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Not getting Oncotype DX Test. :-(

11 REPLIES 11
Bottyboo
Member

Re: Not getting Oncotype DX Test. :-(

Sorry Charys autocorrect changed your name and I didn't check xx
Bottyboo
Member

Re: Not getting Oncotype DX Test. :-(

Charts hope your dad soon recovers. I had a shower this morning. Felt like I'd been on a 100 mile hike. Xx
Bottyboo
Member

Re: Not getting Oncotype DX Test. :-(

Oh Sue thank you. That's made me smile xx
Sue H-S
Community Champion

Re: Not getting Oncotype DX Test. :-(

Hi BottyBoo,

 

sending you lots of virtual hugs - so sorry that you are unwell.

 

                                             Get well.jpe

xxx

 

   

haz25a
Member

Re: Not getting Oncotype DX Test. :-(

Charys, hope your Dad recovers soon too. H.xx

haz25a
Member

Re: Not getting Oncotype DX Test. :-(

Hi Ladies,

 

Aaaaargh! Broadband has been playing up last few days, spent half an hour on phone to provider. Now my space bar isn't working properly either so excuse any typos.

 

Thanks for your replies ladies. Sorry to hear of your circumstances Bettyboo, hope you recover quickly.

 

I'm the type of person who likes statistics and percentages. I like to have as much information as possible to be able to make an informed decision. I am very indecisive about having chemo, I literally change my mind umpteen times a day. I hope the figures help me come to the right decision for me. With an ongoing existing health problem it's going to be a hard decision to make regarding the benefits outweighing the risks.

 

Thanks again for your input.

 

Hazel. x

Charys
Community Champion

Re: Not getting Oncotype DX Test. :-(

Yea, that's what she meant, that if you the choice in that middle position wher you are weighing up risk and benefits, then people can form their judgement based on personal choices....and the oncotype often doesn't help matters because it possible could be contrary to the choices of the individual. Sorry to hear you have sepsis Botty, I presume you ar on some strong IV antibiotics.....so they know where it originated from ? It can make you very ill indeed. My Dad is currently recovering from sepsis in hospital, though nothing related to chemo or cancer. 

Bottyboo
Member

Re: Not getting Oncotype DX Test. :-(

Hi H. My oncologist used the predict tool to show me the percentages but then added her own experience to the equation which was very helpful. I'm very sceptical of statistics because it's what had happened in the past, often a few years ago. For me chemo was a no brained as I want to throw everything possible at this. However am currently in hospital with sepsis and will have visit today from oncologist to see about future cycles. I fitted into the 'discussion' group and the oncologist was very much happy to take my decision either way.
I see what Charys's consultant means as whatever the results of an oncotype test in my mind I knew I wanted the chemo ( well not wanted but then I didn't want breast cancer either)
Charys
Community Champion

Re: Not getting Oncotype DX Test. :-(

Hi Hazel,

 

i belive the the oncologists and surgeons use the very same predict NHS test as we have access to ourselves.   

There is another one called 'adjuvant' or something, maybe someone else will know that one, I thought was used in the US mainly?

The difference between us using predict and the specialists is that that of course they are the specialists with all the years of undertanding and training to appreciate and know what is the required treatment when all variables are put together. So, the predict is only seen as a very basic tool when planning treatment, and their knowledge is the primary tool.....that's what I was told anyway. All the tests done are the biopsy results, so they know enough from that to make recommendations. Have you come out in the borderline category? If it's any consolation, I fitted the criteria for Oncotype and was in the borderline category but was recommended not to bother by the oncologist, firstly she said it slowed things up and secondly she found that most people in the borderline were already able to make a choice based on their own psychological leanings and often results of the oncotype threw them into indecision again and made it harder to decide. Not sure how that works? Doesn't make sense to me.....but she wasn't keen on using it for some reason. c x

haz25a
Member

Re: Not getting Oncotype DX Test. :-(

Thanks Sue

 

I'll definitely be having rads, might be able to get Herceptin (being HER positive) without chemo due to my psychiatric issues, but not guaranteed. I've tried using the NHS predict tool myself but it's pretty vague. I presume the oncologist will have access to more detailed tests?

 

Hazel. x

Sue H-S
Community Champion

Re: Not getting Oncotype DX Test. :-(

Hi Haz,

 

I had a lobular invasive ER+8 HER2-. Grade 3, nodes clear and also hoped for the Onco DX test. At a cost of ovr £2,000 I am not surprised that they are only using it, when decisions are challenging.

All of my tests were done pre op - and I am sure you had them all, too. I was given the choice as whether to have the chemo and rads or not.

Based on my BMI, pathology results, age, etc., etc the NHS calculator works out the percentages. Having an 8% better change after 10 years - it was a no brainer for me to do the chemo and rads. My oncologist 'walked' me through the difference of percentage of every treatment over operation only.

Hope this helps.

 

Sue xx

haz25a
Member

Not getting Oncotype DX Test. :-(

Hi all,

 

After getting my pathology results last Wednesday I was originally told I was eligible for the Oncotype DX test. However, my BN made a mistake and when my surgeon was discussing my results with me she thought I was HER negative. Thankfully I asked my BN for a copy of my pathology report and she said she had made a mistake and I was actually HER Positive. My surgeon had already left by this point.

 

I saw them both today to get my wound checked and my Surgeon informed me that as I am HER positive I am not eligible for the Oncotype DX test. I had a sneaking suspicion that this would be the case but was remaining hopeful.

 

Can I ask what other tests People had with their Oncologist, did it give clear percentages of the benefits of chemotherapy.

 

Thanks in advance.

 

H.x