I hope I can get some guidence from this forum.
My name is Zolzaya from Mongolia. I was diagonised invasive breast cancer carcinoma with no special type this year Feb. Grade-3, Stage 3A with ER+ PR /-/ and HER2+. I had 2 rounds of chemo weekly regime as a neoadjuvant and then on 20th of April I had a single breast mastectomy.
So, from 23rd of May, I am starting my first round chemo of 6 round.
What's more, I need to be on Herceptin for a year, but there is no organisation or my health insurance does not cover this medication and not sold in ou country. Even though it is sold in Mongolia, it is noway that I can afford it.
Therefore, is there anywhere that I can contact to any foundation that can help me with medication. Do you have any suggestion.
Thank you and take care
i was her2 as well. stage 3B. after i stopped chemo my heart had a minor issue but fixed itself. i been cancer free since 2010. im healthy, happy, i had a baby and trying to have more. i made a video on my journey. please check it out. https://youtu.be/d13g9Wky4us
hi gretna, im also 26 and diangosed last june, her2 positive grade 3, finished chemo and now starting rad..im hoping i can still have kids as well 😞 i just got engaged...but im just very worried about feritlity although iv been on zoladex for fertility protection. how r u doing now?
Jean that is really good to hear that you have gone 9 years. My Onc has told me that my most likely time for recurrence is within 2years due to the HER2+ status so it is really encouraging to hear your story.
hi, Im new to the forum. I was diagnosed 9 years ago with invasive ductal breast cancer, aggresive grade 3, her2 + 3.4cm tumour, 8 involved lymp nodes. I had mastectomy, lymph node clearance, 3 FEC. 3 Taxotere,
radiotherapy, followed by herceptin for one year. I am so far fit and well.
Hello Marie. I am the same as you. HER2+ stage 3 ductal carcinoma. I was diagnosed this time last year and had neo adjuvant chemo -FEC followed by doxatacel, then axillary node clearance and local wide excision.The chemo was so effective that it shrank the tumour by more than half so avoided a mastectomy. I am now still on herceptin, but cancer free following the surgery and hoping to stay that way! I have had problems with leg weakness and lymphoedema, but the leg weakness is getting better with physio and I am having treatment for the lymphoedema and that is improving too.
Best wishes to you in your treatment.
Love Amero xxx
Hi Just come onto this forum and I know I'm a year late but am also HER2+ and stage3 ductal carcinoma. I'm on Herceptin too, had two jabs so far every three weeks with taxol, and also perjeta (pertuzumab).
I'm hoping this is going to slap cancer back into oblivion as I don't want it back anymore than any of us do. But I'd love to hear how you are getting on, and any SE's and positives from it. There is too much scary stuff on the internet and it's good to know weare getting the best drugs available.
Hope all is well with you 🙂
How are you getting on with having to wait 5 years to have a baby? I am also finding this very difficult as my partner and I pretty much just started planning on having a baby together then I too was diagnosed and then told to wait 5 years! I will be 30 then which is fine but it wasnt my plan and it really gets to me. I spoke to my breast care nurse and she did say it may be a possibility after two or three years which is better as all we want to do is get on with the happier things in life as soon as possible! Has anyone else stopped to have a baby before 5 years?