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November starters

hopalong
Member

Re: November starters

PS have started back on tamoxifen as oncologist said I couldn't use zoladex on its own long term. My knees have been very painful on the zoladex. If I don't get on with the tamoxifen again then I will join you all on letrozole/exemestane etc

 

hopalong
Member

Re: November starters

Happy New Year all,

                                Profuse apologies this is the first time I have read anything since just before christmas, and 1st time I have had some time to use my laptop, cant access forum to comment on my tablet/phone.

 

Fingers crossed ange it is gall stones sounds plausible.

Good news re mum Daisy

Glad work is going well Sue and Amanda

 

Where do I start, I have started my new job and been there since between christmas and New Year. I am doing full time hours 37.5hrs

I start at 7am (up at 5.30am) and work till 3pm 5 days a week so by time I have driven home and cooked its time to get ready for bed lol. Seriously my tiredness has increased but I think it is appropriate although some of my drives home have been a bit hairy!!

I have had 2 counselling sessions and feel these have helped. I am starting a 6 week yoga course tomorrow at the Mcmillan Centre.

I have started thyroxine a month ago and already feel better and have stopped my antidepressants.

I have developed cardiac problems since November with a heart rate of 130 upwards and worsening breathlessness. I saw a cardiologist last week and started max dose betablockers. I had an ECHO which showed reduced left ventricular function but cardiologist couldn't say how bad as heart racing too much so will repeat in April.

I'm still waiting for my Hip MRI results which I will now be getting at end of Feb as my early Jan appointment was cancelled.

Think thats about all.

Will aim to keep in touch but not promising love Caz

 

waveylocks
Member

Re: November starters

Hi Everyone,

Hope everyone is doing well.

Thanks for the info Sue. I agree that doesn't make much sense. Maybe it's a specialist blood test that only the Consultant can order? My GP told me several years ago that they can only order certain tests so maybe your GP is right as far as they're concerned there isn't a test the practise can order. Not very helpful of them! 

 

Have you you had your vitamin D levels checked? It's worth looking at Grassroots or The VItamin D Council websites for advice as the levels considered 'fine' in the UK are much lower then recognised levels elsewhere. Bone pain and fatigue are also symptoms of low vit D. A few years ago I was in agony with bone pain and soooo tired before mine were corrected. I take 5000iu of D3 per day. Recently added K2 in to make sure the calcium uptake goes to the bone and not organs. Sunshine in sunny Spain will def help!!

 

Am planning my return to work. Feeling much better now -no palpitations. So starting back to work mid Feb. Still building my walking up and looking at weight training too. Saw local breast surgeon who was awful so waiting for second opinion elsewhere at end of Feb. Not planning recon until 2017, want to be much fitter before anymore medical interventions. And it feels so good now all the hospital appointments are fading slowly away. Yay!!! 

 

Big hugs to everyone xxxx 

 

 

Codiesue
Member

Re: November starters

Hi Girls hope you have all had a good weekend. I saw my GP last week and she said there is no blood test she is aware of that tests hormone levels to check Letrozole is working.......not happy with that response so will ask BCN next time I speak to her.......seems pretty routine to me. Still having pain in my legs....maybe due to arthritic knees but I do think worsened by letrozole or this bloody cold weather.

I have put in a request fort V time to reduce my working hours on  temp basis for 6 months so hopefully wil lbe doing 3ays from April till october at least then will look at it again.

Off to Spain next sunday for 5 nights and hopefully some sun........be happy Sue xx

 

waveylocks
Member

Re: November starters

It's a good point Sue. The Onc did blood tests but no idea if he checks the estrogen levels.....good point! 

I agree Daisy about us probably over worrying. I was ok with the liver pain but felt I Should tell the Onc expecting him to dismiss it but he didn't! That was when I felt the panic rising. Even though am sure it's gall stones being a nuisance! My GP told me that it takes a couple of years for the fear to settle down.....so that makes us all acting par for the course so far!! 😊😊 Refuse to beat myself up over it.

 

Have booked myself on the Moving Forward course though so would be interested to see how that pans out. xxx

Codiesue
Member

Re: November starters

Hi thanks for the reply I have finished active treatment and the blood tests were just routine from GP, oncologist has never suggested a blood test to check hormone levels which surprises me I would of thought it was routine. Good luck with rads......much easier than chemo xx

Kazglass
Member

Re: November starters

Hi I ve had chemo and surgery now on radiotherapy I am due to have a blood test in April to check on my hormone levels I presume that is to see that tamoxifen is working was told if levels are high I will be on zolex injections for a year could those be the blood tests you mean

Codiesue
Member

Re: November starters

Morning all, talking about liver probs I had some blood tests done about 6months ago and was told all ok......afterwards like( I always do) I thought .....ok for someone just finished chemo or okay full stop. On following vist to GP I asked her and she said one thing (can't remember what...surprise surprise haha) was low but consistent following chemo but liver was perfect!!! I am due a visit in next couple of weeks so will ask her again. Has anyone been offered blood tests to check letrozole/tamoxifen is working I read somewhere we should and I haven't....really suffering with bone/joint pain this weekend so want to know it is at least doing it's job!! XX

Daisy1975
Member

Re: November starters

Sorry I missed Amanda's post too. Think it came through at same time.
Not sure what effect chemo had on the liver but I'm guessing it can take the liver a long while to repair itself.
It seems everything is such as worry for you all post chemo. I have learnt from my mums situation that most of it is over worrying as she has so many symptoms where I have been convinced, only to now thankfully be proven wrong by the scans. I'm trying to learn from that not to jump to conclusions.

Hugs to all
Xxx
waveylocks
Member

Re: November starters

Sorry Amanda -missed your post... Yes have got symptoms mainly pain in the liver area -wakes me at night but it comes and goes. Consultant examined me and said it was very tender there. Am hoping its gall stones! Am a bit concerned as still haven't had date for scan ( saw Onc mid December) -seems I've been missed again I discovered when I rang his secretary as a request for scan hasn't been made nor mentioned in letter to GP -that's twice now I've been missed. Clearly he has too much to do!! 

Anyway am taking the attitude that he can't be too worried or surely he would have rushed me through!!

 

 

Why would your liver have changed? Wouldn't our livers have recovered by now from the noxious chemo etc..?Xx

 

 

Daisy1975
Member

Re: November starters

Thanks Waveylocks

 

I'll pass on what you said about the diverticulitis to my mum. She is out of hospital now but had drain until she is losing <50ml of fluid she said. She had appt on Monday with urology about her bladder/bowel situation - as was driven by her constant Urine infections. Will see what they have to say about it all. This is the happiest I've felt for a while. Father in law still going through his chemo for myeloma - they want him to do a couple more cycles before bone marrow transplant. His chemo is obviously different - no hair loss and he's not really suffered illness but it has physiological effects - the actual drug makes him paranoid and depressed (expected side effects through). Maybe in summer we'll all be doing better and can go away together to centre parcs :-). 

 

Ill keep you all updated with my mums outcome and hopefully this is it for her treatments.

 

xxx

waveylocks
Member

Re: November starters

Lovely to hear from you Daisy. Think you are entitled to be grumpy -the waiting is torture and you have been through so much in the last year. Am glad to hear that your Mums op went well and she is sat up feeling perky. Sounds good news that they are thinking more chemo won't be necessary 😊 😊

The test for whether the tumour is Estrogen positive is to show how much it is driven by estrogen -am not sure that reflects in the treatment. I was an 8 so very strongly estrogen driven.  My understanding is that tumours can change and that is why they've reassessed your Mums. Glad your Mums case has stuck in the consultants mind -means he is paying close attention....good!! 

Wishing your Mum a speedy recovery and hoping that you both get a breather from everything -time for recovery and finally some fun.

 

By the way my Mum has Diverticulis -she has to be a bit careful what she eats -makes a big difference and since doing this her tummy pains have reduced. She was told not eat too much roughage foods as this is hard on the system -I know it was the opposite of what we all thought but it does work. To avoid foods with pips such as tomatoes. She find soup very soothing when her tummy plays up. 

 

Big big hugs  xx 

 

Daisy1975
Member

Re: November starters

Hi all

 

ive been updating sue with my mums progress but will let you all know here. Her bone scan and ct scan were clear. I am so happy - which feels weird being happy when there is still cancer there - but the alternative was unbearable. I've been a proper grump (not in front of my mum) whilst we were waiting for results. Anyway mum had her op today - full node clearance on axilla. She is still in tonight as has a drain but she is very perky.

of course the nodes are to be examined but breast consultant said it's unlikely she will need chemo again as they're expecting it not to be in other nodes due to clear scans. Hooe they're right. They haven't mentioned rads to axilla, she only had them to breast last time. Can they do them with full node clearance or does it increase lymphadoema risk? 

The anaethetist said her case sticks in his mind from the MDT as its so unusual. This is because the ct scan confirmed it was the same lymph node that got to 2cm last time so they should got that one out. Wondering if dye went to wrong nodes when she had SNB (post chemo).

One thing is that hey said they are changing her from anastrozole to tamoxifen as clearly it's not working. I know tamoxifen is for pre menopausal  women usually - I wondered if it had a stronger effect (maybe needed more in women with more oestrogen?). He said it works differently. I guess anything is worth a try as her cancer was graded as er+ 4/8 this time - last time 5/8 but I know it just depends what they see down the microscope at the time so I think that difference is insignificant. I don't think 4/8 is very responsive.

thry think my mums bladder and bowel issues are unrelated to actual cancer. They saw diverticulitis on the ct and her symptoms started with constipation during chemo and never went away so that fits. 

 

really pleased everyone is doing well.

Take care

daisy

xxx

Amanda10
Member

Re: November starters

Happy new year lovely ladies. Hope you all had a fab time . I booked a hotel in Manchester with my daughter for new year it was fab, kind of nice to be back to ' normal' though.
Part time sounds great sue . I'm still doing three full days mon to wed so go nice four days off. Wouldn't mind staying like that but they still hinting for more days .
Ange my hair is pretty slow but I've been using fast shampoo and conditioner and think that is working . You said about a liver scan have you been having probs. I just brought the rainbow diet book and it said that a person with cancer has a very toxic liver !!! So it's beneficial to do a cleanse once s month with Epsom salts ??? Don't know how true this is but I recently had an ultrasound and they said changes in the liver but that's to be expected.
Hope all you other ladies are feeling ok. Big hugs also to Daisy's mum. Hoping this is a happy healthy year for us
Love Amanda xxxx
waveylocks
Member

Re: November starters

Happy New Year Everyone!!

Hope 2016 turns out to be a fab year for all after all we have been through! 

 

Glad you had a great time this year Sue 😊😊 I did too -really appreciated the lovely food which was lost on me last time!

Part time sounds a great idea...

 

I was meant to be going back to work tis true Sue mid Jan but have got to go for a liver scan 😞 and more heart tests! Am feeling much better and fingers crossed my blood pressure with the meds is now in normal range and much more stable -yippee! GP thought I should stay a bit longer off so plan is mid Feb now. Been off so long will need an induction course!! Lots of changes at work -cuts and more cuts... Be good to start earning some money too!!

 

How is everyone doing in the hair stakes these days? Mine is painfully slow growing....still thin on top though kind friends tell me it's improving am not so sure. My hair is very fine and fuzzy -feel like one of those baby birds with a fluffy coating! Been using treatment to improve but am doubtful if it's really doing anything. Still into the pink!  My eyebrows remain pretty non existant too but my nails have just about recovered! 😊😊 xx 

 

 

Codiesue
Member

Re: November starters

Hi girls hope everyone is well and recovered from festivities, I had a lovely xmas and really enjoyed centre parcs....well worth a visit. Back at work now and got 2 more weeks of phased return but will take annual leave then so still doing 3 days a week until the end of March the asking to reduce my hours.

How are you getting on Ange, think you were due to go back after xmas? Caroline are you still coping with the long hours you had been doing?

Hope Amanda, Juls and Dawn are ok? Lets hope 2016 is kind to us all.Love Sue xx

waveylocks
Member

Re: November starters

Hi Everyone!!

Hope every body had a lovely time!! I did -so good to be able to eat, have energy and take part fully!! Christmas dinner this year tasted extra lovely!! Yum yum...

 

Glad you had a good time Juls -& everybody avoided the pressie smellies for you. 😊😊

 

Did everybody else have a lovely time?

 

I even hit the sales this year and treated my self to a pair of 'fly' boots -oh so comfortable and warm. And more boringly bought myself some new trousers for work....

 

Happy hols!! xxx 

 

rookie
Member

Re: November starters

Hi all, hope you all had a good time!! Did you get what you wanted? I know our health is the main gift but hope you all got a few other bits & bobs. Luckily i wasnt bombarded with smellies as they know i wont touch them as theyre full of chemicals. 

Have a lovely healthier 2016. Love to all. Julsx

Codiesue
Member

Re: November starters

I will second that Amanda, Hope we all have a lovely christmas and a fantastic, happy, healthy 2016......Enjoy everyone Love Sue xx

Amanda10
Member

Re: November starters

Merry Christmas to all my lovely friends so glad we can all enjoy it better than last year 🎄🎄🎄🎅🏾🎅🏾🎅🏾 xxxx
Codiesue
Member

Re: November starters

Morning Ladies, I am good at the moment thanks Ange just trying to keep away from germs and bugs so I don't pick anything else up....really don't want to be ill for xmas. Has anyone tried the mindfulness course I have looked at it sweral times but can't decide if I fancy it or not. Wocher have a deal on for it at the moment £19 to do it online with phone and email support or £99 for 2 day intensive course at a hotel not far from me.

Off to do bit of shopping and pick my prescription up ....don't want to run out over the holiday. Have a good day all xx 

waveylocks
Member

Re: November starters

Happy Christmas Everyone 🎄🎄🎄

pleased to hear your better Amanda and back at work. Exercise bike sounds good....know what you mean about fitness levels....lol.

 

Congrats on the new job Caroline -brilliant!! Hope you get the palpitations sorted soon....they're are really bothersome and I found disruptive at night.  When do you get your results? 

 

How are you doing Sue?

 

Am doing much better -seen the cardiologist and he reckon I'll be on meds for two years -am hoping he's wrong! Have to go back in three months.  Anyway got more energy which is handy as Iike everyone am pretty busy getting ready for the festivities. Yes my sons are coming to stay....so lovely. Can't wait to see them!! The house is looking very festive -& this year we will be able to enjoy it !! Yay!!

 

Hope everyone has a fab time with lots and lots of fun! Cheers!! 🍾🍸

Hugs, xxxx 

 

Codiesue
Member

Re: November starters

Morning Ladies, hope you are well and looking forward to xmas. I am much better now and went back to work last Wednesday but still on phased return so only did Wednesday and Friday morning for 3.5hrs, doing the same hours Monday and Wednesday next week then off for 11 days over xmas and new year. Then doing 15 hours first week back then 22.5 for 2 weeks then off to Spain for a week  YAY!!!! I am determined to make the most of every opportunity to get away next year.

Been worrying about Daisy, hope her Mum is okay I really feel for her having to do chemo again., My chest infection to me back to chemo days and it was awful to remember just how s---t I felt.

Sun is shining here today after torrential rain through the night again! so going to try and get some washing dry. Love to all Sue xx  

Amanda10
Member

Re: November starters

Morning ladies
Hope you are all doing ok and ready for Christmas.
I'm back at work now after my bug. Trying get my fitness back up so am back on my exercise back to start with lol. How are you feeling sue are you back at work yet ?
Caroline glad you got the new job sorted .., new year new start brilliant.
Juls I wanted to get to London always wanted to see Liberty window all dressed up. It sounds a nightmare though . I went up to the Christmas market in Manchester my daughter booked the Gotham hotel it was lovely .
Ange how you doing hope you are well and ready for Christmas. Are your boys coming down to stay ?
Wishing everyone a great weekend xxx
hopalong
Member

Re: November starters

Morning all,

Sorry to hear your news, With your support I'm sure your mum will get through this awful period in her life.

Good news re heart Ange, and glad your feeling brighter Sue.

I've been full on with work my phased return is now over and I have 2 weeks annual leave and then start my new job in the week between Christmas and New Year. I'll be doing 37.5 hrs a week Mon~Fri.

I've had my 1st counselling session and had a good chat, the sessions are through a Mcmillan centre and the counsellor had BC in her 30's so just gets it.

Health wise I've had my MRI and get the results in the begining of Jan, still waiting for my pain clinic referral.

I've been started on levothyroxine, only been on it just under 2 weeks so no major changes yet. My heart is still pounding and my breathlessness seems to be getting worse. All the results of my 48hr tape and ECHO were being sent to oncologist, (checked with GP 2 weeks ago but they had none). I see oncologist on 23rd so hopefully will know more then, and have an idea of my hormone treatment going forward.

Will update you after then.

Merry Christmas x

waveylocks
Member

Re: November starters

Hi all,

oh wow shopping in London Juls -I braved Oxford street briefly in the summer but was overcome by the wave of people on mass so never made it to the shops!! 

 

Good news girls am nearly signed of  for a year by my Onc but have got to have a scan due to pain I'm having on one side. I think it's gall stones but it gave me a wobbly moment when the Onc went all serious examining me and starting ordering more bloods etc..I cried all the way home but logic has kicked back in now!!  I will escape from there soon...

And finally saw the cardiologist and my heart is settling down but have to be on meds for two years!! So more tests from him too. But am ever hopeful of escaping the hospital scene soon...

 

And yes Sue you're quite right not worth stressing over work....

Am glad you're feeling better -how horrid to get a revisit of chemo symptoms!! Yuck!! Hope the counselling goes well and is helpful -I keep trying to sign onto one of those Moving forward courses as I reckon I could do with a reprogramme of my mind. My GP says the panic about fear of reoccurance is normal and takes about two years to fade....made me feel so much better knowing it's common as muck. Bless her...

 

Am hoping everyone else is doing ok? Getting ready for Christmas and ready for some fun this year -oh joy will be able to eat!! 😊😊

 

Happy Christmas Everyone☃🍾🎄!!!!! Tra-la-la-lala......

Hugs xxx 

Codiesue
Member

Re: November starters

Morning girls hope you are ok and getting ready for xmas, Juls very brave of you going to London I would be too worried about suicide bombers etc and i don't like the hustle and bustle anyway. I am finally feeling better after my chest infection it really knocked me and took me back to chemo days!! So all be careful I thought my immune system would of been back to normal but obviously not.

Ange sorry to hear you are stressed with work issues, try and go with the flow if you can't change it try not to let it worry you.

Caroline how is work for you have you started the new job yet? How is the couselling going I have an appointment on Friday BCN thought I should give it a go she thinks I am worrying about recurrence too much becasue I have been back twice to get checked, First time my boob was twice the size bright red and hot and the second time I had noticed dimpling by my rads tattoo........they say report any changes so i did!!

Amanda hope you are over your bug and feeling better now, we all need to put ourselves and our health first because without that we have nothing.

Dawn hope you are okay and the children are looking forward to Christmas, hopefully we will have a better one than last year.

Daisy let us know how your Mum is been thinking about you both loads.

Take care all Sue xx

 

 

 

rookie
Member

Re: November starters

Hi all, sorry to hear of daisys mum. This damn thing wont leave us alone!!  I went to london last weekend for a look about ! How anyone can live in that environment daily beggars belief. Its manic & down right mental. I was glad to get home.   Xmas stuff done, amazing for me!  Hope the bug thats hit a couple of you is going away as its been awhile now. Get better soon.

Love to you all & a merry xmas to you.  This should be a better one than last year!!    Julsx

waveylocks
Member

Re: November starters

Hi Everyone,

Total agree Sue!

Am so sorry Daisy to hear about your Mums cancer. So sorry you will both have to endure another round. Big hugs and love. Will be thinking about you both.

 

Sorry your so poorly Sue. You must rest -not your fault one of those things. Sending you electronic lemsips and hot toddies!! No rushing back -am sure your GP would agree!!

 

Am feeling a bit stressed as it seems our work contracts are being altered -haven't been consulted but my boss thinks one will be winging in the post to me so has been in contact. Unions involved -can't bear it -far far too much stress. 😓

 

The good news is that the lady who did the scan on my heart today seems to think it has improved. Yeah!! There's some new research coming out about cancer effects on the heart. If you're interested listen to radio 4 Today's (4th Dec)-it's only 2-3mins set the programme to 6.50 to hear the relevant bit. 

 

Hope everyone one has a lovely weekend -here am going to stay in as the forecast is wet wet wet with a ton of wind! Winters here!! xxx

Codiesue
Member

Re: November starters

Hi everyone, such sad news about Daisy's Mum it could of been anyone one of us with this bloody awful disease. We can only be here for them and wish them some positive news with scans etc which I am sure we all do. Well I am still down with this chest infection nearly 2 weeks now and driving me mad only been out once in 11 days and that was to GP sugery for my note but very minor in comparison.

Amanda hope you are picking up and you are right we must put ourselves before work I am feeling very guilty being off again so soon but would of been in if fit enough. Hope everyone else is okay, love to all Sue xx 

Amanda10
Member

Re: November starters

So very sorry daisy xxx
riversidedawn
Member

Re: November starters

Oh Daisy, so sorry you both have to go through this all again. Lots of love and hugs x

Daisy1975
Member

Re: November starters

Just to let you know that the US has shown that it is cancer. I think they suspect that it wasn't cleared first time and I think that the node should hav been examined by ultrasound when it was first noticed (post surgery) but the breast surgeon was convinced it was a reactive lymph node only. Back to Ct and bone scan stage to see if spread and then possibly chemo again. Feeling very sad.

 

xx

waveylocks
Member

Re: November starters

A www Amanda -am so so sorry that your poorly too. 😒 It's horrid the way old chemo symptoms come back like the nausea when ure ill. Yikes!! Maybe we should form a sniffles club and send each other virtual tissues, honey and lemon drinks etc.... Seriously though good for you going home. I don't think work colleagues get it do they? -they just think your back get on with it. Big hugs coming your way.

 

Spoke too soon re BP -back up today so must have just been a coincidence. Lol.... Xxx 

 

 

Amanda10
Member

Re: November starters

Morning ladies
Sorry few of you are ill with viruses and now I'm joining you . Like you Sue didn't last long at work. Felt sick for a few days and last night had hardly any sleep with the nausea. Did attempt to go to work this morning but it's busy and your shown no mercy so I thought stuff this im going home . Will we ever get back to full health : ( . Xx
Codiesue
Member

Re: November starters

Thanks Ange, yes I agree kids and keeping infection free don't really go do they. I am definately going to ask for the flu jab after this....cannot believe how much it has knocked me back and I am sleeping loads too!

New diet sounds good I have lost a few pounds myself since being ill, no appetite really and taste still gone.

Glad palpitations are easing off lets hope we are all much fitter for next year XX

waveylocks
Member

Re: November starters

Evening everyone 😊😊😊

Been extremely wet here all weekend -rain rain and more rain...lol

 

Sue am so sorry to hear you're poorly -this is what I fear will happen when I go back as am in numerous settings so bound to catch the bugs. Hope you feel better soon -yuck loosing your taste buds again. Big, big germ free hugs. I have had the flu jab -I asked for it and was told I could have it as its a non live serum. So I would definately ask for it -was free.

 

Caroline -well done doing the three days - am not surprised you're tired on top of all the hospital appointments it's a lot all at once. Will your employer let up on you a little? Hope the tests are all positive and things are settling down for you. When can you start your new job?

 

I have put a stone on since chemo finished 😒 so am on a new food plan. Saw my endocrinologist who recommended low carbs. Only been on it a few days but have lost 2-3lbs already!! Am sure it's mostly water but good to see the scales going down in the right direction for a change and haven't felt hungry at all. Diabetes uk have a great forum which is really informative if anyone else needs to consider loosing weight can really recommend. (Am not diabetic!!) Very easy. No calorie counting and relatively simple if out just ask them to ditch the grains, pasta, potatoes and replace with veg/salad. Obviously puds etc are off limits but you can have a square of very dark choc for a treat. 

Also no more palpitations (well maybe a few at night but mild) no increase in heart meds and my thyroid meds increase has reduced my blood pressure. Alleyluya. Hoping I've turned a corner & hoping the heart meds will start to go down too soon. Am looking forward to less hospital a ppointments and joining your brigade of infrequent visits. Fingers crossed. 

 

Love and and hugs to all. 😊😊 xxx 

Codiesue
Member

Re: November starters

Hi all hope you have all had as good weekend and well done Caroline you have had a busy time glad you are coping. I didnt last long at work 3 weeks and have now been off all week with a chest infection, it has knocked me for six.  Had to call GP out Tuesday who gave me antibiotics which has sorted the high temperature but still got a raging cough and feel c**p, really feels like I did after chemo even my taste buds have gone again!!

Has anyone had the flu jab? I was never advisd to get it but after this I am considering asking. Take care everyone and wrap up warm in this miserable wet weather xx

hopalong
Member

Re: November starters

Afternoon all,

Busy week 2 at work for me, its floored me, had 2 medical appointments and worked 3 days. I'm full of cold and very tired.

Iv'e had my 48hr ECG done and my ECHO this week, got told my results will go to oncologist but not seeing him until day before christmas. I've had no phonecalls yet so am thinking no news is good news.

I had a counselling appointment last week too, am waiting to here if I qualify she said I would but its not her decision. The only downside being an approximate 3 month wait.

On a positive note I've bought a new car 🙂

Next week is going to be busy too. I'm having my bloods done to recheck my thyroid function tomorrow, then an MRI and arteriogram of my hips to help diagnose my pain. I'm then working Tuesday, Wednesday and Thursday. Thursday night is Christmas party night with my other internet cancer group YBCN. (Not got an outfit yet, had to get a new set of work uniforms as gone up 2 dress sizes). Zoladex injection Friday and then working Sunday, before starting my 1st full time week next Monday. EEK!!!!

Hope everyone else is keeping well xxC

waveylocks
Member

Re: November starters

Oh Daisy your Mum is having a rough ride. It's really good they are following this through and excellant news about the bladder. I had my lymph nodes removed post chemo too and they were clear. I'd be very surprised if they would've removed the wrong ones -they are so careful these days. 

Am afraid you and your Mum are back in the waiting game.  Referring her doesn't mean the cancers back -just that they are being very careful to follow through. Best to be safe then sorry. I guess you and your Mum will be keeping yourselves even more busy to distract yourselves from the inevitable anxiety until she knows. 

Big hugs, thinking about you both.  xx 

Daisy1975
Member

Re: November starters

My mums bladder biopsy came back as not cancer. However she told me today that she has a swollen lymph node under her arm. It has been swollen since surgery so they (consultants) said it would be a reactive node (to the surgery) and they weren't going to chase lymph nodes. However she noticed last week that it's much bigger - 2cm her doctor said. She has been referred. All I can think it is is the cancer. She had 4 nodes removed and they were clear (this was post chemo though - pre chemo they were positive). Has anyone else had swollen nodes 4 months post surgery? I'm now thinking that they never took the correct nodes :-(.

 

xx

waveylocks
Member

Re: November starters

That's great news Daffodil. You're nearly through the Hercpetin -yeah!! Really good to hear about other success stories -I'm HER+ & ER+ too 😊😊😊 And good to hear your managing three days per week. 

 

This week is the first week I've not needed a raise in the heart meds -dare I hope it's settling down at last? Feeling better....but am putting a pound on per day!! What????? Wish I could say it's because have stuffed myself silly -sadly not! Lol...

 

Hugs xxx 

 

 

Daffodilli
Member

Re: November starters

Well my heart meds have done the trick and my echo is better so I can finish my herceptin course. Last one middle of January. Saw the oncologist who feels the rib pain is a hangover from radiotherapy. I met a colleague whose mum was HER2+ve ER+ve and had the same treatment 10years ago. It is good to hear positive stories helps me believe that I will be ok. Still finding it hard to look beyond next week. Dawn your course seems good. 

Anyway now working 3days a week exhausting but good distraction. Exercising loads now and trying to eat well. Finding all the advice confusing at times especially when it comes to diet. 

Glad to see everyone getting on with their lives now last years trauma seems a dim and distant memory 

riversidedawn
Member

Re: November starters

Hi all, beginning to step away from the forum. Feel I need to move on. I wasn't sure when I got to 1 year from diagnosis (sept) if I wanted to embrace it and work with it, or shove it away in a drawer!

 

Just completed a 6 week MacMillan Hope course which was great, and last Thursday had annual review with surgeon and GOT THE ALL CLEAR!! YEAH!! Also discussed further recon and uplift on Droopy in the new year.

 

I've just got a casual job as an Exam Invigilator at my son's school (a bit seasonal!! starting in January) and taken on an 11 week old puppy - so really feel like I can turn the page and move on. I'll be dropping in every now and then - but fnd myself googling Puppy rather than Cancer, Tamoxifen, Chemo etc.................. so much more positive.

 

Lots of luck and love to everyone with recovery, moving forward, working and all that.

Amanda10
Member

Re: November starters

Hi everyone
Hope you all doing great. We had quite a lot of snow last nice quite a shock but it's melting nicely now.
Had my bone scan results back and all clear yippee . Thought I'd have a little go in excercise bike but still got the groin pain I'm thinking its nerve damage from chemo ... But heyho I can live with that.
Caroline so pleased you have got the go ahead for the new job ... New year new start brill.
Ange five months plus you are having to wait ... That's shocking . I know we shouldn't have to but I would be thinking of paying private to get sorted.
Sue you have good employers I'm glad your able to start back gradual. I'm doing three full days ( my choice) but I can tell they are itching for me to do more ... No way Jose ... This is suiting me ok at the moment and after three full days I am tired ... More that I expected to be .
Daisy sending love to your mum. This treatment really takes it out if you . I'm hoping her strength comes back real soon.
Juls and dawn hope you doing ok
Love Amanda 😘
waveylocks
Member

Re: November starters

Hi Everyone 😊😊

 

Sue well done on the phased return so far. Yes Macmillian do recommend 12 weeks so your current employer is being pretty harsh on you Hopalong to expect you to get to full hours so quickly.....won't they allow your a more gentle return? Really glad to hear that you've had the all clear for the new post. Yippee!!! Glasses of champus all round🍾🍾🍸🍸!!! 

I've finally been referred through to cardiology to actually see the consultant who's been advising from afar....5 months after all this kicked off. Unfortunately his clinic is fully booked well into January so no idea when I'll actually be seen. Am considering whether to see him privately as he does two evenings a week I've found out -just to advise on the meds over the next few weeks until I finally get the NHS appointment. Am almost at maximum dose on one so concerned I'll be maxed out before I get a NHS time slot...don't fancy that over Xmas ..lol. My blood pressure/ heart rate is still high despite all the meds and much walking!! Ah well... My GP is very insistent that I stay off work until it's sorted.....so Xmas shopping is a small affair this year!! 

 

Happy weekend everyone!! xxx 

Codiesue
Member

Re: November starters

Hi Caroline that does seem quick I went off the macmillan guidelines, they recommend 12 weeks so mine will go on until 24th January last 3 weeks is 30 hours (4days) so will take a days A/L and just work 3days a week until end of March. Occupational health agreed this and I have to have a review end of next week after 4 weeks. Be careful not to do too much xx

hopalong
Member

Re: November starters

Hi all,

Gosh you've got alot on Daisy.

Sue your phased return sounds good, mines very quick. Ive done 8 hrs this week 2x4 spent most of that time trying to get a new password for the computer. Next week in on 17.5 then 24.5 then back to my normal. If I want to reduce my hours after this time I have to use annual leave. I have then put in for 2 weeks annual leave so I don't have to work over christmas. This will give me 5 weeks to sort out the new job. I've seen occy health about new job and declared fit with considerations of no prolonged periods of standing and minimal moving and handling due to lymphoedema risk.

I'm hoping to have sorted out all my other "little" health niggles by the time I start new job. I'm currently sat here wearing my 48hr ECG monitor, for my palpitations lets hope it picks something up. ECHO next week and my arteriogram and MRI and thyriod retest at end of November.

Hope everyone else is ok xC

Codiesue
Member

Re: November starters

Morning all, hope you are surviving this awful wet weather. Two weeks of work completed and if I could stick to these hours it would suit me nicely haha, Another week on 7.5 hours then think they double the week after:-(. Good to hear from Daisy again, Amanda have you had scan results yet..hope all is okay. Dawn congrats on job I wouldn't mind doing something like that if I decide to not to stay here after March, Caroline how is your return going hope you are coping. Hope Juls and Ange are okay too, off for my swim now...not losing any weight but needs must. Have a good weekend and love to all Sue xx

waveylocks
Member

Re: November starters

Hi Daisy, lovely to hear from you. Am not surprised you are so busy as there is a lot unfortunately going on for you. Sorry to hear that your mum is having ongoing problems. I hope they get her sorted soon. Also hope that your father in law is doing well on the chemo and surviving the horrid se's.

 

We had a lovely day out -went to Salford keys and had a little wander, meal and then met in a bar near the station. It was lovely meeting everyone. 😊😊 We're hoping to get together again in the future. There was talk of a spa day/weekend -though lots of us have experienced problems with staff scared to treat us at such places & refusing treatment or admission...lol. So if we do this we'd need to find a BC friendly establishment!! Xx