Poor you, hope the Physio can do something to sort that out, what a pain for you. Are you ok apart from that, no problems booby wise??
Work is going ok, seems like I was never away lol. Hot flushes and nauseau keeping me awake at night, not the menopause had a blood test for that, so just the Tamoxifen.
Got my genetic results, it's a gene called CHEK2 waiting to see the consultant at Oxford now...god I hate waiting!!!!
Take care and good luck at the physio
Yes it does help to talk, especially with ladies who have been through the same...some people just don't get it do they!! I havve had a range of comments said to me and if I didn't laugh about them I would cry lol.
My BC nurse said she was going to refer me to a councellor at the hospital as I went through a rough phase, but that was 8 weeks ago and I haven't heard a thing...good job I'm feeling better in myself now!!!
I hope your follow up teatment has been good..it's abit of a shock to the system to have to go it alone after such a busy time before.
Have a lovely weekend, I work in a school so I'm on half term now, going to sleep for a week lol
take care xx
keep up the physio and I'm sure it will get better soon, not very nice for you x
how are you coping with life after the C word?? I'm finding it all abit up and down, waiting for results sure doesn't help!!
What you are saying and feeling is exactly the same reaction most ladies I have spoken to have. It will wear you down and you have to deal with that however you need to. Chatting on here helps, as you realise that you're not the only one and these feelings are normal. I thought I was going mad..fortunately not!!
I hope your treatment goes well, will be thinking of you
love Erica xx
sorry thought I had said about tests...BRCA came back negative, they are now testing for this TP53 mutated gene (no me neither!!!) it is a cancer suppressant gene, hopefully will be clear too...waiting is all we seem to do lol
Keep your chin up
love Erica x
not sure if I am replying to the right place. I just joined here tonight. Not sure how it works but it's a relief to not feel on my lonesome 🙂 Was diagnosed with DCIS on Wednesday and am waiting for another biopsy to see how much they'll take out I suppose. I was really strong and up-beat during the first few days, cracking jokes, comforting my friends - yes 1 of them will have to be re-christened water-works! That's kind of wearing off now. Beginning to feel more vulnerable and tired of having to tell people as it makes it all the more real. Am a positive person but this is difficult stuff.
Anyway, glad to have found this.
you seem to have forged some great support here - but feel you are isolated from so many more,,,, on the going thru treatment pages there are many more willing to help support you & give advise / sympathise & help carry you thru these early days.
Anyone in Berkshire there is a closed facebook group which is amazing too.
Hope you find you ways to those other pages,
Best wishes for the coming weeks,
hope all is going well with you and things are inproving arm wise!! The back of my arm is still numb..how long does this last!! it's also abit swollen I can notice in my clothes...apart from that all ok. Still waiting TP53 results hopefully soon, check up next month but all seems of physically.
Still waiting for an appointment to see a councellor at the hospital..5 weeks!!!! don't think i need to now!!
Sorry to hear your arm is still not good, are you still at physio? Mine is still abit numb but no where near as bad as it was.
I'm doing ok, back to work full time soon..that will be a shock to the system lol
Welcome back to the forums, but sorry to hear of your latest diagnosis. I'm sure your fellow forum users will be along soon to offer their support. You might find more immediate support if you post in the Secondary forum as not everyone looks at all the posts now on this new system.
Don't forget our helpline staff are just a free phone call away if you need to talk to someone in confidence 0808 800 6000 lines open weekdays 9-5 and Saturdays 10-2.
I have just registered after a while away from the forums. I was last here a few years ago before the website and forum changes and am thrilled to see all the wonderful improvements.
I was a member of the Darling Buds of May Chemo group of 2012, now returning following a bit of a shock diagnosis of secondary BC liver mets a few weeks ago. Takes a while for these things to sink in, but I'm starting to get there now.
Anyway - I would like to extend my best wishes to all, and look forward to starting to participate in what I found to be a very positive and helpful environment before.
Take care and hugs to all,
Welcome to the forums, this must be a difficult time for you. As well as the support you will receive on the forums we also have a free helpline where you can talk things through with a member of staff who are there to offer emotional support as well as practical information. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.
With best wishes
Good evening all, I found a lump just over a week ago only tiny, I'm in to see the gp on Thurs, I'm feeling quite scared to be honest and wondered what exactly will the doc do as u can't physically see the lump.
Welcome to the forums.
Whilst waiting for replies maybe you would like to talk things through with a member of our helpline staff who are there to offer emotional support as well as practical information. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.
We also have a service whereby you can talk to a volunteer by phone or email who has been through a similar situation as yourself, this is called 'Someone Like Me' , here is a link to the sevice if you would like more details. http://www.breastcancercare.org.uk/breast-cancer-services/someone-talk/one-one-support.
Hi All my name is Mo i was diagnosed with breast cancer in february, had a lumpectamy on the 5th march and got my results yesterday i dont have to have chemo just radiotherapy and tablets for the next 5 years, my breast is still swollen and warm is this useuall or should i contact someone?
sorry to hear your shoulder is getting worse...I had physio on my neck and shoulders because i was so tense all the time..havn't been for awhile!!!! hope you feel better soon xx
i'm ok, soon be back to work full time.. it will be 6 months next month since i had my op...it has flown by!!!
keep up with the exercises and hopefully they will do the job
take care xx
Not doing too bad, back at work 5 mornings a week now...still get very tired, don't sleep much. I have been having physio too on my neck and shoulders as i feel tense alot of the time. My arm is still numb at the top from Lymph node biopsy..is yours??
Life goes on doesn't it lol...I'm 50 this year and have never looked more forward to a birthday!!
Take care, hope work and physio go well xx
This is my first post and as you seem to be going through something similar I thought I shoudl write. I had DCIS in my left breast in 2013 and had a mestectomy and DIEP flap reconstruction. My sentinel node was clear so I needed no further treatment. My first mammo since was Dec 14. I was diagnosed with DCIS again. Pretty unusual. I decided to have mastectomy to the right too and whilst it was a blow I knew it was the right decision. This was 2 weeks ago.
This Wed I had the devastating news that the DCIS was hiding a tumour. It was small and was removed but my sentinel node is infected.
I am now goingt o have to start chemo and herceptin. I am gutted and scared. Like you my family want me to have the extra security and go for all the treatment.. I have 3 sons and the youngest is 9. I feel guilty as I am putting stress on them all. My eldest has his GCSEs this year.
I am sorry that you are missing 2 lovely events this year and wonder if we should help each other through. Do you know when you start treatment? I am hoping to find comfort in this site. Family and friends are amazing but soemtimes it is easier to chat to a stranger who knows how you feel. Feel free to write to me whenever. xx
Glad you are recovering physically and I totally agree with everything you have said. I am getting there body wise, scars still abit painful, but it is now that my head is all over the place. People do think all gone back to normal, but i don't ever feel that i will be normal again!! I'm back at work and put a front on to get through..as you say i try not to dwell on things and get quite cross with my self lol.
Keep looking after yourself xx
Hi all - especially MrsBojangles,
I must admit I find the forum a little confusing with simialr threads popping up all over. I was diagnosed with DCIS last March - but surgery then revealed it was a little more than that. What I would say is trust your team, they want the best for you, and always take a trusted friend to your appointments. I tried to write closed (Yes / No) questions too - so that I could quickly jot the answer, before moving on. I found the staff allowed me the time I needed for all my questions & in my unit they ask if you want copies of all letters sent to the GP. For me - most definately.
I have found recently a brilliant little booklet - it raises many issues, not all which I had, but like on the forum here, it was good to see anothers perspective who had been there, & had so much done too. The author is a clinical psychcologist & a lady who has had a breast cancer diagnosis. Cordelia Galgut: Emotional support through breast cancer.
Treatment has changed so much over the years and is so more advanced so I have to put my faith in the system lol... My little tablet of Tamoxifen is my life saver at the moment.
Hope you are doing ok xx
Hi Ditzy and KC, Welcome to the group, I am sure you wished you didnt have to join but everyone is so supportive here and if ever your worried there is always someone that seems to pop up with some advise. I am confused how I got to this thread as I usually go on the "newly diagnosed thread" thats where it seems to be happening with responses. I had invasive ductal cancer grade 3, had surgery WLE 3 weeks ago and then got the bombshell on Thursday that they think I should have chemotherapy as due to my hormones they feel tamoxifen would not really work. Basically I have no safety net should a "stray cell" be found. I was absolutely gutted as all along I was thinking surgery and radiotherapy. They suggest chemo because its a grade 3 and fast growing. Its really hard to get your head around especially as my sentinal node was clear and they removed the cancer with good clearance. My family, especially my daughter feels chemo will just give me that extra safety so here I am waiting for a date. We were due to go to Mexico end of April so had to cancel that and my daughter was getting married in Antigua in July so again that has been postponed. So all in all I am not feeling great right now. I am sorry I cant give advise or help you with your surgery as its completely different to what I had, but have a look on the Newly Diagnosed thread and someone on there may have had similar to you both. Hope your taking it easy and I wish you both well with your recovery xx Lynda xx