I had a bone scan on Thursday and it would have been nice if someone had bothered to tell me the results but I don’t suppose it really matters at the moment one less thing to worry about.
I’m not usually such a grumpy old woman, think I’m just getting a wee bit nervous as the only time I’ve ever been in hospital was childbirth and as most of you know that pain is worth it and soon forgotten or we would all be one child families.
Ah well going to pack my bag as I have to be at the hospital at 7.30 (‘silly o’clock’ my daughter says) and I hope to be out the following day.
Well ladies it’s dancing round the handbags time to join in with Gloria Gaynor singing ‘I Will Survive’
Thank you all for listening to me.
I have now got the date for my planning session - next week on May 2nd and the rads start on 15/5.
Lemondrop, sorry to hear that you have also suffered with an ovarian tumour. I also take my arimidex at bed time and hope that this means that if there are any nasty SEs I am blissfully unaware of them! My husband and I laugh about the hot flushes - he says it is kind of the NHS to reduce our heating bills!
Maver, so sorry to hear that your treatment plan has been turned on its head but hopefully things will be clearer after the MX. I am thinking of you.
Hello again everyone, ch280 my situation sounds very similar to yours. I am having my 12th rad today so I can see the light at the end of the tunnel. I have not had any sweats etc. with Arimidex but I did not during the menopause either.I also had a laperotomy just over 5 years ago following ovarian tumour so had a total hysterectomy then and did not have any sweats after that either. I am expecting them this time though! Do you take your Arimidex at night? I find I sleep through most of the side-effects this way. Hope you all have a good day. Are any of you in the Birmingham Q.e. for your rads? Thinking about you all. xxPam.
Hello Everyone, I am as you put it one of the more muture! I'm 64 nearly 65. live in Essex, Recently had a lumpectomy, Nodes were clear, was supposed to have one of the hormone theapy's after, then RADS, But am having a MX middle of May instead as they think they didn't get it all, Surgeon said prob wont need RADS after, other treatments so far has not been mentioned, so not sure what to expect now as my treatment plan has been turned on its head. I have 4 Granchildren ages from 1 to 11 Lovely to meet you all Maver
It is good to see a thread specifically for those of us who are 'more mature'. (I'm 60). I was diagnosed in March, had WLE and SNB on March 20 which fortunately was clear so no need for chemo. I also have been prescribed Arimidex and so far have not had any bad SE- just a few hot flushes, in the evenings mostly, so not bad at all. I am hoping that when I see my GP for a repeat prescription he will agree to keeping me on Arimidex, rather than changing to a generic as I really don't want to have any other SE.
Due to start 3 weeks of rads soon though I haven't got the date for that as yet. Saw the oncologist last week so am expecting my appointment for the planning session soon. Don't really know what to expect from the rads but will be pleased to get it done. It is certainly good to have the support of so many - knowing that you are not alone with your BC is really helpful ~( though it is a shame that it gets so many us!)
Love the '23' with 40 years life experience. Will also use that one as I'm similar age!
Just wondered if any of you ladies are on Tamoxifen and what SE if any you are getting? I had WLE and SNB last year,fortunately clear but because of high grade of tumour had to have chemo and rads. I was originally put on Arimidex but because of low bone density was changed to Tamoxifen with Ad/Cal and Alendronic Acid. I have lots of hot flushes and also a very dry throat.
Have a good day.
Just saw your post about self-funding of Arimidex, I am assuming that you are only being offered generics. I posted on another topic about generic drugs which I have cut and pasted below
"I went to see my Onc on Wed and the subject of generic drugs came up( I am on Letrozole).
He said that a number of his patients are having problems with generic versions and had had a letter from a GP asking him why they had to prescribe Femara and not the cheaper version. He said that if it was purely down to cost he would agree as the NHS needs to save money but where the patients are experiencing severe side effects on these drugs that they did not experience on Femara and it is affecting the quality of their lives they should be offered the expensive drug. Sensible approach I think"
He was quite determined that we should not have to put up with the increased side effects and knowing my Onc he won't let it go.
Good Moring Everyone, Lavender Lassie, sorry for the confusion, sadly I have not yet sorted my Arimidex, I am self-funding the second month whilst doing battle with the P.C.T. Kit20 I do not envy you a journey on 3 buses each time. Hello to GrannyC, Araminta9 and Loula it is nice to meet you all. xx Pam P.S. Hope I have got everyone's name and number right.
Hello everyone and welcome to the newcomers.
Grannyc - I agree that you should have been told the purpose of the rads meeting, sounds like sheer thoughtlessness on someone's part, so moan away, you've every right to!
Lemondrop - I liked the 23 with 40 years experience of being 23, I'll remember that one for future use!
another one here - I'm just short of 60 and was diagnosed lsat April with lobular cancer in one breast. Had a WLE and SNB and happily the nodes were clear, so 3 weeks of radiotherapy and now Femara for five years and everything crossed. I've just had my first mammogram post-treatment and it was clear. Nice to meet you ladies
Hiya I went into menopause at 36 and was on hrt for 17 years. I really wish now that I had just suffered the hot flushes then as I have them now anyhow. Still I was diagnosed in december and have had surgery, am nearly finished RADS and am on femara for 5 years. BC is no fun at any age and every age group has differnt problems to contend with. My main one has been that I cannot drive because of bad eyesight and have to get three buses to the hospital each day. It does make you appreciate living though and the support of loved ones.
Hallo Pam and welcome-apart from confusing my ageing brain with sums re your age!
Glad that the battles for Arimidex were successful and wishing you well as you go
(slightly worried I have pressed the wrong button as didnt post first time)
Hello Everyone, would you mind if I join you too? I already post on the "starting rads in april" thread but it is nice to find one for us mature ladies. I am 23 with 40 years experience of being 23. Just over half way through my rads and all going well. WLE in early March, clear lymph nodes, didn't need chemo so I know I am very lucky. I started Arimidex a month ago and it has not been too bad so far, apart from battles with my G.P. and P.C.T. over whether they will supply it. It is nice to have contact with others in this way and if I can support anyone else than I would be glad to. Thanks for listening Pam.
How lovely to receive your reply. I feel part of the "family" already. No I will not need chemo first which is great. Your comments on tiredness are really encouraging . Funny how we tend to listen to negative things when we are worried. So I will now wait and see how it goes.
I have been trying to work out the abbreviations for myself. You can tell me If I have got them wrong.
dx- diagnosis. rads - radiotherapy. Bone mets - metasteses. SE - side effects. MX - mastectomy.
I had a frustrating day today. I was sent a clinic appointment at our very large hospital in Aberdeen. Being disabled I had to walk a Very long way as there were no blue badge spaces left. Had to wait 30 minutes only to find it was not a normal post-op appointment - just a doctor wanting to învite me to join a radiotherapy study. He knew nothing about my medical history. Just anxious to get me to join the trial. I got home 2 hours later Very tired.
I now have to wait for 2/3 weeks to start rads when I expected to start now. I feel I should have been told the purpose of the meeting So I could decide whether to go. Sorry for moaning. Sometimes we are made to feel very small and unimportant.
Kind regards, Grannyc.
Hello GrannyC and welcome to the forum.
Will you be having chemotherapy before the radiotherapy? I had a WLE and SNB (Sentinel Node Biopsy)followed by four cycles of chemo and then 20 sessions of radio (every weekday for four weeks). The oncologist told me that about 50% of patients experience tiredness with the radiotherapy but it wasn't inevitable. I wasn't looking forward to it as it involved commuting to a central London hospital - 5min. car journey, 35min. train, 15min tube and then a 15 min. walk
but it wasn't bad at all. After the first session, which was longer as they have to take a lot of measurements, each zapping took only 5 mins, so afterwards I'd go for a coffee and then a bit of retail therapy before heading home. Three days a week I'm a hometutor after school and was never so tired that I had to cancel a lesson.
The oncologist also advised me against booking a holiday straight after the radio finished in case I was too tired to enjoy it, but I would have been perfectly all right.
So I hope your experience is as good as mine was!
Are there any particular abbreviations you need help with?
I am glad you are finding the forum supportive. I have attached a link which explains some of the abbreviations used on the forum:
I hope this helps
Very best wishes
Hello to you all,
Have just found this forum for my age group which is a great idea. I am 69 and have my first oncology appointment tomorrow. I have coped Very well with my operation (a wide local excision) and going back in to hospital with a complication. But I must admit to being nervous about tomorrow.
I am quite disabled with arthritis and have been granted hospital transport for the radiotherapy course. But I dread the expected tiredness as I am already finding getting through each day quite hard. Hope it turns out to be better than expected. I wonder If someone could tell me What all the abbreviations used on the forum mean?
I feel such a newbie in the world of breast cancer but am glad to be able to share with you all. Regards GrannyC
Have just found this thread today and hope it's OK to join. I'm 59. Originally had diagnosis of BC i Oct 2000. Had Mx and ANC followed by E-CMF and rads. Was clear for 8 and a bit years and recurrence in lymph glad in my neck and bone mets. Was commenced on Letrozole and IV Zometa. Three years later letrozole is not working anymore and I grew another lump in my neck - aren't I clever! Am now on Chemotherapy -Taxotere x 6 cycles. Hopefully this will put me back into remission. What worries me is once I'm back in remission I won't be screened regularly to check for recurrence - not recommended by NICE and SIGN guidelines, but onc will see me at clinic and will assess me on how I am feeling. If I feel unwell then she will scan me. Every time I've had BC or recurrence I have never felt unwell so that doesn't seem to be anything to go by. Sorry to go on but we're all trying to beat this disease.
I try to keep positive. I normally work full-time and I have 2 beautiful grandsons and I want to see them grow up.
Regards to all of you. Take care. xxx
Hi Mary and Loula, thanks for replying. Really great to hear from others of around the same age!! I was beginning to think I was the eldest on the forum. Great to hear of people coming out the other end - just wish next week was over with and I knew all the facts. Will keep you posted. thanks again. xx
As Mary M says,you'll soon be wondering why you were so scared. I had a WLE and SNB in mid December 2010, fortunately two days after diagnosis,so there wasn't time for me to work myself into a state. As I have a coronary stent fitted, I had to stay in hospital overnight, otherwise it would have been a day job. I don't remember any pain and apart from being a bit tired, was able to carry on with normal life once I was home, including all the usual Christmas preparations and having family to stay. I'm 69, by the way.
So,hope all goes well for you next week and let us know how you get on.
hopefully you will soon be notsoscaredycat!
Having what I had in January ...but you've got two years on me ...so You'll be fine, spring chicken.
Hi all, another golden oldie here. I am 64 and will be going into hospital next Wednesday (25th Arpil) for a WLE and SLN biopsy - and I'm terrified!! Have been looking on this site since diagnosed but didn't realise there was this specific one for the more mature posters - so really glad I have now found it. xx
Thanks for that! After having wallowed in self pity yesterday I've just been to pilates and feel much better and more positive. That must have been what I needed - although the wine last night was quite nice.
Well done on the trip to Nepal!
I haven't had this problem exactly but did have DCIS around the original cancer, where the DCIS was not visible on the mammogram.
And I too was glad of a decision to have Mx as a WLE would have had to be repeated to excise the wide area of DCIS.
I asked at annual review when my mammogram was negative, how they could be sure that I didn't have X Ray invisible DCIS on the other side. After a Multi Disciplinary Team meeting, was sent for an MRI which was normal, and I am back to mammography only follow up.
While waiting for results, I checked out the rate of cancer developing in the contralateral/other breast. It happens but not frequently.
So chances are hgh that you will be OK. We just find it hard to go with that when we have already had a not-good result.
House cleaning? Wine and choc and tissues?
If it had been earlier in the day, would have said, clean first, choc and wine after!
keep talking whatever
Can I join you ladies? I'm feeling a bit fragile at the moment.
I'm 62 and I had an mx in April last year and had a tissue expander put in at the same time. I was told I had DCIS - which didn't turn up on my routine mammo but they did an ultrasound and a biopsy "just to reassure me" because I'd mentioned a hard lump like a grain of rice which seemed to come and go. I had the mx because the DCIS was behind the nipple so that had to go, I've got a family history and anyway when you are a 36AA there isn't much left once they've done a WLE! It turned out to be the best decision because the pathology showed invasive cells and a further area of DCIS on the chest wall where they couldn't get a clean margin, so I then had lymph node sampling, which was clear, and 15 sessions of rads. I can't have the reconstruction finished until next year because of the rad, my surgeon wants to be sure the skin condition is at its best. I sailed through the operations and the rads, no adverse effects other then a little redness, and went on to Letrozole. I even went trekking in Nepal in October and was feeling pretty smug.
Now it all seems to be going downhill. I could cope with joint pains, hot flushes and dizziness but not my hair falling out and my skin itching like mad. My onc says it may or may not be the Letrozole and to stop taking it for a month, if it doesn't get better to go to my GP for blood tests, if it does he'll switch me to Tamoxifen. Then on Monday last I went for my first year mammo. Not worried at all as it was only the "good" side they were going to do, got a letter on Wed calling me for a mammo guided core biopsy on the Friday. Apparently it's microcalcifications and 85% are benign, but hey, I was only supposed to have DCIS last time round. May or may not get the results this Friday as apparently the path lab is backed up. Anyone else had this?
Sorry to go on a bit! I'm veering at the moment between wanting to clean the house from top to bottom in case I have to have another mx, and retiring to bed with chocolate, a bottle of wine and a big box of tissues.
hi i have not posted on here since nov 2010 enjoyed reading the post congratulations chrissy 16 on having good results its lovely hearing good news.congratulations jaybee 46 on the birth of your grandaughter i am doing well now and post when i have a worry but i still come on the thread to see how everyone is ,and hello and good wishes to all the ladies who post on here.missmessy
GOOD NEWS!!!!!! I had my mammograms just over a week ago (1 year check up) and I had a letter today to say that it was "ALL CLEAR" no cancer detected at all. I am so HAPPY!!!!! Now for a celebration, going out to get that all important bottle of wine.....lots of love chris xxxxxxxxx
Ann, I'm so sorry about your recurrence. I had a DCIS a couple of years before the more recent occurence. It's no less a shock, is it?
I've recently read a book called 'The emperor of all maladies' by Dr Siddhartha Mukherjee, which was recommended in a couple of the threads here. It's subtitled 'A biography of cancer'--very well written--and he writes, among other things, about how the understanding of cancer has been developed (and we can all give thanks for the improvements in treatment). I'd really recommend this book for a better understanding of what a complex issue cancer is. Towards the end, he discusses what is currently known about the role of cell DNA in cancers, and how this can contribute to recurrences and mets.
I do hope that your next round of treatment will get the 'embu99erance' once and for all.
Dear Ann 04 - have read your other post about the swollem lymph glands -just wanted to send you a virtual hug....
Annie - I SO identify with what you said. I, too, was a perfectly 'healthy' individual (well, except for a thyroid problem) but now, I face the rest of my life under a cloud, as I have just been diagnosed with a recurrence in my axillary nodes and 'suspicious' areas in my bones.
After two years, just when I was moving on, I am now back to thinking about bc all the time. I have always been an optimistic person but it is hard to find a bright side to all this. I know it could be worse, but the fear is that it may well be at some point.
Ok, here goes! Let me tell you, I've got a real collection of bumps and dents.
If my body was a car, this is the time I would be thinking about trading it in for a newer model. I’ve got bumps and dents and scratches in my finish and my paint job is getting a little dull …
But that’s not the worst of it.
My headlights are out of focus and it’s especially hard to see things up close.
My traction is not as graceful as it once was. I slip and slide and skid and bump into things even in the best of weather.
My whitewalls are stained with varicose veins.
It takes me hours to reach my maximum speed. My fuel rate burns inefficiently.
But here’s the worst of it –
Almost every time I sneeze, cough or sputter, either my radiator leaks or my exhaust backfires!
Good to hear from you again and that everything is going well for you. Congratulations on your new grand-daughter - enjoy her lots!
All the best Diana x
Mezzomamma, post the joke we can always do with a laugh. x
Thanks for starting the thread, Janet. It's been really helpful, especially in the early stages.
Annie, are you in the mood for a bit of silly humour? If so, I'll post one of those jokes that goes round the internet, but only if you're in the mood.
I am the lady who started this thread about16 months ago.I do not post very often now but regularly look to see how everyone is doing.I am happy that this thread is still going and that many of you are getting support from it still - I did when I most needed it.I finished my treatment in July and since I am triple Negative I have no further medication.I am quite well and apart from the occasional day of tiredness I am getting on with my life.My daughter has just had a beautiful baby girl (Lily Elizabeth )soI have alot to look forward to.Very best wishes to the Golden Girls and I look forward to reading this thread and sometimes contributing in the future.
Glad I found this thread as some of you might understand and say 'ahhh'. I had mx (end 2009), then more cancer, then chemo, another op, rads (mid 2010/11), herceptin and arimidex now. Then a blood clot from the drugs (in hosp over Christmas). All do-able. Am over that.
THEN I had an eye test last week: Got cataracts and will need an op next year. (Good news though as just read about a new really quick op that is non-invasive, so that'll be good). So, that's do-able too. No problem
But NOW (having gone to GP for lower back pain) I need an op for a prolapse, caused by damage sustained 20 years ago from child number 1. 'It will only get worse if you leave it' said the consultant helpfully.
I am actually falling apart. What happened? In 2009 I was running 3 times a week, healthy, eating well.
I think the menopause had thrown me off the 'normal life' cliff into some horror movie that involves enforced sitting in hospitals having treatments.
Does anyone else feel that it is one thing after another?
I think post menopausal is the main requirement. Being sedate, matronly or any of the more boring versions of mature is not.
There's life in the old girls yet!
how old do you have to be to post here?
I cant say I'm mature but I am 65.
Mary M (other Marys are available)