Perhaps there is someone out there who can help me?
I only discovered a lump in my breast a few weeks ago. After the ‘rapid diagnosis’ I learned that it is Grade 3 IDC; ER8+ & HER2+ with affected lymph nodes in my armpit & above my collarbone. Bone scans showed ‘multiple skeletal metastases’. I have been told it is incurable but controllable & given a scary card to keep with me at all times incase I get spinal cord compression.
I have been taking Letrozole for 2 weeks & about to have my first IV Zometa next week.
Immediately after Christmas I see the oncologist & radiologist at which point I have to discuss being treated with [a] herceptin ** pertuzumab [c[ docetaxel.
Has anyone, in a similar position, _ just had Letrozole & Herceptin but not the other two? _ The latter seem to be quite punishing. I have read all the ‘common’ side effects of each & they are pretty terrifying.
I’m not sure how much more I can take as I already have widespread osteoarthritis & a bad chest. The quality of my life has been significantly affected by these during the last couple of years. I used to go out a lot & work for a charity but now I am much more housebound although by no means depressed or bored with life. I have super family, friends & neighbours & potter about locally very contentedly. I am 76 & widowed with children & grandchildren.
My feelings are that I wish to have as good a quality of life _ in the short term _ rather than live as long as possible if the cost is enduring horrible treatments which might make me far sicker than I feel at present.
I would really appreciate hearing about the experience of anyone else of a similar age /situation as me.