Hi everyone. I got my results yesterday. I wanted to see my consultant who did the operation, Petrious, and asked for him. There for couple of hours so asked where I was on the list. Suddenly the nurse comes out and asks if it was possible to see another consultant as Petrious didn't have access to the masectomy list?????so I figured I'm gonna get the dreaded news about masectomy. I went in for the operation thinking I needed 2 clear margins as east and west were supposed to be clear but the results were that Low DCIS and some intermediate DCIS has been found. I'm gutted because my scar is so neat, shape fine and I've completely healed. I'm being refered to St Thomas now as they have plastic surgeons for microsurgery for reconstruction. I feel a bit negative having to have gone through 3 operation so to still resuly in a masectomy. My gut in sting was a masectomy. I'd like to hear from everyone who has had a reconstruction and find out about their experiences thanks x
Hi princesses can i ask, what sort of reconstruction did you have and did you have any complications? I feel I've got to have a plan b incase Monday results are not clear. I've a friend whose had the muscle from the back pulled through 10 years ago and if hearing about DIEP. Wonder about all the options. I'm at guys. Hope things going well for you nowx
Hi princesses what sort of reconstruction did you have and did you have any complications? I feel I've got to have a plan b incase Monday results are not clear. I've a friend whose had the muscle from the back pulled through 10 years ago and if hearing about DIEP. Wonder about all the options. I'm at guys. Hope things going well for you nowx
Hiya yes I'm waiting for results after cavity shave and can't sleep like last time. The worry is recovery time whether it's radiotherapy or masectomy due to my son who is very dependent on me. How are you feeling from the completion of radiotherapy. My results are Monday. .
Hi I hope your all feeling better. I had my WLE yesterday following a microdochectomy for bleeding nipple. I must admit the pain from microdochectomy was worse than how it is today? they took away the nipple so maybe that's where the main pain is felt. my right breast looks flat in the middle and was told it would be even smaller after 2 weeks radiotherapy. I have been reading about some ladies getting more pain after a couple of weeks. why is this? how long after can you have your nipple tattoo?
How are you? Hope you are healing well, have you got a date for your radiotherapy to start?
I start chemotherapy tomorrow, so there's been a lot of organising to try and prepare as much as I can before it all gets going.
I'm still feeling quite calm about it all, though obviously very nervous about how bad the side effects are going to be for me. The range of what can happen is very broad and no one can tell how anyone is going to react so I'm trying not to think about it too much and just wait and see.
I went wig shopping at the weekend which was very funny, Who knew there were so many options !! I've got one that's pretty similar to my own style but just a shade darker, more like my natural colour actually because I usually dye mine. There's a chance I won't need it as I'm cold capping, but better to be safe than sorry 🙂
How are you feeling about your radiotherapy? I'm keeping my fingers crossed that it won't be too bad for you.
Are you managing to get any Christmas preparations done amongst all this btw? I sometimes find it hard to think that real lie is going on at the same time that we're trying to deal with all this.
After a lot of soul searching and a lot of research I'm 99% certain that I'm going to go ahead with the chemo.
Triple Negative is already more likely to come back than most other types of BC and I just couldn't stop the what ifs going round and round in my head.
Since making the decision at the weekend I've felt calmer and have actually been able to sleep!
How are you doing by the way? Have you healed from your surgery now?
I'm ok thanks - still very undecided about chemo though.
On one hand my cancer was tiny 4mm, was completely enclosed withing 15mm of DCIS and I had a 7mm clear margin. My lymph nodes were clear and the chances of it having spread any other way is very very slim.
On the other hand, it's triple negative. There are no targeted thereapies (so nothing like Tamoxifen) available to me so the only way to treat it is surgery, chemotherapy and radiotherapy.
The ladies on the triple negative part of the forum all think it's worth going through chemotherapy just to be sure, but after a lot of research the toxicity of chemo is massive and the potential benefit to me is only 4%.
My BCN has been very candid and said that she didn't think it was worth it in my particular situation, and even the Oncologist said for her it was too close to call and they couldn't recommend me having it, so it was down to how I felt.
My sensible head is telling me the answer should be no, and just go with radiotherapy - the small frightened little girl on the inside is sayng, shouldn't I throw everything at it ??
Sorry I didn't make much sense. I already have an 84% chance of this never coming back. Chemo would add another 4% to that and then radiotherapy will add another 3/4% as well.
So my results were good, no cancer in the lymph nodes which was a relief.
I saw oncology today though to discuss next steps and it's not quite cut and dried. Apparently having chemo would add 4% to my already high chances of this not coming back. I asked the oncologist if she was recommeding me to have chemmo and she wouldn't do it, she was saying it was too close to call and that it was completely my decision. But that I could also reasonably choose not to have it and just have radiotherapy if that's what I wanted.
I've got time to think before I have to make a final decision, but I'm really confused which way to go now.
Hi Ali, pleased to hear that you are recovering well. When do you get the results? I had my WLE last Thursday but have to wait until 22nd for the results. Recovering well but hate the look of my breast, the dressing comes off tomorrow so I imagine it will look even worse then. `I know I should be grateful that it was "only" DCIS and hopefully it's all been removed but feeling pretty down just now.
And to Crystal, good luck with your results too.
How are you doing? Hope you're healing well after your op.
Am keeping my fingers crossed that your results will be good and that you will have clear margins.
Let me know how you're getting on 🙂
Really appreciate your positive thoughts.
So results today were good. There were no cells at all in my lymph nodes which is obviously great news.
Next is to see Oncology to talk about what treatment comes next - apparently there might be a small chance I won't need chemo, which would be great, but I'll have to wait and see.
Have you had an appointment with Oncology yet?
I'm really glad your surgery went well. I'll also keep my fingers crossed for you that you don't need any more surgery. When do you get your results?
I'm just trying to keep myself as busy as possible to try not to think about it. My results are on Tuesday though so I'm expecting to be fairly stressed for the next couple of days.
Hopefully though they won't be too bad (even if there are cells in the nodes, I'm hoping that it's not many) and I can get on with seeing oncology and starting the chemo. I'm really not looking forward to it, but the sooner I start it the sooner it will be over!).
Hope you're still taking care of yourself and resting as much as you can.