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Newly diagnosed with dcis

12 REPLIES 12
Ruth Hill
Member

Re: Newly diagnosed with dcis

I'm sending you my very warmest wishes, I am in the very same position as you were, when I see my post op assessment on Wednesday I'm expecting to be told I must have the mastectomy. I'm determined to enjoy my 23rd wedding anniversary tomorrow .

then I will do whatever it takes to keep my chin up. Xx Ruth

Ruth Hill
Member

Re: Newly diagnosed with dcis

Hello all , I am also a bit further down the processi was diagnosed with dcis on the 27 of April , but after biopsies they revised it to invasive and I had the wide excise lumpectomy. Go home dear and we will see you in clinic for an update and discussion about the next step in your treatment. 

Two days later I was called by my oncology nurse who said " it was bigger than they thaught, and growing faster than they thaught" .

i had already asked the surgeon to take an extra large margin and it seemed I was right to ask. It's just 6days before my follow up apointment and I'm filled with foreboding.i have already made the decision to have a mastectomy if it's still there.or has moved on. I am 59 next month, the mother of 3 strapping sons and I am the only girl in the family not counting my little granddaughter. This has been the longest month of my whole life.

hopefully I can start radiation and feel as if I've chased any stragglers away..

 

Swede
Member

Re: Newly diagnosed with dcis

Hi there. My breast surgeon says DCIS is definitely a cancer. And I have had cancer. Like others have said if it's pure DCIS it has not spread. Mine was widespread and I had a mastectomy and reconstruction a month ago. If I'd had a lumpectomy I would've needed radiotherapy. But because of the size it wasn't ever an option for me.
Your meeting with your surgeon will hopefully explain more and help you. You do need someone to support you through this x
4princesses
Member

Re: Newly diagnosed with dcis

Hi Ngstar, I'm sorry you are in this position, I am slightly further down the route than you so hope I can help.

Dcis is the earliest form of breast cancer. It is pre-invasive, and the way it was described to me was that the cancer cells are there in the breast, but as yet are too immature to spread or invade other tissues. It is difficult to determine if or when the cells will become able to do so.

I had a wide local excision (WLE) in the hope that the area of dcis would be removed along with an area (margin) of normal tissue around it. In my case, we didn't get a clear margin and therefore I am going to be having a mastectomy. Assuming all goes well with that and there are no nasty surprises on pathology, I will need no further treatment apart from regular screening on my other breast. Had I not needed the mastectomy, I would have been offered radiotherapy.

It's taken me a while to mentally get to the position where I am OK with my situation. It could have been a lot worse on the spectrum of breast cancer diagnoses.

I hope I've given you some clarity, if I can help further please let me know xxxx
Jobey68
Member

Re: Newly diagnosed with dcis

Hi, DCIS is a very early form of breast cancer contained in your ducts, some refer to it as pre cancerous but I had some along with invasive and was told it is still cancerous cells, it is the best you could hope for in all of this so please try not to get yourself in too much of a state as its very treatable, they tend to remove and sometimes offer Radiotheraphy but more often than not they do nothing after surgery if no invasive is found Xx 

Negstar
Member

Re: Newly diagnosed with dcis

Hi Rhian. I had my second biopsy today and until the radiographer said DCIS all anyone had said was precancerous . I am sitting at home, scared, shaky and because I keep telling myself it is a fuss about nothing, obviously in denial. From all I read they seem very keen to remove rather than treat and this terrifies me. I have kept it to myself and don't know if that was stupid or wise. Being on my own I don't really want to bother friends who all have their own troubles .... And will someone please tell me if this is cancer or is that a question for the surgeon who I am seeing next week? Sorry if I sound confused and muddled but I am ..

Jobey68
Member

Re: Newly diagnosed with dcis

Im sorry your feeling so low Rhian, it feels never ending when you are going through it all but you shouldnt have to be in pain so make sure you take plenty of painkillers regularly and rest as much as possible, it will get better love, a year ago i didnt think so either but yesterday i had my 1st year all clear !! Sending you a big hug 😘
4princesses
Member

Re: Newly diagnosed with dcis

am feeling really down today, I'm a lot more sore and swollen this time, and just feel like crying all the time. When and how will this nightmare end xxx
Jobey68
Member

Re: Newly diagnosed with dcis

Hi Rhian, good to hear it's all gone well and looks a very good diagnosis if you have to have one! Hope you get home tomorrow Xx Jo 

4princesses
Member

Re: Newly diagnosed with dcis

Hi, op went OK, I'm staying in overnight as I've got a drain in until tomorrow.

Registrar told me it was borderline low to intermediate grade dcis, I though the Consultant said that on Thursday but was afraid it was wishful thinking. All in all, it's the best of a pretty shifty deal isn't it

Thank you for your support xxxxxx
4princesses
Member

Re: Newly diagnosed with dcis

Thank you for your reply Jo. I'll let you know how it goes xxxx
Jobey68
Member

Re: Newly diagnosed with dcis

Hi Rhian and welcome, I know it's an odd saying as like the rest of us you don't really want to be here but we like to wish you a warm welcome anyway 😊 Yes DCIS is the best of a bad bunch! Hopefully tomorrow will be your last op, wishing you all the best Xx Jo 

4princesses
Member

Newly diagnosed with dcis

Hi,

Firstly to introduce myself my name is Rhian, I'm 44 with 4 daughters and on Thursday was diagnosed with pre-invasive dcis, which I gather is the best of a bad deal. I've already had the lump removed in order to get the diagnosis as 2 biopsies couldnt conclusively diagnose it.

Tomorrow I am having a wider excision to hopefully get clear margins. Then comes another agonising wait for the results again. If I have a clear margin then I will have radiotherapy if there aren't clear margins then I will be having a mastectomy.

This has been going on since February when I first went to my gp having felt the lump, so it feels like it's been a lifetime already and at every step, another hurdle is in front of me.

Thank you for reading xxxx