Hi do you think they are wanting you to have these scans before the 11th?
i just re-looked at the haven website, I think they might offer telephone counselling, so if you feel up to it might be another option. Xxx
Hi illneez, oh I do feel for you. In terms of counselling have you tried "haven". I'm not sure where they are in the country, I know they are in Coventry and London and other places, but I understand they are excellent. If you can get there. I friend of mine got immediate free counselling, complementary therapies etc. Hope they can help. Xxxx
Hi Lilneenz, I've just read your posts. It is obviously a worrying time for you, and your mind does strange things. I've never had so many aches and pains as in the run up to my surgery! I guess that the scan will be a way of clearing up things, and of course , never lose sight that it could very well show absolutely nothing.
This forum is a great place to let off steam, and you can phone the help line as often as you need to. My time was always the middle of the night 😢
Sending best wishes and a big virtual hug. X
i do so empathise with you. I said that very comment to my Husband, every time I come here I just pick up bad news. I feel like this is all being drip fed. You are nearly there now, the downside of understanding BC so well now is all the testing so that the medical teams can get the treatment package spot on. Thinking positive thoughts for you. Xxx
What ann say is so true, this really is the wrorst time, when you get your treatment plan it will help as it wil give youreassurance as to what is going to happen and when, treatment for bc is very much more advanced than it was and with earlier detection the results are much better.
You will get there and we will be beside you all the way xxx
From what I've seen, treatment for any type of bc is very effective now. Being hormone -ve is not necessarily any worse than being hormone positive.
Waiting for results is always the worst, it does feel better when the diagnosis & treatment plan is confirmed.
I think if I didn't have this backache constantly there to remind me, I would be able to pull my positivity pants up high and march into battle, but it's hard, especially when you read other stories.
"Pull my positivity pants up high", that's the best thing I've read in ages and I'm going to adopt it as my motto from now on. I wish I had read it before I went for a colonoscopy yesterday (my genetic condition involves my intestines as well as breast cancer) - you get to wear 'dignity pants' (enormous blue shorts with a flap at the back, no dignity involved really) and I so wish I had called them positivity pants instead 🙂 🙂
thanks Lilneenz for really making me smile this morning and hope you're able to find at least some sort of metaphorically supportive undergarment today xx
At this point in our journey the early hours are the worst, the mind goes into overdrive and every ache and pain we fear means that the cancer has spread.That is a natural reaction to the diagnosis we have had
IRubycat's advise is very good, perhaps give the helpline a call because they have experts on there who may be able to provide you will some more reassurance with regard to the lympho vascular and there is always someone there 24/7.
I know when I was waiting on days I held my back so tight that it ached. When you take paracetamol or the like does it go away. Can you perhaps make an appointment to properly get the doc to check your back out
I hope today will be better for you, try and do something nive to take your mind off it.
Sending you a hug
Hello Lilneez, LadyB is always right!! This is an awful time for you, as we all understand, and it makes your mind go into meltdown. Sometimes I wonder whether the BCNs actually take on board just how panicky we are. I know they are dealing with it all the time, and mostly do their best to calm us down - but sometimes it doesn't work! I am now nearly 2 years on from you, and can say that somehow you will get through it. I can just say about the lympho-vascular and hope it can help. I had this too, and didn't go on to have chemo as the SLN was clear. My surgeon explained that many people do have this, but it is really insignificant as it can just mean one cancer cell is just outside the tumour and is in the blood stream, but has gone nowhere else, and it has all been cut out. She even said a cell could have got onto the knife! The main thing is to have the sentinel lymph node clear. I know it completely freaked me out when I first heard those words, then when she explained I felt better. Then after a few months I saw the details again, and had another freak out. Don't worry too much about the length of time things take, as the MDT will be looking at your pathology and bearing all this in mind to get everything done as soon as possible. Always phone your BCN or the Helpline here for more precise info than I have given, but we are all here to help as much as we can. xxx
Firstly let me, I hope, reassure you about the wait for results, I actually waited 5 weeks for mine post surgery. My bcn said that they would not call me back until that had all the results in so that they had the complete picture of what we were dealing with rather than having to get a bit of info at a time.
With regard to teh multi focal part and lympho vascular invasion, I honestly do not know anything about that, but I am sure one of the other ladies on here will know and be able to.
Perhaps when they ring you today, presumably it will be the bcn who will call, why dont you ask if you can come in and have her go through what they know so far and what those results mean. They will not make any decisions about your treatment plan until all the results are in so that they can tailor it to your exact needs.
I know this is a really difficult time, I remember getting my Onc apt through before I had even had my results and I went into freefall dreading the worst. I phoned my bcn and told her I had had my Onc apt but had not had my results, she told me not to worry as they had just been ultra efficient in getting their apt out before I had been given my result apt. The trouble is that our anxiety levels at this time are so high, what might seem "run of the mill" timings to them is an eternity to the person going through it.
From the date I had my op to the date I started radiotherapy was 10 weeks.
We all get you on here and totally understand exacly what you are going through, sending you a hug
The hormone status refers to whether the tumour has hormone (i.e. oestrogen/progesterone) receptors or not. If the tumour is hormone positive, it is referred to as 'er+' as it's growth is largely fuelled by oestrogen, therefore hormone treatment will also be offfered to suppress this. Most of us have er+ bc.
I was diagnosed last thursday invasive lobular, small.....had mri yesterday ...results are later today.....I was a mess waiting results altho warned pretty sure it was...it was found by accident on ultrasound when looking at surgery for large cysts, so big shock
..Im taking one thing at a time now and focussing on that.........very confused with the hormone side of things !! i was told only find that out after surgery.....today i will know if any more showed up........try and do one thing at a time, hard i know as our minds go out of control....here if you need to chatx
Morning Lilneenz! Waiting for results is horrible! Nothing much else to say! Friday will come (I know it feels years away) then you'll know what's what, and you'll manage it. Sending hugs. Debbie xx