Hi all! I am very glad to have found you. I had my first EC chemo yesterday 11 Nov. So far so good - just a mild headache which I think may be from all the anti-nausea pills. My oncologist also put me on Emend as I had daily sickness with my one pregnancy (was still throwing up in the delivery room!). Was anyone else asked about pregnancies and sickness? My oncologist said there was a connection between pregnancy vomiting and chemo. Anyway, I'll take everything that will help me!
I have also been told I will lose my hair so got fitted for a couple of wigs, hats and pretty scarfs prior to chemo starting. I got so stressed about the hair thing, I think I've done over kill and have too many hats and scarfs. My hair feels like candyfloss today but probably my imagination as I am only on Day 2. I'm thinking of having it cut very short later this week or early next week but that's still just a "think" thing. I guess it will be less of a shock if my hair it much shorter, it's just above the shoulders at the moment.
So, just checking in with you all and will catch up on all the earlier posts and look forward to getting to know you all. I find it very comforting knowing you are all there and we are more or less starting off together.
Can't believe that after what you said yesterday hopalong!!!! So were you admitted to your own ward? I hope they are looking after you well!
Oh Daffodilli - how long do you have to wait for the results?
Some days I want to wear a badge that says "Don't look at me doe-eyed and ask "How are you feeling?""
so pleased to here from you daffodill I was starting to get worried. I am also a nurse and have decided that I am not going back at all untill everything is finished. The great irony is I care for oncology patients and patients who have had surgery to remove cancers including mastectomies so might even decide never to return to the ward. I will also have to be admitted onto my own ward if I experience a neutropenic sepsis !!!!
It is also nice and sunny here in Wakefield, and have just washed the cenotaph service with a tear in my eye, Feeling a little tired this morning as I went out to a surprise party last night, and got in at 2.30am it had been planned weeks before I knew chemo was on the cards but I really enjoyed myself, got lots of hugs and kisses which I didnt like to turn down but kept thinking i'm in the middle of my neutropenic week hope you havent got any bugs. I washed my hair 3 days early and even braved the hairdryer, thought that would do for it but I seem to have survived so far maybe the cold cap is having an effect.
Dianexx i am pleased (if you get what I mean) we are at a similar stage, I agree the first week was a complete wash out for me, I'm only 41 but felt about 70 last week and mum stayed for 4 days last week "to look after me" it made her feel better. but as soon as last monday arrived I havent need a nap and have slept really well on a night. The only issue I have had this week is a sore throat/mouth and ulcers. I thought I had done really well eating but weighed myself yesterday and according to my scales have lost 5kg!!!! Am at oncology clinic this week so will get a truer picture their am going to wear the same clothes and shoes.
Hope everyone has a good sunday xx
HI Tweedypie & Remel - sad but glad we are increasing in numbers!!!! I don't know about everyone else, but after 2 days of rain here, the sun is peeking through this morning.. It does make a difference...
Glad to hear from you Daffodilli - thanks for updating us. Life never seems to throw just one thing at us at a time does it!!
welcome Tweedypye, We are on a different regieme but your 1st and my 2nd will be on the same day. I am on my own and can't imagine how you must be feeling with such a small child to add in to the equation, take care and keep your eye on this thread and hopefully a few more will comment/join so we can all support each other through it good and bad. x
welcome remel, I had my first chemo on the 27/10/14 but felt I would be better on here than Octobers group, Glad you were able to go to work, I know on my first week I was truly exhausted and wasn't sleeping well overnight, but that has all passed now. I have a busy week next week with 3 seperate hospital visits, Going for a prosthetic fitting, PICC line insertion and Oncologist review before 2nd cycle starts, all being well on the 17th November.
Hope you don't mind if I join you - I had my first Chemo (FEC-T) Thurs 30/10. Sick Fri, but just nausea Sat and Sun. Took all my anti-sickness drugs as instructed. However have felt fine since Monday and just worked all week (I'm a teacher in a secondary school). Although not everybody would want to do this (and I might not be able to keep it up!) for me it is important to be as normal as possible. So if anyone is thinking about working at the same time try it, it might keep your mind off all the other stuff! No hair loss yet, but have got hats from Suburban Turban - the Genevieve and others! Really recommend them, you can get them online or visit their workshop in Surrey, which I did and they were lovely and really helpful. Good luck to you all who are just starting. x
Evening all - I'm still waiting for my start date, but at least meanwhile I've been able to do a few massages. I really missed not being able to massage after my 2 ops, but now feel strong/ well enough to do some,and so have booked a few in for next week - having told them all that I don't want to see them if they have coughs/ colds etc!
Thanks for the update Bellabelle.. I hope the day has gone on OK.
I think it's Genevieve for me - but some of the winter hats appeal too... decisions decisions - might have to ask for early Christmas presents
Well that's the first one out the way. Didn't sleep much and was sick once on the first night but so far it's not been that bad. I've got a new found taste for ginger ale which I hated before! I sucked on Rennies though the night which seemed to help too.
Testrix I'm sure when you meet your new oncologist it will make all the difference. I have total faith in mine,he explains everything twice if needs be and always asks how I feel its definitely helped me. Have you decided on Fleur or Genevieve yet? Fab website by the way.
Hopalong glad you are still doing well. It so strange isn't it when you first wake up and wonder what the day will bring? Today mine is feeling tired so trashy movies on the settee for me.
Paula I hope you are recovering well from your op and Daffodilli you are OK.
Hoping everyone has a good day.
Happy Friday everyone, Hope everyone who had chemo earlier in the week is starting to feel better. Day 12 for me now so I'm 1/2 way through my first cycle Hair still here but have begun shedding slowly. If anyone has had their first session today hope it's gone well, and don't be afraid to join us on here. Take care xx
Hi Bellabelle, hope all goes well for you today, Once you get the first out of the way it feels less intimidating. I am now day 10 and starting to feel back to my normal self again, although I still wake up in the morning and think whats going to happen today. The hair is still here but my scalp is starting to get a bit tingly, so watch this space. I think I may have lost a considerable amount of nose hair though as now have a constant drip !!
Daffodil hope you are ok as we havent heard from you in a while and I know your first session was on Monday.
Testrix I am so pleased someone has listened to you and you are on the way to getting a new oncologist, to have trust and faith in your medics is half the battle. I am currently not working and work in an environment that is not suitable for someone on chemo and must admit the novelty of staying at home is now wearing off. (I went of sick at the begining of September the day I got my biopsy results)
Hope we all have a good day xx
Thinking of you Bellabelle. I'm feeling much more positive today - though the waiting to get it all started is something I'd like to go quicker rather than slower..
Had a really good chat with lovely BCN yesterday - I asked questions & discussed my situation & at the end, when she realised how upset I'd been by various comments made by the oncologist last week, (not just the hair, but about my hope to do some work during chemo, him telling me not to bother writing stuff down, insisting that both breasts had been scanned when I knew only my right one had... oh the list goes on & on) she offered to transfer me to someone else.. YES! The thought of having to see the other guy was a BIG negative, so it feels like a big weight off my mind..
Also she gave me lots of info about wigs & stuff & I LOVE this website that she gave me info on - http://www.suburbanturban.co.uk/women-hair-loss/shop/hats/
I'm trying to decide between Fleur and Genevieve....
I'm also going to make a big batch of veg soup this weekend and freeze meal size portions ready for if I don't feel like cooking once chemo starts..
And I'm progressing a claim for ESA - so I will have a bit of money coming in to help with rent etc
Sorry to go on..
Hope all went OK Daffodilli?
Well here I go ladies I'm about to join you!! Given the OK by my oncologist yesterday to have my first fec today. I've decided not to cold cap,(don't think I could stand the brain freeze.) I must admit though, the thought of loosing my hair is quite a big thing so wig fitting here I come.
Hope everyone one has a good day.
Daffodilli I hope you get the news you wish for tomorrow. I'll be thinking of you xx
Afternoon Ladies, I hope anyone who had chemo today found it ok, and the immediate effects are manageable. I am now day 8, and after a full nights sleep last night (the first for a week) I feel so much better and have some energy back, have been out of the house since 11am and just returned home now and don't even feel like I need a nanna nap. My worst day was yesterday starting at 3am when I vomited for 2 hours, and continued to feel sick all day. This was a new thing for me as it was the first time i had been sick at all. My oncologist had given me a special anti sickness from the start as I had told him I was prone to nausea which you stop taking on day 3.
I am also sorry about the oncologist who was rude about the hair aspect of treatment. I am on EC and was also told I would loose my hair, but again my oncologist was very supportive and he prescribed the "cold cap" for me, he said I should also look into wigs etc as it is not a guarantee. So far so good, I washed my hair for first time today and haven't shed much (found the fact I couldn't wash it for a week awful, it was a complete grease ball and found I needed a scarf/hat on to cover it.)
Hope everyone has a good week and I will keep checking back in on this thread, and passing on any helpful hints i find as the days progress. x
Good luck for today Daffodilli - hope all goes OK
Diane - Tues & Bellabelle - Weds
Wish I could just get started now - but evidently I need to go & have a flu jab in the next few days
Testrix and Diane1962 hello and sorry that you had to join us.
I've not looked at any nail stuff or really prepared for my Chemo at all really.I'm just feeling that I can't be bothered with all this now and I want my life back (so much for being positive) and talk about burying your head the sand hey!!!
Testrix- I'm sorry your oncologist seems so unsympathetic when you last saw him. I think what you've done with your hair seems like the right thing to do.
Daffodilli - take care and I'll be thinking of you today
Sending big hugs to all you ladies who are having treatment today and sorry for whining
I am due to start FEC-T in 2 weeks' time, so I thought I'd join this thread so I know what to expect... Has anyone bought any of the nail treatments I've seen recommended on some other threads.. I've looked at the OnicoLife one but wonder if you have had anything different recommended to you... have any of you had your hair cut very short or shaved before you start? I saw my oncologist last week, and he said that with FEC I would definitely lose my hair. I said that I'd had a much shorter haircut a few days previously to make it easier and his response was 'you might as well have just had it all shaved off as you will lose it anyway'.. He made a few other less than nice comments too, but I wondered if most people wait and see... Thanks - & I'll keep in touch
It's so awful waiting for results. I think you trying to be positive is definitely the right way to be even though its so hard sometimes. I've read on here lots of women saying don't be to hard on yourself so that's how I'm trying to approach things when I'm feeling down.
Sending positive thoughts your way.
I had my first chemo on 27/10/14. I hope you dont mind my company as feel I may be better suited here than the October thread but please dont think I am an expert just because I have 1 session under my belt. Am due 6 EC, I cold capped on Monday and am having a line inserted before my next session due to my rubbish veins. Will keep an eye on here and the October thread for any hints and tips I can pick up. Take care all xx
I'm should be starting fec-t all being well on Wednesday. Yes much to think about and sometimes that's all I feel like I do! I've looked at the other threads and the ladies all seem to be of such great support to each other. I hope that we can help each other along the way and do the same.
Wishing you luck for Monday.
I'm a February Valentine 2013, one of my better decisions was to join the group. We gave each other tremendous support, we could have a rant, express our fears and also had lots of laughs. We're still in touch, several often meet up and we are becoming closer all the time, still supporting one another. I'm sure there will soon be others to join you and I hope your group will become as close and supportive as we were.
Sending big hugs
Hi Daffodil. I am one of the November Newbies who started chemo last November. I just wanted to wish you luck and to say that it may seem like a long slog at the moment but you will get through it. Looking back for me in many ways time has really flown and I am starting to get some normality back in my life. Sending you lots of warm thoughts and best wishes. Tazzles x