Hopalong, don't fight the sleepiness. I've been suffering terrible insomnia (3 hours a night max) but after chemo Friday slept all afternoon, got up for dinner then slept 8pm through the night, on Saturday and Sunday too.... not so good last night but it shows that your body takes the sleep when it needs it. Just making enquiries about acupuncture as recommended by oncologist for the flushes. Husband out buying evening primrose oil. Hope you sleep tonight x
trying to fight sleepiness, not mentally tired but eyes keep closing of their own free will. Didn't sleep well last night midnight - 2.30am 5 - 9am. on a plus note think i may have finaly cracked the nausea.
I think i have got the prize for longest chemo session yesterday, arrived for 10am appointment, called through just after 11. Cold cap put on at 11.30 but chemo not started till 1.30pm, then Hb dropped over last 3 sessions down to 8.7 so had a 2 unit blood transfusion that finished at 5.45pm meaning I left unit at 6pm. Official closing time 5pm.
After having had cold cap on for 4 1/2hrs in the afternooon, i was rather chilly so glad of my first 2 mini hot sweats when I got home last night doubt i'll be saying that when they kick in big style. I know you ladies are worrying about T but the T that i'm not looking forward to is Tamoxifen. Its worried me since diagnosis even more than the thought of chemo and makes me cry talking about.
Hope everyones side effects stay manageable xc
Morning, you were awake early Riversidedawn are you having trouble sleeping or are you just an early bird? First T tomorrow so have just taken my first 4 steroids not sure how long I have to leave it before I take next four so will ring Lilac Centre to ask. Want to geet them down me asap so I get some sleep tonight, but have got Lorazepan so that should help. Will keep you all up todate how it goes,
Love to all Sue x
Hi, yes the nurses at my chemo centre said I probably won't be as sick with this one and my hair may start to grow back as it is the E in FEC that does the hair loss!! She didn't tell me what else was in store though, the October girls do seem to be suffering but I have spoken to some girls who got through it quite well with minimal se's so fingers crossed for us all. Positive thinking will get us there. Will keep you up to date with how I get on, with FEC I was sick within hours of finishing treatment so if I get anything I guess it will be the same this time.
I think we are all waiting with baited breath to see how the T hits us after the FECs that we've been getting used to.. Hope it's OK for you - & do let us know 🙂
Good morning all, up early today got to take car to garage now and got DN coming to do my bloods for Wednesday then hopefully out for lunch. Hope you are feeling better today Riversidedawn we are all entitled to grumpy days after what we have to contend with.
Love to all Sue x
Hi Hopalong.......I was like that yesterday and day before and have paid for it today, all I have managed to do is put bit of washing out. Spent day on sofa watching TV and browsing on here. Got a couple of lunch dates tomorrow and Tuesday so going for an early night and hope that I am for it. Not bounced back again after last FEC (3) usually improve daily from day 10 but this time I think I peeked at day 17. Think we just need to listen to our bodies, hate giving into fatigue but had to today.
Good luck to all having treatment this week.Sue x
Hi Waveylocks yes it certainly does make you appreciate everything more. I am just making the most of my good week before I go back on Wednesday for first Tax, not looking forward to the aches and pains that it brings reading some of the posts from October so roll on feb 18th which is my last one as long as I don't get any infections etc which delay it. But a small price to pay for chasing off the C.
Hope everyone is coping as well as possible and looking forward to good health x
Happy New Year all,
I'm back home from my party. Glad those who had chemo over christmas are now starting to feel better. For those New Year ladies hang on in there. I'm another Emmend girl I call it my miracle drug and so far it has worked well with the addition of 5 days of max dose ondansetron and 2 weeks of cyclizine if needed, but havent used them after day 7.
Constipation wise I have laxido/movicol once a day 2 days before chemo then try to get 2 in on chemo day then continue to have 2 untill I "go" then back down to once a day for about a week then I seem to be allright again for 2 weeks. The antisickness certainly make matters worse along with reduced food intake and I know I sometimes wonder if I feel sick due to chemo or constipation another vicious circle of tablets to counteract the tablets.
Had pre chemo bloods done today all counts ok for chemo to go ahead next week blood count slightly low so may need a blood transfusion so watch this space, under chemo units orders to take it easy over weekend but thats not going to happen, Christmas to take down and house to get chemo ready.
Off now to calorie load fish & chips full fat coke and cream cake for tea as nothing in fridge etc untill do a proper shop tomorrow. Take care everyone xC
Hi Waveylocks, I was very sick after 1st Fec (every hour for 13hrs actually sick) then another 3 days of wretching and feeling sick. My Onc gave me adrug called Emend in addition to the others and it hepled loads. My Fec is done now so start T on 7th Jan which apparently does not cause as much sickness but I am sure something else will take it's place! I was advised to eat fresh pineapple for the horrible mouth symptoms as it is a natural cleanser and I found that really hepled with bowels as well as making mouth feel a little fresher. May be worth a try.
Good luck Sue x
Thanks Testrix, hope all goes well for you and others on Friday, not back till 7th so enjoying feeling normal (ish) for a week. Want to get next 3 over and face whatever is next.....not sure about further surgery yet for full clearance of lymph nodes!!! Apparently onco's have different views on benefits of this after chemo so waiting to see what surgeon says.Very frustrated at mo not being able to plan anything further than a week in advance.......would love to have hol to look forward to. Someone told me to keep imagining the C leaving my body and flying off to the moon..........best bloody place for it!!!
Love to all Sue x
Hi Sue - welcome 🙂 I echo your best wishes for all other November starters - 2015 has got to be better 🙂
Had PICC line fitted yesterday - getting bloods today, ready for my next chemo on Fri, was SUCH a doddle 🙂
Morning everyone.....just want to wish you all a happy new year with lots of good health and a kick up the backside to the big C. Every year for the last five years I have said "I am glad to see the back of this year, the next one has got to be better" and it has been worse. Some B..........is trying to tip me over the top but I am fighting all the way as we all are. Reading some of the posts I feel quite lucky compared to some after the first 10 days follwing FEC I improve daily and am almost back to normal by day 14. That's today so I am off out for lunch soon and then again tonight for another meal with a friend. Making the most of it.....T...... starts 7th so will have to wait and see what that has in store. Love and best wishes to all. Sue x
PS Codie is the name of my wig!
Hi Daffodilli and all the November girls, hope you have all had the best Christmas your SE's allowed. I am new to the forum, I started FEC T in early November so had last of FEC on 17th Dec I was very sick after first and was then given Amend which did help loads, however I still find for the first 9-10 days I am fit for nothing but then improve daily for the next 10 so make the most of it.
I am suffering with terrible catarrah at the back of my throat can anyone suggest a remedy? I am sure I wouldn't feel as sick if that cleared.
Got my first T on 7th January....got to admit feel very aprehensive after hearing a story from aquaintance who gave up after the 1st as SE were so awful but we all react differently and have spoken to a girl who had very few so fingers crossed for us all.
Just ventured out of the house to collect a prescription, (organised by GP over the phone this morning) sick note and something for tea. The supermarket was more painless than the prescription. Was in and out of the supermarket like a ninja lots of parking spaces and no ques.
The medical stuff well there's a different story. Five people in front of me waiting to speak to receptionist, then there was nearly a punch up when someone in queue told someone being dealt with that they were taking too much time. Went through to chemist attached to surgery which I use as a last resort normally, to count 20 people waiting for drugs so decided to go elsewhere, to find next chemist was out of stock so back in car to drive 3 miles to next village with success. I think I would have cried if couldn't get it on 3rd attempt. (Its a Christmas just in case prescription for Nystatin if my claggy mouth doesn't improve to save me going to emergency Dr on Christmas Day)
I'm now exhausted can tell my counts are on the drop as walking round supermarket got out of breath, and even going up the stairs I get like that, plus having dizzy spells when get up too quick. Good job i'm going elsewhere for Christmas and can take it easy. Just a bit of wrapping to finish now and i'm done. xC
Hi all - Day 12 cycle 2 - so well enough to work productively yesterday, today & tomorrow 🙂 PICC line apptmt now arranged - and a whole host of new meds/ dosages for NEXT time - wish they'd arranged the promised apptmt with onc before 2nd cycle so week 1 wouldn't have been so crappy again 🙂
Hope everyone manages as good a Christmas as they can 🙂
Afternoon all, Hope everyone is well. I'm now day 8 cycle 3 and as previously its like someone has flicked a switch and the overwhelming tierdness and nausea have gone.
I am hopefully all sorted medically for the christmas period, had a physio session this morning and have been discharged with some additional exercises. I now have 99% shoulder movement and my cording has significantly reduced, the remaining cord is too deep to manipulate without risk of lymphoedema so only thing to do is keep up the exercises, and this afternoon I have had my PICC flushed and redressed.
Good luck with the chemo change Dianne my regieme is staying the same.
It was hairwash day over the weekend and I as predicted, do have a cold cap friar tuck hairdo. I'm just bald in the centre at the top but still have a fringe, and plenty at the sides and back the hairloss also seemned less this week.
Wishing everyone minimal side effects for a good Christmas xC