Happy Mad Friday everyone !!!
My mad friday isn't going to be quite so mad. I am paying for my exertions earlier in the week, and my everythings fine comments.
I woke after almost 12hrs sleep, feeling ok, day 5 post chemo and not nauseous which for me is a first, that didn't last long. A couple of hours later I started to feel sick although granted not as bad as on previous cycles and the drugs have taken the edge off it. What I can't seem to shake is the overwhelming exhaustion I have encountered today. Managed to shower but didn't get further than putting on a fresh pair of pajama's (this simple task took almost an hour itself) I have spent the remainder of the afternoon laid on the sofa eyes nodding. The chemo mouth is starting too toungue furry and sore and no amount of fluid drinking/ice cube sucking is relieving the dryness.
Today if asked I would be saying things are far from fine. It seems the whole world, well alot of my friends will be out and about tonight and I will be sat at home deciding on fizzy water with lime or a glass of full fat pop. I did know that this week would be hard and that I wouldn't pull round untill just before christmas but I underestimated how I would feel. All topped off by a night infront of the TV watching exerts of sick people pulling on the heart strings for the people who have been out on mad friday to phone in and give money.
I may just retreat back to bed and give up on today and hope tomorrow I have my positive head back on.
Waveylocks, welcome to our little group. We're a mixture of cold cappers, picc liners, wig/hat/scarf wearers with various drug combhinations and side effects so between us you should find some similarities to yourself!
Personally I say keep going with cold cap! My hair thined after FEC 1 and I thought it would go after FEC 2 but nothing has come out this time and I am 19 days on now! I cut into a long bob so there's enough for a comb over to hide the wide parting, glad I didn't go for a pixie cut. I also have a wig for special occasions, but bought that privately, it's OK with the amount of hair I have, but I hear the suggestion is a cut down pop sock over your scalp to remove itchiness - just be careful not to look like a bank robber!
I haven't had mouth ulcers so can't help you with that. I also lost half a stone after the first dose as I couldn't eat for first 5 days, but they adjusted my chemo drugs and anti sickness and last time I felt much better - just very tired.
I was meant to be having FEC 3 on Friday but it's been delayed due to infection, but hope your's goes as well as can be expected and that the side effects are easier this time. xxx
Hope you are ok Hopalong. Thinking of you today. Hope the smoothies work. I can't really touch fruit and veg, or juice for days after, just white bread, jacket potatoes and porridge. My third chemo now scheduled for Thursday, followed by injections to boost the white cells. (Thats if the white cells are back up by Wed of course) Anyway take it easy everybody. x
Afternoon all had a lovely day catching up with friends just having a little rest before I clean upstairs. Ive done the kitchen and lounge. I'm hoping for an early night tonight as am quite tired I blame myself for staying up late watching an officer and a gentleman last night. Does everyone else like to have a clean up before each cycle starts?
Riversidedawn glad you are home and feeling ok to post.
Daffodil a PICC line is the way to go. I bought a shower sleeve from boots for £4.99 to keep my line dry what do others do?
Todays my last day to calorie load and boost my fibre intake before the next week og only eating breadsticks and rice cakes. My change in meds might help though. I have bought myself a cheap version of the nutribullet so have filled the freezer and fridge with fruit so I might beable to enjoy some homemade smoothies.
Oh well best get on will let you know how I am doing take care all xC
Booked for a PICC line tomorrow. My arm is still really sore so there is no way Im having chemo through those veins again as Im worried for them longterm. Just got to sort out someone to do the dressings for me weekly
Surrounded by kids with colds, coughs etc at the moment - its only a matter of time. Otherwise feeing good chemo 3 on wednesday.
MRI showed that tumours have shrunk by 7mm after 2 chemos which dosnt sound like much but BCN thought that was good. My shocked brain is now generating lots of questions I think because I was only diagnosed in October then went straight to chemo I havent been able to process the detail. So I have a list for my oncologist who is lovely on Tuesday.
Im really interested in the diet stuff and anything I can do to help myself. My oncologist seemed to be saying last time not to take anything whilst going through treatment however after treatment then she was open to anything.Really interested in the vit C stuff. Her concern was the interaction with the drugs for treatment.
Riversidedawn hope you are feeling better not so sore, one step forward now!!
Picklepants I will be thinking of you when Im having my chemo on wed!
Hopalong hope yours goes well tomorrow.
To all of you who have just had Chemo hope the SEs are resolving.
veins seem to be coming to the fore - or not!! Took my GP nurse a couple of bruising attempts to find a vein that would give up some blood on Weds, then chemo nurse had the same problems when she wanted to get blood for a re-test yesterday morning, then when it came to actual chemo - very painful 'fail' on the back of my hand and so used one on the outside of my wrist... so short staffed yesterday - I'm sure the nurse pushing the F & E in much quicker than the nurse last time didn't help as my vein felt so cold & tight - I think when I finally get to see my onc we may have to have the PICC line conversation....
Oh well - 2 down, 4 to go 🙂
Hugs to all
Daffodil, as you might remember I had awful problems with my veins during 1st chemo and the giving of the drugs took twice as long and then my stay in hospital and the IV antibiotics made the stituation worse. I found that a heat pack laid over my veins while having my drugs helped I was also given some huridoid cream to rub in which helped with the soreness. My PICC line other than the problems I've had with my dressings is the best thing. I really wish I hadn't said yes to first chemo without it. Taking bloods is painless and chemo administration is so much quicker. When do you see your oncologist next or can the chemo nurses ask about a line for you, I'm sure I wouldn't be able to cope with my chemo days with minimal anxiety if I knew I was going to have the problems of the first session every 3 weeks.
Riverside dawn hope your feeling ok this morning and that side effects are minimal for those who have had their chemo this week, and all being well it will be my turn on Monday. xC
Sorry to hear about your delay Riversidedawn and the operation you have got to have. As Hopalong says we must all keep looking forward to better times ahead in 2015. Hope the operation goes smoothly.
Thoughts are with you Riversidedawn, bodies are a strange thing but they can cope with lots, and things will come right I'm sure with alittle patience (that word again). I have a fat lumpy thing at end of my mastectomy scar that I am not happy with but have been assured that this will be tided up when I am ready. Mentioned it again to BCN and said I want it doing after chemo. Its a long road with many twists and turns along the way but we will all reach our final destination a cancer free 2015. xC
I know we are called patients but 3 hours to see an oncologist and have pre chemo bloods done seems excessive, and my patience was wearing thin, I'm glad I only had to pay for 1hr in the carpark.
Oncologist happy with everything and no changes to be made to regieme will see them again before number 5. I mentioned my nausea issues and sore mouth and come away with extra and an increase in dose of my ondansetron and have added a new one into the mix, and I now have gelcair and bonjela for my mouth. So hopefully that should stop me losing anymore weight according to my scales I have lost 5kg over 2 cycles but clinic scales (wearing exactly the same clothes) put my weight loss at 1.5kg, and there was I worrying about getting fat.
I also saw my BCN and explained I had been having some problems with my prosthetic moving around and the pocket being visible over top of bra cup (even though it fills bra and gives me perfect symetry with my other breast) so she is going to order me another prosthetic to try and then if that doesn't work/does the same thing then will give stick on ones a go, the only problem with that might be the weight of the prosthetic as I am a G cup.
I checked in the chemo unit diary as I left and am definitly booked in for Monday so now we just need to pray to the blood fairys to give me enough neutrophils and white cells as really dont fancy a delay as that will impact on Xmas. Good luck to all xC
Remel, I'm not having chemo tomorrow either, but it is more my choice as I have asked to go back to Mondays so will have my next on the 15th. Am going to the oncologist tomorrow for the first time since this started, am going to have my bloods done tomorrow too apparently it might be too early so will have a quick blood test done on Monday. This cycle seems to have really dragged. xC
Woops somhow pressed post before I was ready! Then answered the door, finally have come back and can't remember what I was going on to say!! Anyway, hope you see where I was going with that.
Supposed to be having 3rd chemo tomorrow, but white cell count so low it has been cancelled. Now going to have it next Thursday and then injections to boost the white cells. Bit down about the delay as really keen to get on with treatment. However the up side as I will be well enough to get out and about this weekend, hubby sings in a choir and they have a concert this weekend which I can now go to. Plus another weekend of being able to taste food and alcohol, yippee. Downside is that I will still be having chemo taste and not enjoying food particularly over Xmas. Ho hum.
Best wishes to you all
Sorry to hear how you feel Picklepants. I have pretty much lost all my hair after 2 cycles and still get a shock when I see myself in the mirror. I really recommend Suburban Turban - google them - a brilliant website for hats, turbans, scarves etc. for people with hair loss. I now have 6 of their hats! 2 for bed time! Really comfy for wearing all day (I am still working so need something that i can wear all day). As I had a fringe I particularly like their hats with peaks. However despite appearing confident and positive to all who see me daily I know that this is an act I am putting on, aided by far more make-up than normal and a variety of floaty scarves to distract from the lack of hair. However putting on the war paint daily with all the hats and scarves, really does help to make you feel better about yourself. As for hubby, he is being great and although it is hard to feel attractive, and I know that I would rather he does not have to see this strange bald person I have become, I think to myself that if it was the other way round and it was he going through it I would not be bothered and
Riversidedawn I haven't bought any new scarves and just use ones that are long and rectangular that have been in my draws for ages. Primark do really good cheep and cheerful ones. Only tip would be steer away from silky ones as they slide/slip on your head. I often wear a scarf on those between wash days if I have somewhere special to go, dont bother if just popping to supermarket or round to friends that know me.
Hopalong, I read that article whilst waiting to see my surgeon today, thank you. I'm about the same stage as you, FEC 2 plus11 days, cold capping and not looking too bad with thinning hair and a wide parting which I'm covering with my comb-over, but if you didn't know me I don't think you'd notice at moment! My mum just asked me what I want for Christmas, and wondered if I'd like "one of those nice scarves" - I cannot imagine myself in a headscarf, I have wiggy at the ready.
My surgeon said fingers crossed that the skin grows over the wound.... that sounds worth all those years of medical training! She said we need to keep it sterile and she'll check it every 3 days, so back to hospital Friday and Monday. If it gets worse or infected then I have to have an op to remove the implant.Can't imagine how we'll fit an operation in between chemo sessions and with Christmas & New Year in the way. She'll then re-reconstruct it afer chemo so that'll be March.
Hope everyone copes with whatever this week throws at them x
thank you for the tips which are much appreciated and it's good to know I'm not alone. Sadly still feeling rough. Sent hubby out for sweets and satsumas. Here's hoping for improvement next week. Take care girls. Love Caroline xx
Sounds as though your 1st chemo was worse than most - i do hope they are easier from now on.. Like many others, i lost half a stone in first week, but appetite has come back. I walked round the kitchen opening cupboard doors and the fridge and literally asking my stomach what it fancied... a few baked beans, some macaroni cheese, porridge, rice pudding, soft toasted crumpet.... nursery food I guess..
I found that sucking butter mintoes/ werthers/ barley sugars helped too..
I hope the SEs are wearing off a little now..
Hi girls, just nipped over from December thread as you guys are a bit a head of me. I had my first chemo last Tuesday and had horrible reaction but better now. Back in hospital the following day to get the SE under control. This is day 5 for me and I am still exhausted. Wondering if anybody suffered with dead taste buds and lingering chemo smell and do you have any tips to share re food as my appetite has vanished. Usually fit and healthy and enjoy a balanced diet but not at the moment. Really scared about the next one one the 23rd in case reaction the same. I'm really trying to be positive but my god it's so hard...
Thanks everyone, Love Caroline xx