I am day 10 post TAX number one
Delighted to tell you all that I had a great nights sleep last night and woke to feeling almost normal! I still have rather painful feet and swollen toes, ankles, fingers. Aches and pains have faded nicely into the background and the horrid sharp shooting pains appear to have gone. I have enjoyed a couple of hours in the garden trying to get some colour onto my baldy head and also done some light housework.
I feel great!
Hope everyone else is plodding on with this - it does eventually get better - although I do not like the thought of going through another three of these! I am due to see my Oncy next week and I will be armed with a long list of the side effects that I have suffered from this time and see what she says.
Have a good a weekend as you possibly can - rest when you can and be kind to yourselves.
I'm 4 weeks post last TAX, which was easier than FEC for me.
The pains I suffered from the neulasta injection were unbearable and my oncologist gave me extra steroids reducing dose for 5 days to 'see me through' the worst of the torso pains and the 'come down' from the extra high dose of steroids wasn't as bad as stopping altogether - had much less sleep which was preferable for me than the pains though.
Tax took the eyelashes that I had left from FEC and brows became a lot more sparse.
Good luck with your treatments gals x
I'm day 4 first TAX. First day I thought this is okay I'm not being sick. But then it hit me, even now have zero energy and normally I'm picking up a bit by now. It's the aches in your body that gets me and stabbing pain at random places. all i can do is laze around, is nice today as my teenagers have an inset day so good hearing their voices in the house. I'm also really down about everything, fed up with feeling awful and not having my life, I just want my life back of going to work in a school which I love and going to the gym
Although my mouth is yucky i can eat more food than normal, just doesn't taste as it should
Was lovely last couple of days sitting in the shade with a bare head and feeling the wind again blowing on my scalp - haven't felt that for weeks, never again will I moan about the wind blowing my hair in my eyes!!
Day 3 post first tax. Mouth seems a little crappy so think I have the return of oral thrush so have doctors appointment later to get something for it before the weekend!! Still feel tired but had a better nights sleep last night and hoping for a better one tonight...
Am a little more achy today and my get up and go has got up and gone!!! Have literally sat on the sofa today after taking my boys to school...
Wish I could enjoy the weather but feeling a little sorry for myself today.
Hope everyone else is enjoying the sunshine.
Love to all
Jenben that sux!!
So glad you are feeling better now. Must be such a relief.
Hope you get sent home v soon - or maybe you are getting something out of total rest being pretty much forced upon you.
Really hope your next tax is as plain sailing as possible.
welcome to My2Boys to the joyous tax thread!
Hope day 3 and so on continues relatively uneventful for you. with a little bit of sunshine too.
so far we've had a few highs and lows.
I've discovered a weird rash on my leg but I think I'm just being paranoid....
Hi all sorry for not reporting back earlier. Basically Saturday saw me laid in bed unable to move in agony. No pain relief worked and I felt very very poorly. Sunday and Monday not much better and went back to chemo fir review. Gave me some codeine and sent me on my way. Tuesday bit better pain wise but by 7pm spiked a temp of 39 from nowhere. To cut a long story very short am in hospital on iv antibiotics for a septic urine infection. The question now remains was the pain chemo or the build up to this severe infection. So I dint want to paint a terrible tax picture as you can get terrible all over body pain with a UTI. Todayi massively better, no pain and feel well. Does make me wonder if I went into chemo not completely well altho my bloods were all ok. So I am going to have to wait for next tax to get a true picture. One thing tho is that coming off the steroids is like cold turkey. Felt like it was the "dt's". It's such a huge dose just to stop. Good luck all and hope we can enjoy the weather.
Hope everyone is OK -- could I please join -- had my first TAX on Tuesday so am at Day two post.... Feeling OK at the moment but appreciate this is early days -- have the spacey feeling too, I remember having it after my first FEC as well. Think I may have the return of oral thrush - oh the joys but again had this with FEC and will finish on the bottle of jollop from the doctors and have made an appointment to gain reinforcements!!
I am starting my injections on Saturday so I am not looking forward to getting the muscle pain -- have grabbed some nurofen from Boots but just may add this to the list for the doctors..
My eyelashes and eyebrows are holding on and am hoping that they cotinue -- hair is thin but have been using the cold cap and had to shave my legs for the first time last week so hopefully hair is beginning to grow!
Hope everyone has a good day with little side effects -- loving the weather but know the feeling of not wanting to be outside -- I also hibernate for a little while after treatment but its working for me....
Love to all
Hi Supertrouper, LesleyP, Sandytoes (our dedicated tax support officer) and all,
I am now day 6 and just starting to come out the other side. Day 5 was pretty vile I must say. I have drops for oral thrush (I'm sorry but that is just bloody disgusting) which are working and have been overdosing on senna in an attempt to 'keep moving'. Also got pains straight after the white blood cell jabs. I only learned from this site - think it was from you Supertrouper - that they cause aches so thank you for that info!!
I know its great weather outside and am full of admiration for wigless (and topless) sunbathing but I just cant drum up the interest/ energy to leave my flat. I definitely like to hibernate when in this vile chemo haze and then tend to go for it full tilt at work and social life when side effects have dissipated.
I must say that despite being incredibly lucky and having all the loving and supportive family, friends and boyfriend a girl could wish for, plus excellent medical care - this forum has been a real life line for me! I wonder if people with less commonly occurring cancers have such a great resource available to them.
Hope we all feel better very soon and can enjoy the weekend. I'm going to the natural history museum with my best friends and their 2 year old and then out for birthday lunch for a friend, then a friend is coming round for breakfast on Sunday, then out for tea...hmmm I wonder why I have chubbed up considerably in the past few months...!!?!X
Well, day 3 and I certainly feel a lot worse than I did yesterday! Just feel as though I've been drugged (which I have I suppose!!) and very spaced out and weird, but couldn't seem to manage to stay in bed so have got up and had some breakfast and going to try to tackle some work - I work from home on the computer.
Don't blame you for going topless/wigless, the sunshine is lovely, almost too hot though when we have the hot flushes to contend with. I didn't go out in public wigless last time though and I can't see me doing it this time either
It was day 3/4 when the tax truck hit me. But not everyone suffers! I think with it being my first one, my body over reacted to it. I got extra goodies from the hospital today to help with yucky mouth and constipation. No need to suffer in silence - the team will do all they can to minimise our suffering.
I had 4 doses of EC before starting on Tax - hair on my head was gone before EC 3 - I have about 10 eyelashes and very sparse brows. I wear my wig from getting up to going to bed. Apart from the past two days when I whipped it off to go topless in the garden in the sunshine. Sorry, I mean wigless.
Hi, probably joining this thread a bit early as I only had my first Tax on Monday. Feeling not too bad at all at the moment, tongue and mouth a bit sore, using lots of Difflam. Just coming down off the steroids now so tiredness starting to kick in after being a bit hyper for the last two days. No sickness or joint pain, but maybe that's to come.
I had EC last time round (two and a half years ago) and had total head-hair loss, thinned eyebrows but kept my lashes - sounds as though we're more likely to lose the lot on Tax, will see. Picked up my new wig this morning, it's very glam and I feel quite good in it which hopefully will help!
Take care all
I am day 8 post Tax - and I think I am beginning to crawl out of the ditch that the truck left me in when it hit me. Putting on socks was a challenge! Have stayed in bed and on the sofa for most of the past week. Gross white tongue was this morning and it's oral thrush that needs treating - ring your onc unit and get a prescription! Constipation - aches and pains - eyebrows much thinner and eyelashes just about gone now but I am painting on the "sexy lash" every day and dreaming of the gorgeous long and thick eyelashes to come!
I rang the Oncology unit today and reeled of my side effects - lovely nurse said she could fax a prescription to my doctors or I could pick it up. I went and picked it up. Had to drink a pint of water with 4 sachets of Movacol dissolved into it and now feel a bit like an unexploded bomb waiting to go off.
Spent a couple of hours in the garden this afternoon - very peaceful until about 5 when all the neighbours rush back home and decide to cut the grass - what would be the collective name for the noise that more than one lawnmower makes? A "bedlam" sprang to mind - the noise and the inquisitive wasps trying to taste my Strawberry Fruli have driven me back inside now!
A fairly sleepy, hairless but quite chilled
How are we Taxers?
I am 5 days post and side effects have really kicked in....I am exhausted; putting on socks was an effort. Am off work, in bed (not even out of pj's) with mild aches, very managable nausea, a gross white tongue, lots of paracetamol or cocodamol if i'm feeling wild, and some icky but helpful tongue drops. My fingertips feel like they have elestic bands tied round them and my feet are sore. But I treated myself to a shellac mani and pedi as it lasts up to 3 weeks and i thought it might hide any discolouration. Having said this - TAX is better than FEC so far for me. I dont feel quite so poisoned.
I think my eyebrows are thinning and if I'm honest I am really dreading loosing them and lashes of course, as it feels like the last straw. With my wig on and some good lipstick I still look pretty decent but am dreading 'eagle face'- if it happens.
Soupertrouper and all - how are you?
Sandytoes have you finished chemo now?!
A very sleepy, slightly stroppy & revolting
Absolutely. And I've met some other ladies who also sailed through. I know alot of people suffer and that's horrible, but think it's important to let those just embarking on or facing TAX in the near future that some people are ok on it. And if you do have a horrible time with the first round then it sounds like some of the ladies in the june thread used strong pain killers for rounds 2 and 3 and fared much better. One common theme was that most of us felt great for a couple of days after TAX. Esp compared to FEC/AC etc. Let us know how you get on. X
Hey Sandytoes & Supertrouper,
Sandytoes - glad you did so well on it - you can be our poster gal for 'Tax Terrors? what Tax Terrors?' I am taking your advice and not getting too excited though as one never knows what delayed pleasures it may bring...
Supertrouper I'm very sorry to hear you are suffering and not surprised you are feeling sorry for yourself. Really hope it eases up for you at some point very soon. I want to get one of those little PEZ sweety dispensers for my pain killers, might be a good solution to the numb fingertips problem...!
Hope everyone has as good a day as possible X
Sorry to say that I am suffering quite badly from the SE's of TAX. Everything aches and on top of that I have a very sore throat and mouth. I am taking painkillers but that in itself is a task as my finger tips are numb and I am struggling to get the tablets out of the foil packet.
I am happy for those who aren't suffering but feeling a little sorry for myself at the moment as last weekend I felt fantastic compared to how I feel now!!
Hope I feel better s ono.
I hardly had any side effects on TAX and had my last one 10 days ago. Hurrah! It's great not feeling sick isn't it!
HOWEVER just wanted to say to just take it easy and look after yourself as the aching side effects don't kick in until a few days later. Hopefully you'll sail through...but just take it easy for the next few days just in case - and then you'll know how you're going to feel for the next couple of poisonings.
How is the tax b**ch for you Super T?
I had mine on Friday and for some glorious reason I am feeling...OK!
Very tired with the odd hot flush but no pain and no nausea!! Nausea was my worst enemy on FEC, I actually felt like a posion victim during my last cycle, so the relief is making me grateful.
Anyway - dont want to show off in case you are feeling rotten - whcih I really hope is not the case!!
Best wishes and hugs to you and everyone else on this lovely, girly, sanitised, cuddly pink road if b***sh**!!!
Ps. Doesn't mean I didnt moan and b*tch about it at the time though 😉
One vital thing to remember, its very very good and it could save your life. Worth a few months of misery if that is what happens, doesn't feel like it at the time, but I can say 6 weeks since my last one, that I'd do it again if I had to. And all the bowel trouble and severe leg pain I had to to increase my chances of survival. You'd cut your own arm off with a blunt knife if you had to , to survive.
Hi Jenben - I had the tax at 1pm yesterday and it was okay. Got told off for not starting the steroids first thing on Tuesday, I took the instructions literally - "start 24 hours before first chemo" so started them at 12 noon on Wednesday. Anyway, nurse had a quick chat with Oncy and we got the go ahead. Felt a bit tired when I got home so took myself off to bed for a couple of hours. Had a bit of a flushed red face in the evening and despite staying up till nearly 2am - I got hardly any sleep. Managed an hour after OH and YS went off to work and have been up and about since then felling fine. District nurse has just been to do my Neulasta jab and I am guessing that when the steroids start to wear off (this weekend) then that is when I might start to experience the pains that people talk about.
I have started to massage my hands and fingers, feet and toes with enriched lotion. And rubbing on nail conditioning oil in the hope that I don't suffer nail changes that some people have commented on. Been and bought some lovely soft comfy slippers to wear around the house as before I normally wore shoes. Guess we need to look after our selves a bit more don't we!
Having a picc line fitted was the best thing I have ever done. Just don't watch whilst they are doing it!!
Keep us posted as to how you are feeling as the days pass and I will do the same so that we can compare notes xx
Hi, apart from struggling to find a vein tax went very well. No nausea at all but no sleep from steroids. Today trying to rest but buzzing. Sat next to a lady who ismahead of me with tax. She has hers on a wed and then gets pains at weekend but rests a lot and takes painkillers and is normally ok by the Monday. Feels a bit of a ticking bomb the first time! How did you get on ST? Having picc line fitted on 10th, thank goodness, my good hand is one big black bruise.
jenben - first tax for me and looking at the clock - it's today!! Did you start your steroids yesterday? Hope it goes well for you and come back and post how you got on and how you are feeling.
First tax for me tomorro! Good luck to all x
TAX was better for me than FEC. Immediately after FEC I had SE's. I had a sick bowl in the car for on the way home! TAX was so different and the SE's set in gradually after a couple of days. I had a dose of the TAX trots about day 4 and felt like staying close to sofa/bed until end of first week. Having said that I still found it much easier than FEC. My nails did suffer but I think I could have done more to help myself. Don't fear TAX just listen to your body and have your box of meds at the ready. You might not even need them. TAX feels a long time ago now and (hopefully not) but if I had to do it again I would. TAX felt like I was winning, over half way through chemo and looking forward to better times ahead.
Have just finished 3 FEC and starting Taxotere on 7th Oct. Thankyou for all the comments as I am dreading this next lot, good to hear of all the positive comments.
I had 3 x FEC followed by 3 x docetaxol. To be honest I hardly noticed any difference and, if anything, tolerated docetaxol rather better. Big advantage was that the time spent in the chemo suite having docetaxol was so much shorter with it only being 1 bag of gloop rather than 3.
Docetaxol affected my nails but nothing painful at all just brittleness. The fingernails soon recovered and are as strong as ever now. My big toenails still look a bit yukky but I've heard it's advisable to put ice pack on your toes during delivery and this lessens the impact (a bit like a cool-cap for your feet).
My eyebrows and eyelashes thinned as a result of docetaxol but having lost all my head hair this seemed like a minor issue and they grew back pretty quickly anyway.
Do hope you get on OK.
I had a TERRIBLE time on Taxotere, if you've read any of my comments!
I knew quite a lot of ladies in the chemo unit who had hardly any.
People don't come on here to say they're having a fine time, they come on and post when they need support. So it's unbalanced, I was scared as well (turns out in my case I was right to be LOL)
Taxanes are the "gold standard" and achieve some amazing results, so if you are unlucky with them, remind yourself that you have to get through it as best you can to get the best results. None of us want this back! xx
I had my 3 TAX starting in Dec 09. Pre chemo I used to have really bad hard skin on my feet, I had tried everything including the chiropodist, nothing worked. I had the skin SE of TAX and my hands and the lovely soft new skin just like a new babies bum.
My hard skin has never returned, that is definately a bonus!!!!
The most positive thing about tax is you will get through it.
We all get different side effects and different levels.
I am in thailand staying as hubby is working here and was reading all the posts in preperation what to get etc. it was like Boots the Chemist in the cupboad. LOl.
I really didnt use half of them as my SE were bearable compared to some. Only the firat one was kinda scary.
You will get through it. No matter what. We've all been there and will be there for you if you need us. I actually laugh now at some of the things that happened to me and thing did , like putting boiled eggs on and forgetting and only remembered when they were exploding over the ceiling LOl.
Good luck it is scary and tiring but there will be light at the end of the tunnel
ST I had 6 tax, and quite simply it was hard going , if you manage the SEs its not too bad, make sure you take anti sickness, some say you don't get it but I did on my first, after that I took meds sooner and had no problems with nausea and minimal digestive probs.Nails on hands have been slightly affected but still in place, toenails took the brunt and some are black but only lost one.
Tiredness is the worst but you sleep a little more, no worries !
At the end of the day its the gold star of treatments and for me it has worked far better than I could have hoped, its been 8 weeks since my last infusion and I am pretty much feeling normal and apart from the fact I have just had my Mx I feel good,tax is a distant memory now.
ST - you know my feelings about TAX. Minimal side effects for me. A bit of joint pain after the neulasta, but nothing to stop me from walking my dog. No bowel problems, but have achey nails, flakey feet, eyebrows, eyelashes and nasal hair have all done runners. BUT NO queasiness and lots more energy for me. Had my fourth and final one yesterday. Huzzah!
PS I always feel a bit sheepish posting minimal side effects when so many others on here suffer BUTthink it's good to show both sides of the story. My advice is to be prepared for the worst (look after yourself and take it easy for the first week and stock up on ibuprofen, paracetamol and immodium) but then you may well be pleasantly surprised. I do hope so!! X
Done 4 FEC and 4 TAX. To be honest, I preferred TAX to FEC. Well, except for the last TAX where I'd got bloomin' tired and didn't cope that well (but arguably that would be the same whichever way round they did it).
I took a good vitamin and mineral supplement and extra Vit D as well as lactoferrin supplement and manuka honey. My blood test results were pretty much fine all the way through...so much so that the nurse wondered if they'd been giving me any chemo at all. (!)
On TAX I also got them to give me cold gloves to wear during chemo, and took in my own frozen veg to put my toes on. It helps stop nail problems in half the people who try this, says the research.
I had big painful digestive troubles each TAX for a few days - bit like bad IBS, but coped with tablets. Bit achey. Toenails and fingernails hurt a bit. Other than that, not too bad. More to the point, it worked for me and reduced the lump to "gone completely!".
Is that positive enough? Have a virtual cuppa...
Tax was *much* easier than EC, didn't need Neulasta.
Only had one day slightly nauseous; refused all the TTO meds after the first session.
No thrush, no ulcers.
Felt well enough to do star jumps at times (honestly!)
Was able to do some jogging at first.
Hair started coming back on head while on Tax; still growing.
Got Tax Trots on day 5 & day 7 but Imodium (advised my chemo nurse) really helped that.
Didn't do the nail polish thing as polish always dries out my nails horribly; did lavish creaming instead; didn't lose any finger nails. Lost one toe nail but didn't cream those...
Had some peripheral neuropathy but only residual is on soles of feet; still improving.
I had to give up eventually but that was just because I have fibromyalgia and after 10 shots of Tax, it eventually gave me the fibro crash from hell, but if you don't have FMS, that won't happen to you!
I'm day 6 post my first Docetaxel (I had 3 x FEC first) I too was nervous after reading some of the posts here.
You're probably aware you get to start your steriods earlier (and more of them) I had to spend the day in hospital as it was also my first dose of Herceptin. So.. I'm not sure which side effect to attribute to which drug but I thought it might help to give you another account.
Following hospital on the Friday I felt on top of the world at the weekend, I spent Sunday thinking 'wow this is easier than FEC!' Hmmm... Sunday night was agony with stabbing pain in my joints, especially knees and ankles. I also suffered from very sore throat, painful lungs and swollen back of my neck (but I think that might be the Herceptin).
Today I feel the same tiredness as I would day 6 post FEC, only differences are some soreness at the end of my fingers and aching joints (which I'm taking painkillers for). Same mouth soreness and emotional ups and downs.
If I knew then what I know now I'd definitely be prepared with some pain relief (but as you know not everyone gets the same side effects so you may be totally fine). I'd also take things much easier in the first couple of days.
Hope that helps. Best of luck!
Hi - Sorry but i sailed through fec and suffered with tax. I had my last one on Tuesday though and i am coping better. Take pain killers before the expected pain from Neualasta and the chemo . so i start straight away and so far i am fine. The last 2 treatments by today i was really sore with nerve pain , I top up my prescribed painkillers with co codomaol and paracetomol which has really helped . The worst is the come down from sreroids as the dose is 4 times higher to combat side effects . Most folk are fineon it by the way .
Good thing is my hair , lashes and brows are growing......legs have been shaved !!!!! So it also has its benefits
Just to agree with the other girls above... I had some bone pain due to the neulasta jabs which are given to boost white cells but nothing that a few over the counter painkillers wouldn't sort.
Eyebrow/lash loss as the others said and yes, I too got hair on my head returning after Tax 2 (lost it very soon after FEC1)
I did paint my nails and kepy them all - they went thick and yukky (to add to the FEC yellowing) and had definite 'beau lines'. Nine months on all my finger naisl are fully normal and only my two big toes nails have any residual yukkiness
White mouth and no taste for several days but no thrush or ulcers
Slightly watery eyes
Full energy levels throughout, so felt better in myself.
Mega doses of St Eroid the patron siaint of sleeplessness worked perfectly in keeping my awake!
I was OK with both but actually think Tax was a tad easier for me.
Hope you're one of the 'lucky' ones too
I found tax much easier than fec. The pattern was pretty much the same rah time. I had it on the Tuesday. Fine apart from the odd random stabbing pain til the Friday. Would feel down and depressed on Friday ( end of steroids I think) ok Saturday. On Sunday/ Monday I would get bone pain as the neulasta jab kicked in- would last about 12 hours, needed codeine and on tax one got mouth ulcers. By Tuesday I would feeling better and by Wednesdsy I was pretty much ok apart from unpleasant taste in my mouth. For tax two and three I looked after my mouth better in the lead up and didn't get the ulcers.
I used dark nail varnish, but my nails still became thickened and some split off. My hair started to grow back on tax two, but I didn't lose all of my lashes until after tax three.
Fec I found much harder as I felt v sick all of the time between cycles and many other side effects. it is v hard to predict as I have friends who were completely hit by the tax truck. I wish you well and hope that it does it's magic on you and gets id of any stray floaters .
I had 4xfec and 4xtaxotere 2006.
found side effects from both really different - fec hit me straight away, so i took myself of to bed - tax took 3/4 days and on first treatment i became quite blase and went to my sons footy presentation and ended up laughing and soaked with all the other parents in a summer thunder storm and then in hospital - all I would say is rest and be aware, it seems to creep up on you. and dont read too many posts - its usually the bad ones people want share.
I did wear dark nail varnish and really looked after my feet and mouth.
good luck - and listen to your body Debsx
I had tax in 2008 and found it quite hard (but dosages and side effect treatments may well have changed since then so I won't bore you with my experience)....BUT ....I was in the chemo unit today getting my abraxane, and the woman next to me was just having here fourth and final tax, looking great and saying what a breeze it had been compared to the FEC she had before! Hopefully it will go as smoothly for you.
Best wishes, Julie x
Thanks DJ007 - this is what we need to hear. I had problems with the steroids whilst having the EC - also didn't sleep much for about a week and then emotional and tired as they wore off.
Hope to get more replies over the next couple of days and then I will print them out and pin them up where I can see them.
I'm one of the boring ones that you don't hear too much from! I had 3 tax - last one was on 19th July.
I had no major bad SEs - Have lost most of my brows and lashes (that had survived 3 x FEC intact!) and these haven't started growing back yet - head hair has.
Very occasionally I get a mild tingling in one foot if I've been sat too long.
Didn't use dark polish and (so far) haven't lost any nails.
Had a horrible taste in my mouth most of the way thru and tongue went white and furry for about a week each time, but staved off any ulcers, etc with mouthwash.
Ached a bit and just felt a bit rubbish for a week or so each time - some of that will have been from Neulasta jabs. Also got v tired and quite emotional as the steroids wore off.
Worst SEs were from the steroids. After the 1st cycle (where I hardly slept for a week and was climbing the walls) these were reduced and all very manageable after that.
HTH and that all youre SEs will be as mild or better!
Hi there Cannoliwings - I have some eyelashes and patchy eyebrows - everything else apart from the forearms has gone.
I keep reading about being hit by the Tax truck!!
fingers crossed that not everyone has a bad experience. First one seems to be the worst?
Best wishes to you too xx
Hello Supertrouper - me too!
am having my first of 3 TAX on 23rd Sept. Have been on 3 x FEC so far.
Hoping tax wont be too taxing!
Have been ok on (feccing!) fec - ok - but by no means s.e. free... and am bald everywhere except forearms, eye lashes and brows.
Here's hoping Supertrouper!!
Best wishes to you,
Okay - I have just finished 4 x EC and coped okay - only ended up in hospital once with newts of 0.01. All finger and toe nails intact. Only hairs remaining on me are on my forearms.
I start on Tax on the 21st of September - and after reading other posts on here I am beginning to worry about how I will cope with the side effects.
What I need are posts from people who didn't suffer too much.
I need to get some positive thoughts into my head about this before I start.