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New - inflammatory BC sufferer

6 REPLIES 6
AJfan
Member

Re: New - inflammatory BC sufferer

Hi I was diagnosed with IBC last June, and have gone through chemo, mastectomy and radiotherapy treatment. I have herceptin every 3 weeks until September. I am 56 years old. Please ask me if there is anything you think I can help with. although the treatment is hard, there is light at the end of the tunnel, and I am now starting to get my life back again after a constant round of treatments and hospital visits. The best of luck with your treatment.

roo50
Member

Re: New - inflammatory BC sufferer

I rarely visit this site now as I belong to a very supportive group on Facebook called Uk Inflammatory Breast Cancer Network. It's a wonderful group of women. We're all in the same boat and everyone is very supportive. If you use FB, check it out. I've completed treatment and have a diagnosis of No Evidence of Disease (NED) since January 2014. I'm on Herceptin and Letrazole. Hope your treatment is going well.
Guest user
Not applicable

Re: New - inflammatory BC sufferer

Hi roo50 I've just checked into the new form & have read your post. I was diagnosed with IBC in April 2008 at the age of 40. Although I've been left with other health problems I'm doing well & have regular checks with my surgeon & oncologist. If there's anything I can help you with please don't hesitate to ask as information on IBC can be limited & by talking to other ladies who have been diagnosed really can help. Hope you're doing well.
bluebayou
Member

Re: New - inflammatory BC sufferer

I have posted you but would like to say I was 67 and never knew there was this 2% of women that get IBC..I think it should be out there in the media more!!!!
bluebayou
Member

Re: New - inflammatory BC sufferer

I was dx Feb2012 with IBC......come back if  you wanna ask anything..be glad to help anyway I can 🙂 hugz.

bluebayou
Member

Re: New - inflammatory BC sufferer

Roo50....just seen your post.. I was dx last Feb2012 with IBC......how are you doing????
Come back to me is you wish.....would love to hear from you and how you have been doing..xx
roo50
Member

New - inflammatory BC sufferer

I am a new member who is going through treatment. I have posted on the IBC forum and would welcome contact with other IBC sufferers.
I am 62years old, recently retired with a busy and active lifestyle. I thought of myself as fit and healthy for my age so the diagnosis came as a bolt out of the blue.
I thought of myself as breast aware and have attended all my screenings. However until my diagnosis, I had never heard of inflammatory breat cancer.
I am undergoing treatment at the QE hospital in Gateshead.