lisa - glad the hol went so well, thought it would!! Take care and rest up for the chemo! Julie - typical about the cp bless him, like you say two weeks off and then cp! Sharon hope you're doing well in yourself, you'll get there.....mary x
unfortunatly i have 1 child left with me because of his chicky poxs, he is suffering came crying to me yesterday as they are even on his winky told him to get a cool bath and he felt better,i had cp when i was 18 so should be ok i hope, dont think i could wait any longer for op,hi sharon cannot beleive all the bad look you have had and hope you start to recove before your chemo,hi lisa i am supposed to be going devon in aurgust just hope everything work out so i can dates i mean,it is lovely down there,thinking of pauline going back to work xxx bye for kow julie x
Sharon I have to agree with you my onc was more interested in my wound than my surgen and it was her that told me my wound had a lot of build up of fluid , the day before Id asked bn to check wound as i thought there was a built up of fluid but she replyed that it was normal .
It is really difficult knowing what to do in these situations as we want to rant and rave but we know we need these people on our side not against us , We should all be treated so carefully with all that we are going through but ubfortunatley this is not always the case ...
Sorry ill jump off my soap box now !!!!!!!!!!!!!
For all you ladies that start chemo this week , This friday is my second session cant belive how quick it has come round ....
The first week it put me to bed for 6 days which I have told was quite
unusual but following that I felt quite normal I actually told myself the first week I can not do this again but if Im going to feel as well as I have for the past week Ill put up with 1 bad week to have to normal weeks that make me feel like Im Lisa again ....
Holiday in devon was better than any medicine spent day time with friends on beach when they all went swimming I went and read on the decking of caravan over looking the sea , weather was so nice I found it really difficult staying out of the sun I DID USE THE CHILDRENS sun lotion factor 3o but have still caught the sun and look really well !!!!!!!!!!
Im sure they will not be happy with me on Friday as I do look quite tanned OPPPPs ...
I know what you mean about my head its going to be a completley different colour to my face ,
Not had hair cut short yet and dont think I can now as i think as soon as they comb it I think it will end up on the floor , I have such nice thick hair as well and its got a natuarl wave in it so really easy to look after I thought this bit would not bother me but I now know It really is
Got my 12 year old to have a bit of a laugh about it today as this is the bit that is really bothering him and I even got him to have a little pull to see how much he could get out ,we both had a laugh about it so hopefully he wount be quite as sesitive about it now ...
Ask gary to put clippers on it but he said no so his quite upset about it too ...
Any way hope to do school run with hair in morning but by end of week dont think ill have any left
Sorry just realized how much I have wrote ...
Great to read whats happening with you all it really helps to have you all to chat to heres to a quite week with kids back at school ....
Hi all, oh what fun I have had, last night pressure pad bulging and dripping down my back I had to change, could not wait for Monday, today same thing, took sometime between changing dressing to apply pressure on top of wound and gently apply pressure underneath resulting in resulting in extracting a fair amount of fluid from drain site before padding back up a bit like milking a cow, needed another pair of hands though, unfortunately husband has chosen not to view the damage as yet so had to hold pads in place before calling him to help tape me up. but generally a fair day I have not eaten much just don't feel hungry, but have manage some wine and a beer. this is mainly because mother in law is staying and husband has managed to excuse himself for most of the day, therefore just her and me she ended up saying " Sharon I feel so lost amd dont know what i should do" I bit my lip and ended up taking her out for a walk. kids back to school tomorrow, my 11 year old has been avoiding me like the plaugue I expect it will be a relief for him, so I will be left with mother in law all day., I plan to sleep most of it if possible.
Lisa I did not get my first Wig appointment until after I was bauld, which was not much use, however got two nice wigs which however I have never worn. my surgeon is crap and has not looked at my wounds or the extenive brusing at al, only saw bc three times in hospital and not expecting her to ring until Tuesday I am adding my complaints as I go andhope to express them on thurday's appointment. However for those for you awaiting op I have to say the lady in the bed next to me also had a mastectomy, although she had previously had lumpectomy and nodes reoved, we both had op on monday and she trotted home happily on the Thursay, so please dont feel disheartened. Its just me and my bad luck. Lisa glad you are out there and enjoying yourself, Julie and pauline hope all goes well and Julie hope you are immune. Lisa get the hair off and a bit of colout to the head or you may end up with this billient white spot on top if you ever decide to go ohnatural.
love to all
I've only got six sessions, every 3 weeks. I guess it varies with your diagnosis - I was a Grade 3, but only 1.2 cm and only in one lymph gland. I suppose it's a bit too soon to start talking about it in the past tense, but I intend to as a small reward when I get half-way through my chemo.
Sounds like you had a whale of a time in hospital, Sharon. Get your money's worth, eh? Hope you are feeling a bit better after all that - a couple of glasses of wine would certainly help!
Hi Susanne. Not spoken to you before but agree about the up and down days, although I do have more up days. I always say I have got cancer - cancer has not got me. I go for my pre-assessment on Weds and then first CMF chemo on Thursday. Yes it is strange but I am looking forward to starting because then that is a bit nearer to getting better. Will have to have chemo twice a month for 6 months then rads and tamoxofen. Hope you get on ok over the next few days. Regards Pauline (mommyw)
Up and down days? As in one day "I am strong, I am invincible, I am woman - I can beat this paltry little disease, look at the statistics..." to "Arrrrghhhh, I have a little twinge of pain in my side, it's liver mets, I'm going to die before the milk in my fridge reaches its sell-by date..." Actually, that's not days, that's half-hours.
I'm feeling up at the moment - tomorrow I have my pre-assessment for my chemo, and Tuesday I start. At last! Eight weeks since my op - it's felt like an eternity. I've got my head around it - more-or-less - and kitted myself out with various emergency supplies like bonjela and tins of fruit compote. Then last Wednesday - aaaarggghhh! I started getting the cold the OH has had! NOOOOOO!!!! I don't want any delays. So Thursday I stayed in bed instead of going to work as planned, dosed myself up with Lemsip - and it's gone! Pheeeyew! So, only two more sleeps - seems weird to be looking forward to it, but I am.
all, thanks lisa for the deoderate tip, will just have to smell,sorry your hair is now coming out i am sure that was quite upsetting,
sorry sharon to here the trama you have been through
well going for my premed tomorrow and then in on thursday ready for op friday,can i ask you ladies if you all have up and down days,last friday felt like i was going to lose it,bit since have felt ok,kid supposed to go back to school tomorrow but 6 year old has chicken pox can you beleive it been off for two weeks then gets cp at the end, he is covered,
take care all julie x
Hi sharon bas, glad your back home. What a time you've had. what can i say, at least your over the worst and coming out the other side babe. We go in expecting everything to be straight forward and look what can happen. I've been told i could be home as early as next day, don't worry i won't be that stupid. I intend to get all the looking after i can befor i come home. But 11 days, that is frightening. At least your story has made me realise, that i have to be realistic and expect the unexpected. Lovely to hear you home. Keep us posted on your progress (as much as your able anyway )
Make sure you look after yourself and get plenty of rest.
Lisa, your back too, glad to hear you had a good holiday, can't wait to hear all about it
Talk to you all soon, lots off hugs Pauline xxxx
Pauline so glad you got good news you must be so releaved
will fill you in on hol 2morro
Mary thanks tuck your advise while I was away and had great time ...old
Hi Julie hope you are feeling ok just to let you know my surgon told me not to wear deodarant as it contained aluminium and this should not be used round scare area , managed to find some in boots that is alumininum free but was told not to use for about first week if at all pos it is a roll on so less likely to go by scare . Also found it imposible to wear a bra so brought lycra vests from primark found it supported me and my false... got vest in every colour now lol ...
Hi Sharon ,
so good to hear from you , I had put a post out for you hoping all was going well but as it had been such a while I had a feeling all was not well , youve really been through the mill Hope this means now your through to the othere side of it ...have a glass of wine from me you deserve it ...
Hows the family coping with it all ,are you in contact with your breast nurse ,make your self a newsance one thing ive learnt from all this is if you keep quite they tend to over look you so make loads of noise !!!!!!
will post what ive been up to 2 morro been so busy felt almost normal again a few times ....
hair coming out in hand fulls no wig yet !!!!
next chemo Frriday !!!!!
started drivin again....
and just came back from Devon
tryed to stay out of the sun like they told me
but almost impossible on the beach ....
Any way hope Ive made you smile
loads of love Lisa
post 2 morro ...
Hi too all ladies
just posting to let you know I am still alive especiall to Lisa and susaaneA.
well I went and done it. I am now offically lacking a mammary, a one tit wonder and walking lopsided. but unluckerly loads went wrong, dontt worry those awaiting ops I have been told that I have been particulary unforunate.
If you remember my op was on the 6th April, after lots of morphine, therefore sickness, I thought I was begining to recover but a couple of hours later I deteriorated, they could not get a ready on my BP and then I went into cardiac distress, I had six people working on me at one time and this went on for six hours had to have two blood transfusions as well. well I felt better the next day, and by the third day had tried to get myself moving exericeas and all, however the bain of the drains, my bloody things were full sometimes twice a day, in the end they kept me in for 11 days and although they were still draining plaenty they took them out on thursday 16th only to find a load of pus, nice eh. surgeon gave me antibiotics and sent me home, had a fairly comfortable night however next day was in a lot of pain with area very swollen, went to gp's who sent me straight back to hospital, without going into to many details they kept me in and after various jabs and iv antibiotics an abscess burst in my drain wound covering the bed , I can not tell you of the relieve, they then went on to aspirate on three more separte occasions, they also found out my infection was not responsive to penisillin so got different antibiotics, chest area filled up again but i came home with a pressure dressing on, currently in doors with my chest sloshing about like a old water bottle but feel much better, worried with all this fliud I might be affect by the tides, any way got district nurse to look forward too on Monday. hope it is up hill from here. glad you are doing so well after chemo Lisa and hope you have sorted your head wear and enjoying your your spells away
sorry to go on , but must be feeling better had a couple of glasses of wine tonight.
Hi there everyone just filling you in. Had to sit at home and wait for a phone call that never came. I rang them in the end and i got the all clear, thank god for that. Looks like my date is set for 30th april, im just relieved things are happening. Hope you ladies are all as good as can be expected. Thanks for listening, will talk to you all soon, off to spread the good news xxxxxx
3rd chemo tomorrow....zimovane is the same as zopiclone so 2 would be the same as one of mine...12 gcse's, mt nerves will be frazzled!! I'm mainly wearing the pre-tied scarves as they're handy and comfy but wig if I fancy....it'll soon come round and then you'll be able to rest and recover and it'll get easier, it takes a while though, I felt that once the kids seemed to settle and not think of me as being ill that I felt better too....mary x
i have zimovane 3.75, will try 2 tonite,
you have alot with your daugters gcse, how many is she taking
just had my letter to say that i have to go in at 10am nxt thursday and what to take in with me, it makes it all so real
when is your 3rd chemo, how is the headwear going
take care julie
julie - nobody told me not to use deordorant etc, I used roll on as it was easierto just put on top bit of armpit on bad side....yes mine are back at school on monday too, daughter has gcse's this year bless her, she's dreading them and so are we!! I was the same with the tabs and the dose was 1 so I took half the first night and slept well and then a full one and felt fine, not hung over or anything, I had zopiclone 7.5mg tabs. I use them the first 4 nights after chemo too and it seems to counterbalance the steroids or at least lets me sleep...mary x
did`nt take 2 because i was worried i wouldnt get up for kids and also i did`nt want to run out, suppose i could get some more, kids go back to shcool next week and i go in thur so not to long really, now it sounds silly but after surgery could you use deoderates as i don`t want a smelly armpit lol julie x
julie - if you need to sleep take 2 and plan a quiet day after, if poss....keeping all crossed...mary x
ps yes once it's out you do feel different I think...
yes pauline it will be the longest day,when i went for my appointment for 3.50pm, i was left sitting there until 5.15pm to be told i had cancer, could`nt beleive they left us sitting there that long, hopfully they won`t keep you waiting and i really hope you get a date for your op
i was doing gardening yesterday and worry will that make my cancer worse i don`y like to lay on that side so am sleeping very badly anyone got any ideas i already have some sleeping pills but only take 1 rather than 2, did anyone else feel like this thanks
thanks julie and mary. it really helps having you to talk to. Today is going to be the longest day ever. I will come on as soon as i can and let you know the results. Im thinking of you all. talk to you later Pauline xxxx
pauline - once you know you get on with it - believe it or not , its the waiting thats the worse, a lot of people have nodes that are involved and are going strong - I had 21 out and 1 was positive, the number you have is different from person to person. Treatment has moved on well and its surprising how much positive stories there are...take care...mary x
i am in similar boat to you i had needle byopsy which they said was clear but i suppose until i have had op nxt fri it wont be dead sur, but there is alot of people on here with different types of bc and your treatment will reflect that fact, fingers crossed for you, i know exactly how you feel i will not feel any better until the b***rd is out and the waiting is horried everybody else apart from use on here are gettinf on with there normal things while we are going through hell
big hugs from me keep intouch julie x
well everyone i get the results from the biopsy on my nodes tomorrow. this has been the worst week of my life. I am dreading them telling me it is positive, someone tell me that it isn't the end of the world caus thats how i feel at the moment. I just want a date for the op and get on with the treatment.
Hope you are all well as can be, please talk to me, i find it is helping to talk to you all Luv pauline xxx
so glad lisa that you can go away with your family, got my op 24th and we have blackpool booked for 8th may for a long weekend, hoping i will feel up to going as i need some normality, did the kids 2 easter egg hunts so that was nice,you are all my new best friends
lonve xx julie
brilliant!! So glad you'll have a break, like you say as long as you're feeling well etc and take it easy! Mary x
Have a good time Lisa, sounds like you have covered every option! I'm sure it will do you good! love Debs xxx
hi lisa, glad to hear you are managing to go away with your family. Thats one of the things that is getting to me at the moment, what i am putting my family through. Have a good time and chill out, speak to you when you get back Pauline xxx
Hi Ladies thanks for all the kind words , your all my new best friends ....
So just wanted to tell you all . guess whos all packed up to go away ???? Yes me .....
Feel so like normal Lisa that ive decided to go away with friends and famliy...
Spoke to nurse who said as long as I avoid the club and busy shop ect
and cook for myself that it shoULd be ok
So Ive got all my anti back wipes ready and Im just going to stop round the van reading and taking in the sea air
and sit out side with all my frinds in the fresh air and when they go of to club ect Im going to put my feet up and catch up with all the tv I missed last week ....
We also checked nearest hopital just half hour away so if temp was to go up I can be tuck there ...
One thing I said when I found out was I didnt want this to effect my family so think ive won that one , lisa 1 bc 0
HAPPY EASTER MY NEW FRIEND LOVE LISA XXXX
Lisa - glad you're back on track - and you put your feet up with a book or something when you get a chance this week coming - you deserve it!! Mary x
hi lisa and everyone else
thanks for your advise, it really helps to talk to people in the same position. sorry to here you can't go on holiday with your family. When i read your message i was suprised to hear how quick you had your mastectamy after your diagnosis. That is the worst thing for me at the minute, waiting for a date for my mastectamy. I found out last wed 8th and my BCN says she doesn't think she will even have a date for me when she comes found next thursday 16th. They are waiting for results on my lymphs (wednesday 15th). I have been told it should be done within the next 31 days (hospital target).I'm worried about all the waiting. Coming on here is helping so i will be able to talk to you again soon. Try to enjoy easter with your kids. Thanks again, pauline xxx
Hi Lisa, sorry to hear you have been feeling very poorly and now can't go on hols, enjoy being spoilt by your mum and getting jobs done. Happy Easter love Debs xxx
Hi again ladies
I do hope this helps Pauline as I started this tread when found out about the treatment I needed and wanted some of the great advise the ladies have on here ....
It just tuck me a while to catch up on all the posts on here as in just the last few days Ive started to become mom again and not had the time to get on here, so to me in such a small amount of time it shows that during all this there can still be a little bit of normality ....
Im 39 yrs old married with 2 children 12 and 7
4 weeks ago found out I had bc grade 3
Had full right mastectomy 2 days later found out all lymp where pos except for 1 so has to started chemo last Friday
Spent the whole week in bed as had really bad time on first chemo ( nan and grandad tuck children to there caravan in wales to have a nice holiday ...)
And here I am now children have been back 3 days and weve been out to celebrate my daugthers 7 th Birthday and Im having to catch up with the ladies on here because Im so busy being mom again ...
Hope that make you feel a little better and I will be on here loads next week because friends and family are going to Devon on a large family holiday ...
Been advised not to go because its my low immune days and its really large club and site ect so be on here chating to my new friends .....
Sorry its not that bad moms coming over so I get loads of tlc to oh and house work and ironing ...
Hope you all enjoy easter with your friends and families and hope the sun shines
thanks topsymo,my consultant is miss stotter, who also treated my sister,and i think she is very good dosen`t just want to chop the whole lot off if can be helped,just spoke to a friend of mine who said thats good new that i am having a lumpectomy,doesnt feel that way to me but if it makes her feel better, had some more flowers come today from the girls from work they were lovely and my 6 year old said "why does everyone keep sending us flowers" had to laugh, to be a kid hay
going to watch corrie now julie
Just wanted to say thanks to you all, i can see having you lot to talk to is going to be a great help. thanks pauline x
Pauline - I'm 43 with 2 kids, 10 and 16 and I'm from shropshire/mid wales border area. Its one hell of a shock to hear you have this BC business and it takes time to start to get your head round it, most people say once you have def results you can start to feel as if you're moving on a bit, we're all different and respond in different ways I suppose....keep well and keep us posted on how you get on - will be crossing all for you and sending positive vibes your way....like topsymo says its all do-able but we'd all rather not have it to do!! mary x
Hi Julie & Pauline- I'm farther down the line than you but also in the East Mids(in rural Leics.). Know just where you're coming from. I was picked up by routine mammogram last June Coped with being told I'd have lumpectomy and then rads but was somewhat bowled over when that changed to WLE after the SNB & histology results.
2.5cm ductal tumour, grade 3 oestrogen and progesterone positive, herceptin neg. Only one node involved but my stats are quite poor so I've gone thro the whole jolly menu 3 FEC(no probs.) and 3 Taxotere (really horrid) and 15 rads. Finished all that in Jan. and now on Arimidex with all the joys that brings.
Feel I've had to agree to having all the treatment that was suggested but am definiteley not POSITIVE- just realistic re my chances! I still find it really hard to accept that cancer crept up on me like this and knowing it is happening everyday to so many other other poor women doesn't actually help.
It is a really bum disease and don't let anyone tell you how 'lucky' you are to have had early diagnosis, prompt treatment etc etc. The only 'luck' i have had is that I escaped a mastectomy.
I believe that this is largely due to my surgeon at Glenfield (the now 'disappeared' but very lovely Sead Dzuhmer) who seemed very anxious to avoid mastectomies unless absolutely necessary- a sentiment which I do no think is held by all knife-happy surgeons)
Good luck with your tests and treatment- it IS all "do-able" - a cliched phrase but true: we have to do it- the alternative is not really an option if one has people who care about you.
sorry you have had to join us, but this website as been a blessing to me ,i am just abit further on than you as my op for a lumpectomy has been booked for 24th april go in the day before, the waiting for this and waiting for that is so hard, i have started taking st johns wort to calm me down, i took these when i had post natal dep with my first son and they just took the edge of,i am just down the road from you in leicester, my sister went through all of this 6 years ago, so i sort of no what to expect although everyones journey is different, have been round the shops today to find a good book to take into hospital,i have lots of book but not really hospital reading, as they are all true life crime,serial killers etc,so i have bought alan carrs auto, anyone got any good ideas for a good read
pauline take care and keep intouch hugs julie x
hi debs, it's just nice to talk to people going through the same, people who understand and know what your going through. it's early days yet for me but it winds me up when you tell people and they say 'you will be ok' 'be positive'. How do they know and i dont want to feel positive at the moment. I feel sorry for myself at the moment and i think i desirve to. thanks for the rant. How far down the line are you? Hope you are feeling ok Pauline x
Hi Pauline, its horrible waiting for results, I've felt much better once I was told! Not all good but at least i know and where I'm going!! This site is brilliant, its good to chat to people who do know!! Debs xx
hi mary, i'm 45 with 3 kids 13, 17 and 20, I live in nottinghamshire with my husband and kids. Got lots of support. Had a bad morning, think it just hit me, its the worrying about biopsy results next wednesday that i can't cope with. Thanks for the chat, i think i'm finding talking helps. Where are you from? i've not read back through all your posts yet. Hope your feeling ok with your treatment. Pauline x
hi hollymeg - sorry you've had to join us but good to see you - it does help to know that you're not the only one worrying and dreading things. I was diagnosed on jan 7th and had lumpectomy and node clearance on 28th jan, just waiting for next lot of chemo next week - will be half way through it then - hurrah!! Have you got family and what area are you from? Mary x
hi there, this is my first post. I was diagnosed with grade 3 bc on wednesday. Been again today for biopsy to lymph nodes. Got to wait till next week for results. It's reasuring to find i'm not alone. How are you doing now, hope your ok
came on here to be cheered up and have been with your wig storys,my sister was telling me the other day that some days she would get very angry, and on this particular day it was bin day,and the bin men left her bin so she did no more than get in her car and find them parked infront of them and demanded that they come back and empty her bin which they did girl power!!!
been hospital today and am in on the 24th april for lumpectomy, so least things are moving
take care all julie
I chose mine last week, and pick it up next Tuesday. The first one she put on me made me look like Thelma off Corrie. But the third one was nice, a snappy short style with blonde highlights on top! I have a rather large head (it's all them brains wot duz it) so it might be a bit tight at first but she said it stretches.
hi went to see wig ladie 2 day as feeling better , tryed a few on looked ok but colour wrong , goin 2 her shop on tues 2 try differnt colours told her what col i liked and asked if shed order it .
said no as when it comes i may change my mind about colour it will be nearly 2 weeks then and still need to order it ( ladie kept saying dont worry be ok ) ALRIGHT FOR HER SHE GOT FULL HEAD OF HAIR !!!!!! MEOWW..
aNY WAY LADIES KIDS 5 MINS AWAY HEAD ACHE TABS AT READY
I have missed them
Momms back >>>>>>
Lisa - mine started coming out on day 12 after chemo but not too much, by day 14 I got in the shower and it coming out all down my back, front, the shower wall etc so by the time I got out and dried it looked very sad - it was short n fine anyway so my friend did just that with the clippers - took the guard off and clippered it off - daughter said I looked like her uncle(!!) or a plumber. I had the wig ready but felt very conspicuous in it as if everyone knew it was a wig but lots of people have said how natural it looks - I like to feel normal with hair but honestly the scarves are comfier - they are pre-tied ones so easy to slip on. I find I get a headache sometimes with the wig so today when I went for my blood test I just wore the scarf...getting brave now! mary x
glad it not just me that has thoughts like that,i was out shopping yesterday and everyone was being normal why!!!!!!
lisa do you live far i might need a good hair dress! i`m in leicester, also good luck for your daughters birthday