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10 REPLIES 10
NG9
Member

Re: New to this Forum

Hi I live near to your area.  I too was told that the breast cancer has come back to my bones after 8 years.

I am here to help if you need any thing we are on the same boat I know how scary it is. Good luck with your treatment.

Moijan
Member

Re: New to this Forum

Hi Suskat 33 my onc originally said...we will give you this chemo untill it stops working...am just pre cycle no 8

-and holding my breath that he might decide ive had enough!

 

 

Mri tomorrow...resukts on Wednesday.....have a good feeling about this.....hopefully a change is in the offing.

 

Moijanxx

Suskak33
Member

Re: New to this Forum

Hi Julie

Gosh 12 years of treatment , how are you doing now and what treatments have you been on? What mets
Have you got? There so much hope for breast cancer these days so there is lots of hope.

Juliewp
Member

Re: New to this Forum

Hi there - I am a "returner" to this forum so kind of new too!  I have been away as been on constant treatment with mets for 11 years (dx 13 years ago age 33).  So sorry to hear you are having to go through this again and wish well.  I hope that you find suport here.  Warmest wishes

Suskak33
Member

Re: New to this Forum

Hi Moijan

 

my treatment plan is six bouts of Chemo , how many sessions are you due to have?

 

thanks for your reply

 

xx

Moijan
Member

Re: New to this Forum

Hi Sarah,

hope your fourth chemo goes well for you today. I am on chemo too. Have had capecitabine, which worked well for me for about two years, then Vinorelbine for six months, which didnt help me much..am now on Eribulin which is going great guns! I have mets in liver and bones. My primary was in 2001.

 

if you look on the secondary breast cancer bit of the forum under treatments, you will find threads for each of these, plus a bone mets thread. So you can chosse one or all of these to get support. 

 

Keep us posted as to how it goes, love and hugs,

 

Moijanxx

Suskak33
Member

Re: New to this Forum

Thank you for all your advise and it all sounds positive for you too . I am on the same drugs as you for my bones and let's hope it's knitts the bones back.

Thanks once again
MarionP
Member

Re: New to this Forum

Hi Sarah,

 

Really pleased the treatment is working for you.

 

I haven't had chemo this time round (yet). I'm on hormone treatment instead. My cancer is strongly oestrogen receptor positive so I have a four weekly injection of Zoladex to stop my ovaries producing oestrogen and also take Anastrozole which stops my body converting androgens to oestrogen - so basically just starving the cancer. Initially this helped shrink the nodules in my lungs and the cancer hasn't grown or advanced any further so it's working for me so far.

 

Because I have bone mets, I am also taking a drug called Denosumab which helps stop the bone breaking down.

 

Breast Cancer Care organise monthly meetings for secondary ladies in Oxford - I found it a good place to get information and meet other people like me. They usually advertise them on here or you could call the help line and ask to be put on the mailing list. You can also use this forum to get to know people a bit better and then decide whether you want to meet in person.

 

Best wishes,

 

Marion

Suskak33
Member

Re: New to this Forum

Hi Marian

I have my forth chemo tomorrow and have been told my treatment is working.

What ongoing treatment are you on ? Do you go to any of these met up event?

Thank you for replying to
Me , I appreciate it.

Sarah
MarionP
Member

Re: New to this Forum

Hi,

 

So sorry you've had to join this club. I'm in North Oxfordshire so not too far away.

 

I was diagnosed just under a year ago with lung and bone mets (12 years after my primary) so I have an idea of how you might be feeling. It's a huge thing to take in but it does get a bit easier as you get into the routine of treatment and develop ways to cope.

 

This forum is a great place to rant and rave and get advice from people who know what it's like. The best place to chat or ask a question is on the "Bone mets please join in thread" which is under the Living with secondary breast cancer section.

 

Best wishes and hang in there!

 

Marion

 

Suskak33
Member

New to this Forum

Hi,

I live in Buckinghamshire and I am halfway through chemo having been told my breast cancer has spread to my liver, bones and lungs.

I was four years clear from my first diagnosis so
Like us all never expected it to return.

I just wanted to connect to people who have had a similar diagnosis as it's all a bit scary.

Thanks