Keeping my fingers crossed for a date soon.... as you say you will know more following surgery. Following my surgery i did lots of soft furnishings and decorated the bedrooms............ just to keep busy really..... also cleaned out cupboards and drawers. House has never been so tidy.
Great news on the eating front.......It's funny how you do get used to eating that amount of veg. The Nourish book had a great spicy cauliflower soup which is 2 veg.....also i make a shepherds pie (loads of onion and grated carrot in the meat and use sweet potato / swede / turnip for the topping or mashed cauliflower (they are sometimes quite cheap on the organic farmers market).
I really struggle with but am trying to use more lentils / chick peas etc
Take Care Marion. Hoping for a speedy appointment. Great that you know in advance the level of routine monitoring with the Herceptin. Take Care Gilly x
Just catching up with how you are doing. In terms of the trial it is likely that it would have been for Hormone receptive BC excluding Her2+ so you will still receive all the necessary treatment just not within a trial. There are hundreds of trials ongoing at any one time. (I am a Psychiatric Nurse so research is something i have a huge interest in).
As everybody is saying you need to get your sugery done and then you can plan any further treatment.
My BC was ER+8/8 and PR+8/8 (which just means the highest level of hormone receptors) but HER2neg. The HER2 protein receptors are analysed in only a few units in the UK (not sure why) so the results for that tend to come independantly.
Keep posting Marion and let us know when you go for your surgery.
Busyanne, glad you are having an assessment at work. When i returned to work after treatment Occupational Health recommended an assessment which was great, the guy altered my chair, computer set up / height etc and was really clear i must contact him as much as i need and he will keep coming back and doing the same, i work in a busy environment where people often invade your space / chair etc. Just currently off work following reconstruction so no doubt i will call him back when i return.
Take Care Gilly x
MarionEliz, Herceptin is the drug for Her2 and if necessary there are others which can be accessed. I have just finished a full year of Herceptin and feel fine although I must admit I do get neck and shoulder stiffness. I think this is probably more to do with my job as I use a computer most days and tend to sit in an uncomfortable position. I am being assessed tomorrow by my emloyers. BC is very scary but I have been told by my GP if there is a receptor ie hormone or her2 then there is effective treatments. You will be okay and from my own experience well looked after. Good luck and try not to worry too much you will get through it.
It's true, there is a huge relief once surgery is done, I remember it well, although the morphine certainly helped!
Hope you hear soon about your surgery date.
I will be thinking about you today lets hope that you get the news to start your treatment. Let us all know how you get on.
I would recommend as much exercise as you can. I really feel that it helped me post op and during radiotherapy. I never got the post rads fatigue either that people talk about. Sure, I was tired but I wouldn't have described it as fatigue.
When is your op?
Walking with the dogs is great. I don't have a dog but my Daughter in Law's family have two and taking them for walks when i was off work last year was really helpful. We live very near a large country park which i really do appreciate. I guess how soon you'll get back into that will depend on your treatment.
Hope the hospital wasn't too bad today and you're a bit nearer having a plan for treatment and a bit more information....
I managed 1/2 hr about 12 lengths swimming and 1/2hr in bubble tub which was great. Will keep an eye on fluid / inflammation tho'.
Take Care Gilly x
I am four weeks on Monday from my surgery and healing seems to be doing ok. Have small area on implant side that is red, inflammed rather than infected, but i am going to try swimming maybe just 20mins or so on Tuesday this week. I continued my walking from being discharged 1/2 - 3/4 hr but have built back up to 1.1/2 - 2hrs each day now.
The main thing will be the risk of infection from the water but i have got Octenisan (skin wash used in MRSA treatment) so will make sure i clean the skin carefully and stop swimming if i have any concerns.
I think up in Scotland you have Maggie's Centres, not sure if there is one near you. I believe they are very supportive.
Keep posting Marion and let us know how your treatment is going. Take Care Gilly x
Hi there Marion.
On the diet and nutrition front my OH and I went to Penny Brohn for an introductory course. He really is a roast dinner and fish and chips guy, healthy but traditional so i was amazed when he said he would come with me. It really was three days where he was also looked after and we had the opportunity to take stock and discuss things that we might not have done at home on our own.....as well as look at changes to diet.
I bought their Nourish book which i have also since purchased on Amazon for other people (who have asked for a copy) and this gives some really helpful advice that seems to make a lot of sense plus recipes.
I'm not sure if i would have had the energy for this during my treatment but have since found it gives me a real focus and some control. Also doing much more walking / swimming.
OH will eat anything i cook except lentils and chick peas but he has a good understanding of my food choices and rationale behind them. I am going back later in September for a four day Approach course which i am realy looking forward to.
Take Care. Gilly x
Morning to you lovely ladies, i reckon you need to start a 'New Man in our lives Club'.
Really pleased you all have these lovely partners, it certainly helps. In terms of the guilt you feel, i've been married for almost 30 years to a lovely man who has been great over the last two years, an absolute rock, but i have also experienced a dreadful guilt at him having to support me, we had to cancel two lovely holidays and still can't really plan anything as i've just had my reconstruction. I've always been the strong one (or so i thought) and fortunately neither of us has suffered any significant health problems prior to this.
i was diagnosed in October 2012 had Chemo, surgery Radiotherapy and recently reconstruction.
Wishing you ladies all the best for your treatment and especially celebrations / nuptuals.
Please keep posting to let us know how your treatment is going.
Take Care Gilly x
I had planned my wedding for Sept 2014 before my diagnosis. This was due to the Gp thinking my partner had lung cancer in October 2013, but they had got it wrong as he was clear. I think have the Wedding to look forward kept me going. I now believe life is to short and we do not know what is round the corner so for me live every moment.
Hope all goes well for your Wedding plans next year.
Hi Marion and Angus
I just wanted to say hi and snap as I also have a new partner and am in my fifties. I also experienced great guilt when I was dx with cancer as felt it was terribly unfair for him to have to deal with. But of course, he has dealt with it brilliantly and I wouldn't have coped half so well without him. We haven't yet got married, hoping to sort that one out next year!
I hope your surgery is rescheduled soon Marion.
Welcome to the forums.
As well as the forums we also have a helpline where the staff can offer emotional support as well as practical information. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.
With best wishes
I have just read your post and it seems similar to me. I am getting married next month in Gibraltar to a man who is my world. I am also 58 but getting married on my 59th birthday I was diagnosed in January 2014. I had a lumpectomy, mine was an agressive Grade 3, no spread to lymph nodes. It was 6mm but when they removed it after clear margins it was 13mm. I had 15 sessions of Radiotherapy and put on Anastrozole for 5 years. I think everyone is different and we all handle BC differently. I am sure you will be ok please let me know how it is all going. I will be thinking about you. Please keep using the forum and dont be tempted to google as it can be quite scary reading some of the articles out there. Just think I am going to fight this and you will find the strength. We all get the strength from somewhere.
Any question just ask someone will have the answer.
Welcome to the forums. I'm sorry to hear of your diagnosis, the first few weeks are always difficult when coming to terms with your diagnosis and treatment.
As well as the support you will receive on the forums you might find it helpful to order the BCC resources pack. It has been specifically designed for those newly diagnosed and contains information to help you understand your diagnosis, test results and the various treatments available. If you would like to order a copy just follow the link bellow:-
You may also like to talk things through with one of the helpline staff, they are there to offer emotional support as well as provide information. The free phone number is 0808 800 6000 and lines are open 9-5 Monday to Friday and 10-2 Saturday.