Just wanted to say that your request for a section for older women has been noted. As we're in the middle of refreshing the website (a test version of the refreshed site will be ready for you to try out soon) we can't make any structural changes at the moment, otherwise the two versions won't match up.
But we'll definitely bear it in mind once the refreshed site is live, early in the New Year.
I hope this won't be too much of an inconvenience until then.
with best wishes
A section for us more mature women would be good - then we could separate out the various issues.
I suspect the natural cut off point is being post menopausal as this affects so many things like drug choices, bones, etc. Only thing is that some of the younger women - especially the older younger women - are post menopausal as a result of chemo or surgery. Their issues overlap but are a bit different from those for us.
Celia - 68 is the new 48!
Topsymo I will be 68 at christmas and its not really ancient is it?
or am I kidding my self,
Hi Horace and Scottish Lass
There seem to be a lot of people in their 50s who have joined this thread but only a small handful of us who were born during WW2!
Mary- (68-how ancient is that?!)
Hi folks. I am 64 and was diagnosed in mid October with 17mm IDC in my left breast and an 11mm invasive lobular in my right. I was told both could be treated with wire led wide excision and sentinel node biopsy but I toyed very seriously with double mastectomy. I was persuaded to go for the lumpectomy since I was informed that the outcome is the same as mastectomy and the fact that I had different cancers in each breast was coincidental. I admit to being relieved that I would keep the boobs.
I had the op on 16th Nov and returned on 1st Dec for the results. I was relieved to hear that the nodes were clear but rather stunned to hear that two more tumours had been found in the left breast and that the one in the right was 22mm instead of 11mm. The tumours are a mixture of grade 1 and 2. Additionally other tissue had precancerous cells and I was strongly advised to have bilateral mastectomy. So I go to the Western General in Edinburgh on 14th Dec for the op.
I am now a bit concerned that there will be further “surprises” but realise that there is not a lot I can do about any of it and I think I will be relieved when the boobs are gone along with the cancers in them But my emotions are all over the place.
This thread has been very helpful with the variety of situations that have been described. Maybe my diagnosis will strike a chord with someone else now or in the future.
The hardest thing throughout has been the waiting and there is still a way to go there.
Hello everyone. Managed to get to my rads today after missing Fri it's nice to be back on track again. Also saw oncologist for a treatment review but not much to say as I had only had two sessions-three now. It is early days for any possible side effects. Good luck with rads planning session tomorrow Wendy.
Should we have a lowest age then? what would it be? Val (SL) X
Hi everyone-I wonder if BCC would give us our own forum like the 'Younger Women' one but for 'Older Women'.
Topseymo you are not alone-I am 66-I think too few of our generation use the internet.If anyone is reading this on behalf of a mother or aunt with bc do try to get them here themselves.
Thanks for the advice, Wendy. I've been tucking ordinary cushions under my arm at night and part of the day, so I'll look for the heart-shaped cushion pattern. I hope it's slowing down now, but I thought that last week too.
Don't you wish there were tops with no underarm seams to rub?
I'm 57 and was given the choice of continuing with tamoxifen for 5 years or to have chemo (one lymph node affected after mx).
I decided to have the chemo in case any nasties had escaped.
I found the choice very difficult to make but I would kick myself if it came back again and I hadn't used every weapon in the armoury available to stamp on it and try to totally destroy it.
I've only had one chemo so far and that wasn't nearly as bad as I had expected. Only 5 to go!
The Oncologist showed me the stats and I could choose. Chemo and Tamoxifen had the same tiny benefit but chose to have Tamoxifen (I'm 54 and post menopausal too) but not the chemo. I decided this as I can easily stop it if I have bad side effects but it will protect me from oesteoporosis which I have a huge family history of.
Good to hear all the comments from us older women. I am 55 and was diagnosed with BC (DCIS)in September. However results showed that cancer had spread outwith the duct (hormone related cancer this time) so had another op to remove more healthy cells and 1 lymph node. Cancer found in the lymph node so another op to remove all lymph nodes (right side). Treatment started and I was told I needed Radiotherapy and hormone drugs for 5 years (not tamoxifen because I'm post menopausal but equivalent). I was told it was up to me whether I had chemo as it would only add a small benefit to my 10 year life expectancy. Has anyone else had this option and what did you decide to do? I decided not to have the chemo. Would be interested in your thoughts.
Ragamuffin - there are a group of us who are/were being treated at the Royal Marsden Sutton branch. I suggest you post a separate NEW post to appeal for fellow Marsdenites.
My chemo went over the christmas period but I was given a phone number to call with any problems, they shouldn't leave you out on a limb especially as it will be your first one.
Thank you Mary for your input - I am reconciled to Chemo now but very nervous - I am worried about starting before christmas and having no back up in the holiday period but I guess there will be someone on call.
If anyone would like a good read google Radio Cumbria and read the diary of one of the presenters (Val Armstrong) who is going through treatment at the moment.She is very down to earth and no nonsence and her diary is good to read. I find it very helpful as I am being treated at the same hospital but I think anyone would find it interesting and helpful
Beat wishes everyone
Hi Golden Girls
Is anybody else being treated at the Marsden in London? I am being admitted on Friday and just wondered if anyone could give me the rundown on their ways of doing things. I've had it from the pre-op assessment RN but first hand experience would be good to have as well. Thanks Diana
Hi again Janet - have just realised that you were the instigator of this thread
Judging by the number of comments it was much needed and is proving very popular. My only caveat is that it now seems to be largely for 'younger' post menopausal women.
I think we 60 pluses are definitely in the minority once again!
Hi Wendy I live in Hunstanton.
Responding to you Jaybee46 -your post seems to have been in danger of being submerged- which can be a depressing experience.....) This thread is really getting very full......
Yes, I am pretty sure you will be advised to have chemotherapy: I had WLE & SNB which showed the sentinel node was affected. Level 3 clearance followed but although the spread was only to that one node, I was recommended to have 3 FEC and 3 Tax. It wasn't a bundle of laughs but though the experience was intense, it was also quite short-lived ( Sept to early Dec in my case) and then 15 rads after Christmas before going on to Arimidex.
I think your onc will go thro your path results with you and give you chance to ask questions- mine gave me 45mins of his time which I needed at that point - having previously decided that I would take my chances and not accept chemotherapy......but his stats changed my mind!
Good luck with your app. on Thursday, Janet
Another Norfolk person, I thought I was the only one 🙂
I live in Eaton,Norwich. How about you?
Hi Wendy I was given the heart shaped cushion too and used it a lot found it hard to sleep without it at first. Do you live in Norfolk? I do.
Hi Cheryl. I was given a little heart shaped cushion and it really helped me sleep as it supported the weight off my arm without pressing on the boob (I walked around with it all day!) It was great for the seroma and the post surgery both times (I had DCIS first time and then IDC the second time. Don't know where you live but the Norfolk quilters association make them free for the local hospital. They do have the pattern on their site if you know anyone who could sew or look for a heart shaped cushion. My sympathies are with you though, Wendy xxx
Hi Golden Girls
Just got back to London after being away for two and a half weeks and "off line". Have just caught up by reading from page 8 to page 17.
Wow -what alot has happened and several new posters as well. Sorry to hear about all the problems but pleased to hear of all the positive progress. My "fun" will begin on Friday (10th Dec) WLE and ANC. Thanks for all the posts which have helped me prepare.
I have not posted for some time but have been reading the posts to see how everyone was getting on.
I had a ANC 3 weeks ago and was told that only the scentinel node was affected which is a little bit of good news. I have just got an appoitment to see the oncologist next Thursday and I was wondering if anyone could tell me what happens at this appointment.I am expecting Chemotherapy. I know every consultation will be different but I would like to hear of other ladies experience
Love to everyone
Thanks, Eileen. You do feel obliged to be a little more cheerful and positive than you really are, sometimes, don't you? However bad the news is, I just want to know! Then I can start to deal with it.
Cheers to all,
Sorry to hear your BC has returned Cheryl can't help with seroma but hopefully someone else will. We can't always feel positive and I sometimes think a good cry helps us to deal with everything. Some days everything gets too muc but we all seem to cope somehow. This site is great for letting off steam as we are all in the same boat dealing with the same problem and we know that people understand exactly how we are feeling and that is very comforting as family and friends worry when we get upset. Feel free to come on and 'ramble' as often as you like
Thinking of you Eileen xx
Hello, ladies, this is definitely my group, and I've read some stories very like mine. I'm 62 and had a DCIS two years ago, treated with WLE and rads--not too bad once I got over the shock, and as the op was just before the start of the school year, I worked (Adult Ed) half way through the rads and only took about 2 1/2 weeks off, though I probably should have given myself another week or so.
So this year I had the first mammogram as part of the 'routine' check up and the news seemed to get worse and worse--perhaps another DCIS; no, it was ductal but invasive but very small and no sign in the lymph glands; after the WLE a few cells were discovered in one lymph node. At least the results stopped getting worse with the clearance, as the rest are clear, but I've had a pretty bad seroma and along with the good news, I've had news that I definitely will have chemo. I find out what and when next week.
Does anyone have any good ideas about minimising the discomfort of seroma? I am also hypersensitive under my arm--great in this cold weather, huh?--and have been trying to find a way to pad my armpit or the seams of my clothes to reduce the rubbing. (The BCNs have been draining the seroma every few days, bless them, and I'm fortunate in living fairly close to the hospital.)
The OH has been supportive although it's taken him a while to realise or perhaps to admit to himself that this is a little more serious than the last one. The kids are grown and scattered, though I hope to see 2 of the 3 for a few days over Christmas.
I try to be cheerful and positive, and to count my blessings, but it isn't always easy. I could do with a weepy film and a good blub, I think. I also need to know whether to try to go back to work, whether to extend my sick leave, or whether to take the rest of the year off, and not knowing adds to the stress.
I don't half ramble on, do I? Cheers!
Thanks to all for their kind thoughts I don't know why I got so worked up about it. It's not the end of the world just another stressful moment of which there seem to be a lot lately. I don't know about a cuppa Lavender lassie methinks I need a stiff drink and def plan to have one a bit later and maybe I will get a decent nights sleep! Good luck to all others struggling to get to their appts today
Really sorry to hear about the rads Eileen. It's tough when you pysch yourself up and things change. I am starting mine on the 20th and so will be having several breaks because of Christmas bank holidays. I am looking at it as an extra day for my body to recover. I have to go in Christmas Eve so I am hoping for sherry and mincepies!
That is a real shame, if the transport took so long on your arranged days, how much longer would it take on public transport, especially given the weather? No need to answer that.
Have a hug. Or two. And a cuppa tea?
With all that travelling time in your first week, no wonder you feel down, you must be exhausted. Definitely better to conserve some energy, and they should still be able to get it done before Christmas.
At the mo, not sure if I hate snow more or chemo or cancer.Trying to find a positive, I have thought of one. I am not being exposed to endless canned Christmas music in the supermarkets.
Smiley don't worry too much about missing a rads appointment. Mine was done over a bank holiday and they happily missed out the monday giving a 3 day weekend. Then the machine broke down causing another misssed day and one was added on at the end. although they say it has to be done everyday I think that is the ideal,but a slight variation is OK.
Hospital just phoned me to say my transport is not coming and can I get there under my own steam. He has had an accident in the snowy conditions-do they really think I can manage! She said may be public transport-it is an hour to the train station then I have to get a bus when I reach Cambridge. Then of course I have to get home again!!
Already have barely slept for a week worrying about getting there with weather etc I daren't try to drive it is so icy here. So she said leave it for today and they will add one on at the end however if conditions don't improve I will need to find some way of getting there next week. I feel really pathetic now and can't stop crying I feel such a wimp!
Im sorry you had such a nightmare time today and hope it will be better for you tomorrow - I was so shocked I was so quick - I fully expected to be gone the best part of the day -thats why I had to post !!!!!!!!!!!!!!!!!!!
Hope theres not any more snow tonight and we can get tomorrow -Roll on the 16th for me . ( trouble is any I miss will be added on the end -so its worth making an effort to get there)
Good luck tomorrow everybody .
Wish I could say the same fluffycat I was out for seven hours today after eight hours yesterday.There were delays at hosp as well as slow journeys. Never mind I suppose it is in a good cause roll on 21st Dec (Last day of rads)
W eve had our first snow last night about 5" .
Daughter and grandaughter came around about 9 and cleared drive and put salt down at top of our very quiet culdesac (very steep and wriggly )on to main road
We then had phone call from rad nurse "could we come in 2 hours earlier as they had cancellations "
Got there early -had rads early -main roads clear -very little traffic -1 hour 10 mins door to door !!!!!!!!!!!!!! Record !!! usaully 3-4 hours !!!!!!!
Hi ladies Do I qualifiy for this thread? I'm 55 but not post menopausal!
I've just had a second year mammogram and all clear. I had a lumpectomy with no lymph node involvement 2 years ago and rads but no chemo. Declained Tamoxifen as I have fibroids and didn't want further surgery etc etc.
Feeling very well now although had tiredness for about 18 months...blame the rads for that
Love the thread
Hi hope I can join in here, am 54 had left mx & and 13 days ago, 2 of 14 glands affected. I got the onc appt today for next week, quite nervous about that one, didn't even ask surgeon if pos/neg stage or anything, know it's IDC was 28mm but with lagre margins so pleased I opted for mx.
I'm having real trouble with pain in the inside top of affected side, saw district nurse & GP today and have some amitryptaline to try, hope it works!. Was concerned I had seroma but medics think just swelling, I now have pretty black,blue,yellowvand green boob let. I'm finding it really strange that the bruising doesn't hurt but the "normal" bit does!
I'm divorced have 3 kids in their 20's 1 daughter who lives with me and 3 boys out in the wide world, well the furthest away is 2 miles. I'm quite worried about not being able to " do" for everyone, think I'm a control freak really.
I also have a lone mother 3 hrs drive away, and am an only child so end up with stuff there, really I'm terrified and don't have anyone to share with mostly my own fault I expect, thanks for letting me rant, no doubt will make me feel better.
Managed to get to my first rads today in spite of the weather however five and a half hours travelling- it will be a long 3 weeks. Treatment itself no probs only ten mins or so, they said side effects don't usually start until later in the course of treatment. I also asked how long my boob will stay blue and was told it may be like that for ever what with that and the tattoos I feel a bit like a circus freak!!
Hope everyone else is able to get to appts etc okay
Hi gals, well managed to get through the snow for chemo today - and they gave me lunch!! Feeling a bit weird just now but am just going to take it easy for next few days. Hope you're all ok.
I'm trying to shelve thoughts of TAX until the day arrives - have third FEC tomorrow to get over first anyway. I was quite good at that whilst waiting for tests and results in the early days. I found the thought would pop into my mind and I'd think "no need to think about that yet, enjoy today".
I'm going to make sure I'm with strong pain killers etc anyway as I've realised GP surgery will be closed Sat 25th to Tues 28th after TAX on 23rd - not a reassuring thought.
Hope the snow isn't preventing anyone getting to appointments, chemo rads.
I hope this snow doesn't last much longer. My OH cleared the snow off the drive on Sunday and now it's several inches thick again. I normally do some of the snow clearing so I can get the car out easily, but the SE of Femara mean that I don't have the energy. He wouldn't even let me help.
My son was off today as he couldn't get to uni, so we went out to clear a path, he did the shoveling and I did a bit of sweeping and spinkling salt. It's all covered again, but at least it's not deep.
It's frustrating not being able to do more and having to rely on others. Normally I would have gone and helped my parents clear their snow, but I can't now.
I'm hoping it's cleared enough to get my car out by Friday as I have a hospital appointment.
I really feel for those of you undergoing radiotherapy at the moment and having to struggle to get in for treatment. At least I can sit tight for a couple of days as anything planned before Friday can be cancelled/rearranged.
At least I don't have to worry about getting to work.
Stella try not to assume that the tax will be awful. I had 4 AC and 4 tax and to be honest I found the AC the harder of the two. Tax was not pleasant but I had been told some real horror stories and it wasn't as bad as I expected. Good idea to have Christmas early though
I think I'll start a sticker chart - it 's a good idea. I'm having 3FEC, followed by 3TAX. Should have had third FEC on 25th Nov, but postponed a week due to low WBC. This means that first TAX will be on 23rd December, so we are having our family Christmas the Sunday before.
Not looking forward to the TAX.
Best wishes everyone. Stella
Well, I don't mind being childish if it helps!
What a good idea to have a chart. I think I'll do a rads one. Would really like stickers too but perhaps that it too childish!
Hi Lavender Lassie, I'm in Caithness. We've certainly had our fair share of the white stuff this year. June was the first month of 2010 when we didn't have any snow at all!! Good job we're tough old boots up here 🙂
I know what you mean about the "3-week rule". My last one is on 22 December but it takes me nearly a week to recover so Christmas will be a little later this year. Going down to Raigmore Hospital on 3 January for radiotherapy assessment then hopefully crack on with the last leg.
Never thought I'd say this but I'm quite looking forward to going back to work - then looking forward to retirement 🙂
All Good wishes
And crossing fingers for you re the snow
Whereabouts are you?
Oh dear, Javelin, sympathies re that, such a pain to have any extra treatment.
But you are getting near the end of chemo. People are funny how they calculate where one is in treatment, as far as I am concerned the chemo is not over till I have done the 3 weeks after the session, but I do have a chart on the laptop to mark off the days.
Just an update - now have DVT in my arm and on daily Clexane jabs. This has worried me more than the cancer. They reckon I'll be on anticoagulant for 3-6 months. Oh well - 5th chemo on Wednesday, if I can get through the snow 🙂
I too have a long trip for rads 3-4 hrs round trip but fortunately I am having transport although it makes the journey even longer due to pickups it will be less stressful! After the rads I just have to continue with the tamoxifen for 2 years then onto arimidex for three at least thats what I think I was told! You wait so long at these appts and then it is over in a flash and you get home thinking what did they say? I have two sons and five grandchildren.