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November starters

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Re: November starters

Thanks for the welcome Diane and Lucy @BCC! unfortunately Headstrong don't operate in my area but I did find all the info on the BBC website extremely useful and informative, not forgetting the fab first hand advice in the forum.


Diane, I have noted that your hair is shedding on day 16. I will have to wait and see but will let you all know when mine decides to depart. I am only on Day 3 today but think I will definitely go shorter next week. How are you coping emotionally with the hair loss? I am HOPING I have pretty much prepared myself but I think it must still come as a shock? What is this obsession with hair eh?? 😳. We have bigger fish to fry!

Take good care!
Annie x x
Member

Re: November starters

Hi Annie x
Welcome to our little group x Hope you have had a good day today..... I also had a bad head on my first FEC which lasted a few days for me though.
I'm on day 16 on my first FEC and my hair is now coming out thick and fast ! I had mine cut short a few weeks back and then again on Monday to a pixie cut which I really liked !!
I've also kept a diary of any side effects I have throughout my chemo days which is and will be good to refer back to .
Take care
Diane x x
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Re: November starters

Hi Annie, welcome to the BCC forums

I am sure you will find support from your fellow users here, you may also wish to call our helpliners for further support on 0808 800 6000, you can call weekdays 9-5 and Saturdays 10-2 and they can help with queries, concerns and offer a listening ear

Whilst you are going through treatments you may find the following information helpful, there is also further support around hair loss via our Headstrong service which you can read about here:

https://www.breastcancercare.org.uk/treatment

Take care
Lucy BCC
Member

Re: November starters

Hi all!  I am very glad to have found you.  I had my first EC chemo yesterday 11 Nov.  So far so good - just a mild headache which I think may be from all the anti-nausea pills.  My oncologist also put me on Emend as I had daily sickness with my one pregnancy (was still throwing up in the delivery room!).  Was anyone else asked about pregnancies and sickness?  My oncologist said there was a connection between pregnancy vomiting and chemo.  Anyway, I'll take everything that will help me!

 

I have also been told I will lose my hair so got fitted for a couple of wigs, hats and pretty scarfs prior to chemo starting.  I got so stressed about the hair thing, I think I've done over kill and have too many hats and scarfs.  My hair feels like candyfloss today but probably my imagination as I am only on Day 2.  I'm thinking of having it cut very short later this week or early next week but that's still just a "think" thing.  I guess it will be less of a shock if my hair it much shorter, it's just above the shoulders at the moment.

 

So, just checking in with you all and will catch up on all the earlier posts and look forward to getting to know you all.  I find it very comforting knowing you are all there and we are more or less starting off together.

 

Annie x

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Re: November starters

Morning all will keep it brief Internet very dodgy. Rough 24hrs mainly vein problems am on the emergency line list. Temp down and blood pressure ok so have managed to stay off my own ward so far. Still not clear where infection is possibly urine (but i dont have any cystitis feelings) or my finger it is very swollen and red oncologist wants me to be seen by a plastic surgeon note to self don't take off your nail polish when in your risk of infection week. Take care all, will try and stay in touch caz x
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Re: November starters

Morning lovely ladies x x
Day 16 of first FEC and I'm feeling good.......feel like a Michael Buble tune coming on !!
Yes I've had a really good 9 days back to normalise self x
Had my hair cut yet again on Monday shorter still pixie style and I love it !!! Like you Brewster been wearing my hair in the same style for years curly short bob and this style has taken years off me will certainly be keeping it short now .....not looking forward to being grey though as I was told yesterday you have to wait for 6months to colour your hair after chemo !!!!!
Had my wig fitting yesterday ok but looked like I had too much hair so had more cut from it and looks far better ....have it just incase as I'm more a hat and scarf girl !!
Hopalong - Hope your feeling better thinking of u x
Daffodill - Fab news regarding your scan x
Bellabelle - How's your first FEC been ? What day r u on now ? X
Testrix - Have you met your new oncologist yet ? X
Tweedypye & Remel welcome to our November Chemo thread when's your first FEC ? X
Brewster- When's your second FEC ? Mines Tuesday 18th x

Here's to a good Wednesday to all hope SE are very little to everyone x x
Big hugs Diane x x
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Re: November starters

Wahay good news Daffodilli Smiley Happy

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Re: November starters

CT scan clear I can sleep now and concentrate on fighting this thing.
How are you hop along???
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Re: November starters

Thanks Brewster
How are things with you have you got your treatment plan sorted yet?
Member

Re: November starters

Hi Daffodilli, sending lots of positive thoughts and strength good luck with the hair , I had mine all chopped off the other week . Went from really long, which I had for years and years. To short pixie style and I loved it !! Won't be going long again. Every silver cloud and all that ..... Xxx
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Re: November starters

Oh hopalong
I sympathise with you and hope you are ok. I'm sure that your colleagues will give you gold star treatment. Big hugs xxxxx
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Re: November starters

Oh no Hopalong x big hugs to you x x keep in touch with us when u can x x
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Re: November starters

Can't believe that after what you said yesterday hopalong!!!! So were you admitted to your own ward? I hope they are looking after you well!

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Re: November starters

Well ladies, things have now changed for me. Had to have a 999 ambulance this morning temp high and have been admitted with a neutropenic sepsis. Feel ok apart from temp. Don't know how long I'll be in hospital for will keep you posted
Member

Re: November starters

Oh Daffodilli - how long do you have to wait for the results?

Some days I want to wear a badge that says "Don't look at me doe-eyed and ask "How are you feeling?""

 

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Re: November starters

We'll staging CT scan was strange felt like I'd wet myself when the intravenous contrast was injected. I'm so nervous about what the results will be I keep bursting into tears today. Having hair cut short tomorrow this is a very emotional journey so far I've been ok but this week I cant seem to keep things together I dread bumping into people as I don't know how I'm going to react to their questions just want to hide under the duvet
Member

Re: November starters

Morning all,

so pleased to here from you daffodill I was starting to get worried. I am also a nurse and have decided that I am not going back at all untill everything is finished. The great irony is I care for oncology patients and patients who have had surgery to remove cancers including mastectomies so might even decide never to return to the ward. I will also have to be admitted onto my own ward if I experience a neutropenic sepsis !!!!

It is also nice and sunny here in Wakefield, and have just washed the cenotaph service with a tear in my eye, Feeling a little tired this morning as I went out to a surprise party last night, and got in at 2.30am it had been planned weeks before I knew chemo was on the cards but I really enjoyed myself, got lots of hugs and kisses which I didnt like to turn down but kept thinking i'm in the middle of my neutropenic week hope you havent got any bugs. I washed my hair 3 days early and even braved the hairdryer, thought that would do for it but I seem to have survived so far maybe the cold cap is having an effect.

Dianexx i am pleased (if you get what I mean) we are at a similar stage, I agree the first week was a complete wash out for me, I'm only 41 but felt about 70 last week and mum stayed for 4 days last week "to look after me" it made her feel better. but as soon as last monday arrived I havent need a nap and have slept really well on a night. The only issue I have had this week is a sore throat/mouth and ulcers. I thought I had done really well eating but weighed myself yesterday and according to my scales have lost 5kg!!!! Am at oncology clinic this week so will get a truer picture their am going to wear the same clothes and shoes.

Hope everyone has a good sunday xx

Member

Re: November starters

Good morning lovely ladies x x

Sorry I've not been on here for a few days I've had a strange week to be honest !
Today I'm on day 13 first FEC ....I've had four great back to normal self days !!!!
I feel the the first week after chemo is a tough week with so many different feelings and symptoms affecting your body..the worse symptom I've had is really bad head aches like a hangover from hell x100 with a Migraine thrown in !!
I am now feeling more prepared for the my next one on the 18th sure I'm one day behind you Hopalong and also like yourself I've been off since 4th September the day I got my biopsy results , the work I do is on a customer service dept in a really busy environment not the best place to be at this moment in time in my life x
I've only been with the company for two years so I get very little help regarding pay I get two full weeks and the rest SSP which isn't great .....good job I have some savings ! I'm going to look into it tomorrow as I feeling stronger to ask for advice now as surely there's got to be more help for us cancer patients out there.
Is anyone else in the same situation??? X
My hair is still on head although looking a bit stressed I had it cut quite short a few weeks back as I had a curly short bob going to have it cut even shorter tomorrow ..I have my appointment to see wig lady on Tuesday to try some on .
Daffodil so glad your first FEC went ok .....tick that big box I down 7 to go !!!! X
Big hugs to all x x
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Re: November starters

HI Tweedypie & Remel - sad but glad we are increasing in numbers!!!! I don't know about everyone else, but after 2 days of rain here, the sun is peeking through this morning.. It does make a difference...

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Re: November starters

Glad to hear from you Daffodilli - Smiley Happy  thanks for updating us. Life never seems to throw just one thing at us at a time does it!!

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Re: November starters

Hello remel
Glad your chemo went well and that you are able to continue working. I agree it is a great distraction I have taken 2 months off whilst I finish all the investigations and ensure that my son is ok, he is 12 and his father left us this year, so he has had more than most to deal with. I'm hoping though that I may be able to go back to work after Christmas even if it is on reduced hours, I'm a nurse but could do some admin stuff. Suburban Turban - a great site
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Re: November starters

Well I finally feel human a bit of a rocky week, 1 down 7 to go. Thank goodness my parents were here to help
Wig fitted scarves hats etc in preparation for hair falling out. Very achy from ??? Gif injections. I find if I pace myself do something-rest-rest-do something. My 12yr old has been amazing I'm so proud of him. MRI was positive no lymph involvement but CT to go tomorrow.
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Re: November starters

welcome Tweedypye, We are on a different regieme but your 1st and my 2nd will be on the same day. I am on my own and can't imagine how you must be feeling with such a small child to add in to the equation, take care and keep your eye on this thread and hopefully a few more will comment/join so we can all support each other through it good and bad. x

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Re: November starters

Hi ladies
Hope you don't mind me posting on here, I start my chemo on mon 17th. I am having TAC chemo. Really worried about starting this & how iam gonna feel!? Plus I hav a 4month old son! Luckly I have friends and family to help but it's not the same! 😢 good luck to all the ladies havin chemo this week. Xxx
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Re: November starters

welcome remel, I had my first chemo on the 27/10/14 but felt I would be better on here than Octobers group, Glad you were able to go to work, I know on my first week I was truly exhausted and wasn't sleeping well overnight, but that has all passed now. I have a busy week next week with 3 seperate hospital visits, Going for a prosthetic fitting, PICC line insertion and Oncologist review before 2nd cycle starts, all being well on the 17th November.

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Re: November starters

Hope you don't mind if I join you - I had my first Chemo (FEC-T) Thurs 30/10.  Sick Fri, but just nausea Sat and Sun. Took all my anti-sickness drugs as instructed.  However have felt fine since Monday and just worked all week (I'm a teacher in a secondary school).  Although not everybody would want to do this (and I might not be able to keep it up!) for me it is important to be as normal as possible.  So if anyone is thinking about working at the same time try it, it might keep your mind off all the other stuff!  No hair loss yet, but have got hats from Suburban Turban - the Genevieve and others! Really recommend them, you can get them online or visit their workshop in Surrey, which I did and they were lovely and really helpful.  Good luck to you all who are just starting. x

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Re: November starters

Evening all - I'm still waiting for my start date, but at least meanwhile I've been able to do a few massages. I really missed not being able to massage after my 2 ops, but now feel strong/ well enough to do some,and so have booked a few in for next week - having told them all that I don't want to see them if they have coughs/ colds etc!

 

Thanks for the update Bellabelle.. I hope the day has gone on OK.

 

I think it's Genevieve for me - but some of the winter hats appeal too... decisions decisions - might have to ask for early Christmas presents Smiley Happy

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Re: November starters

 

Well that's the first one out the way. Didn't sleep much and was sick once on the first night but so far it's not been that bad. I've got a new found taste for ginger ale which I hated before! I sucked on Rennies though the night which seemed to help too.

Testrix I'm sure when you meet your new oncologist it will make all the difference. I have total faith in mine,he explains everything twice if needs be and always asks how I feel its definitely helped me. Have you decided on Fleur or Genevieve yet? Fab website by the way.

Hopalong glad you are still doing well. It so strange isn't it when you first wake up and wonder what the day will bring? Today mine is feeling tired so trashy movies on the settee for me.

Paula I hope you are recovering well from your op and Daffodilli you are OK.

Hoping everyone has a good day.

Bellabelle

 

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Re: November starters

Happy Friday everyone, Hope everyone who had chemo earlier in the week is starting to feel better. Day 12 for me now so I'm 1/2 way through my first cycle Woman Very Happy Hair still here but have begun shedding slowly. If anyone has had their first session today hope it's gone well, and don't be afraid to join us on here. Take care xx

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Re: November starters

Hi Bellabelle, hope all goes well for you today, Once you get the first out of the way it feels less intimidating. I am now day 10 and starting to feel back to my normal self again, although I still wake up in the morning and think whats going to happen today. The hair is still here but my scalp is starting to get a bit tingly, so watch this space. I think I may have lost a considerable amount of nose hair though as now have a constant drip !!

 

Daffodil hope you are ok as we havent heard from you in a while and I know your first session was on Monday.

 

Testrix I am so pleased someone has listened to you and you are on the way to getting a new oncologist, to have trust and faith in your medics is half the battle. I am currently not working and work in an environment that is not suitable for someone on chemo and must admit the novelty of staying at home is now wearing off. (I went of sick at the begining of September the day I got my biopsy results)

 

Hope we all have a good day xx

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Re: November starters

Thinking of you Bellabelle.  I'm feeling much more positive today - though the waiting to get it all started is something I'd like to go quicker rather than slower..   

 

Had a really good chat with lovely BCN yesterday - I asked questions & discussed my situation & at the end, when she realised how upset I'd been by various comments made by the oncologist last week, (not just the hair, but about my hope to do some work during chemo, him telling me not to bother writing stuff down, insisting that both breasts had been scanned when I knew only my right one had... oh the list goes on & on) she offered to transfer me to someone else.. YES!  The thought of having to see the other guy was a BIG negative, so it feels like a big weight off my mind..

 

Also she gave me lots of info about wigs & stuff & I LOVE this website that she gave me info on - http://www.suburbanturban.co.uk/women-hair-loss/shop/hats/

 

I'm trying to decide between Fleur and Genevieve....

 

I'm also going to make a big batch of veg soup this weekend and freeze meal size portions ready for if I don't feel like cooking once chemo starts..

 

And I'm progressing a claim for ESA - so I will have a bit of money coming in to help with rent etc

 

Sorry to go on..

Hope all went OK Daffodilli?

Hug

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Re: November starters

Well here I go ladies I'm about to join you!!  Given the OK by my oncologist yesterday to have my first fec today. I've decided not to cold cap,(don't think I could stand the brain freeze.) I must admit though, the thought of loosing my hair is quite a big thing so wig fitting here I come.

Hope everyone one has a good day.

 

Daffodilli I hope you get the news you wish for tomorrow. I'll be thinking of you xx

 

 

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Re: November starters

  Afternoon Ladies, I hope anyone who had chemo today found it ok, and the immediate effects are manageable. I am now day 8, and after a full nights sleep last night (the first for a week) I feel so much better and have some energy back, have been out of the house since 11am and just returned home now and don't even feel like I need a nanna nap. My worst day was yesterday starting at 3am when I vomited for 2 hours, and continued to feel sick all day. This was a new thing for me as it was the first time i had been sick at all. My oncologist had given me a special anti sickness from the start as I had told him I was prone to nausea which you stop taking on day 3.

  I am also sorry about the oncologist who was rude about the hair aspect of treatment. I am on EC and was also told I would loose my hair, but again my oncologist was very supportive and he prescribed the "cold cap" for me, he said I should also look into wigs etc as it is not a guarantee. So far so good, I washed my hair for first time today and haven't shed much (found the fact I couldn't wash it for a week awful, it was a complete grease ball and found I needed a scarf/hat on to cover it.) 

  Hope everyone has a good week and I will keep checking back in on this thread, and passing on any helpful hints i find as the days progress. x

 

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Re: November starters

Hi guys. I had a full mx on Thursday and will be going bk to get my treatment plan on 13th nov. I know chemo is on the cards so thought I could maybe join your group if that is ok.
paula x
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Re: November starters

Good luck for today Daffodilli - hope all goes OK

 

Diane - Tues & Bellabelle - Weds

 

Wish I could just get started now - but evidently I need to go & have a flu jab in the next few days

 

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Re: November starters

Testrix and Diane1962 hello and sorry that you had to join us.

 

I've not looked at any nail stuff or really prepared for my Chemo at all really.I'm just feeling that I can't be bothered with all this now and I want my life back (so much for being positive) and talk about burying your head the sand hey!!! 

Testrix- I'm sorry your oncologist seems so unsympathetic when you last saw him. I think what you've done with your hair seems like the right thing to do.

 

Daffodilli - take care and  I'll be thinking of you today

 

Sending big hugs to all you ladies who are having treatment today and sorry for whining

Bellabelle

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Re: November starters

Hi Testrix
I'm sorry you are joining us. I was just looking at nail stuff today but haven't got anything. Poor you your oncologist dosnt seem to be very understanding. My hair is shoulder length and I have decided to get it all cut off when my hair starts to come out and go for the wig, scarves etc then. I have a wig fitting on Wednesday. It seems so unreal still but after tomorrow it will be 1 down 7 to go!!
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Re: November starters

Hi all

 

I am due to start FEC-T in 2 weeks' time, so I thought I'd join this thread so I know what to expect...  Has anyone bought any of the nail treatments I've seen recommended on some other threads.. I've looked at the OnicoLife one but wonder if you have had anything different recommended to you...   have any of you had your hair cut very short or shaved before you start?  I saw my oncologist last week, and he said that with FEC I would definitely lose my hair. I said that I'd had a much shorter haircut a few days previously to make it easier and his response was 'you might as well have just had it all shaved off as you will lose it anyway'..  He made a few other less than nice comments too, but I wondered if most people wait and see...  Thanks - & I'll keep in touch Smiley Happy

 

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Re: November starters

Hi Diane
Sorry you are on the same journey. Just think that this is one chemo down and a step nearer getting through this. Glad you are feeling better and thanks for the tip for Monday ive cancelled everything for Tuesday. Take care
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Re: November starters

Hi everyone x
I had my first FEC on Tuesday so if it's ok I will be starting on this thread as well as the October thread as they are a few weeks ahead of me x
Feeling ok today yesterday was a total wile out it was like a hangover from hell x 3 !!!! Had a good sleep last night so that really helped x drink loads of water before and after your chemo is a great tip x
Have a good day lovelys x
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Re: November starters

Hello Hopalong

Nice to have someone else with us. Hope everything goes well with your line.

Take care

Bellabelle x

 

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Re: November starters

It's so awful waiting for results.  I think you trying to be positive is definitely the right way to be even though its so hard sometimes. I've read on here lots of women saying don't be to hard on yourself so that's how I'm trying to approach things when I'm feeling down.

Sending positive thoughts your way.

Bellabelle

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Re: November starters

Thank you for the positive thoughts I just can't imagine the end at the moment every appointment brings more uncertainty about the future
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Re: November starters

Hi bellabelle and hopalong
Thank you for joining me. I'm having FEC-t . I agree thinking is all I seem to do as well. I'm using my friends to help me through. I may feel a bit better once I have had my ,has it spread, news on Thursday. Trying to keep positive for my son who is 12. It's tough but no choices here got to keep moving forward. Good luck with your line insertion hopalong I can see that good veins may be an advantage .
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Re: November starters

I had my first chemo on 27/10/14. I hope you dont mind my company as feel I may be better suited here than the October thread but please dont think I am an expert just because I have 1 session under my belt. Am due 6 EC, I cold capped on Monday and am having a line inserted before my next session due to my rubbish veins. Will keep an eye on here and the October thread for any hints and tips I can pick up. Take care all xx

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Re: November starters

Hello Daffodilli

I'm should be starting fec-t all being well on Wednesday. Yes much to think about and sometimes that's all I feel like I do! I've looked at the other threads and the ladies all seem to be of such great support to each other. I hope that we can help each other along the way and do the same.

Wishing you luck for Monday.

Bellabelle

 

 

 

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Re: November starters

I'm another November Newbie 2013 dropping in to wish you all good luck. Keep an open mind and don't stress about posts you've read regarding side effects, everyone is different. If you suffer with sickness ask your oncologist for Emend, it truly was a life safer for me. Chemo treatment goes quicker than you realise as you're living for the next chemo session. Remember to drink loads of water on your chemo day as it definitely helps. We setup a private Facebook page which was brilliant as we could say what we wanted to say without offending anyone but remember it's also important to continue posting here as this will help others looking for answers. Take care all, stay strong and before you know it you'll be 'out the other side'.

Love Tracy XXX
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Re: November starters

Hi Daffodilli

 

I'm a February Valentine 2013, one of my better decisions was to join the group. We gave each other tremendous support, we could have a rant, express our fears and also had lots of laughs. We're still in touch, several often meet up and we are becoming closer all the time, still supporting one another. I'm sure there will soon be others to join you and I hope your group will become as close and supportive as we were.

 

Sending big hugs

 

poemsgalore xxx

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Re: November starters

Hi Daffodil. I am one of the November Newbies who started chemo last November. I just wanted to wish you luck and to say that it may seem like a long slog at the moment but you will get through it. Looking back for me in many ways time has really flown and I am starting to get some normality back in my life. Sending you lots of warm thoughts and best wishes. Tazzles x

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November starters

I start chemo on Monday. Anyone else joining me on this journey. MRI on Saturday, CT the following Sunday
Much to think about