Good to hear you are dancing. I'm too sore and had to sit on the sidelines with a bottle of wine. I've promised to make up for it next year. I have finished rads and have moved on from the 'this might be my last Christmas' thoughts which I was having a couple of months ago.
Regarding tamoxifen, have a read of the hormone threads on the treatment section. If it is hormones making your lump grow they will give it to you to block the oestrogen. It can make a huge difference in reducing the risk of it coming back. All the treatment we are having has its own risks. The oncologist will look a the risks and decide what is best for you.
After my biopsy they said I would probably be given a hormone treatment. After surgery, when they had more detail on the lump, I saw the oncologist and she said I needed to start Tamoxifen asap. If the Tam doesn't stop my periods they will give me something else as well. I did not take in all the details, but I have to let them know how things are going next month.
Re Radiotherapy, they talked about 3 weeks and it took me some time to understand they mean EVERY DAY, well weekdays anyway. I had 15 sessions, but some people seem to have different numbers of sessions. The poor prostate cancer men have to have more than 30! Again the radiotherapy threads on the treatment section has been a godsend in helping to fill in the gaps.
I hope you have a lovely Christmas too.
Hello again everyone!
I wasn't sure whether to start a new threat or not - it's been a while since I last posted. However, i feel that it's still relevant to use "Now have my treatment plan" as my subject.
I don't know about you, but I feel as if I have come such a long way in such a short space of time! Just firstly coming to terms with the diagnosis - at first I was in complete shock and had to take sleeping pills. Now I can finally sleep without them (had to ween myself off them, but got there in the end).
Now I am just going to try and have a lovely Christmas, in fact, not try, I will have a lovely Christmas. I'm really looking forward to it - more so that usual!
There have been lots of parties lately, and I am dancing as if my life depends on it - literally!
Morbidly, I keep thinking " this may be my last dance/Christmas/New Year etc etc" - can't help those thoughts, they just appear from no where! However, my thoughts are a lot clearer than they were - so lots of improvement there too.
My reason for posting was to ask a question - those of you that perhaps have more info than me, or are further down the line.
I'm due to have a lumpectomy on 7th Jan, then some radiotherapy. I have no idea how much radiotherapy - the oncologist said 5, but not sure whether he meant 5 sessions or 5 weeks. He has a very strong Greek accent, so I really have to concentrate on what he is saying.
My friend, who has just had a mastectomy and reconstruction is taking tamoxifen - whilst at a party, she was telling me about her hot flushes, then said "you will have to take it too".
Will I??? The oncologist didn't mention it - or do they just tell you things as you go along? I really am reluctant to take it, but will if I have to. Does everyone have to take it?
However - I have read other posts about there being links to the mirena coil and bc - and hey, guess what - I had mine fitted September 2012, then in October 2013 was diagnosed (noticed the lump prior to October, but took me a while to get diagnosed - don't ask!)
So today, I had it removed. I had strong suspisions before reading the posts that it could have been a contributing factor, but reading this just added to them. I'm obviously not 100% sure that it's that, but with no family history of bc and being pre-menopausal, it does make me wonder.
This makes me wonder whether, if I am offered Tamoxifen, I should try to go without it???? Perhaps try life without the coil and see whether it makes a difference!
I have read other posts that Tamoxifen carries a risk of contributing to cancer of the womb?? I have to ask whether I would rather have a recurrence of BC or to have womb cancer???
Any advice from those of you who are further down the line would be gratefully received, as always.
Wishing you all a lovely Christmas
Welcome to the Breast Cancer Care discussion forums, you've come to the right place for some good, honest support from the many informed users of this site.
I have put for you below links to some of BCC's publications you might find helpful. Also our helpline team are just a free phone call away, 0808 800 6000 lines open Mon-Fri 9-5 and Sat 10-2
Thank you for your reply, I saw it just before so it reassured me I was doing the right thing. I loved it when you said they would worry about whether you'd be there to cook their Christmas dinner! Up until and even during I had my doubts about tellling them. Also it was difficult as they are all such different ages, but I felt it best to tell them all together. I've never called them all together like that to speak to them, so they knew something was up.
My 7 year old went off, but I think more to do with not wanting to sit in one place for a length of time, it's just not what he does! But I think there was also an element of him not liking what he was hearing. I tried to be as child friendly with my language as I could.
My eldest completely understood straight away and just wanted reassurance that it had been caught early and once I'd had my treatment, it would be over. My middle one was just embarrased about being gathered together, I don't think he fully understands, but it's so difficult to tell.
Anyway, they know now, so no more hushed phone calls. We've made some plans for the Christmas hols for us to do some nice things together.
The two younger ones are back to fighting, so normality resumes!
Thanks again for your reply.
It sounds like you're relieived that you have finily received your treatment plan. I'm not sure if you're aware but BCC have a resources pack which is specifically designed for those diagnosed and contains information to help you better understand your diagnosis, test results and the various treatments available. If you would like to order a copy just follow the link bellow:-
Also do give the helpline a call if you need any further information or support. They are on 0808 800 6000 and the lines are open Saturday 10 to 2pm and Monday to Friday 9 to 5pm.
Best wishes Sam, BCC Facilitator
I finally have my treatment plan! I got a call on Tuedady evening asking me to go in on Wednesday morning. They had just had their multidisciplinary meeting and had agreed on a plan!
I've posted on here a couple of times, but to brief you on my journey so far - I'm 43, with 3 boys - 16,14 and 7. Diagnosed on 13th November with Invasive Ductal carcinoma, They didn't know what to do with me as it was presenting in an unusual way, just under the skin, but on the nipple area.
Therefore there was along wait between my last consultation and getting my treatment plan - not great. In fact, I almost started to think it had all been a nightmare and it hadn't happened.
Now I'm back to reality. We've all agreed that I will go in on 7th January to have a lumpectomy then radiation to follow. At first I was a little disapointed because when I was first diagnosed, the consultant siad it would be better to have mastectomy than lumpectomy due to my small size. So I did feel like he was back tracking slightly. However he justified it by saying it is better to work with my real breast first of all, then if they find that there is more or my node is infected, we would look at plan b. He also reassured me by saying I could perhaps have a nipple added a year down the line if I wanted.
For all of you who said that the wait is the worse and I would feel better once I had my plan, you were so right. I do feel so much better. I'm sleeping again (without sleeping tabs) and just feel much more positive.
Don't get me wrong, I'm still scared, but most of my fear is about it returning and not the up and coming surgery. I don't care about my breast being smaller etc etc. I've even got my head around radiotherapy (the idea of radiotherapy before my diagnosis was the most scary thing on earth). What I can't stop is my mind jumping ahead a year, 2 years, 5 years, 10 years to the possibility of it coming back. I guess this is normal??
I am now planning to tell the kids tomorrow - I've said all along that once I had my plan, I will tell the kids. I'm absolutely dreading it. I have no idea how it's going to go. I have to do it now though asI really don't want them finding out another way.
I want to add to this how helpful this forum has been, all of you have given me so much strength - those who have replied to my threads and those who have started their own. I've learnt so much from you all, so thank you!
Anyway, I have a habit of writing long threads, so I will stop there.