It is very difficult when treatment finishes - it;s like you've been dropped like a hot potato. After all in the 6 months of treatment I counted that I had been in or at hospital for about 98 days!
I was supposed to have 3 x fec and 3 x doxytaxel, but after the 1st doxytaxel I had to be hospitalised as the pain it had caused was unbearable, I could barely move, so they didn't give me the other 2 doses but reverted back to 2 more fec.
Just to give you some good news - I was diagnosed with Grade 3 TRiple Negative BC in May 2011. After 5 FEC and 1 Doxytaxel chemo and 25 radiation I am still cancer free. I spent a good 18 months in a very stressed state of mind, worrying about every niggle and pain, got told to get a life by my consultants registrar! Which made me worse - I was contiunually told during my treatment that I was at high risk of it coming back within 1-2 years and lost a friend who had the same as me, how the heck did they expect me to feel!
Anyway I am coming up to 4 years in May and whislt I still worry I am in a much better frame of mind these days. Whilst on holiday in Corfu last year I met a lady by a lake in the middle of nowhere and we got talking and it transpired that she had also had triple negative and was 7 years down the line and still alive and kicking - gave me a great boost I can tell you.
There are good stories out there.
I was also dx tnbc in oct 2013, had chemo first,lumpectomy and rads, treatment finished in july 2014 and I am now trying to put it behind me, It was a bit of a rollercoaster going through treatment and coping with side effects but it is do-able, wishing you all best wishes in your treatments and it might seem ages away before you are finished but believe me it goes by so quickly just keep positive and take good care of yourselves.
Ps My sister was dx tnbc 19 yrs ago and still living life to the full, most definately a long term survivor and she has been my inspiration x
I just want to provide you with hope - i was dx Jan 2008 Grade 3 TNBC, children aged 2 & 5 - 6 sessions of chemo 3xfec, 3x dosataxil - YOU CAN DO IT!!!!! I was 34 now I'm 42, huge emotional roller coaster, but if I can do it so can you. I wont lie its tough, I've just had my mammogram and been down the path of genetics, but i live my life now, NO-ONE KNOWS WHAT TOMORROW BRINGS XXXXXXXX Love n hugs to you all xxxx
Hi Callcmainc, I had a lumpectomy and a month of radiotherapy as the research shows that radio and lumpectomy is as effective as a mastectomy in operable early stage breast cancer . I know that sometimes they want to do chemo first if the lump is big and there are positive axillary nodes. It is all down to the assessment of the surgeon and the medical conference they have to discuss your plan.
I do worry about recurrence like you, however I trust my surgeon and oncologist re their advice.
I wish you all the best, Sue x
and don't forget, all the stats you read are out of date. They don't refer, and can't refer, to us just starting now, with all the extra knowledge and treatments available in the last decade or so.
Hi Callcmainc, I do feel for you having 2 little ones and this diagnosis. However, it does make me mad that the media prtray TN as such a dire disease. Granted its not the best but most people with tnbc do survive, over 70% survive and many of these are node pos with big tumours.
I was diagnosed just a year ago so not a long termy yet! However I do know that we triple negs respond better to chemo than the hormone dependents and although chemo was tough it is fast becoming just a memory. We can help ourselves by doing a bit more execise as this has been shown to help reduce recurrence.
You will get used to the triple neg aspect and by having the chemo you are doing all you can to beat this thing.
Love and best wishes to you, Sue x