It feels a bit odd that I will not have to get up and out to the hospital every weekday! I had 23 zaps consisting of 15 ordinary and 8 boosts. My skin is OK apart from a tiny bit under my arm where I was not putting anyy cream - only because I did not realise the beams went up that far!
I have to continue with the cream twice a day for at least two weeks and after that I can stop.
I have an appointment to see the oncologist in mid January and I have to have Herceptin every 3 weeks so for that I need a heart scan and a blood test every 12 weeks. I do not need tomoxifen. I also have a appointment to see the surgeon in July and apparently I have a mammogram when I get there.
How does it feel? And what happens next? Would like to know when we can finally say we're done!
Best wishes xx
So sorry that you're feeling like that. If I were you, I'd go back to the GP as they should be able to help with the depression. Maybe it's still early days coming off the hormone tablets. A few years back, I was having problems with panic attacks and not sleeping. I was given amitriptyline and refered to the Time to Talk team who talked me through cognitive behaviour therapy. These both helped and I got through it, but it took some time.
For me, I have to take one day at a time, and one treatment at a time. if I think about all the treatment I need, it's too much to cope with and then the panic kicks in.
I'm not sure if this helps, but sending a hug x
Hi Suza, you sound like you're having a tough time. Have you thought about seeing your GP and maybe taking antidepressants, they usually are meant to be effective for anxiety and hot flushes as well. I know it isn't the route everyone wants to go down, I went when I just couldn't function properly any more. My GP was wonderful, it was such a relief to talk to someone who thought it was completely understandable to be struggling after everything that was going on. There aren't any prizes for struggling on alone, and getting help doesn't mean you've failed some sort of test.
Anyway, I'm saying this because I can see now that I should have gone a lot earlier, and things wouldn't have got so bad.
We all need to be kind to ourselves, this is a slog we have to get through however we can.
Sending you a hug and hope you feel better soon.
blueash - I had 15 regular plus 3 boosters. 3 days after finishing my skin is ok - just one itchy spot has come off and a tiny patch under my arm where the skin has broken. Neither are big enough for special cream so i have just been advised to keep those little bits clean and dry (not even moisturiser for those bits).
Jas were yours all regular or did you have any boosts? I was wondering how you skin was holding up because everyone else seems to get 15 regular and you and I are the only people I have come across to get more than 15 regular. I am getting the 15 regular/all over plus 8 boosts.
I am darker under the treated arm too. Also I have a small skin break under the arm - I was not putting the cream there because i did not think they were blasting me under the arm! They have given me another cream just for the broken bit of skin, I cannot tell you the name of it because she took it out of a huge box and the tube she gave me has no name on it.
I have had 15 ordinary zaps and had the first of 8 boosts today.
Sar54 - I've just read your post and interestingly I have slightly darkened area in armpit. I wasn't sure if it was where I didn't put cream and that's why it was looking darker but apart from that feeling fine. Hope you are ok too. I think I will go to the moving on clinic in January so hopefully will see you there.
I finished today as well. So happy and relieved to be all done. Went out to lunch with some friends from work to celebrate. Aileen
im OK. Been a bit uncomfortable on and off today with some stabbing pains which I mentioned to them this evening. All normal apparently and just the radiation irritating the nerves. They're keeping an eye on my lower scar now as its red and fuzzy already. Nothing unexpected though so they're happy enough.
16 more to go!! God help me but onwards and upwards I go!! Xx
Cla46 that 3 weeks went quick! Glad it has all been ok for you. The staff are all lovely aren't they? I had a little laugh with them most days.
I'm coming to the end of my 10-14 day peak after rads and I'm pleased to say there's been little change, just a bit darker especially in my armpit, so don't worry ahead, keep putting on the cream x
Best wishes everyone x
big day for you tomorrow!!! Another milestone reached. They say that the effects can build for a couple of weeks after the last one so make sure you take time to rest and look after yourself.
Hope it all goes well for you tomorrow - if they have a bell, give it a good ring!!!
Got my 3rd rads under my belt today. Starting to get in the swing of things now but did have a surprise today laying there after the first bit of zapping expecting the same lady to come back in to move the machine, when I heard "hi I'm Stuart!!". I had thought all along that I would only want ladies to do my rads but he was so pleasant and kind (and decent looking!!) that it really wasn't an issue. My husband had noticed that a 'man' had gone in to me and was worried but it was all ok!! I don't think there are many people left now that haven't seen my boobicles this year so one more doesn't make any difference!
one of my scars is looking a bit red and fuzzy so I think I'll mention that tomorrow just in case. I'd like to think they'd mention it there was something I needed to do but I'll mention it all the same. I'm drinking loads and moisturising with E45 intense a few times a day so hopefully I'm not forgetting to do anything.
Late rads session tomorrow so I get my first lay in of the week yayyyy!
hope all you lovely ladies are all ok xx
I'm being treated in Singleton hospital. Same as everywhere, the parking is a mare!
the staff in the unit are really lovely though and have been very kind. X
So sorry to read about all your troubles beth. Hope your mum improves soon and that you fly through the rest of your treatments with no issues. I'm sure like many of us on here you will be hoping for more luck in 2017. Fingers crossed for you all. xxx
Hi claire, Thank you for your support. Hope you were lined up better today. I am always amazed how different it can feel each day. Some days when they adjust me it is so uncomfortable, some days it is fine and some days i dont need any adjusting at all. Only 2 more for me too.
Good luck to all those just starting. It really does fly by and i have found it has got a lot easier as i have got into the routine and got to know most of the radiotherapists. Can't believe i still keep meeting new staff though - after 3 weeks i thought i had met them all but 2 staff new to me today.
I just had my third one today and so far so good. Hospital and staff extremely efficient and lovely. Really sleepy this afternoon though, not sure if that's the radiotherapy.
Only 17 to go!
im at the same stage as you. I had my second one today. Hope you found it ok today.
We can compare notes as we go along! I'll be having 15 plus 5 boosters at the end.
Day two done. 🙂
Definitely get a bit warmer and an uncomfortable sensation after the rads. Wonder if it's because I suffer from eczema on and off over the years, so my skin is a bit more sensitive. I'm convinced too that around the end of one of my scars is looking a bit flushed. Im overthinking this ladies! Need to gently slap on the cream and ignore everything else.
Mum has been admitted back in to hospital overnight. Looks like she's having issues after the most recent chemo. My sister and I are full of cold so are banned from visiting. Brother in law having big knee op today too. Is this an age thing? Since I've hit my mid 40's it's just been one thing after the other. Life seemed to be so much more gentle and uncomplicated in my 30's.
Think I need to shut myself away till the new year and re surface when this is all sorted!! 😬
My planning session was extremely short and sweet, I'd expected it to take much longer. We were back out within 40 minutes, having been scanned and tattooed. The only creams they suggest are E45 and Diprobase, everything else is banned.
I only got the planning appointment because I said I was going to make a formal complaint, I got so tired of being fobbed off and then they said I didn't need a planning appointment.They'd tell me I was going to start but never put anything in writing, in fact I still haven't had a letter. Part of the problem is I have to keep swivelling between two hospitals, so the communication isn't great. I had the same problem being diagnosed, it took six weeks being referred backward and forward between the hospitals. Every referral was another 10 day wait.
But I'm really glad to get this going at long last, I'm definitely starting on the 30th, although they've only given me the times for the first two sessions. I'm due to finish on 21st December, which is why I didn't want things to drag on any longer.
Daffodil, well done for sticking to your guns. At least now you all be happy with what they're doing, it would be horrible to keep thinking, what if they had got it wrong? I'm glad you have a helpful oncologist, I'm not sure mine would listen.