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My story was broadcasted by BBC News! Please, I need your support.

9 REPLIES 9
Guest user
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Re: My story was broadcasted by BBC News! Please, I need your support.

Hi Luamar,
Huge empathy with you, as I know a little of how stressful this is. I was very upset when my second mastectomy didnt match my first, although the surgeons thought it was fine... but its how you feel that matters.
I'm impressed by your determination, and I hope you find your 4 other women. Luckily for me I dont qualify as mine wasnt that bad [I have to admit they settled down with time and do look less different, if that helps anyone not pleased immediately...]
I wish you luck and strength, as I know hospital staff do 'gang up' and stick together if you complain. But I think you are right to fight, for as long as you have the energy, and you dont reach a point where you feel it is damaging you further.
I know some surgeons will always be better than others -as in any profession - but they should not be allowed to operate if they cannot reach an acceptable level, as they obviously did not in your case.
Whether or not you get satisfaction in that, I hope you can find a better plastic surgeon to improve your results...Isnt it bad that there is no way to see a surgeons previous results?! Some patients are more easily pleased - they are maybe just happy to be free from cancer - but I would go to either end of the country to see the best person, but thats almost impossible unless you know someone with inside info.
I can only say the surgeons at the big teaching hospitals may be better, if you can get your GP to refer you to someone else later..
In fact, as GPs are now so well-paid, shouldn't they do more research on our behalf before they refer us? We must get more transparency in this.... as we have to live with the results, doctors don't.
Lilac_Blue
Member

Re: My story was broadcasted by BBC News! Please, I need your support.

Luamar, I emphasized completely with you in my first post (and still do). My response was to the remark Naz made regarding the warning that BBC gave in your clip. The BBC would send a warning if images are shown that makes the 'public' feel uncomfortable.

I don't understand why anyone in the medical prefession, NHS, private insurance - let alone your PS, is expecting you to live with this outcome. Full reconstruction includes nipples, scar revision and tattoo. After that is completed or refused by the patient (some women opt for 3D nipple tattoos and forgo scar revision) that is when a patient of reconstruction is relased by their plastic surgeon.

There are pieces of your story that could offer greater insight as to why you are left in this condition that is missing and that's ok. I'm not here to judge you or anyone. I come here as a woman who has had a mx (I too don't have cancer -- it was cut out) immediate reconstruction, to offer support and when desried, receive support. I read and understand that you want support by women who have had your result, left to live with the results(?) and join you in the BBC story. After that -- what is your motivation, if it's not get your botched surgery put right?

Women who have reconstruction failure that I have read about here at BCC and on the US site, BC.org. either continue on trying other reconstruction procedures or go flat. They also seek some type of recourse to obtain a result they can live with. This link may interest you: http://www.rcseng.ac.uk/surgeons/research/surgical-research/docs/national-mastectomy-and-breast-reconstruction-audit-third-report-2010

No woman need hide anything Luamar, especially here on the BCC forums. I wish you all the best and I'm so sorry that you have been through such difficult years of reconstruction.
LB, x
luamar
Member

Re: My story was broadcasted by BBC News! Please, I need your support.

Hello Lilac Blue
Thank you for youe support. I was very brave and now I hope to get support from women, independent of having cancer. I dont want to shock women but tell them that we can fight to have a "normal" life. If my looks disturb people, imagine how I feel to have to look at it every day. But the sad part is, it can be repaired, yet I was sent home! I need women, in the same situation, to come forward and support me. We have nothing to hide! Thank you!

luamar
Member

Re: My story was broadcasted by BBC News! Please, I need your support.

Hello NAZ,
I had breast cancer in 2009. I had all the treatments and then reconstruction. I had two diferents types of reconstructions but didnt work and I was discharged. I had Implants and then tissue expander.
Where are you based? Brighton? I need 5 cases of unsucessuful reconstruction to go on National News. If you want to support me let me know, please?
Thank you

NAZ
Member

Re: My story was broadcasted by BBC News! Please, I need your support.

Luamar can you explain a bit about your situation re: the failed breast reconstructions?
How did you end up at 4 hospitals?
Mine was a tissue expander recon which went wrong 2 years ago.
As i mentioned, i am trying to take legal action through a solicitor at the moment..i don't know how far i will get.
I had the LD flap recon after the tissue expander, but it was complicated surgery and i have been left with significant scarring which would not have been necessary. had the original surgeon performed the initial procedure (including the MX) correctly.
My surgeon denied there was a problem, until my skin ruptured under the pressure of the implant.
He was also about to do a nipple recon, with the skin so thin and poor symmetry between the two breasts.
He also lied on his notes re: the type of incisions he made at the time of the MX.
This is why i am trying to prove breach of duty - not easy at all!

Lilac_Blue
Member

Re: My story was broadcasted by BBC News! Please, I need your support.

Luamar, I agree with your actions against your trust and the results you have been given a barbarous look and completely unacceptable. Have you contacted a solicitor? There are specialist firms that would take your case. There is some information missing in your profile or on this thread that I'd like to know. What was your dx? Were both breasts were involved, perhaps genetic or one was one a prophylactic mastectomy? Also, what type of reconstruction did you have? Was your reconstruction implants, diep, tram or lat flap? I read your thread at the US bc.org site.

I'm going to have a third surgery or second stage two, depends on how one views it. My left diep breast is still larger than my healthy right, I do have a nipple yet the circular disc flap it was made from is large, scared and needs a refinement reduction to match the size of my right areola. My PS surgeon is excellent with diep or any breast reconstruction, that is why I'm with him. I think some woman may stop where I am now. I have private insurance and where I am now is not good enough for me, clothed or naked. It's not unusual to have number of refinement surgeries after reconstruction, yet each one is to get a woman closer to the desired aesthetic we want/need to live with. Women who have had mx w/reconstruction or considering it are not having a makeover. I have had a make normal. Reconstruction was the best forward decision for me and I assume that was your decision as well.

I would not make much of the warning because muggles who have not gone through what we have would be shocked by Luamar's result thus far. I think it's great you have the guts to show the world and you do not have to live your whole life with a lopsided, lumpy abd scared, nippleless reconstructed breasts. There are reconstruction surgeons in the UK who can offer you a better result than what you have had. I so want you to have a postive outcome and with your determination Luamar, it is definitely in your future. I'm so behind you 100% and want you to be able to have what you deserve -- a much better outcome.

LB, x
JulieD
Community Champion

Re: My story was broadcasted by BBC News! Please, I need your support.

I am not in your situation but want to bump this so more people will see. Good luck xx
NAZ
Member

Re: My story was broadcasted by BBC News! Please, I need your support.

I am actually REALLY annoyed that the news readers said 'warning, some viewers may find these images disturbing'!
These images are what some of us have to live with day in and day out, due to some BAD SURGEONS out there!

NAZ
Member

Re: My story was broadcasted by BBC News! Please, I need your support.

HI Luamar
I also had a breast reconstruction which went wrong in 2010.
I am currently trying to take legal action against the Hospital Trust.
How can i support you?
Naz

luamar
Member

My story was broadcasted by BBC News! Please, I need your support.

I need support from women who are in the same situation as me to make my story National and help other women too. I had four Breast Reconstruction, all went wrong, and I was discharged without explanation. I need five cases similiar to mine to go on National BBC News. If you are unhappy with your situation and would like to support me, please contact me. Please, watch the video and then share it. Thank you. http://www.youtube.com/watch?v=4wMbkqGN__o >>> BBC News Broadcast