Yes, the waiting is awful. My surgeon was on holiday when the path results from my mastectomy came through and so my onc said be good to have onco test as wouldn't be able to have next op until surgeon came back anyway. Glad I had it as it meant i dodged chemo! Xx
Glad to hear about the clear margin around the lump, the op on 2 May is that to do the lymph nodes?
Just you concentrate on you, if he is a decent man he will, stick with you.
Sending you a hug
Hi Sandra. I also had few cancer cells on sentinel node which they hadn't expected to find. About 1.1mm I think (if it had been 0.1mm smaller it would have counted as negative - don't know how that works!). So I did have another op two weeks after mastectomy to take out more nodes - 9 were taken and all were clear. I also had onco dx test and as I had low score I didn't need chemo. In fact my onc also decided against rads, so I'm just on anastrazole for next 5/10 years. Did also have ovaries out a month ago as extra precaution. All good fun! Debbie x
Good about the lump. I completely understand about the nodes. To be honest, if we are going through this then it's just easier to get the lot done at one time, then you haven't got the 'what if...' Hanging over you.
i am very near sussex - near a large airport, if you are nearby then happy to meet up some time - not in a mammogram department!!!
Now back. The squishing was painful. Had five to six biopsies in each side. Thank you so much for paracetamol tip. I also took neurofen as well and very glad I did. Just being a lady of leisure now while son number one bottoms the bathroom (if you want something cleaning then get my son to do it - he's amazing) and husband poddles about treating me like glass - may be playing up to that a bit.
the mammo and biopsy team were amazing. Just wait for the results now but I can't think surgery can be worse than that.
Good luck for tomorow Flyingarcher. Just a tip I learned during countless mammos and 2 biopsies last November was to take 2 paracetamol about 1.5 hours BEFORE the first procedure (nothing with aspirin in though) and it really does take the edge off it. The anaesthetic helps a bit on the surface but the paracetamol helps with the compression. (I learned this years ago when having a leg wax and my lady recommended it, so before all my previous routine mammos I reckoned if it helped with a leg wax it'd help with any anticipated pain, and it DOES work every time!) xxx
Thank you! Just had a lovely fun day out, which was brilliant. Bit heeby jeebish about tomorrow as it is a standing mammogram plus biopsy and mammo hurt like hell let alone fiddling about with a bloody big needle looking for something tiny. Hoping they give me loads of local anesthetic! I think the results take a week but as I'm within a month of noticing something odd, I don't think it is too bad. This limbo bit is not great is it.
big hugs to all the other ladies in limbo and huge thanks to those who have gone through it for your encouragement.
Sending you both love and luck for tomorrow. Once your treatment plan is in place you'll feel a little more settled and can focus on each step along the way.xx
Oh yes, it always is, will have everything crossed that is the outcome, it was the same with me, radiotherapy and on tamoxifen now for 5 years.
Hello and welcome. Good luck for tomorrow will be thinking about and let us know what the outcome is.
I can not advise with regard to flying so soon after the op, it would be worth asking your breast care team tomorrow when you know exactly what your treatment plan is.
Thats me all over, I am the one who does all the clear and the hardest thing is getting used to being the one being cared for, but let them in and do stuff for you, just keep thinking it will aid your recovery through your treatment 🙂
am off to the hosp tomorrow too. Have to have further biopsies on the teeny calcium thingies. There aren't very many and they are only I mm long so heaven knows how they will find them. My last ultrasound was done with ultrasound and as my lump is 1cm and near the surface, was pretty easy to find.
I'm a bit in limbo at the mo as it could be straight forward lumpectomy plus a couple of lymphnodes (not in them yet) just in case, rads and hormone pills or if calcium thingies are cancerous then mastectomy and chemo. Just don't know so feeling a bit wibbly. Surgery is booked for three weeks time anyway..
can I ask the ladies who have had lumpectomy and mastectomy - we are due to fly shorthall to Greece for May half term. I think this will be doable with lumpectomy but will it with mastectomy? Have three menfolk to lug bags, belongings and not planning on doing anything apart from sunning mysejlf and reading a book. Doable?
On one of the other threads as have a virtual pair of "tough pants" which we share, after we have washed them!! when one of us is going through a bad time, getting results etc., so I am sending them to you for tomorrow.
You will get your mojo back honestly, it is just fear of the unknown at the moment which allows the anxiety monster to take over.
Is there no-one that can go with you tomorrow for a bit of moral support, a friend or relative?
Let us know how you get on, we will be virtually holding your hand tomorrow.
It is scary when you look at your scar for the first time, no matter how big or small they are. Is there someone who can be there when you do look so that they can give you a bit of moral support?
I have had many ops in my earlier life because I was born with Spina Bifida and had corrective surgery on my leg. What I was surprised with the scars I had from the op, was how good they were. Ok initially they look a red and swollen in the early weeks, but t6 months post surgery hey have now settled completely down and are lines that look like creases, sooo very much better than the ones I have on my leg, it just shows how far surgery has come.
Have they said how long it will take for the nerve to settle down, is there anything that can be done to help ease it or is it going to be a matter of waiting?
Just to build on what ann has already posted.
I have been on tamoxifen for six months now, apart from a lovely hot flush that I get about an hour after I take it in the morning, I have on the whole been fine. I do get occasional aches but absolutely nothing that I can not manage and they do not compromise anything I do. I am very much post menopausal and was concerned how it would affect me as I did not have a bad time going through it.
I remember when I was given the prescription I got the tablets and then sat and looked at them for a week after reading the "potential" side effects, and as ann says not everyone has any or at all. I bit the bullet and started taking them.
My take is that this little tablet is going to keep me safe, in the same way as the rads have done, so it is a small price to pay. I have not put any weight on at all, in fact I lost 9 pounds in weight between my diagnosis and op, which I have never put back on.
I'm not quite sure to be honest. I need to look at the scar and I'm still in pain. I can't touch across my shoulder blade or upper back and they think they might have hit a nerve during the biopsy. And I cant decide if I want to take tamoxifen or not due to the side effects especially weight gain!!!
I had a lumpectomy (WLE) and sentinel node biopsy, My tumour was 17mm. The exact expression my oncologist used was that radiotherapy was "belts and braces" so yes it was a precaution, I do recall my consultant saying to me at my results apt that because of the type bc I had I could probably get away without rads but it was a belts and braces measure, so at the end of the day it was a no brainer for me.
How are you doing now post op?
Helloooo, oh so good to hear from you and it really sounds as if you are doing well 🙂
Let us know how you get on Wednesday will be thinking of you
Hi Helena, Felt exactly the same as you & just wanted it out of my body. I have felt so much better since my op & am now really positive. I go back for my op results on Wednesday & am ready now for the treatment & then to try & put it behind me. Feel very positive now.
i still think the first few weeks after diagnosis are the worst & anyone going through that now to know that it will get better, however low you are now. Hugs to all
I had a mastectomy on the 30th March and sentinel lobe biopsy. My cancer DCIS with micro invasion was spread across an area of 52mm but has all been removed. And the lymph nodes are clear. It is oestrogen receptive so they recommend Tamoxifen but not radiotherapy. if your margins were clear and your lymph nodes did they do radiotherapy as a precaution.
When I had my results and treatment plan, on the sheet that they gave me with it all set out, it also mentioned on there "possible further treatment, chemotherapy" they have to let you know all the options but the consultant did say to me that it was unlikely as they were confident of it being exactly as they had advised me tubular, grade 1 and hormone receptor positive and it was.
I actually called mine Mr Blobby as it was the way that I coped with what I was going through and to stay positive about the outcome because he was going to be kicked out of my body.
HicKory, thank you for your response - there seem to be so many of us,going through similar situations. I am guessing my bc us hormone receptive as I have been told I will need hormone therapy. I am 50 but haven't yet gone through the menopause.
Just wanted to welcome you to the site and this lovely forum, you will get soo much help and support from the ladies, as ann has said there is a load of information on the main website page which you may find useful.. Just do not google generally because it will potentially scare the pants off you, there is a lot of misinformation out there, stick to here or the MacMillan website.
I did not find out the size of my tumour until after the op, but like you mine was Grade 1, hormone receptor positive. I was told at my results apt that it was 17mm in size My consultant and onocologist both told me that it was very slow growing, they got clear margins around the lump and it had not spread to the lymph nodes. I too had radiotherapy and am on hormone blocker tablets for the next 5 years.
Never feel silly, and bear in mind none of us knew much about our cancer we were first diagnosed, it has been mostly from the forum and the subsequent meetings with my bcn, consultant and oncologist that I have found out more about it. You will become an expert on your particular cancer as you go through treatment!! As ann said, perhaps give your bcn a call on Tuesday she will be able and very willing to go through what you have already been told, ask any questions you have about your treatment plan and never feel that you can not do so.
Sending you a hug
Hi Lizzie, I am nursing my breast after lumpectomy and lymph node removal few days ago. I had stage 2 invasive ductal cancer and DCIS.
It really is a huge learning curve re breast cancer but only search what you want to know as there is so much.
At the pre assessment for the op an ECG may be done, I had one.
But I am 61 so maybe ts nt needed for you.
I am at the wiatimg stage for resuts of op, there is alot of wiating to do re BC.
If my results are good then I too will start radiotherapy and hormone drugs.
The info in the main site is really useful, or just asking questions here I found more personal.
Be kind to yourself as no matter how prepared this jurneynis an ordeal. 🙂
I have recently been diagnosed with bc and have a lumpectomy and sentinel node removal booked for a few weeks time. After that will have a course of radiotherapy and hormone treatment.
I'm feeling a bit silly as I know very little about my cancer - I've been told it is stage one. I have no idea what size it is - it was very apparent on the mammogram though.
Re my pre- op, I never had an ECG - should I have had one? It wasn't offered or discussed.
I'm guessing my consultant will know more after the opening - I am worried it may have spread.
I feel a bit in the dark are there questions I should be asking now?