when are the dates for 2011 coming out as i think the birmingham one was cancelled in nov
Totally agree Matt is lovely, as my mum would say, 'if he was my son i'd still be bathing him' haha.
Rebecca is good to, i think its because she just doesn't realise how good she is. Cher just rubs me up the wrong way!
It looked like Molly was a gonner last night. Does peter survive? the ad's do say 4 funerals and a wedding? do they get married?
I don't mind Emmerdale, but not often i get to sit down and watch it, bath time etc with kids. Do love Ugly Betty and Desperate Housewives though, so the TV is mine tonight!!!!
Oh you know i mentioned a wii in previous posts, guess what, yes it cropped up in conversation, although alond the lines of 'it will bring the family together' haha He does kept me smiling! (my hubby that is....and the lovely x factor Matt)haha.
We've had post today for the first time in a week. Ive got to be at the hospital for 7.30am next wednesday. Does that suggest i should be quite high up on the day's theatre list? More leaflets and booklets and some forms to fill in. Arghh!
Matt to win!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Molly to leave!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Cant do with her. Am on to corra now if you hadnt guessed.
Big hugs to both of you XX
yes have been watching X Factor & really want Matt to win, have never liked Cher from the start 😞 have also been watching Corrie, only one i cant get into is Emerdale,lol.
Keep your chin up & reclaim your tv !! easier said than done with kids 🙂
Trying to keep busy, so gunna kept todays post light and cheery.
Ive managed to watch the new tv. The 'presenr' for me that is seems to be stuck on cbeebies. haha
I know your watching xfactor deb, do you watch it too sarah? Do you have fav's to win. I'll be happy as long as cher doesn't.
I know i said i was gunna keep it light and cheery but.....
Do you guys watch corrie? The tram crash etc?
i think i probably will ask for it to be biopsied & then i can put it to bed & concentrate on getting left side better.
Keep yourself well & take care, I think of you & Jo every day & wish & send good thoughts to you all the time.
Jo- pre op appointment is only a formality to check you ok for aneasthetc. Hope you are feeling a bit better from your bug. I am getting very anxious for friday results. Head is full of Queries like- how many nodes affected, is there vascular invasion, has it spread etc etc etc. Nightmare. Keep calm Debbie keep calm.
Sarah- I would definately ask for biopsy for peace of mind. Glad you feeling better now you know more.
Love to both of you.
I have 4 kids 20,16,12 & 11 yrs, the eldest a girl the rest are boys.
They are hoping to have me out of hospital Xmas Eve night if all goes well which is why I am going in the day before op to have wire inserted. (Big fingers crossed I go down 1st ish).
I do feel better however I am still worrying about original lump in right breast that they are saying is fine but because its still there & i never had it biopsied only mammo & ultrsound, the BCN yesdterday suggested that i ask consultant to bioposy when i am having op if only to put my mind at rest but dont want to worry myself all over Xmas on the results, just dont know what to do ? ? ?
Its a strange old Journey this full of anxiety & sadness but I know we have to be strong 🙂
I hope all is well with you & you are not to anxious (silly comment but you know what I mean).
Im glad you feel more relaxed and informed. Although im guessing you will be in hospital over the xmas weekend? How old are your kids? Did you say you had four?
Im no expert, im at the same stage as you in my journey/battle/fight (what ever you want to call it), i know whats got to be done and now its just waiting for it to happen. Youve just got to carry on as normal as possible, keeping busy etc. etc. everyone around will probably be already telling you that and driving you crazy. lol, but it is true, and writing on here is a big help.
Thanks for your advice. It is reasuring to know someone else out there understands. As the pre op appointement nears (thurs) i am getting more anxious. I dont think this bug has helped, its really knocked me off my feet and given me to much thinking time.
Right Emmerdale has finish so im gunna watch Corrie.
Back from hospital visit & feel much more relaxed, tumour is invasive ductal & measures approx 15mm so very small, it is receptive to oestragen & progesterone but herceptin negative.
Providing nodes are clear & margins clear & no bigger than thought I am set for removal on Xmas Eve with approx 3 weeks of radiotherapy & tamoxifen for 3 to 5 yrs.
I will get results on the 6th Jan from surgery.
Am obviously still nervous but am feeling better than I did & so appreciate being able to chat to you both, hope you are both ok & having good days.
Due to not having full node clearance i think you should recover relatively quick. However in all honesty having your nodes messed with is the thing i find gives most discomfort. You need to keep active straight away but dont over do it. Let others do housework and deal with kids. You certainly will be able to potter about over xmas but no lifting or heavy jobs. Keep up to the exercises they give you.
I really am sure it wont be half as bad as you're expecting.
Sarah- hope all has gone ok today. Let us know.
Sorry i was not posting yesterday. Ive had a nasty bug, hopefully 24hour thing. Little girl was sent home from school with it too.
I just wanted to wish you luck sarah for today, i will be thinking about you. Hopefully your questions will be answered and any fears will be resolved, if that is possible?.
Hi debs, hope you are well, can i ask you how long it was from having your MX to you been able to get up and around, ie jobs round house, kids etc. Spending all day either hugging the toilet or laid in bed yesterday i spent time thinking and going over and over stuff again, dangerous i know! Had a few tears last night it my hubby, first time for over a week. My MX is due to take place on the 15th Dec with them expecting to send me home on either the 18th or 19th dec. Xmas is the following weekend just how able and active i will be is on my mind.
1st appointment is pre op assesment, 2nd SNB injection/mapping 3rd X ray, 4th insert of wire, this one is day before op so am slightly concerned about spending 24hrs at home with a wire in my chest 😞 & 5th Operation removal of nasty not invited thing 🙂
a little cofuzzled as am sure doctor had said that dye & wire would be put in on day of op yet the dye is going in 2 days before & wire day before, oh dear, yet another question to ask my poor BCN tomorrow, will let you know how it goes.xxx
5 appointments? What are they all for?Let me know how you get on 2moro. XX
i have appointment to see her at the hospital, I will of had biopsy done exactly a week tomorrow so fingers crossed for both of us on everything.
Have just got back from shopping to what seems like a million different pre op appointments from the hospital but in reality is only 5 !!
Sarah- not long now girl and some questions will be answered. Is she coming to see you at home? mine did and i wouldnt let her leave b4 all my questions were answered.
Re receptor test results. I got both b4 surgery. They had the hormone ones a week after biopsy and HER2 one a week or so after that. I am triple negative which scares me to death but until i get my post op results friday Im trying not to read up on it 2 much. XX
am agreeing with Deb, yeeeek cooking, we just dont go together, i tend to do it because i have to not because i want to,lol.
Hope you both have a good Monday, am so relieved that the weekend is out the way as have breast Nurse tomorrow so i can get those questions answered, do either of you know if you get hormone receptor test results pre or post op ?
Cooking for friends and family!!! You are good. I cant do with cooking for us 4 let alone anyone else. As for flowers, my house is like interflora and im not even keen on the things. Another thing to look after. Gosh that sounds ungrateful.
Watching X factor results now. Speak soon.
I hope you are both having a relaxing sunday.
deb, No i didnt read your earlier post?
Sarah, Trust me you will come home armed will booklets and leaflets, plenty of reading after your appointment. Its hard not to research or 'google' though i know.
Here i am, bloody great tv with nothing on worth watching. haha.
This forum is addictive. Hubby has disappeared digging snow somewhere? My little boy is happy in his play room, knee deep in peppa pig and my daughter has returned from her sleep over exhusted and took herself off to bed.
'Keep positive' is driving you mad, i keep getting flowers, which is nice i know, but i spend all summer sneezing! I don't mean to to sound ungrateful. but ARGGHH!
Im trying to remain as normal as i can, keeping busy, cooking for friends and family while i can cos i know a time will come when i wont be able too. In fact a friends hubby, said to me this morning as i pasted him poached egg on toast, 'when do i start been ill? and me feeding him will stop?'we did laugh. typical man worring about his belly. haha.
Talking of bellies hubby has returned cold and hungry.
Thank you & good luck on results Deb, will think good thoughts for you, am not going to read anymore, your quite right it is scary & not necessary at the mo, one step at a time 🙂
Hope you are ok too Jo.
take care, Sarah.xx
How are you today. Enjoyed watching your new tv? I have edited this message cause i got u mixed up with someone else on another thread so if you read this earlier i will av confused you. Then again if you are only just reading this you wont av a clue wot im talking about. Sorry to be so criptic on a sunday morning.
Hugs to you
My advice is read nothing until you know wot your dealing with cause its too scary. Like you i just read and read and it made me worse and worse. I am currently waiting for results following my op and am petrified. Like you im having to keep busy (which has been hard when snowed in) and stop reading till i know more.
Glad the sleepover was a success and like you say your one day closer now. One day at a time thats wot we have to deal with.
Ps if one more person says think positive to me then they will get their head shoved down a toilet.
have had my cry, feeling a bit better now for doing it.
Did you find that after your Dx you read up on loads of information even bits that didnt affect you as thats what i have done & think i have an information overload as am worrying about things that have never even been mentioned yet.
I also find it hard to talk with family & friends as everytime they ask how iam I say i am fine as dont want them to think that i am not coping or being negative, everyone i speak to tells me the same thing " Be positive" am getting to really dislike that expression 😞 this is where this forum becomes so useful.
On a lighter note, the sleep over went fine & all still asleep at the moment am guessing due to the late night they had & am now one more day closer to seeing BCN to get some of my questions answered 🙂
Take care & enjoy your Sunday
You need to take yourself off and have a really good cry. When i was first told, i could not look at my kids without crying. The mind is a horrible thing and plays mind games with you. When im having a bad day i feel panic stricken but it does pass and like you say talking on here helps greatly. I am addicted. You have climbed on a roller coaster that you cant get off for a while-thats how it feels to me.
As for the sleepover situation-ARE YOU MAD!!!!!!!! However i feel it is what you need in some respects to keep you busy. Try keep busy hun. XXXXXXXXXXXXXXXXXXXXXXXXX
Hi Deb & Jo,
thank you for replying, it makes such a difference to have people out there that know what you are going through.
I feel a lot calmer since reading your reply's & am defiantly going to write down my questions ready for the Nurse on Tuesday.
i dont think I have ever in my life felt the way that i am feeling right now, am very down tonight but am guessing that is probs because i havent had a cry since being diagnosed.
On Thursday & Friday I felt strangely calm & seemed to get caught up in having to tell family/children & reassuring them but today is a real down day, I feel like something has picked me up & swirled me round & I just want to get off as i dont like it 😞
My little boy has been brill today trying to help me feel better, he decided to sit down & fill in the booklet given to me by the hospital
in his "best writing" however this resulted in me madly fighting back the tears AGAIN however am sure tonight I will be kept busy as 3 of the children have a friend each for a sleep over 🙂 I must be mad but had already agreed before Thurs DX & at the end of the day I am not ill & want to try & keep things as normal as possible.
I hope both of you have had a good day & have an enjoyable evening, take care & please stay in touch. Sarah.xxxxxx
Not a bad day today. Got lots of little jobs done so quite productive. like you ive been minus one or other child at varying times of the day which has had a calming affect on the house.
Tree trimming......gosh your keen. I try save that joy for at least another wk or so. cruel mother i hear u say. Bah humbug i say to that.
The tv sounds a nice pressie for hubby, er sorry i mean you. My hubby has even done a tad of ironing today- i darent look wot the clothes look like bless him.
Enjoy your evening and DIY.
Panic over. tv stand in position.
Just reading your advice weena, I completely agree, Writing down questions as they pop into your head essential, 'cause you get into the room with the consultant and you may forget all things you wanted to ask. I know i had a piece of tatty paper with all my questions. To be honest they could of asked me my name and i probably would of struggled to answer them so that piece of paper was vital.
I asked to see my mammograms so i could understand better where was affected within my breast. You could maybe do the same? this may help your fears over the lump you intially found in your right breast and to understand what they found in the left?
Take care to you both
I hope you are doing ok. I had the 'weekend wait' a couple of weekends ago. As i'm sure you had read, Deb's (weena) and I have been chatting this week. It does really help to write things down.
Hows you day been?
Ive had the joyful job of tree trimming today. argh!
My little boy is poorly with a nasty cold and my daughter has gone for her first official sleep over at her best friends tonight. the house is calm and free from sibling arguments. hurrah!
To cheer you up and make you smile my husband is currently attempting to build a new tv stand for the new 40inch lcd tv 'i need whilst im recovering' men they never change haha. Im half expecting a wii for xmas, 'to aid my recovery also' haha
OH NO! Ive just heard him say ......'thats not good' DIY is not he best past time. Yep he requires my help. speak soon
Welcome to this forum which I am sure will become a tower of support to you over the coming months. Just having people to talk to who understand wot you are going thro is invaluable.
Like you i have hundreds of questions on a daily basis and i wouldnt like to try answer any of yours in case i told you the wrong thing. Try keep busy till you see the nurse and write down all your questions so far. Believe me you'll av a thousand more after that. Thats one thing im finding is that im always learning.
You are certainly right that night times are def the worst but try hard to distract yourself which im sure isnt too hard with 2 kids.
Be strong keep smiling and definately keep typing. It will help. x
Welcome to the Breast Cancer Care discussion forums, I hope you will find them a great source of help and support.
It sounds like you're having a pretty tough time at the moment. It may help for you to talk things through with one of the trained members of staff on the BCC helpline. Here you can share your fears and concerns with someone who will offer you a listening ear as well as emotional support. The helpline is open until 2pm today and from 9am to 5pm weekdays. The number is 0808 800 6000. Please five them a ring if you think it might help.
Best wishes Sam, BCC facilitator
I have been directed to this forum as a newly diagnosed younger person ( Just !!) I seem to be a little older than the rest of you as I am 40 but a very young at heart 40 🙂
Am so nervous about everything as was only told yesterday & now typically at the start of the weekend i have a million & one questions that will just have to wait till I see the Breast care nurse on Tuesday.
When diagnosed yesterday I rambled on so much through nerves i think, that I actually dont even remember the type of BC that i have, until coming on here I thought Bc was Bc, just one type for all, how wrong i am ! I do know that it is a small lump & am pretty sure the word lobular was used & that after lump taken out & nodes examined i may require radiotherapy but they said something about waiting for reactor test results, can anyone tell me if these results are found from the biopsy already taken or will I have to wait for my op.
I appreciate that alot of these questions will be answered on Tuesday but it feels so far away, i wish i had asked more yesterday but i felt so rushed, because of the snow the consultant was covering 3 different clinics & I had to keep waiting for him to pop in & out room which is why when he got diary out i agreed to op on the 24th as I didn't even register that its Xmas Eve till after, not the best day with 4 children but maybe sooner out is better than in. I also know they used the word invasive.
Am also worried that as i originally went for quite a large lump in my right breast which turns out after being ultrasound is nothing to worry about but through standard procedure of checking other breast that is where my problem is which I cant feel at all am now worried what if they haven't checked the big lump properly & it is something awful & if it isn't how will i know if it does start to change as am constantly going to be touching/feeling it.
Sorry if i am rambling but as you can see from the time I just cant sleep with the worry of it all, would appreciate any comments as have moved area in August away from all friends & family & feel quite alone, night times are definatly worse 😞
Talking to someone going through the same journey helps me greatly 2. So thank you thank you thank you. XX
The info you know so far sounds very good and positive to me (not sure good and positive are the best words but you know what i mean). Lack of node involvement is great. With me they found 3 areas of cancer. 2 lumps in the breast and in one lymph node-hence removal of all. (waiting to find out how many were affected is what is doing my head in). They think grade 2 cancer. Definately chemo for me but not sure about radio yet. Triple negative is when you are 2 hormone negatives and HER2 negative. Which means chemo and radio are the only treatment options. If your positive in either of these things then there are other things to treat you with.
To reconstruct or not to reconstruct..........that is the question. I wasn't given the option of doing it at the same time so that solved that. Been told it could be upto 2years til thats an option. Do i want to? Not sure. Am not big in that department so am hoping i adapt to wearing a false one. As long as it looks ok in clothes then i think i may not bother. After everything you go through i'm not sure i want to go through more operations. However i feel cause i am young theres an assumption that you will by all the professionals. After the op it is obviously v raw and emotional and mirrors r tough but the more you look the more you get used to the new you. All i say to myself is theres no room for vanity ere, its absolutely and utterly necessary so get on with it.
Your children sound ok with what they've been told which is good. I don't think they need to know any more than that. Have they said if you will have any drains in after your op? I had two which my youngest found fascinating.
Keep strong keep focused. I wont tell you to keep positive cause if one more person says that to me ill shove their head down the loo.
Hugs to you
Im sorry to hear your results are delayed. The 'wait' is hard enough without it taking longer than you were originally told. I am still learning all the terminology so i don't really understand when you say triple negative.
So far i have had 2 biopsies, 3 samples of each. The breast biopsy confirmed the DCIS and the biopsy of the armpit was clear. However due to the large area affected by the DCIS, a mastectomy of the right breast is neccessary and at the same time they are taking the sentinal node? to test also. Should the node come back invasive the other glands will be removed and chemo may be necessary, if the breast shows invasive cancer radio will be needed. That it as much as i understand and have processed at the moment.
I have opted not to have a reconstruction at the same time, ive got to get my head round losing my breast first.
Did you have reconstruction?
We was given 'mummys lump' too and choose not use it yet either. Both kids understood mummy had a poorly booby. Our daughter understands mummy has got to go into hospital and the doctors are going to make me better by taking the poorly booby off. She is very matter of fact and has asked a couple of questions about it. Our little boy mentions my poorly boob and then asks if the other one is ok and has a squezze. (typical boy haha.)
I have found talking to you daily is helping me greatly. I do truely wish you well.
Spoke to breast nurse today who told me I am triple negative-something im only just becoming familiar with which means only chemo and possibly radio for me. Also no results for me 2moro. Arrrgh!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Got to wait till next fri now. They just not ready from path lab yet.
26 miles to hospital is a pain for you. Ours is only 5 mins down the road. Missing school concert is upsetting but absolutely neccesary and like you say, the last one you will miss cause you'll be back fit and well for all the rest.
Re telling kids I wasn't sure what to say. Was given the "mummys lump" book but thought it was a bit in depth at this stage. In the end I told em 2 days b4 the op that I was going into hosp so the docs could take away a bad lump and that they would av to be careful not to knock me once home. Initially they were more interested in getting back to scooby do which was great. A few questions came from the eldest the day after but nothing too hard to answer. Fortunately I went in monday, had it down that day and came home wed. Havent discussed anything else with them yet til Im at the next stage. Are you having lymph nodes removed? Av they told you what treatment your likely to have yet?
I hope you are ok, I'm keeping my fingers crossed for you whilst you wait for your results. Are they likely to be delayed due to the weather? I hope not.
We've had a pretty good day today, we walked around to some friends and spent the day eating and drinking their food etc and playing on their wii.
Ive got my consent appointment and preassessment confirmed today as next thurs morning. I hope the weather improves as we have to travel 26 miles to the hoepital and our little boys preschool concert is the same day. I am already missing the infant schol concert due to the op. But hey this should all mean i get to watch the next 10 years worth of school performances.
How are your kids coping with the whole process? Have you gone into detail with them? Its hard to know what to do for the best?
Bored kids at home and husbands getting it in the neck- sounds like my house. Your gonna have good days and bad. Its like been on a roller coaster that you can't get off. Im struggling at the mo cause Im waiting for results. My minds working overtime thinking of every worst case scenario and unfortunately its hard to distract myself cause of the snow. No one wants to come visit in this weather and I daren't venture out too far in case I fall on my arse and bust a stitch. As for midwives-no not me, although Im sure she'd make a good one. XXX
Thank you for your message. I hope you are recovering well.
Ive had a real short fuse today, the kids school and preschool were closed due to the snow. They, the kids, just seem to wind each other up all day. My husband got the the worst of it when he was moaning about something and i found myself snaping back and saying "you want to try having cancer" As soon as i said it i felt terrible and apologised.
I am really finding writing it down on here does help, like getting it off your chest, to pardon the pun. So if anyone else is reading these and nervous about posting, have a go, it really does help.
Does any one else keep calling their Breast care nurses, midwives or is it just me? Mine called me today and i was speaking to my mum about the phone call and kept refering to them as midwives? god knows why.
I know exactly how you will be feeling right now. Its a difficult time and really worrying. Having young children makes it all feel worse. Like I said above I had a mastectomy and lymph node removal 10 days ago and although I was petrified before hand it is something you can do. Writing on here really does help cause nobody can understand what your going through better than people using this site. I wish you all the luck in the world. XX
Welcome to the Breast Cancer Care forums
In addition to the valuable support you have here, please feel free to call our helpline where you can talk things through with one of our team. The number is 0808 800 6000 and the lines are open weekdays 9-5 and Sat 9-2 on 0808 800 6000.
You may also find the BCC Resource pack useful, here's a link to more information and an order form, it's been designed to help provide information and help to anyone newly diagnosed:
I hope you find this helpful.
Best wishes Sam, BCC Facilitator
I'm Jo, I'm 31, married mum of two, a daughter who will be 5 going on 15 in January (haha) and a little boy who is 3 1/2 years. I have DCIS and i am due to have my breast removed on the 15th December. I feel completely cried out, and just generally angry and why me? at the moment. I have developed quite a brave face for family and friends. But as i write this i am realising just how scared i am. In the same week i was undergoing the tests and finding out my husband's brother died suddenly. So the family as a whole has had a rough couple of weeks.
I must say it does feel better writing things down.
best wishes to all
Hi all. I am 36 and had a mastectomy 1wk ago with all lymph nodes removed. I am awaiting results this friday(if they are ready by then). I already know that one node was affected from biopsy and am panic stricken that the news will be that more were affected and that its spread. Secondary cancer scares me like crazy. My children are 3 and 6 and i can't bare to imagine leaving them. Sometimes my mind convinces me that its bound to be the worst news. Life is so unfair. XX
P.s. I am 38 too x
Try not to worry. From my day of diagnosis to my surgery it was approx 30 days. I think once you know you have bc you are left to your own devices to think all sorts. I posed the question to my bc nurse as to the lump getting bigger in the meantime and she said that wasnt the case so try not to worry.
Bless the woman in the twin set. Lol. At least you got a cup of tea I didnt. Lol.
Love and hugs
Hope your ok?
It was 16 nodes not 18 doh!
12 had disease the others were fine.
Yes I went back just over a wk later and got the results. I wasnt thinking to much re the results as My mindset was the cancer had gone but did get upset when they told me what they had done, dont know if that was just relief of it all being over.
Going on wednesday to see the chemo man.
Love and hugs
hello all, I got told I had BC a week last thursday and I am having a CT scan on Wed. I am really concerned about the slow reaction that the centre in Nottingham are having towards me as the lump is ever growing and noone seems in a rush to do anything. When I was referred to the building my first impression was one of horror as there were signs up everywhere saying that things were broken, the front door, toilets, coffee machine etc.... The xray room had a leaking sink which I was asked to avoid but the water was accross the room, the floor outside was peeling and taped down.
After I was told the results of my biopsy the consultant left the room and I was ushered into a second room. Two women entered the room with tea and told me that there was hope as they were survivors- one had a twin set and pearls, I wanted to laugh out loud- it was like a little britain sketch- still cant beleive it.
They are worried that I have lung cancer aswell as the cells from the biopsy have lung cells in- they keep using the word rare and nodding alot..... Im not too confident as I am not a lucky person generally.
I am not telling anyone yet as whilst I am feeling well I want to enjoy being normal. Oh I forgot to say I am 38 and worried about reaching 40. The best thing so far was the cup of tea that the two women brought me. Lol
Im not to worried about my surgery, I had a lump removed when I was 16 and I have had excess breast tissue taken away from under my arm. I am more worried about waiting for the results.. Did you have to have the injection to find the sentinal lymph node? I am having that the day before my surgery.
I hope you are recovering well and keeping positive. Physio will help your arm. Did you know that they were going to take 18 lymps?
Did you have to go back the hospital for results after they removed the lump??
Big hug for you
I had my surgery 2 wks ago. I am ok my arm just needs physio to get it working properly again. Along with the lump I had 18 nodes taken out so thats probably why 🙂
How are you feeling re your surgery?
Love and hugs
hope you are o.k, when did you have your surgery? I hope you are doing well.
I am going to keep positive.
I am 38 and have just had a mastectomy and being of a similar age I know exactly how you might be feeling at present. Its good to hear you are being so positive.
I lost my mam to bc 21 years ago and I am soooooooooooo glad to hear your mam is on the mend and doing great, things have moved on so much.
Good luck for the surgery and keep in touch
Love Kim x
Hi Mel and welcome to the BCC forums
In addition to the valuable support you have here, please feel free to call our helpline where you can talk things through with one of our team, the line is open weekdays 9-5 and Sat 9-2 on 0808 800 6000.
You may also find the BCC Resource pack useful, here's a link to more information and an order form, it's been designed to aid anyone newly diagnosed: