Bumping this thread to see if anyone has any suggestions about coping with or even combatting fatigue.
I've had a really grotty few days with my fatigue so any advice would be welcome. Can't believe I'm still like this over 2 years since I finished chemo and rads. Planning a trip to the GP but doubt there will be much of use to come out of that.
I read somewhere that it takes our bodies as long to recover as they spent being battered....
People are very "odd" - when I went back to work part-time, everyone said how well I looked. NOW.. the same people are saying how nice it is that I look so much better than when I first came back ????!!! What the ????
I too am on Letrazole.... and I think PWC might be right - perhaps we never WILL be quite the women we were - we have to learn to love who we transform into (see Where Did I go thread, where everyone knows we're butterflies (or flutterbies)....
sleep? sleep? Some nights.. not others.. weird...
I echo what everyone is saying on this subject.
I completed 'active' treatment (surgery, chemo, rads) just over 2 years ago. Have been on letrozole since and I hate the fact that fatigue dominates my life.
EK - so much that you say strikes a real chord with me. I was desperate to have all my energy back but my oncologist has said that I've probably reached 'baseline' now and can't expect much more while I remain on letrozole. This does make me angry but, as time passes, acceptance grows and I just have to plan my daily life accordingly.
BTW, I love 'Fields of Gold' - makes me cry too though.
It's the frustration - pure and simple. Then worrying about it probably causes more stress which exacerbates the problem.
And I worry about money and close we are to everything going pear shaped.
I feel asleep earlier on the sofa for 2 hours, only woke up cos of something noisy on TV. Then I had a good indulgent self pity cry session because Eva Cassidys Fields of Gold was on and it always sets me off and the words are even more poignant now.
Feel a bit better for having a cry, because I don't often.
Maybe I'm expecting too much of myself, but with other people expecting it and ESA forms where I feel bad explaining myself and being desperate to "get back to normal" - I'm perhaps setting myself up for a fall. I've always been a really goal orientated person and with no end in sight from feeling rubbish, I'm getting very down.
So glad we all have this forum to vent and see we're not on our own.
Hi El katrano, It could have been me saying All that !
I am 4 months post active treatment, still on 3 weekly Herceptin and letrozole, I too thought I was Super woman, went back to work part time , people think I am better now, tell me I look so well (NO I don't!) expect too much from me , then last week it came to a head and I had a meltdown, I have a frozen shoulder as a gift from Rads so that was n't helping and I simply could not carry on.Finally I have given in and realise I am not ready yet for normal life, I have to take a step back so I can recover properly. I am stage 4 but that is not an issue as yet but I worry if I don't let my body recover it will become a problem.
I have been very tired recently, now I do sleep better because I am more relaxed.
I hope you feel better soon , you are not alone in feeling as you do.
Oh my I've got that t shirt too! I've given in and take a sleeper after a couple of those nights as I feel that I'm getting some rest even if it's drug induced. I find I can't sleep during the day either.
I dont know if like me friends and some family members see you as " recovered" because you're probably looking so much better these days and their expectations of you are more demanding. I know it's not their fault really cos we don't want to appear as moaners and complainers etc etc.
I think they probably understood things better In the old days when they sent people off to the country / seaside for 6 months to recover and recuperate !
Nowadays we have to fight to get more time of work , ESA chasing us to get back to work filling in forms that ask ridiculous questions to assess whether or not you're fit for work! What!!!! I got these forms when I was still getting radiotherapy and have just had to complete them again.
We are suffering from PTSD to start with never mind anything else. One day you walk into a hospital maybe a little apprehensive but you know youre just making a fuss about nothing maybe youre actually a little embarrassed about wasting their time and 4 hours later they tell you that you have cancer and you're in the system within weeks, chemo surgery, radiotherapy, drugs and we are supposed to bounce back after a couple of months .
Oh el Kat that's my rant over ... Funny I had enough energy to give off there 🙂
Hi!!!! Lovely to hear from you. Well - I thought I sailed through chemo and rads..but I find I'm having an afternoon nap every day now! I Don't fight it - I just doze off for a hour or so, your body is trying to tell you something.
There appear to be quite a few ladies here up at silly O'Clock in the morning, judging by the times on their posts - you may as well join them..and not be on your own in the wee small hours.. xxxxxx
Hi and nice to see you with some hair 🙂
Thanks - not just me then. Some people have bounced back (well, maybe not bounced. Or maybe just not honest)
I'm finding it utterly unpredictable! I'm verging on meltdown too, not quite there yet but not far off, it's the NOT KNOWING how long it will last. At least with treatment there were timescales and cut off points etc. Though I'd really rather be where I am now than where I was at with Chemo. Then again, I'd really rather be how I was before I had cancer too!
YEP! Or I was 4 months post treatment. Almost had a meltdown with GP (unheard of) I was so tired.... However, EK, to give you hope, now that I'm 6 months post treatment, (and one year from surgery) I suddenly feel more like myself (Duracell bunny too)... Not sure it's 100% reliable, but definitely more me... had a really busy week last week following weekend on call, and I was OK. The month before when I'd had my weekend on, I'd been done in after it... I find the differences seem to be fortnightly (that I notice it).. Hang on in there! Love Jane
I seem to only come on here these days to have a moan (guilty as charged) Whoops.
Just need a grumble to people who actually GET IT. I'm 4 months past active treatment and 4 months into Tamoxifen and I'm STILL really fatigued.
I'm 36 - and I'm knackered CONSTANTLY.
I'm so so peed off at it all - I really honestly thought I'd be OKish by now and I'm not one to be a positive polly either! But when they said to me about recovery after all that is thrown at us, I thought "yes but they dont know me, I'm the duracell bunny and I never sit still for long"
Ha, the innocence of the first time.
Yes, I'm also on Tamoxifen but this is not helping.
I now feel like all support, emotional, mental, physical, spiritual has gone, because most people think I'm getting (grit my teeth so much my jaw aches) "Back to NORMAL" or that I should be.
Take last night for instance - absolutely shattered, did loads yesterday, felt fine at the time, went to bed exhausted. Could I sleep? No. Not a wink ALL night, no reason at all, not aching, not uncomfortable, worn out.
WHHHHHHYYYYY????? Then I feel stressed this morning because I'm so frustrated by it all and what this fatigue means for me.....
IT reminds me who is boss - it's my body who's boss and not me.
But the problem is I've tried all this exercise thing, pacing myself through the day and all the tips, No caffeine, blah blah. I cannot find a medium my stupid damn body is happy with.
I've felt myself welling up with utter rattyness over the past week, which is churning away under the surface and isn't like me. I just feel like biting everyones head off, then locking myself away somewhere for a week to be left on my own and then I want a hug and someone to tell me it's all going to be OK, such a gamut of emotion!
Anyone else feeling like this?