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New diagnosis

14 REPLIES 14
delly
Member

Re: New diagnosis

Hi Madwoman, JoeC, Sus12, and annehr,

Only stumbled on this thread on the off chance (secretly checking out what "games" my friend LadyBowler's playing Smiley Tongue), it being in the Chat and Games. You'd do better response wise in the Newly Diagnosed area. However Madwoman, I hope you're going on and recovering well from your op now, as it's a few weeks ago. Let us know how you are.

Annehr - I'm not understanding being refused immediate implant recon because of your size. I was a 34B and offered immediate implant recon, with the option to "tittivate" (surgeons words) the other side to match, if needed.But then, I hadn't had rads to the other side. I do hope you were given other recon options tho'. if not. Many surgeons recommend a Lat flap (back muscle) for smaller breasted women, but of course self tissue recons have many more considerations, extra scarring, healing time and infections risks, which may be why you preferred implant choice to begin with. How did you go on??

Lotsa love

Delly xxxxxx

ladybowler
Community Champion

Re: New diagnosis

JoeC and madwoman

 

I am so sorry that I have not replied to your posts before, fortunately Jo has answered your questions in her post. Dont know how i missed your replies xx

 

Sending you both hugs

 

Helena xxx

annehr
Member

Re: New diagnosis

Hi Madwoman.  I too am recently diagnosed and know exactly what you mean about the confusion and general bewilderment in my case.  I  had a lumpectomy Feb 2015 and would have been far less scared if I'd known then what I  know now - it was relatively minimal in terms of surgery but still a terrfying thing to go through.  I've now been diagnosed with DCIS (ductal carcinoma in situ) and have to have a mastectomy.  Wanted to have an expander then reconstruction with implant but just heard today that the opinions of the surgeons is against this as my breast is too small (B/C) and could get symmetry problems as had radiotherapy on the other side last time.  I really didn't want to 'go flat' but don't think I have the choice.  I'm waiting for a date in the new year but this will now be for something other than I wanted, I expect. Seeing another surgeon on Monday so will know more then.  But it all feels very unreal and frightening.  I only saw photos of mastectomies two weeks ago and find the thought horrifying, although I know there are thousands of brave women out there who've been through it.  I'd love to hear how I can cope with what I think is a truly  hideous  thing that used to be part of my body....sorry don't mean to insult any of the courageous women out there.  Forgive me; subtlety is not my strength at the moment.

Jobey68
Member

Re: New diagnosis

Hi Joanna, 

 

As youve rightly worked out SNB is sentinel node biopsy, these are the nodes closest to the tumour( basically the ones that stand on sentry duty hence the name) and will be the first place any cells trying to escape will have headed , they inject a blue dye near the tumour and follow its path to find the nearest nodes to remove and test, if they find any cancer in them then they often remove more or all on that side to check them also. 

 

Quadrantectomy  means they will remove a quarter of the breast tissue that contains the tumour, WLE is basically the same but on a smaller scale , it all seems double dutch at the minute but you will be fluent before long!! Ask anything you like here we can help with most things between us Xx Jo 

JoeC
Member

Re: New diagnosis

Ah, Sentinel Node Biopsy.

Yes, but they're fairly confident that the cancer is still contained, there was no evidence of it having reached the lymph nodes in any of the tests yet. Fingers crossed it stays that way.

 

Then radiotherapy.

 

It's like learning a foreign language. In a rush!

 

Joe

 

xxx

JoeC
Member

Re: New diagnosis

Hi Helena, 

 

I'm madwoman's daughter. I've been studying up on the lingo, and I know now that a WLE is a wide local excision or a lumpectomy (for my mum's information). She's going to have a quadrantectomy though. 

 

Still haven't found SNB???

Might N be nodes???

 

Joanne

Madwoman
Member

Re: New diagnosis

Hi Helena

I don't understand all these abbreviations. I know I heard the word quadrant or something like that but don't know if it was my hearing or my brain that was not working properly I did not really absorb a lot of what I was told. I am now at the stage where I have questions to ask but dare not ask them as I think I am frightened of what the answers will be.

Even though I know I have breast cancer my body feels fine it is just my head that's really weird at the moment. My name madwoman is really appropriate at the moment.

Love and thanks to you.

Madwoman x

Sus12
Member

Re: New diagnosis

Oops sorry sent that twice as it said not sent first time!
Sue x
Sus12
Member

Re: New diagnosis

Hi madwoman. Just to say that I felt just like you when I was diagnosed. I went for a routine mammogram had a recall and was sure I'd be fine. I was in total shock when I was told I had breast cancer and was in a kind of alternative reality and a daze for a while. I have two daughters in their 20's and it was very hard not to worry about them and try to stop them worrying about me. It's really good that the hospital is getting you seen quickly. As Helena said the pre op is fairly straightforward but can involve sitting around a lot. Ask as many questions as you want to. They are all really lovely usually and will want to be supportive and reassure you. I hope it goes ok and I will be thinking of you today. Big hugs,
Sue x
Sus12
Member

Re: New diagnosis

Hi madwoman. Just to say that I felt just like you when I was diagnosed. I went for a routine mammogram had a recall and was sure I'd be fine. I was in total shock and disbelief when I was told I had breast cancer and was in a kind of alternative reality and a daze for a while. I have two daughters in their 20's and it was very hard not to worry about them and try to stop them worrying about me. It's really good that the hospital is getting you seen quickly. As Helena said the pre op is fairly straightforward but can involve sitting around a lot. Ask as many questions as you want to. They are all really lovely usually and will want to be supportive and reassure you. I hope it goes ok and will be thinking of you today
Sue x
ladybowler
Community Champion

Re: New diagnosis

madwoman

 

The pre op assessment is quite straightforward, you will have blood pressure, weight, height, possible ecg, loads of questions to answer about your health!!! and bloods taken.  It is a bit onerous and can take up to 2 hours including waiting around if mine was anything to go by, take a good book!!!

 

Are you having a lumpectomy (WLE) and SNB done?

 

Helena xx

Madwoman
Member

Re: New diagnosis

Thanks for your response. It is so good to hear from someone who has been in my position and come out the other side. I am going for my pre op assessment tomorrow so am focusing on that but find myself expecting the worst as I was so confident that the result of my biopsy would be negative.

I am beginning to understand that normality will return at some point it's just that I want it to happen tomorrow.

Love to you.

Still madwoman x

ladybowler
Community Champion

Re: New diagnosis

Madwoman

 

What you are feeling is totally natural, you have only just been diagnosed and there is a lot to take in.  The feeling of it not being real is something that we can all relate to, as is forgetting things and appearing confused, you have a lot to take in and this is in the middle of trying to carry on with your normal life.

 

Give yourself time over the next few weeks to take it in a little at a time, if there is anything you want to know and that we are able to help with we will.  You can also ask questions of the nurses on the ask our nurses section, and there is the helpline number you can phone if you want to actually speak to someone.

 

Sending you a hug

 

Helena xxx

LadyMondegreen
Member

Re: New diagnosis

Yes I certainly did. It is a huge thing to take on board and get to grips with. This forum was helpful to me during those times. I found support on the "I am recently diagnosed" thread in the early days so I recommend you go there and read some of the other posts and then post again if you feel like it.

 

https://forum.breastcancercare.org.uk/t5/I-am-recently-diagnosed/ct-p/recently_diagnosed

 

All the very best to you. x

Madwoman
Member

New diagnosis

I am newly diagnosed and have date set for op in two weeks. Even so it does not seem real. I just can't believe it is me this is happening to. At times I feel as though I am dreaming.I am more concerned about how my family are feeling. My friends say that I have realised it is happening as I have become very forgetful and at times appear confused. Did anyone else feel this way at the beginning. It's good that the hospital are acting so quickly but because of this very worrying. I know this is all a jumble of confused thoughts. It's just how I feel at the moment.