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Mx results not as expected

5 REPLIES 5
Lisa_x
Member

Re: Mx results not as expected

Hi Littlescoot,
You're not alone honey. I had 76 mm grade 3 and 90+ mm of DCIS. I was diagnosed in Dec '10. I remember looking at sizes of tumours in a BC booklet and pan I had a mx and am doing very well; I had a reconstruction in October 2012 and am back at gym and feeling really good about my life. There are do many factors to consider whenconsidering prognosis. I have used predict but it diesn't take in to consideration all factors. Sending you lots of positive vibes xxxx

Lisa_x
Member

Re: Mx results not as expected

Hi Littlescoot,
You're not alone honey. I had 76 mm grade 3 and 90+ mm of DCIS. I was diagnosed in Dec '10. I remember looking at sizes of tumours in a BC booklet and panicked as mine was off the scale. I didn't know the true size until after my first operation. From the scans, they thought it was 5cm. I had a mx and am doing very well; I had a reconstruction in October 2012 and am back at gym and feeling really good about my life. There are so many factors to consider when considering prognosis. I have used predict but it diesn't take in to consideration all factors. Sending you lots of positive vibes xxxx

sukiem
Member

Re: Mx results not as expected

Hi littlescoot

I'm sorry you are so upset about your results. I really don't think you are alone and that other people have had similar experiences/tumour sizes.

The good news is that your tumour was operable and also they removed it with clear margins. Are you having chemo and/or radiotherapy next?

Please remember you are a person not a statistic (which are often outdated as are the prediction tools)-all of us on site can probably relate to the fear you have as its completely normal.

Best of luck x
una12
Member

Re: Mx results not as expected

Hi Littlescoot
I don't come on here so often now but just saw your post and it really took me back so I wanted to get back to you. I was diagnosed Feb 2011, had real shock after mx to have 2 lumps confirmed plus surrounding DCIS - total 89mm (and not large breasted to start with). Like you I didn't know anyone with that size tumour and was really scared. Also did lots of googling which isnt always a good idea! But - after chemo, rads and now tamoxifen I am back at work and feeling pretty well. Just had my 2 year check -ups and all is fine. I hope things get a bit easier when you have a chance to get your head round this, will be thinking of you and do feel free to message me.
very best wishes, Jude

Littlescoot
Member

Re: Mx results not as expected

Bump
Littlescoot
Member

Mx results not as expected

Hi everyone
Just returned home from the Mx results appt, and I'm actually in shock I think. The good news is that yes they got it all, complete excision and margins etc.
the shocker is the size of it. My first WLE removed 49mm of Grade 3 tumour, my re-excision removed another 20mm grade 3, and the Mx has revealed a further 90mm grade 2. Total is 160mm!! I've not heard of any one else having one this size, and it's really really scared me as to my prognosis now ( have access to adjuvant online and predict at work). My OH is wondering why I'm not dancing round the house rejoicing in the facts that it was a lower grade and its all gone. I really can't tell him that I fear my life has now been cut drastically shorter. Sorry to rant I just needed to air it somehow xxxxx