NEW !!!! just been told what treatment I need ...

[hollymeg]

debs, hope you get a date. feels better when you know its going to start. I start at short notice because i had bloods done recently. We will be able to help each other through this. good luck tomorrow, keep us posted.
Luv pauline x

[Guest user]

There seems to be a cheese theme here!!!

Pauline hope all goes well on Thursday, sound like you will be able to give me advice too! Hope I get a start date tomorrow!

love Debs xx

[Guest user]

Thanks, Evie - nice to know I'm not the only one feeling down. No, that came out wrong - you know what I mean. Anyway, an infusion of toasted tea-cakes and a walk in the park with the dogs did me a power of good.

Still waiting for the bluddddy estate agents to get the house up on the web - they emailed me Saturday to say it was all systems go, then nothing, although I've emailed them twice today. Remind you of anything...?

[kittenkat]

pauline - you'll soon be an expert like the rest of us!! mary x

[hollymeg]

hi ladies, just to let you know, we have lift off, first fec on thursday. I sound excited but i just want to get the first one out of the way so i know i can cope with it. Might try and get wig sorted this week, more worried about that than the cemo, stupid i know.
Hope your all doing well, any tips before the first one will be greatly recieved
Julie, cant believe your beating me to Take That, dont wear them out tomorrow, save some for me 🙂

Luv Pauline x

[Guest user]

Susanne i feel the same today!
Must be something in the air as normally I am quite positive but had a little cry in the car for no reason apart from i feel miserable!

Moaned to my mum and now feel better.

[Guest user]

Oh dear - some days it's harder than others to keep your chin up. In spite of the sunshine, and the emergence from the worst of Chemo 3, I'm feeling a bit down today. Don't really know why - just got a kick of "Am I going through all this just for it to come back in a couple of years?" Think I need an urgent infusion of toasted tea-cake!

[kittenkat]

susanne - I was mad about hot cross buns with cheese on with the fec!! Julie - glad you're doing so well!! And enjoy take that!! mary x

[Guest user]

hi all
was not to bad last week, just aching knees etc also sbit tierd,
wow sharon thankyou for joining this thread,you sound great,well done on raising all that money, im struggling abit with the fact that the hair is going to come out had 1 chemo so far,but maybe when it happens i will feel different, you are right about chemo doing a job though
pauline good luck for today, and yes i bought some lovely shorts to wear in the rain lol,
lisa hope the arm feels better today,
mary is fantastic at given good advise, i think the fact that she said drink lots of water the day before and days after chemo helps, thanks mary,
tommorrow night im of to see take that cannot wait
will let you all know how it goe`s
lots of hugs julie

[Guest user]

I fink I've got chemo brayne! My friend just rang, and I was trying to have a conversation with her, and I just couldn't think of what I was trying to say! Even simple words were slipping away. It's not that I'm particularly tired or poorly - I actually feel as if I'm coming out of this one a bit quicker than before, it's only day 6 and I'm almost human again already.

Good luck to those getting ready to start. I honestly haven't found it as bad as I was afraid it was going to be - most of the time. My biggest problem is the veins where they take all the blood tests, but they've given me some Hirudoid cream which is helping. And I've got addicted to toasted tea cakes and crackers with Dairylea (not at the same time.) Oh dear, I'm rambling off the point again, maybe I'd better sign off...

[Guest user]

Pauline, i feel exactly the same, really scared about chemo but just want to get going now, its seems to have been a long wait!
Maybe we will be together on this chemo bit and mary can give us both advice!!

Love debs xxxx

[kittenkat]

hi pauline - keep us posted, take care, mary x

[hollymeg]

Hi debs, not spoke for a while, hope all goes well on tuesday. I meet cemo nurse tomorrow so i hope i come away with at least a start date. Sick of waiting to get first one out the way now.
Luv Pauline x

[Guest user]

Sharon, yr post really made me smile! My husband is bald too and he has made similar comments about us when my hair goes, not started chemo yet seeing onc on Tues. Hope I will be as brave as you!
love debs xx

[Guest user]

Good on you, Sharon. It's the being messed around that's so annoying, but I suppose it would be a bludddy mirkel if they could diagnose properly first time all the time - this BC malarkey seems to be a lot more complicated than we ever thought before we joined the club. I'm (almost) with you on the baldy-head thing. I hate wearing a wig, and the scarf gets on my nerves - it catches on the little patches of stubble that are left. I walk the dogs in the park with the sun bouncing off my pate (when there is any) but I haven't quite worked up to going to the shops like it yet!

[hollymeg]

wow sharon, you have been through so much, but you sound very positive. You made me laugh, imagining you and OH walking down the street together, you are so brave and what a fantastic thing to do, raise money having your hair shaved off, well done you. I start my cemo this week or next week, sick of waiting to get first one out of the way now. Had MX and sentinal node biopsy 28th april. need to have full clearance or rads under arm later as 1 out of the 4 taken was involved. We all have a long road ahead but if we can do it together it will be much easier.

Hi lisa how is the arm? hope your ok

julie did you find anything in the shops yesterday? bet you got webbed feet with all that bloody rain

Alex, you still with us? hope your ok, were here when you need us

Luv to you all, Pauline x

[Guest user]

Hi All,
Thought id join in as u lot seem to be quite upbeat and on my kind of wavelength!
It looks like many of you have had the op first then chemo so you are ahead of me.In september last year i was misdiagnosed,they done all the tests and the biopsy on the enlarged lymph node was neg.Finally - only after my persistence and another lump and my nipple being eaten away i was diagnosed march 24th with stage 3 multifocal invasive ductal.
I am 38 yrs old and have 7 children.youngest two are nearly 3 and 18 months.
Because of the length in waiting to actualy no what i had i decided to go for chemo first just in case it had gone anywhere else.Ive got 9 cycles of chemo (i just had my 3rd).
The bonus of having the chemo first is u can actualy feel it working and it keeps u upbeat and strong..no its not easy im due to start tax june 16th,(dreading it) but having seen my onc she has confirmed what i suspected,that the lumps are going!!
Following my chemo im having a double mastectomy and immediate recon with fat taken from my tummy (had to be insistent tho as they tried to fob me off with -the teams not big enough) so i sed well send me where it is then! In my opinion I know Its not in the other breast but it cud go and id rather get it all out the way!
My husband shaved my head at a big party,we raised £1100.00 for a local bc charity,they send in cleaners,gardeners etc.ive not bothered with a wig,for those of u that are upset losing your hair,think of it as its u have to get bald to get cured,thats how i coped,my hair falling out made me feel better that the chemo is working.I proudly walk around bald,my husbands bald too so we actualy look like right said fred!
Keep positive and stay well.
Sharonxxx

[hollymeg]

hi lisa, How you feeling today? hows the swelling in the arm?
I got the all clear from CT scan and i meet cemo nurse on monday to discuss starting cemo. 3 x FEC and 3 x something else, not sure what. radiotherapy follows, then i have to decide if i want all lymph nodes out or to zap them with radiotherapy ( 1 in the 4 taken out was involved). Then tamoxephen and overies out. After all that i can then think about reconstruction. What a summer we have to look forward to.
Hows it going julie? not spoke to you today, hope the aching is not too bad. I've been to physio again today and my BCN had rung the physio in the week to tell her off for making a mess of my arm, i felt awful because she was only trying to help me with the cording. Done some more tugging, it really hurt again but im hoping it will have helped with the last bit of cording.
Luv to you all Pauline x

[Guest user]

hi lias
funny(not) that you say about the pain in the arm like toothache, as i had the same not as bad to though,did you also mention before about aching joints,as a few days after chemo my knees ache then my arms etc,
i was thinking of asking the hospital to put a line in as they have so much trouble each time to get needle in,
going over costa coffee now to meet friends
take care julie x

[lisa_lisa]

Pauline how are you ? not spoke ( typed ) you for a bit .... Im sure I read youd had your results is that right ,if so have you started treatment yet have they told you what youve got to have ....dont worrry if youve already gone through all this i wount be afended if you dont want to type it all again ....I feel a bit like that when friends tex to ask how treatment is going , i usually phone them as its eaiser ...
sorry cant think straight got chemo brain and pain in arn that is like a constant tooth ache ......
Yes It was all going so well ............
Lisa x

[hollymeg]

oh dear lisa sounds like a lot of worry for you, just as things were going along so nicely. Nothing is ever straight forward. I hope the swelling goes down soon. Big (((hugs))) lisa.
I seem to be dishing a lot of hugs out today.
luv Pauline xxx

[lisa_lisa]

Hi Julie yes we were at weymouth last week (little sea haven ) we loved it but beach was so packed due to weather but great for kids because sea was really carm and seemed really safe for kids Im sure youll be ok and be able to go any way
hospital twice today arm had it so need more antibiotics to bring down swelling and need a hickman line put in for rest of chemo ( oh joy !!!) ALSO if no better they want to check for blood clot !!!!in arm no rush .......any way surpose they know best will let you know what happening and by the way Im really unusual to have all these side effects so dont worry Lisa ... Ive always liked loads of fuss made lol
Lisa

[Guest user]

hi lisa
thats a nausence,that worries me as i have a holiday booked for 8th aurgust in weymouth and the balance has to be paid this month,i dont want to cancel it, so have just got to hope all does well, lisa i think you have inpirerd me to be positive , as you always seem so.
take care julie x

[lisa_lisa]

Hi Alex Im really sorry you have had to join us but we are all here for each othere it is very scary but we are all here for you ...
Any questions just ask ,,,,Once you know whats ahead of you it does help x
Julie you sound really postive glad your not suffering to much thats the first one out the way I think thats the hardest not knowing so well done .
Ive got three left im half way but got some bad news today ment to have 4th chemo friday but got really painful red hot infection in arm think its from vein where chemo was given and onc said they need to treat infection before I can have next treatment bit of a pain as you prob know ive got the next three treatment planned out child care ect husband and friends time off to come with me and keep company so bit feed uo today .
Any way girls suns shining which always make me feel better all the best to both of you stay in touch
Lisax

[Guest user]

hi
alex
i came to this forume end of march having found a lump to my right side,unfortunatly for me it was bc, but the ladys on here are so supportive giving lots of advice and encoragement, it is a really scary time for you and then you start the waiting game which is hard,
i have just had my first chemo last friday, not feeling to bad today,
alex if you want to rant and rave do so, or if you just want some advise, i have met some wonderful people o here to talk to,
thanks lisa yes first out the way,how are you doing,have you got 2 left?
take care all julie x

[alexamay09]

Hi Lisa
I am finding out this afternoon exactly what's going on after being told last week I have BC. Am a bit scared. Am not quite sure how this forum works yet but think its a great idea - just knowing that people are in the same boat helps.

alex

[lisa_lisa]

THinking about you for Friday Julie Lisa x
Once youve started it will seem like your closer to the end ....

[hollymeg]

yer julie, with you all the way, we can do it babe

Luv Pauline xxx

[Guest user]

thanks mary julie x

[kittenkat]

julie - we'll be right behind you!! Well actually I'm right in front too as due to have no.5 of 6 p yeahhhhhhhhhhh on thurs....once you get the first one out of the way.....mary x

[Guest user]

hi lisa
start my chemo friday, i think the anticipation is worsed as the unnown,i to am only going to read positive things as i think if you let yourself you can delve into things you dont need to see,i am grateful for any advice,thanks also for the lovely weather you ordered,have put a 10 foot bouncer in the garden, and yes i have had a little go, no sommersaults though,
take care all julie x

[lisa_lisa]

Sorry again " opened a can of worms comes to mind ..

Pauline Ive just had my third sess so half way ......to be fare it seems to have gone really quick
Ill be honist I do have a bad week I send children off to school and go back to bed till they return home and then hubbby takes over when he gets back from work but saying that I also have two weeks when I feel like Lisa .
Ive also been posting a couple of ladie s who are at the same stage as me one has a couple of rough days and the othere has a take away on the night that she has her chemo !!!!! so it just showes every one is different maybe the ladie on the blog had it at its worst ,,,,,

I do have loads of help I am really lucky since my surgery Ive still not had to do any ironing one of my friend is doing it for me also my parents live really close and mom keeps on top of the house work for me I even have friends that cook and bring meals round for the whole family .......I am really luck to have such great friends and family ...

I get Chemo on a Friday so after school my youngest goes to sleep over at nannys so she things its a great treat , she keeps asking mommy can you getting some more of your medicine soon !!!!!!bless out of mouth of babes !!!!!
Ladies good luck with the chemo , love it if you post me and tell me you eat a take away on chemo night .....

Once youve started it does go really quick cant belive Im half way any advise I can give you to help or any questions please ask ....

I think one of the best thinks I can say is make sure you ask for as much as poss just in case ...
There are so many different side effect which you may or may not get . The thing is the hosipital will give you all you may need and all you ask for so to have it to hand just in case will make it so much easier if then needed...
SORRY EG I got a couple of mouth ulcers which I put up with till my next chemo appoint as soon as I told them they gave me this fab expencive mouth wash and not had one since ..
Also the chemo makes you a little constipated which agin they can give you some thing to take just in case so no need to suffer ..
Hope it helps ..
Someone once told me there is that much out there for us to take we should not have to put up with the side effect and I totaly agree we have to put up with so much during this journey why put up with more that we have to ...
Hope this helps ladies
Let me know how you all get on thinking about you all
Lisa x
Enjoy the sunshine hope it lasts ...

[aliceblue]

Hi All, sSorry being very nosey, which blog? I start chemo tomorrow. Alice xxx

[Guest user]

just nipping in- i read that blog too.... all of it right from the beginning.

IT TOTALLY scared me to death and made me cry and cry but also laugh. My mum looked at it too and found it too upsetting.
I still think its fantastic but i so hope chemo doesnt make me that ill....

[hollymeg]

hi lisa, i just wanted to warn julie caus i know what she is like and she starts cemo this week. I found the link by accident and yes i agree its funny but i was hunting for info and wished i hadn't. She tells it how it is and she happened to have a bad time so it scared me. Anyway people choose what they want to read and some like me need all the info they can find but i am learning not to look to deeply into stuff, just enough to prepare me. Go to onc on wed to see when i start cemo, scariest bit i think.

How you doing anyway, hope you had a good bank hol?

Luv Pauline xxx

[lisa_lisa]

Hi Pauline so sorry woundnt of recommended it if id have known , I only read that post on link which I found quite true , didnt notice that you could go back and read othere posts not very good on links ect ......

Looks like nice weather is here for a few days we go to waymouth on Thursday for a few days in caravan on a Haven site with the children you watch it knowing my luck the weather will change then ...LOL

Enjoy using the new garden furniture and yes my hubby would do some thing like that and then forget to get it back out and go off to work ..lol

Enjoy the sunshine ladies ....
Lisa x

[hollymeg]

morning julie and mary hope you are all well, hi lisa nice to see you back, must say lisa i went on that blog and i am nosey and went back to the beginning, wish i hadn't, she tells it as it is from her experience and i must say it scared me shitless. I am about to start cemo and i must say its her experience that sticks in my mind not the positive ones that the lovely ladies on here have shared.

Julie i know what your like, dont go diggin to much anywhere at the min. Your worried enough about friday. Just take things one step at a time and remember everyone is different (hope you remind me of this advice next week lol) you just have to put yourself first and look after yourself. I am trying not to read too much about it at the min, only official cancer backup stuff.
Garden furniture is lookin lovely, gary is obsessed with not leaving stuff out in case it gets pinched. so he put all the chairs and brolly away in the shed, trouble is its all too heavy for me to lift so looks like if he forgets to get it me out in a morning i will have to sit on the old green plastic ones. whats the point of that? men!!!!

Make the most of this georgious wheather ladies, i might get my lilly white legs out today, first time this year.

Luv Pauline xxx

[lisa_lisa]

Ive just read this and it did make me smile hope you also find it makes you smile .
Enjoy the bank hol ....

[kittenkat]

hi Lisa - yes and you too re the pic - lovely smile! Hope you're keeping well, yes been nice today and we're off visiting rellies in Manchester tomorrow....mary x

[Guest user]

hi lisa
just want to say , it nice to see your smiling face,thanks for those words to yes you are right, and also thanks for the sunny weather you ordered,
me and pauline are getting our gardens ready to sit out in
hope everybody else is well
love julie

[lisa_lisa]

Julie Glad you got your results I also had all but one of my lymp involved but i try to look on it that they found them and got rid ...
Have a good bank hol
Lisa
Hi Mary hope your well nice to put a face to the name .... Lisa

[lisa_lisa]

Hi Ladies
hope all is going ok , its gone a bit quite on here hope that means were all managing to do some normal things !!!!!!!lol
I think we could all do with some good weather for the bank holiday Im sure its what the doctor ordered
Enjoy the bank holiday
Lisa x

[kittenkat]

julie - he's a star!! Handsome lad - will show my Belle his pic now.....mary x

[Guest user]

hi lisa its so good to here from you again, ive been wondering how you are,
had results yesterday, grade 3 but clear margins so that was a relif but 3 nodes infected which freaked me out abit, have calmed down today ,just weighting for app from onc now ,
hope you all like my new pic of my other persian cat charles super ted, but charlie to his cat friends
hugs to all julie x

[lisa_lisa]

Hi Julie hope it all went ok , got third chemo tomorro so really worring about it now because I know how much it knocks me about . Saw onc who said I dont have to have injections this time sssoooooooooooo glad she did say that it means I now have no body armour so need to be extra careful I dont pick anything up .....Easier said that done lolve

I too have had those really bad down days but must say now im going through treatment and when im having my 10 days when i dont feel too bad I do feel quite upbeat as I know im now dealing with it quite well , so hope these feeling come too you all when your going through the motions .....

Any way need my beauty sleep before they give me my potion 2 morro
Love to you all
let hope the sun shines Lisa x

[kittenkat]

julie - been thinking about you kiddo......mary x

[Guest user]

hi
thanks all am sh**ting myself abit this morning, think i will go out for a walk round the charity shops in a bit, see if i can find a bargin, just put a chilli in the slow cooker as my app is 2.10pm but knowing how long they keep us waiting, who no`s what time i will be home?
take care all julie xx

[kittenkat]

same here julie for tomorrow ((((hugs))))) mary x

[hollymeg]

Julie i know we will talk on face book but just incase aliens come down and block the internet, i just wanted to wish you all the luck in the world for your results tomorrow.

I am keeping everything crossed and i think i will have that 'sick in the pit of your stomach' feeling with you

Good luck babe, Pauline xxxxxx

[Guest user]

hi all back from blackpool abit wind-sweep but it was a nice feeling to get away were knowone no`s i have bc,didnt go on the fair as it was bad enough going over speed bumps on the caravan site, hi holymeg
so you are so down i felt like that for a couple of days last week,
my appointment for my results has came through for 14th may, so now worr ying again,also keep getting stomach pain so worrying about that,which is probely making it worse
bye for now julie x