Hi, I'm probably the wrong person to ask what to ask the doctor about because I hardly asked anything! My doctor was so laid back about the whole thing that I was too. I did ask about the potential decrease in breast size and he said not much, like I said before I've gone down about a cup size but because I've lost my nipple and areola I think it looks a bit smaller. He told me that my dcis was about 3cm which he said was quite large but I have heard from other ladies who had much larger areas. I was more upset about the radiotherapy which sounded totally alarming to me but in fact apart from a radiation burn which took an age to heal it really was all ok. All I think is thank god I didnt have to have chemotherapy which I really dont think I could have coped with, DCIS really is the cancer I would choose if some one made me pick one!! I am lucky it is non invasive and am now absolutely fine and so will you be. Feel free to keep in touch I know its so worrying and upsetting at the start of things.
I had a high grade DCIS unfortunately it was behind my nipple so my WLE included removal of the nipple and aerola. I cant tell you how upset I was at first, I felt like I was going to look like a circus freak and did nothing but worry and cry, but you know what, now that its over with it really doesnt bother me at all!! All in all I have probably lost about a cup size in bra but I do think its a small price to pay to be cancer free. I wasnt so lucky but the vast majorty of women dont lose as much as me and from all the photos I have seen post op the most you will see is a small dip about the size of a 50p and a very small scar about an inch which will fade over time. Please try not to be upset over it I'm sure it wont be as bad as you might think. xx
Welcome to the forums, I hope you find them to be a great source of information and support. Whilst you are waiting for the other users to reply with their experiences you might find it helpful to talk things through with a member of staff on the BCC helpline. Here you can share your fears and concerns with some one who will offer you a listening ear as well as emotional support and practical information. The number to call is
0808 800 6000 and lines are open today 10 to 2pm and weekdays 9 to 5pm.
Best wishes Sam, BCC Facilitator