require the lump being removed and should give you a diagnosis.
Firstly I apologise as this may be a long post...
I am 24 years old, and about 5 weeks ago discovered a hard, immobile lump in the bottom half of my right breast. I was pretty alarmed as i've always wondered how people discover lumps etc, but there was no mistaking this. As I had breast implants 12 months ago I am pretty sure it hasn't been there for too long. Up until July of this year I regularly massaged my breasts with bio oil to help scarring.
I went to my GP the next day who immediately located the lump (without direction) and given that my maternal grandmother had BC in her 30's, referred my for an urgent appointment at the breast clinic.
The first thing the consultant asked me was 'what can I do for you?', which I thought was pretty bloody obvious given where I was! I explained about the lump, and advised him that it had gotten slightly larger in the 10 days since I had discovered it. He (very briefly) examined me, and concluded that it was 'probably' a fibrodomena as it is hard and doesn't move. I then had an ultrasound where the radiologist said he didn't think it was a fibrodomena as it didn't have the right charachteristics, so it must be a cyst. It measured 11.5mm. Back to the consultant who diagnosed me with a cyst. As you can imagine I was slightly put out at his rapid change of diagnosis. He said usually they would do a biopsy to make sure but because the 'cyst; is too close to my implant they were unwilling to do it. I then said I want it removing, to which he told me that I should just leave it because I will end up with a big scar. I told him I didn't care about a scar I just wanted to be sure. I then said well what if it grows? He said in 30 years he had never seen a cyst in a breast grow...despite me telling him before I was examined that it had already grown!
I feel they were both very dismissive of me due to my age, and felt like he had already diagnosed me ad a 'time waster' when I walked into the room before they even looked at me. Of course me challenging both of their conclusions didn't go down particularly well either and I was more of less ushered out.
I felt a million times worse after the appointment than I had before I went in. I burst into floods of tears and the nurse came out after me and asked me what was the matter. She tried to reassure me that the consultant was one of the best in the country. I thought, well if he is so fantastic why is he so afraid of doing the biopsy??
I decided to go and see the surgeon that did my breast implants. He was fantastic. He spent a good 20 minutes examining my breast, manipulating the lump, squeezing etc. He was 99% certain that it is NOT a cyst, as cysts are fluid filled and this is too dense, also that it is clearly attached to tissue as it will not move. He said that the likelihood, given my age, is that it is benign, but agreed that the only way to be certain is to have the lump removed and sent to a pathologist. He said he would be more than happy to do this however as he is from Italy and only comes over to work privately at the cosmetic clinics I will have to pay, so advised me to go back to my GP and try to push it through the NHS first.
I called my surgery and spoke to a different GP explaining the situation. He was very nice and has re-referred me to the breast clinic to a specific consultant so that I don't have to see the first guy again. So now I am just waiting for a letter from the Hospital about a new appointment.
I know and appreciate that I have been extremely lucky that not one but two GP's have been so supportive. However I am left feeling very frustrated that the professionals I really need to help me are making this so hard. Yes I am young but BC does not discriminate. I know it is unlikely I have this awful disease but is it too much to ask to be sure? I don't want 'probablys' and 'likelies', I want conclusive evidence that I am not in the minority of the extremely unfortunate population of under 50's that this does affect.
I feel let down that my implants were used as an excuse not to treat me as he himself said I should have been. Yes it was a cosmetic procedure, but I actually had tuberous breasts (albeit not a lot of them!) which is a medical deformity. I could have had the operation on the NHS but chose to pay privately as I did not want valuable NHS £'s spent on something that did not affect my every day life. But why should I have to explain myself to him?
So sorry for thr long post and long rant, I guess it's just difficult as friends/family just don't understand how much the worry about something like this consumes you.
Am I overreacting? Am I right to persue this? Has anyone else out there experienced misdiagnosis after ultrasound?
Any advise would be much appreciated.
Many thanks for reading and wishing you all well,