Hi Julie, dont ever feel you have to struggle alone, everyone of us is here to help each other and know what your going through, I was on my knees when I was diagnosed and never ever thought I would recover any semblance of normal life again and if I ever hear the words " be strong" be brave" keep your chin up" again I won't be responsible for my actions!!!! No one who hasn't been through this can possibly understand how we feel, I did go back to work after my op as I couldn't stand to be home alone, I'm fortunate to work with good friends and family who all knew and I didn't have to keep up an act, I had many a melt down and Diazipam was my best friend for months! Eventually you just start to feel more at ease with it all, im still take antidepressents and have no intention of stopping, I'm 4 months on from treatment now and life is pretty normal again, I'm able to detach from the big C now and adverts etc don't bother me anymore like they did, but it's a rough old road that shakes you to the core and no one can tell you how you should be feeling, lots of love to you Hun Xx Jo
Been burying my head in the sand and not coping too well the past week or so.
Was doing really well and feeling so much stronger then (sorry if it's TMI) but had a very heavy monthly, you know what, on top of trying to go back to work, death of a family pet and a very trying teenager and suddenly I'm on the bones of my a**e again
Had radiotherapy planning appt last week and start rads on 26th Oct and just hoping I feel better and my energy levels improve before then. Ended up at the doctors on Friday as felt so unwell, and now awaiting blood tests as everything else was ok, but even doc said "you don't look well".
So sorry to moan on but just so fed up. Everytime I turn on telly or computer the big C seems to be in my face, and it's all people who are all so strong and positive and "I'm going back to work 2 weeks after op" etc etc!!! Well I am not strong or brave or positive just now, everyone deals with this differently and this is how I am right now and do not want to hear one more person tell me I am brave or stay strong, because I am not and can not, I am just wading my way through this crap as best I can right now !!!
So so sorry to rant on and feel sorry for myself as I know there are others in far far worse positions than myself and I will get a grip eventually and kick myself up the a**e,really tried not to do it in here but eventually realised that I needed to sound off in the only place I felt people would truly understand.
Hope things are going well for everyone who's having/awaiting treatments
Huge hugs and love to you all xxx
So annoying...i went to see my Oncologist over a week ago, and asked to go to a different hospital for rads as it will be nearer to me, Addenbrookes in Cambridge instead of North Mid in London. Ive been waiting fpatiently ever since for the planning app and it turns out im actually waiting for another Oncology app with Addenbrookes as they cant just give me the rads, i have to be re referred there first! The waiting to start is really frustrating, i am so desperate to just get on with it (and the rest of my life). Why does every part of this journey take soooooo long?
Sorry about the big moan folks x
I used Aqueous Cream for a week before rads but changed to E45 during rads because the doctor told me that E45 seemed to work slightly better and have the edge over Aqueous. E45 has been great for me and it is only now that I have finished rads that my boob looks pinkish. They told me to continue using E45 cream for another three weeks and have given me some hydrocortisone cream in case my skin goes itchy.
I finally got to ring the bell today. I was so excited and it was an amazing feeling. 15 days or rads done - at last! Good luck to everone else who are still having rads.Eileen,
That's My kind of diet Francine! I remember having my rads consult on last day and being given all the horror stories about looking after your skin and I piped up and said well we are going abroad in 2 weeks and was told well that's not really recommended! Ummmm like I'm going to cancel ...... Can safely say after just having got back from second holiday I've had no reaction at all from sun, sea or chlorine! I don't flash my boobs but was in bikini all day and hey no problems at all!!! As my darling mummy used to say "agree with the health visitor then show them the door and do things your way! " 😜 Xx
Eileen I'm not very big busted either and was told the same about having fewer issues with rads, I'm sure they said it was due to having less breast tissue, they were right though as other than a slightly pink boob I was fine Xx