Do you feel more comfortable with scalfs or wig ??
how long ago did you lose it , I read that when some treatments change hair can start to come back even though treatment is still on going so lets hope so ..
Know what you mean about tv first time in 6 days ive been able to look at tv ( Due to first chemo ) and I too look and think they need a fringe there hairs so fine bet she never had chemo ECT how mad !!!!
If it helps I am a hairdresser oh joy ( so got clippers ready !!!)
It sounds really cruel but when new hair comes through it will be damaged and I would of thought for most of us very very fine , If your brave enough putting a short clipper cut through will really thicken the new hair up ....
Get me ... Long foiled high lighted hair and Im on about clippers ...
Keep up with the advise its great Lisa X
julie - yes she's fine now, think it was the thought of it all bless her, I keep telling her that the oncologist said my hair unlike his would grow back....prob white and like a loo brush knowing my luck - I now have hair envy and can't actually see myself with hair anymore - makes a change from boob envy that I had early on when I'd look at the soap actors and think ha! wait till you find a lump...ha....yes sense of humour has always been iffy....mary x
thanks mary, i was talking to my sister today who had bc 6 years ago, she said that she went on holiday to majorca just after chemo and when the y landed at airport it was windy and her hair was blowing out everywhere, i had to laugh, is you daughter ok with your non hair now, i go tommorrow to see what op i have so not sure what treatment i will have yet,my bcn gave me a copy of mummys bump, but i have not used it yet, as i told my son i have got to have a op and at min he has not asked anything else, i will explaine when i now what treatment i am to have, my sister has said that if the time comes she will shave my head, and cry together,
take care julie
If you would like a copy of the the book mummys lump, which mary referrs to just follow the link below for more information:-
The publication produced by BCC on talking with children has been written to provide help and support when you need to talk to children about breast cancer. If you would like a copy please go to:-
I hope you find this helpful.
Kind regards Sam (BCC Facilitator)
julie - I have had 2 cycles of chemo and hair started to come out day 14 after chemo, thought it would be ok till weekend till I got in the shower and it was everywhere,mine was very short anyway and as my daughter was so worried about seeing it come out my friens shaved it for me and I wore my wig or scarf - I was very tearful on the day it was shaved but think it was the anticipation of it, once it was off I was fine and I soon got used to it although kept grabbing for towel getting out of shower to wrap round head and didn't need it! I wore a soft sleep cap in bed to stop it going all over the pillow and that helped too.
There is a really good book you can order from here called Mummy's Lump which a lot of ladies have said is really good to read to younger kids and even older ones and I ordered a booklet on Talking to your children about breast cancer....mary x
you say you start your taxotere on the 21 april ,
Im on 3 fec then 3 with
something begining with T sorry was given so much info that day ........
Ill find out the full name the reason for this I was told these 1st 3 are the worst then the following three treatments ( sorry T....something) dont have such bad side effects could you keep me posted , give me some thing to look forward to down the line .
All the best Lisa .
The ladies on here have been great and have loads of advise to give ,
id been misdiag.. and was being treated for breast abcess in hospital for 2 weeks before op , so when they did find bc on Monday id had breast removed by the Wedmesday was sent to private hospital so I could be opped on asap ....( not that im grreatful sorry still very bitter with that issue ....)
But I think you will find reading on here it varies im sure now they know you will get the best care avail..
I also know what you mean with the press ect at mo and age of our children I have explained to my eldest that yes I will be bould the same as on tv ect but mine is different to what the ladie on tv had ( which as i have bc is not telling him any lies ) I think bieng as truthful as poss with out them having to suffer from this as well, sound hard but thats what I want to try if poss .
I must be feeling better as still on here but need to tell the ladies that I had to chase my own wig referal today as im nearly 5 days into my chemo on fec and we have a bank hol did start to panic .. Spoke to shop who didnt know how i was and with out referal would not let me take a wig ...
Any way going over to shop Tues ( 1st day open that I can get there if not still so sick )Hope still have my own hair then 11 days in ...Good jod im on the ball or id have no hair and no wig ..
ps julie 5 day on from chemo no hair loss yet keep you posted ...
Will let you know what I choice might even put photo on
Speak soon Lisa .
thanks that really helps , i am more worried about what other people are going to think, and also my sons, how quick did your hair start to fall out, how many chemo have you had
julie - when I was diagnosed the cons booked me in there and then 3 wks later for surgery, it did seem a long time as you just want to get on with it and get it out....my daughter who's 16 was really twitched about my hair falling out - she had visions of it literally just pulling off from my head in clumps so I said I would get my friend to shave it off completely once it started - she said she was worried I'd look really ill with no hair and obviously not like her mum. I had a wig sorted before it started - they gave me a wig prescription at the oncologist's appt to take to the wig place and also had some scarves - have a look at bohemia-fashions.co.uk, I got the padded front (only lightly padded) cotton ones and one of the cotton jersey padded front ones and love them, they are more comfy than the wig but I like to have the hair for going out etc although am getting used to the scarf too, I just feel as if everyone knows there's sommat wrong when they see the scarf but thats just me. My son who's 10 says I look better in the scarf and doesn't like the wig at all....see also chemochic.co.uk has lovely soft sleep hats, just plain and soft and comfy on your head when hair is coming out in bed and its quite sore when its stubbly too...mary x
i too work with children in a nursey, on easter break at min , but dont think i will be going back for a while, will miss the littly thouugh , 2 to 3 year olds
thankyou all for your advise,how lond did you have to wait for surgery after being dx or did you go private,three weeks seems along time and am worry my bc will get worse in this time, thanks lisa lisa your children are similar ages to mine, i told my boys yesterday that i have got to have a op,but have said nothing else at the moment, my 9 year old got a bit upset as i have never been away from them before, but has said not more
hello elljaydee, how often do you have chemo, do you have to have rado too, it is good to come on here and talk to people in the same boat, i don`t now about you but i found some sites that uset me some am going to stick to this one.
i am worried about the chemo side, because my son got very upset about all the imagies that were in the new of jade goody and i think he will just assosiate the baldness with her, do you have advise for head gear should i need it, or should i go for a wig,hope you are all having a good day please keep talking thanks julie
Hi Julie sorry but im the one having a bad day today after just starting chemo cant be that bad as this is my second time on her today lol , surgery less than 4 weeks ago so very early for me too , Daugthers six seven on saturday and found her with my false boobie under her top and son is 11yrs his quite about it at mo but knows im there to talk when he wants , Im really luck as parents have taken them away for a few days while I get over my first chemo session ....
Hi Ladies any tips for feeling sick only finished my three day course of tabs today just woundered how to controll it myself....also steriods finish today will i start getting my owm energy back when they finish
I too have two boys and i had a mri prior to mastectomy and at least
you know they are doing all the right testts before they operate. When i was in your position i remember all i could think was get this thing out of me but i am glad they did all the tests now as they discovered another site on MRI (this meant i was upgraded from lumpectomy to mastectomy). I had mine on 6th January and now nearly half way through chemo - i start taxotere on 21 april. Every bit of this is scary and it is hard to talk to anyone because you dont want to frighten or worry them. I have been quite honest about each step with my children and so they know what to expect and are taking it in their stride. u are right about this site, i am on here a lot just to feel that i am not going mad and read sound advice etc...!!
all the best
julie - try to talk to your sister, I bet she'll be really good to talk to...and of course post away on here on any bit you fancy - it helps to know that others are coursing the same road!!
hi Julie - so sorry you've had to join us but you're welcome....I have 2 kids, son 10 and doaughter 16, we told them as soon as we got home from hospt mainly as I was in a bit of a state and we couldn't have hidden it from daughter as she would have sussed, son maybe but not her bless! Its a horrible time just after you find out - its all you can think about 24/7 but it does get easier - once you are at the surgery stage at least you feel as if you're getting somewhere - it will be got out, you can recover, look after yourself and get better. Kids adapt a helluva lot better than we think - they'll be more interested in scars and stitches bless 'em. Tried to prepare mine for the fact that I might have to go on to have chemo or strong medicine to make sure I get better and may be ill because of it but nothing tooooo drastic and I did indeed need to go onto chemo and so far so good. They're even ok about baldy head now and that was daughter's big worry....you'll get there, keep talking to anyone who'll listen and look after yourself.....mary x ((((hugs))))
please can i going your group, i was dx thur 4th and feeling really scared, need someone totalk to, partner has gone back to work but i have two boys 9 and 6 who i have not told yet,feel really down in the morning and am going to docs to see if he will give me something, op is booked for 24th seemes along time away just want it out, did any of you have a mri has i had one friday and they put a dye in, got to go to hospital on the 11th to see what type of op to have, trying to act normal for kids but finding it really hard,
my sister had bc 6 years ago and is doing fine,but she is working alot so cannot talk to her, sorry to ramble, but think you are the noly ones who will understand please reply julie
First day able to post ...
No one said id fell as ruff as a dog that had got run over lol ,, hope its not this bad for everyone ( prob just me ) soz back to bed speak soon when head will let me .
Good luck shaz with op ...
Lisa 4 days after 1st chemo fec i think the red one ....
A tit farewell party - I like that one! You could even have drawn a smiley-face on it with lipstick.
Lisa hope Chemo has not been to bad for you, and you have hadlots of good advice and reassurence.
i am off for my my mastectomy tomorrow, surgery Monday. so will not be able to keep up with news for a while, miss you all, susaneA I have made a bag pins and all, packed everything i could think of. dissapointed today wanted a tit farewell party, but got a KFC instead husband was supposed to take topless photo's for me memory box but fell asleep on the sofa, so looks like it will be a private farewell between me and my boob.
thanks to all, wont be able to post for a while expsected to be in hospital for a week, so everyone take care, hope to see you on the other side
Hi lias hope all went well today and thins not to bad for you.
Take it easy
love Sharon C
Comfy but pretty jim-jams (with no itchy bits) plus slippers and dressing-gown. And a good book. And something nice like hand-cream with a nice smell to pamper yourself a bit. And your favourite T-bags.
Also a simple bag made out of an old pillow-case with a long length of tape safety-pinned to it, so it hangs at around the level of your knees - to keep your drip-bag in!
And as soon as you can, get up and start walking around - when you have a visitor, get them to walk you up and down the corridor, and then start to go on your own. And walk upright, breathe well, stride out - don't shuffle along like some ill person!
thank you so much for he support, I need to get focused, what do i need in hospital any suggestions.
I should bluddddy-well think so! Cheeky sods, wonder how they'd feel knowing they had to go through this? Good luck for your op, you'll feel loads better once you've got that over with.
Just to let you know Lisa that they have reinstated my surgery so mastectomy monday going in hosptial on Sunday. oooh arrr.
Hope you have got loads of advice and are feeling a bit more confident about tomorrow I wish you the best of British.
not sure I should have told you about my alter ego!
Love Sharon C
meant to say had a lovely surprise - sons teacher must have been asking how I was and he must have said she won't be going out much this week - he came home with a magazine and bag of choc eggs tied with a ribbon and a card from her.....he likes the scarf better than the wig but I spose its cause the wig is very different from my hair - myhair was short but very fine so I had to go a bit longer to an inverted bob style to get the finer hair as they didn't have any nice short ones - I've since heard that there's a hairdressers near that will order some in to try so I might go there next week. bohemia fashions.co.uk have some good scarves - I got the padded front ones. Will be thinking of you tomorrow Lisa...mary x
Lisa - day 7-14 I just planned to lie low-ish but first time round hubby was ill with toothache and I ended up going to collect prescription for him for painkillers, going to Asda for bits at the same time and kids to McD's but just tried to rest a bit each day as they were at school. My son had bad cold and cough and then daughter had tonsilitis but I was ok....will have to see this time but so far so good (touch wood)I think you just need to take it one day at a time and see what it brings - whatever tabs they offer you take them - they asked me if I wanted anything for indigestion and I declined as it was never a problem - had the most awful bout of it between about day 6 - 10 and ended up getting some from gp that did the trick - one a day - Omeprazole! So second time I said yes to everything including tabs for constipation and diarrhoea, the joy of it all,oh and eye drops too as my eyes got very runny/sore. mary x
ps what are you having - head likea sieve! I'm having 3 x fec and 3 x tax like Linda I think - hi Linda!
Regarding my kids. They just put up brilliantly. One of my oldest son's friend's mum went through this two years ago and has come out other side. Both my boys saw this as we had her two boys around playing a lot so i think it reassured them that cancer is not that big a deal and whilst it is to me, i dont want it to be for them.
My low immune should be next weekend and me being a crazy woman have booked center parks at Suffolk all action weekend. I believe its earlier in week for me. I have my blood tested about five days before chemo and this time was scary as neutrophils were low. They rang me and said they would test before chemo and they had shot right back up.
As i said in earlier email, i am trying to be more health conscious and exercise more. I am not working at moment as i am a primary school teacher and the worry of picking up bugs is too much. I miss it and pop in and do little bits here and there when i know i am ok.
Anyway enough going on. Regards to Mary and all.
No prob have one for me lol I cant spell either .
Thanks Caroline roll on Friday .
there you go just ask and answer arrives as by magic, just click on to the web site posting on above then click onto the pink writting and the infor will come up hopefully
If you would like information on the head strong service just follow the link below:-
I hope you find this helpful.
Sam (BCC Facilitator)
Hi Lisa and all
I am generaly up beat and have taken this fairly weLl up to now. but have to admit the mastectomy scares the pants off me, and my dark alter ego can be seen on other posting titled I DONT FEEL LUCKY, it is here thatI rave and that can feel could too.
with regards to head wear I bought a coulp of stylish caps that look ok and I continue to wear but found scarfs and bandanas the best, especially as weather getting better.I personly found light shoulder scarfs and those short sarongs nice to wear on the head I would clasp them at the nape on the next with with fancy hair clip and the length gave impression of hair length. Others on postings have spoke about HEAD STRONG which i understand is some organisation wear they sell head scarfs for £1.65 and show you different whys of wearing tying them to make them look fancy, I dont know any more about this organisation but have posted asking others To leyt me no more so i can pass it on. By they way silk is good but go for a cotten mix nothing worse than a sweaty head. get back with more info when i can
just to say hope all goes OK on Fridy. Have you checked out the post 'top tips going through chemo' there is some really useful advice on there? Hopefully you will feel so much better (well mentally anyway) when you have got one sesion of chemo behind you. I shook like a jelly before each session but they can give you some stuff to calm you down. Like a lot of people say it is 'doable' - although a few have a really rough time. like the others have said get a good thermomiter and keep an eye on your temp. Hope all goes well.
Hi SuSanne there is one thing ive learnt and that is after all this we should all be a bit pushie why should we wait after all we are goinng through ... good luck the sooner the better .
Hi Mary hope I take to it as well as you well done ,I also have a bday party my little one is 7 on the 11th it will be my 9th day in hope ill be able ....
HI Linda Im glad its not to bad for you too , hope its same for me how were you with your children when your at your low immune time ? Do you have to inject ive been told i will self inject due to having no immunity .
Hi Sharon you sound really high spirited I think thats what we all need to get through this . I have also been very tung in cheek with this with my friends its the only way for me to deal with it .
Sharon have you been wearing a wig or scalf what do you recommend , been shopping 2 day only found one nice scalf in next cost fortune as silk but it is nice also spend loads on new clothes to make me feel better while im going through all this ( think i desirve it lol )
I went into work today as have not been scince found out and had op work in large office with loads of friends very emotional but glad i did it while I still have hair ...
keep in touch Lisa
I had a call from the onc's secretary today - they had a cancellation, and I can see him tomorrow! So it was worth being a teensy bit pushy!
lisa - just had my second chemo last wed - so day 8 now and doing ok - bad tummy day yesterday but there you go....I just plan to lie low for roughly days 7-14 apart from having to go for weekly blood test and chill out...its my daughter's 16th this fri though so slap bang in the middle of it all! mary x
Thought i would write on here. I am similar to you in that i have
had full mastectomy and all nodes removed (19/24 positive). My op was done on 6th January and i started chemo 17th February. I am on fec 3 cycles tax 3 cycles. Too be honest, i might have been really lucky but i havent felt too bad. I had my last fec yesterday and worse thing was trying to get needle in as my veins are hardened. A bucket of hot water helped no end. I know my worse day is 5th day after when i will feel completely knackered all day and so i know to plan nothing for then. I now have tax to look forward to (different ballgame) i am older than you at 50 but my children are young at 12 and 11. They are coping brilliantly with it all. Best tips i can offer you, drink loads of water as said on tips for chemo - you will be going loo all the time but it does relieve sickness. I am also trying to eat loads of 'superfoods' to keep my immune system working.
(odd cream cake creeps in....) I try to include Nuts, pulses and seeds every day but then i really like them.
hope my take on this helps
All the best
I have jusr written reams to you but bloody thing got lost. I too had FEC, I had no major trouble with it. the nurses are ganerally good and you come away with a generous goody bad from the pharmacy. the advice from other posting about the digital thermometor is good, if you feel a bit rough it is a good indicator if you have infection or not. only problems i had was toilet stuff (a bit loose ) in my case and some thrush. only two bouts of sickness throughtout, not bad at all. the hair thing takes a bit of getting used to, had mine cut really short, did you get yours done today?. mine fell out after two weeks Kids all had a go at pulling it out, went to bed with a pair of tights on my head to stop hairs on pillow, not sure if that was necessary, head shaved next day. Not all bad look like I was eight years old again down below apart from flabby tummy lol, and no need to shave or pluck. hair growing back now it is about an inch although it looks like pubic hair at mo. I helped out at a number of kids parties and hosted Christmas and new year parties with no problem. I did not use loads of anti bacterial stuffbut did have towels that were just for me. I found I could do most things as norm after chemo just chose to rest for around 5 to 7 days after then back to norm hope this helps be thinking of you.
Oh by the way I was certified as sane today and the psych said he would contact hospital re my operation, and when i got home there was a message to say I have an appoitmentwith surgeon on Thurday, I am hopeful for getting in quick and getting this sorted
best wishes to all
I wanted to go away with family but onc said I need to start treatment this Friday ( 3 weeks post op ) if I went away it would prolong this by 10 days I have beed advised that I should start asap so have had to put hol on hold and start treatment . I think all onc are different to be far if id of been told I could I would of gone on my long awaited hol ...Lisa
I am being treated In Leicestershire and had a appointment with the the onc within ten day of being diagnosed with invasive breast cancer to discuss chemo etc. I felt an oldie on my cancer ward at 53.. I was surprised at the number of younger women in their thirties with breast cancer and the youngest was only eighteen... she had a double maestectomy...am now convinced age doesn't really matter.
It's now five weeks since my op, and the oncologist's secretary said it might be three or four weeks until I can get a clinic appointment - and then presumably another wait until I can start the chemo. I've read that chemo should start within six weeks of op, but the BCN said a few extra weeks won't make any difference. She'd just better be right!
Is that your first session ? What are you doing about that week when they say our amunity is really low and not to go in crowded places ect ...?
Hi Lisa - so far so good with the usual sickness etc but tabs tend to sort it well, I have taken a sleeping tablet for about 4 nights after both chemo bouts as the steroids tend to make you not so sleepy and I need some sleep. I think we're all so different and never know how we'll be, a friend of mine is having the same and is very different though. Day 6/7 I tend to have a bad tummy day but nothing too drastic....so far, touch wood....take each day as a step on its own....mary x
Hi Freddie , Barbara and Sharon ,
Glad we have all come togther , someone told me I will gain a whole set of new friends during this journey and Im starting to agree its just helps to know there's otheres going through it with you ....
By the way im the one that cant spell or type so bare with me ..lol even using my sons lap top ...dont tell him !!!!
Its moving quickly now ,but I went for tests over 1 year ago and was told it showed nothing I was told it was a breast abcess returned to Docs over and over given creams antibio ect asked to be re refured in Oct as now found lump told again no it was lymp infected until rushed in hospital in terrible pain within a week told got BC grade 3 ....
Any way Ill deal with that issue when im strong enough too ....
I need all my strength to deal with cemo on friday . I was told I will do 6 sessions on fec-t I think all very confusing I think they said 3 goes with the red drug that makes your wee red !!!!! and the dreaded hair loss and then 3 on the othere drug that they say is not as bad ......
Barbara chemo is the scariest part for me so just reading that you have not been to bad really helps have you felt sick ect ? Are you using the cold cap ( stop hair loss I was told )
Freddie ,I know what you mean about age I was the only one in waiting room with out grey hair lol... As I was so scared my husband tryed to make me laugh by saying they though it was him that had C , as his a bald as a badger ....It helped a bit ...
Sharon they said I would have radiotherepy after the chemo so think Im in for the long hall ( stage 3 with all lymps pos except 1 !!!)
The mastectomy was not that bad for me but I was in so much pain for so long id of tuck it off myself if I could , One bc nurses said to me "its not your friend any more get rid " I think thats one way of coming to turmes with it . Dont worry to much about getting so upset by it all , I think every one on here will have done the same at some time during all this more that once .....
What I hate is when some one says " Im so sorry to hear your bad news , im so sorry "
Still thinking of something witty to say back that will make them smile because thats what im trying to do .....
Any way look forward to your replys better go my husbands starting to think id rather be on here that sitting talking to him .....lol
Lisa xxx Let you know how friday goes , getting long hair cut shorter 2 morro just in case ...
I'm 37 and have two children aged 18 months and 4 years. I have recently been diagnosed with BC but I'm still waiting for my full results. I will have a lumpectomy on the 8th April and will go from there.
I went to the doctor's today about a throat infection and told her all about the BC thing and even she said 'oh, but you're so young!'.It's a bit weird too in the waiting rooms as I always feel as if I stick out like a sore thumb.
Still this thing can get us all , no matter what age.
It sounds as if things have moved quite quickly for you. By contrast things are going quite slowly for me. I can empathise with you on the children situation though, as it is difficult juggling all this, the feelings that go with it and the needs of them.
Try to keep positive and I'm thinking of you.
Love Freddie xxxxxxxxxxxx
I was diagnosed 3rd Feb, have had a lumpectomy and 14 lymph nodes removed. alas got oestrogen + and HER2 + cancer with 3 nodes positive.
Had my 1st chemo last Monday...got abit tired but all OK..
I know we are not quite at the same stage but would like to keep contact' as when I went to my chemo unit I was by far the youngest 1 there at 45. Which made me feel ODD..
But hey ho apart from that little blip am very upbeat and positive about whats going on...
Kepep in touch and let me know how its going