Just checking in to see how you are all doing.
Energy levels are picking up again now, and I seem to be waking up earlier each day, on chemo I didn't really sleep until OH went to work at 6am then I'd sleep through til about 10!! I even managed a baking session yesterday and sending out Easter cupcakes and some for a special birthday.
My thumbnail fell off yesterday 😳, I thought a couple of the fingernails would have gone last week, as I had an infection under two of them and had to have antibiotics, but I've kept them very very short, so may have saved them. (I hope).
My my hair is growing and thickening, however it's very white at the moment so it's not really visible from any distance. My shadow looks like it has more hair than me 😆. No eyelashes or eyebrows yet though.
Chemo brain still keeps kicking in occasionally, like now as I've completely forgotten what I was going to say 😳.
Hope you are all coping with your next step, operations, radiotherapy.
I've had 12 of my 20 sessions of rads and so far ok, skin a little pink and scars slightly sore.
Hugs to all of you 🤗🤗
I had my third of 20 radiotherapy sessions today. So far so good. My head hair is growing back really quickly and I have been out a few times now without wig or scarf.....it's very, very short but really soft. No sign of any eyebrows or eyelashes still and my nails seem to be getting worse by the day. I'm still more tired generally than I was before chemo started but definitely feeling better every day. Doing a little bit of running / walking every day which seems to help with my energy levels. Loving this weather and really looking forward to a few days off catching up with family over Easter.
I finished my rads 2 weeks ago (being from the October group). Just wanted to give you a heads up about something they only tell you at the planning meeting. That is that the SEs of rads on the skin continue after treatment ends and can peak 2-3 weeks afterwards. So you need to plan to take your moisturiser to Corfu and keep up the twice daily regime. Also your skin will be exquisitely sensitive to the sun. During sunny days even here in the UK I had to cover my neck with a scarf where it is red from the rads to the supraclavicular area.
On the plus side, I had only a 1 day treatment delay when the machine broke down and I had only very mild skin reactions 🙂.
Eyelashes and and brows started to grow later than my head hair but they grow so fast!! After only a week or so I could use mascara and after 2 weeks, I hardly need eyebrow pencil - that's such a boost which will come soon so hang on in there......
Sending you you lots of good wishes that you also have only mild side effects from your rads and that you get to enjoy that well deserved break in Corfu!
I'm well ta. Glad you're starting to feel better. I've got my radio planning next Wednesday with a view to starting on 2 May for 20 sessions. I go to Corfu on 3 June so hoping it all goes to plan as it's quite tight time wise! I've just been given my prescription for Tamoxifen too. Hair is growing back on body & head but eyelashes are still not coming through 😩 How are the rest of you doing hair wise?
just checking in to see how you are all doing. Hope you are all recovering well.
Snail have you come out of the chemo fog yet?
Fiona, hope you ar recovering from the op.
I'm on the radiotherapy now, had 8 out of 20 so far. Starting to feel more normal every day, though a couple of my nails have lifted and become infected, so now on antibiotics. Chemo the gift that keeps on giving.
Hugs to all of you xxx
Just noticed your posts about nails, and wanted to give you some reassurance that they will improve eventually. Your eyelashes should also make a reappearance soon.
Your nails are probably at their worst now, because the poison stays in your system for a while after chemotherapy ends, but they should start to improve soon. Mine continued to deteriorate for two or three weeks after it finished, but since then they have got a lot better. They are now growing well, a normal colour and less dry. If you persevere with the clipping and nail oils etc. for a bit longer, you should see a change for the better soon.
Capelmum52- I hope your operation went well and that you get some help with the cakes this weekend. I am not allowed to make cakes at home usually, so making them for fundraising purposes seems an excellent idea.
Seagull1 and Snail888 - the April 2017 radiotherapy thread is now up and running if you want to join those of us already being zapped.
Auntiejulie - hope your first Herceptin injection went OK and that you have a date for your surgery.
Like lots of you my nails are pretty grim but keeping them really short seems to be helping. My hair is growing back pretty much everywhere....but also not my eyelashes.
I start radiotherapy on Wednesday and have 20 booked in. I had the tattoos done last week which are much much smaller than I thought they would be. It's quite hard to distinguish them from my numerous moles.
I've had my chemo port removed which felt like quite a big step on the road to finishing treatment. But I'm now starting to get a little worried about what happens when everything is done.....what does the check up schedule look like? Will they see me every 3 months / every 6 months / every year??? How will I stop myself panicking at every twinge??? I guess it will just take time.
Stay well and enjoy the sunshine!
Hi Fiona, hope the operation goes ok tomorrow will be thinking of you. My nails are horrible, all of them have now gone white and I'm keeping them very short so as not to catch them incase they fall off, some are only holding on at the very base 😢. On a plus my hair is growing I even have the odd ginger one showing through.
Had radiotherapy no. 2 today, much quicker than yesterday. For some bizarre reason though I started crying whilst lying there 😢 and as you can't move the tears just rolled down one cheek (I have to have my head to one side to zap the clavicle).
Popped into the city after and bumped into a friend so we grabbed a quick coffee which was nice. Lovely to feel normal for a second. Bought a new bra, non wired and vest tops for quick changes in radiotherapy.
Hope everyone else is doing ok xxx
Well had a lovely weekend away in Cornwall, beautiful weather even went into a summer top (out of the wind) and I felt the wind in my hair, all of the cm long 😆😆
First session of radiotherapy today went ok, though the machine had "a technical issue" for a couple of minutes, I'm sure it's me - I broke the bone scanner when I went for that pre-op 😳.
Just enjoying a restful afternoon, all the walking over the weekend has worn me out.
How lovely to be able to taste again! Some things still taste a little odd to me...especially sugary things. Must give a good curry a go soon. I bet it was lovely!
I'm doing ok post my last chemo. I went back to work on Monday but am struggling to make it through a whole day....I'm still getting very tired. I think it's the same with everyone isn't it? My fingers are still very sore and my nails are turning brown....I look a bit like an 80 a day smoker.
We we are going away this weekend too to celebrate the end of chemo and I'm hoping to enjoy a few nice walks and some nice meals out.
I was talking to a couple of ladies today who have both been through chemo and radiotherapy and both said that the worst is behind us having finished the chemo and they said that the radiotherapy (aside from the kerfuffle of it being everyday) was a breeze compared to chemo. Fingers crossed. Hope you are all doing well. Xxx
Starting to feel normal again now, 😀. We've booked to go away this weekend before I start the radiotherapy on Monday. Hopefully I will have enough energy to walk about.
Fiona, isn't it lovely to be able to taste things again, how was the curry? Hope you are starting to feel normal again too. My fingers and feet are still a bit numb, you don't realise until you try to pick something up.
Auntyjulie, hope you are starting to feel better now.
Snail and Dragonfly, how are you both doing on your final chemo side effects? Hope you are both resting and coping with them. I found the last one seems to keep on giving.
Seagull hope you are recovering well after the op.
Hugs to all 🤗🤗xx
Glad you are out and recovering now Auntiejulie. Herceptin only is nothing to worry about. If you are having the injection, they normally do it into your thigh. It doesn't hurt much and only takes a few minutes. If you have any queries have a look at the Targeted Therapies section of the Forum.
Just noticed your posts ladies, congratulations on completing your chemotherapy.
I know some of you don't feel like celebrating at the moment. I felt the same way as you, and judging from other posts it is quite common for the end of chemotherapy to feel like a bit of an anti-climax. The fatigue and some of the other SEs (such as grotty nails) can also get worse for a few weeks after, before things start to get better. But they will, and it does help if you make the effort to get out and about even if you don't feel like it.
JoJo45 - well done for getting out with your friends today. Opportunities will be rare once you start your radiotherapy. You did the right thing chasing them, my radiotherapy only started last Monday, just under 8 weeks after surgery, after being told it would be about 4 weeks after. My appointments are all over the place as well, and they only confirm the time of the next one after each treatment! Meaning I can't plan anything else during the week.
well what a difference a day makes, I had arranged to meet the girls from work for lunch today as I thought I would be out of the chemo fog by today, and feeling bad all week I was going to cancel, however OH said "get up and put your face on and you might feel better, it's only down the road so you can always come home again". How right he was, I've had a lovely day, a leisurely light lunch, a little wander around the local shops and then coffee n cake. So nice to get out and feel a bit normal. Gave up on the wig before I got out of the door this morning though as very windy, so opted for a nice hat instead. Might even sleep tonight.
Dragonfly, I have my my appointments for radiotherapy, however they are all different times, I wasn't given the option as the unit is so busy at the moment, some of my appointments are in evenings 😳. Just happy to get them though, and I'm not working at the moment so not such a bother for me. Did you know you can claim for travel to the hospital?
Snail and Dragonfly, Hope your side effects from the final chemo aren't too bad, nearly there now.
Hugs to all. Xxx
I know exactly what you mean JoJo. Just when you think you are over the worst of it and you think you can get on as normal, you realise you need to lie down! It's so frustrating. I had my last chemo last Friday and thought I was over the worst but am still getting waves of tiredness. My nails are really sore too...they seem to be getting worse not better. I have now got all my radiotherapy appointments booked in but wondered what you all thought about the best time to go.....at the moment I have opted for the last appointment of the day (which is 3.45pm) so I can go to work first but I'm now thinking I should get it out if the way in the morning and then go on to work after....??? Hope everyone is ok. Big hugs. Xxx
Hi Ladies, anyone else feeling completely drained? Can't even manage a walk down the drive to get the bins in, let alone a full walk around the block. Even the stairs wear me out!! Also seem to have nausea back again. I guess I was just hoping to bounce back quicker than this. Everyone keeps saying "well done your over the chemo" errrm NO.
Well I had not heard anything from Radiotherapy, my consultant said I should hear in a week to 10 days post last chemo, but as I was up the hospital yesterday I popped into oncology to ask. Result, I was given an appointment at 9:30 today. So now I've been in, had my planning appointment, CT scan and tattoos done. Bit of a shock though as because my cancer was a fast growing grade 3 and had spread to quite a few of the lymph nodes, they are now treating all my lymph nodes in the clavicle and chest wall too. Also need to have boosters. So now have 20 sessions instead of the 15 I was originally expecting. But if that's what I have to do to beat this, then bring it on it's only an extra week after all.
Hope everyone is doing ok.
Snail its nice to get the last one out of the way, hope the side effects aren't to bad. Xx
Seagull wishing you a speedy recovery from your op. Do you have drains in? Xx
Nice to see you back Fiona.
Yes Sue, the tax still keeps on giving, just when I start to feel better I get one of those dreaded side effects back again, aches in the bones, the wonderful diarrhoea 😩.
Fiona I too have the numb fingers and toes, the only plus on that is that it didn't hurt when my nail lifted even further yesterday whilst making the bed, and the skin on my toes falling off didn't hurt either 😳.
I'm off to the 'look good feel better' course this afternoon, I hope they have a magic wand! I no longer look good and I certainly would like to feel better. The eyelashes have all but gone now, the few that are left are short and stick in my eyes making them run even more. And the constant running means that any makeup that looked remotely good has run away too.
Hope the op goes ok today.
Hugs to all 🤗🤗 xxx
The numb fingers and toes are a pain aren't they?? I'm from the October group and am now 2 months post my final T infusion. The peripheral neuropathy is just as bad as it was immediately afterwards and I haven't seen much evidence of it getting better yet.
As far as I know, exercises don't help - it just resolves eventually by itself or it doesn't. My onc. told me that it resolves in 90% of people (not completely reassuring!!). Let's hope neither of us falls into the remaining 10%.
Another quick heads up.....the nail situation gets worse after you finish. The tax just keeps on giving!! Mine are still very discoloured and dry and detached from the nail beds towards the top. I'm hoping they grow out before the lurgy spreads to the bottom and any of them drop off.
Sorry not to be more upbeat on this. However, the good news is that I feel really good despite having rads now. My energy (tiredness finally wore off at day 42) and taste are back (whoopee!!) what a revelation that is, plus constipation and diarrhoea is a distant memory.
Hope you recover quickly from your chemo and good luck for the surgery.
Hi from the September thread!
Jackspratt - great you got the picc line in - it is excellent. I had it from the start too and it makes life a lot easier when you have to deal with soo many SEs. Hope you got plastic sleeves for the shower like I did - I also rolled clingfilm around it to be sure.
Good luck all of you over the next while....I thought I would never be finished and would never feel anything but very sick but please reassure yourself it does end.
Be good to yourselves!
I have been able to work throughout most of the treatment so far - I have had to take a few days off after each chemo cycle but have been able to work from home and go into the office in the second and third week. It has definitely kept me sane and my employer has been incredibly supportive and flexible which really helps. Like you Snail I am starting to make some post cancer goals (too morbid to call it a bucket list but I guess it is a bit like one)! Starting to run again and entering some 10ks is up there and I WILL run the London marathon next year. As cliche as it sounds, spending more time with my family and friends is top of the list. If nothing else, this has certainly made me rethink and reassess priorities. Onwards and upwards!!! Xxx
So pleased to hear that your lump is not sinister Snail. It must gave been so stressful waiting to find out. Nosebleeds are horrid. Mine keeps going too! My nails have started to discolour as well. I have my last chemo tomorrow and like so many of us I am so glad it's nearly over but also scared about not being in active treatment. Radiotherapy starts in 3 weeks and then all done by May as I had the tumours removed before starting chemo. I know it will get easier as time goes on....just having a bit of a wobble! Take care all. Xxx
Good news Snail, do you have to have it drained or will it go eventually?
Seagull my nails are still horrid not sure how the thumb nail is holding on, except for I keep filing it really short!
Just been to Tesco and had one of my nosebleeds down one if the aisles, typical one that wouldn't stop, just had to stand there and go through a packet of tissues, whilst trying to hide the blood stained ones incase anyone walking past freaked out !!!!
Manage to finish shopping, then when I got back in the car burst into tears. Thought I was feeling a bit better today.
Hi ladies, very quiet on here, which I hope means everyone is doing ok and therefore to busy to post.
I've been to a support group for younger women with cancer today at my local cancer charity, which was interesting. It was nice to talk to other women at different stages of treatment.
Just startiing to come out of th side effects now, just my eyes that are still sore and a small amount of pain. Nearly there.
I've still not heard from the radiotherapy team yet, was hoping to have my appointments through by now so that I could start to plan the future. I really need to sort out dates for returning to work, and would like to book a holiday before I go back to work.
I hope you are all feeling ok.
would seem that the chemo fog is lifting slightly 😀, we've been out in the van today a trip round south Devon, well OH does all the driving so I snooze 😴. Lovely walk around Dartmouth, even managed a nice pub lunch, and could actually taste the difference between the salt beef and the potatoes 😳, well at least the texture felt different. Hopefully cardboard food is now a thing of he past 😀.
Hope all are feeling better, we are nearly there.