Have you asked if you can have another wig?
The reason I ask is that one of the ladies in our monthly group went for another one after her original wig went matted and a bit tatty in the way you are describing. When you think about it they do get a lot of wear and tear no matter well you look after them and to be fair you would replace an item of clothing without thinking about it.
Holidays Holidays Holidays!!!!!!!
Lovely to hear you mention treating yourselves to trips to fantastic places and boy do you deserve it.
Sorry that some of you are having problems with swellings etc.
Auntie Julie congratulations that rad is over for you!
Suebond omg Australia would be fantastic. I found out recently that I could get a NZ passport as my Granda was born there - if I had known that when I was younger I would have gone and worked in Aussie...would have had a different life I am sure.
Im trying to be as active as possible - it is most definitely speeding up the recovery process for me.
So sick of having no hair...my wig is getting a bit worn looking and the mesh at the hairline is curling up...I have to try to cover it up...am still hiding from people so they dont realise Im wearing a wig.
Think positive thoughts only!!!! I am trying to.
Aunty Julie, so glad to hear that you took yourself to the chemo ward and they aspirated your Seroma - can be very painful and uncomfortable I know. You beat me...they aspirated a small glass of wine from me - you got a large one 🍷🙄
starting rads on Wednesday so a little apprehensive, but reckon it should be a doddle after chemo.
we are also planning a trip....our aborted visit to our daughter and family in Oz, but not until November, am getting excited already though - something to aim for 😍😍
hugs to everyone
Well, as Aine says, who would have thought we would all be talking about holidays rather than constipation - isn't it great?! I even had some pre-holiday vaccinations last week. After so many SEs from chemo, the sore arm was hardly noticeable. We are doing our "trip of a lifetime" in July for our 40th anniversary which has been something to look forward to, especially as we were originally due to go in April and had to cancel n case my treatment dragged on....Hopefully by then my stamina will be better. At the moment I have a rush of enthusiasm each morning and burn out by mid-afternoon.
I have completed radiotherapy and am 3 weeks into anastrazole with so far few effects except the joint stiffness. Have even been back to the gym trying to brazen it out in the shared changing room - the typical Brit on the beach getting dressed under a towel!
I sympathise about the hair situation. Mine is coming back white as it was before........but it is showing signs of being curly!! Having had straight hair all my life I'm looking at it and wondering how I will eventually style it. I have been without my wig for a few weeks now. I guess I would wear it for a wedding or something formal but in normal life the wig is just irritating because it keeps slipping off my thick thatch of inch long hair! Most people don't notice and seem to think it's a fashion statement. Someone even asked me why I had cut my hair and then nearly fainted when I said I had just taken my wig off!
Mascara - OMG how right you are - the joy of putting that on. I hated having no lashes but fortunately they have grown back very quickly. Nails are another matter. None have dropped off but those on my hands still look hideous, I'm praying they grow out as fast as possible. Neuropathy is still there in both feet and I just hope it will eventually resolve. Buying shoes is a challenge when they ask "how does that feel on your toes" and the answer us "I have no idea".
Like most of you, I'm struggling to come to terms with everything now that active treatment has finished. Am trying to book a Moving Forward course but there are very few within striking distance of me. Has anyone done the course and did you find it useful?
Wishingyou all luck with the next steps and few side effects from hormone therapy.
Sue O x
Hey girls.....do you realise we are now talking about holidays!!!!!
Not just doom and gloom but having fun and a life again!!!!
Isn't that a good sign????
Olddawn....hope Cornwall is great...mind the low branches and dont get the wig caught again!!!
I was a barmaid in the Sailors Arms in Newquay when I was a student and still recall how cool it was! Those Australian surfers!
Sue ..I have a few curly eyelashes too its a bit odd but better than none which I hated - I really looked awful and now its a great pleasure to put on mascara every day.
Maryminder ...Im just back from a weekend with my sister in Donegal (most beautiful place in Ireland) and pushed myself to exercise all the time which was hard but omg worth it. Im aching today and doing a lot of staring into space with my mouth open! Even so I was gardening....doing a bit and taking short breaks and doing more even though I just want to sleep. It really is the way to get stronger ladies
Herceptin....done 9/18 like Dawn.....yes the SEs are diminishing (still trots, runny nose, numb toes, mild hand problems)
Im still going to yoga in the MacMillan Centre at the hospital...love it and the chat after with likeminded people is such a mental boost.
Hair.....omg. I dyed my convict hair blonde for the second time and it hasnt done it any harm. Its much better than the shock of grey/white. Its peeping out round the wig and I can see its going to be a bit difficult to deal with.
Went to an Edith Piaf tribute concert (brilliant!).
The woman sitting behind me said to me in the toilets "I LOVE your hair!" I nearly hit her! How could a complete stranger think it appropriate to say that to me?
Its like asking someone when their baby is due! I had had a few glasses of wine so told her it was a wig. You should have seen her face. I wish I hadnt now of course cos she clearly told all her party and they made a point of talking to me and hugging me after the encore.
I hate any kind of pity so thats taught me a lesson ....say nothing.
I hope you are all loving this gorgeous weather and getting outside as much as possible. I know its exhausting but go for lots of fresh air and exercise and you will get stronger mentally and physically.
Be good to yourselves. I am.
Hugs to all you ladies and be proud of where we have got to and how we have fought to get here.
Well done for getting back into your favourite pastimes and so glad you had a well deserved break,although the thought of caving has me running for the hills
The first meeting today was really good, lots of information re exercise,diet and generally taking care of ourselves, but to say something and have other ladies say "that happens to me as well" makes you realise that you are not alone in how you feel.
I managed to talk to a BC nurse today about my shoulder and she has suggested I refer myself for physio at my local hospital as it is still quite sore and uncomfortable, she also said my surgeon will be at next weeks meeting talking about the after effects of surgery and I should be able to have a chat with him and he may suggest seeing me in clinic just to check things out.
Had a lovely but exhuasting weekend away with my sister and surprised myself by not wearing a hat at all, everyone on the trip was supportive and so complimentry about my hair growth it didn't seem neccesary to cover up, and although on the street there was a few second glances it was great, if a little cold at times, so have decided to be brave and ditch the headgera altogther
Today I begin my Moving Forward Course so will let you know how it goes
Hope everyone had a good Bank Holiday
Hugs Mary xx
Nice to see you are all 'moving forward.' The Moving Forward course I have booked myself into isn't until June, but I should have moved forward a bit more by then.
Sus12 - I'm impressed too - you are braver than me! I am now going 'bareheaded' at home, even with visitors, but I'm still wearing the wig to go out. I don't think my hair is quite long enough for the hairdresser to be able to do much with it (OH says I look like a convict). My eyebrows and eyelashes are OK, although the hairs on my legs are definitely crinkly (note to self - get some depilatory cream tomorrow). My fingernails are also much improved apart from dry flaky bits at the tips, but I think the last of the T ridges should be gone within the next 6 weeks!
Suebond88 - sorry to hear you are getting pains from the Letrozole. I hope it settles soon. It may take a few weeks for your body to get used to it. The May 2017 Radiotherapy thread is now up and running on the Radiotherapy board if you want to join in when you start. I finished radiotherapy just before Easter. The travelling to and fro is a pain, as is waiting around when appointments are running behind. Otherwise, the main things to note are: use only perfume free skin products, moisturise often (take some moisturiser with you to put on after treatment), keep well hydrated (drink at least 2 litres a day and take a bottle of water with you), wear loose, comfortable cotton tops that won't rub the treated area (ditch the bra when you can, otherwise wear soft, cotton bras or crop tops over cotton vests), and let them know as soon as you notice any change that concerns you.
Aine - glad your fatigue workshop is helping and your SEs are diminishing. They do eventually, although it takes time. It is not easy to be patient when it has taken us so long to get this far, and we just want to get back to 'normal' (whatever that is).
I have been taking Letrozole for 3 weeks now, and haven't had any serious effects from it, just the occasional hot flush and creaking joints with occasional mild pain - my joints sound a lot worse than they feel! I think Aine is right though, that forcing yourself to exercise helps. I probably would be worse if I hadn't.
I went to see the oncologist for my 3 monthly review on Monday and everything seems OK. Echocardiogram and blood test normal. Also had Herceptin 9/18 Monday afternoon so halfway there already! The effects from Herceptin have settled, and are not significant. They consist of red flushed face and the trots for a day or two after the injection, and a runny nose. I wouldn't have known that these were the effects of Herceptin if I hadn't delayed the Letrozole.
I asked the oncologist about a bone density scan, and he said I didn't need it, as someone my age (53) shouldn't have any problems at this stage. I am also taking the Adcal tablets as a preventative. Unless there are any signs of osteoporosis in the meantime, it looks as though I won't have a scan until the 5 year milestone.
Anyway, to celebrate the end of my active treatment we decided to book another holiday, so we are off to Cornwall for a week next Thursday. Before we go, I've got another OH appointment on Tuesday, and I am hoping they will agree this time that I am fit to return to work as soon as we get back.
We thought it was safe to book a holiday because I didn't seem to have any problems from the radiotherapy. When I finished, the site of the boosters was a bit red but not sore. Unfortunately this red patch has now developed into an itchy rash. This is despite continuing to moisturise with aqueous cream several times a day as advised. I rang the hospital about it this morning, and was told people often get a reaction a couple of weeks after radiotherapy, but it should go away on its own after about a week. Meanwhile, they suggest I use the Flamazine cream, sparingly, as this will help reduce the itching and stop infections if the skin breaks. I have started to do this, and hope it will be under control by the time we go away!
Onwards and upwards I suppose - there's every chance things will be better forvall of us by the summer. Hope you all continue to improve, and if you still have radiotherapy to come, I hope it goes well.
Auntie Julie - fantastic to get that op over - spoil yourself from now on! Remember that feeling terrible over the next few months is what we all had to endure - and it will eventually be over and you will feel better when it is over......Im 3 months post chemo and I am glad to say that I feel better every day.
Sus - I am so impressed by you doing the 'itch or ditch' as I call it!!! I have a nbr 2 hairstyle also and havent the confidence to go au naturale yet!!!
I was at a fatigue workshop today and one of the girls has a nbr 1 grey hair and is showing it off proudly. We went to starbucks for lunch after and you know something no-one batted an eyelid at her and I was watching.
I think it is becoming more common to see skinhead haircuts on women. I am hoping mine will grow quickly - I look awful - my wig is great but you can see a bit of hair around the hairline and it looks odd. I am not the 'ditch' kind. My wig mesh is getting loose and looks odd. I am entitled to another wig now and hope to get it next week.
Anyway - fyo - my SEs are diminishing - hands are a good bit less sensitive and the numb toes seem to be improving.
Herceptin - bad aching legs have now gone - I am completely convinced that my pushing myself to exercise has helped enormously. Girls - force yourself to get up and move more! Take shorter rests and keep going....it will help you physically and mentally.
Keep letting me know how you are getting on at this stage - it is sooo interesting to hear how you are all getting on....
Be good to yourselves
Good evening everyone,
i too am on Letrozole and am experiencing bone/muscle aches 😔Am hoping they will subside as my body gets used to the medication - it's been two weeks now and sometimes it feels as if I've done a major workout in the gym! Am waiting for my bone density test, and am due to start radiotherapy on 10 May. Had my tattoos etc last week....
my surgery scar is healing well and on the whole am feeling much more myself, although my nails are rubbish (toes and fingers) - seems to be a common problem🙄
Aunty Julie - hope you recover quickly from your surgery - stay strong.
Sue F. - well done on your 'damn it all' moment this afternoon, I'm sure no one was looking/noticing and if they were - it's them with the problem👍
Can't believe how cold it's been the last few days - we've had (Derbyshire) snow flurries, hail and sunny moments too, but because of the wind, it's felt like winter!
has anyone been told whether they can have chiropractic treatments? Used to have them regularly post BC, and need to start again (shoulder/elbow) - am waiting for Dr to get back to me, but just thought I'd ask..😀
Auntyjulie - well done for getting to the next stage of the treatment plan. Have a good rest now, and hope you aren't in too much pain and discomfort.
Your aches are probably Letrozole not Herceptin. I (naughtily) delayed starting the Letrozole until the radiotherapy was nearly finished, so I can be pretty sure that the Herceptin hasn't caused any aches and pains. I have been taking Letrozole for just over 2 weeks and have no extra bone or joint pains from it but my joints are creaking more! I am also taking Adcal tablets to prevent calcium deficiency.
Snail I would never get away with it, even if I wanted to be a dodgy planning officer, which I don't. My property empire consists of my share in our house. I am not going to be renting out the shed and garage as HMOs, mending cars on the front drive, or dumping rubbish on the open space at the back of us any time soon!
I'm still trying to get back to work after finishing radiotherapy. Dealing with developers and councillors is probably a doddle compared to kids, but I don't know how well I will cope after such a long time off. I've asked for another OH appointment before Easter, just before radiotherapy finished, but have heard nothing. Had to go back to GP last week for another sick note to cover me for the next month.
Well all active treatment finished at the end of March so have been trying to get myself energized but failing miserably, doing short walks every day but just so tired all the time and have been having quite a lot of discomfort and restricted movement in my shoulder (mastectomy side) which seems to have gotten worse during Rads, have been doing arm exercises but I am seeing my Onc at the end of May so if still not right will get it looked at, have a host of questions re diagnosis, treatment and prognosis so that I can try and make sense of it all.
I had taken early retirement in March 2016 and fully intended to get some sort of part time job in the summer but was diagnosed in June, so not working meant I have been able to concentrate on getting through all the c**p, finances have been tight at times but managable, will probably wait now until after reconstruction before dipping my toe back in the rat race and then only part time, OH and I have spent some time mulling things over and as he also had a major health scare 3 years ago (aortic aneurysm) we are looking at getting a better balance for both of us.
Hair is going crazy but still wearing hats as not brave enough at the moment to venture out without them, eyebrows and lashes are growing, nails on hands and feet have been affected (yellow and peeling), I have started on the Letrazole (10 years) and Ibandronic Acid(3 years) so far so good with regards to SE's, have found myself very emotional recently and strangley felt cast adrift by the doctors etc for a while as no longer back and forth to appointments, spoke to my BC nurse who helped calm me down and helped me see that someone was always available if I needed them.
I have my dates for the Moving Forward Course and the first meeting is on the 2/5, it's been lovely to have all you ladies on the forum to chat with but I realised I haven't actually spoken to anyone face to face who has been through this as well other than a few words at clinics etc, I have heard really good reports about the course so will let you know.
This weekend I am venturing away from home with my sister, we are going to Weymouth on an organised trip by coach and I am really looking forward to it, we will find a nice bar on the seafront and watch the world go by like a couple of old fogies
Hugs and best Wishes to you all
Hi everyone! Hope you all managed to have a great Easter.
Wasn't it great to be able to get out and about!
I am going to make a list of questions like some of you - with a view to getting my head round the whole experience and getting it clear as to what I have been through. I am fuzzy as to everything before chemo! Cant even remember if mine was a grade 2 or 3.
My onc was off for 4 months getting a hip replacement so I should have seen her in Feb and still havent an appt. Its ridiculous isnt it. I have to get a nipple tattoo and get the other boob 'evened up'. And think about when Im going back to teaching. Realistically I will go back the last day of term to get paid over the summer. I am really dreading it. I have told no-one why Im off - they all think its 'womens problems' which means a hysterectomy!
My hair is starting to grow but certainly couldnt go out 'sans wig' yet. I am very worried that it wont be ok for Sept when I have to go back to school. I finished chemo end Jan so will be 7 months - surely it will be ok?
Herceptin Nbr 9 was ok - SEs are minimal now and Im getting fitter and mentally stronger.
Im doing a Fatigue Workshop at the hospital - it is great crack! A motley crew of characters at it and we have a lot of laughs. I recommend it. Talks from physios, social workers, nutritionist, complementary therapists and rehab people.
The best thing I have done over the past 3 months is to force myself to exercise.
Everytime I want to lie down and sleep I have gone outside - gardening or walking the dog - and omg it has really helped me physically and mentally. I pace myself and take a short rest afterwards. And then get up again and find something to do.
And also going out shopping - just to be in crowds of people and passing the time of day and a wee chat with people is sooo cheering.
Tesco have a great offer on wine! My usual bottle was usually £8 and you can get 6 bottles for £5.60 each so I am going out to stock up today!
Keep in touch - I love reading how you all are moving forwards. We still have to support each other in the next stage of our journeys.
Be good to yourselves 🙂
My tumour was grade 3 and I did have a CT scan at the start before surgery (I had surgery first) to check for secondaries, as they already knew from the biopsies that it was in my lymph nodes and therefore invasive. Luckily it was negative for spread.
I saw the oncologist recently at the time I completed radiotherapy. I sort of anticipated another CT scan but nothing was mentioned. My next appointment us in 3 months, so maybe the topic will come up then.......
Like you I' m a bit confused as to the criteria for these things.
Hope you get some satisfactory answers from your Onc.
I'm having a wobble at the moment. Does anyone know the criteria for having a CT scan? Some ladies I know have had CT scans to check for spread and apparently it is the standard for Grade 3 cancers. Mine came back at Grade 3 after pathology of my operation and was also in one of the sentinel nodes but I don't know if I should be asking if I should be having one now that all treatment has been finished. I'm due to see the oncologist next week for my six week follow up and I'm jotting down all my side effects and questions to ask for when I see him
Hello again October Starters, it's good to see that most of you have now finished active treatment and are 'moving forward' as it were. My radiotherapy is nearly finished so I am hoping to return to work at the beginning of May. I have also booked myself onto a Moving Forward course in June/ July.
I've got Letrozole too, and like many of you I am not happy about taking it for 5 years let alone 10. As I have coped with radiotherapy better than I expected, I started taking them on Monday. I have just about got my head round the best times to take the Adcal tablets, because the leaflet says not to eat or drink anything high in oxalic acid, phosphate and phylic acid within 2 hours of taking them. This includes wholemeal cereals and bread, leafy vegetables, rhubarb, bananas, nuts, coffee and chocolate! If you take the Adcal at 10-11 am and 10-11 pm you can eat what you like for breakfast, lunch and tea, but you still have to be careful about snacking at night.
I haven't had a bone scan yet, so I have no idea whether I have the beginnings of osteoporosis or not. Maybe the oncologist thinks I am a bit young for this at 53, but I have been given the Adcal as a preventative. It's too early to tell whether the Letrozole are going to have bad effects, but you'll know if I start posting rants about it on the Hormone Therapy threads!
Why is it your nails actually get WORSE after chemotherapy finishes? None of mine have fallen off, but they definitely got drier and flaky at the tips following chemotherapy, where the ridges have developed. They are starting to get better now that new growth is coming through and I have been clipping them short to remove as much of the grotty bits as possible.
The return of the hair is a welcome sign though, especially as summer is round the corner. Meaning it's time to put winter hats away and wigs will probably get too hot and itchy to wear. My hair is growing fairly quickly now and I have mostly full coverage, but it isn't quite long enough to go public with yet. I also have more grey hairs than before.
Suebond88 - good news on the surgery results. I had seroma after surgery as well but it settled down eventually. They will probably tell you to carry on doing the exercises up to and throughout radiotherapy, as this helps. I also think it helps prepare for radiotherapy if you start moisturising beforehand as I did. There are monthly radiotherapy threads you can join when the time comes if you want to find out more.
Sus12 - hope the Hydrogel helps with the soreness. I have been given this together with something else called Instillagel in case of soreness or skin breakdown, and the advice is to mix them together before applying. I haven't had to use them yet because aqueous cream has been enough. Mind you I have been plastering it on 4 times a day. I will probably keep the gel things incase problems start after I have finished.
Maryminder - I have had itchiness as well, but the aqueous cream helps a lot. If you are sore it may be worth asking for something better than E45 such as Hydrogel, which everyone who has used it seems to recommend.
Swampy - you can't possibly be more of a raving loony than me (I probably had a head start before chemotherapy, but 'chemo brain' is a good excuse).
I wish you all well as we all move forward out of active treatment and towards some semblance of normality.
I am on Letrozole as well but for 10 years, my Oncologist has also prescribed Ibandronic Acid for 3 years as this helps re Osteoporosis etc, might be worth asking your Onc about it. Enjoy the birthday celebrations and good luck with the radiotherapy.
Sus12, hope you have a lovely easter with your daughters, know what you mean about doing something nice after so long dealing with hospitals, can still eat chocolate so will hopefully get an egg or two but I have found that alchohol gives me hot flushes, still managing the odd glass now and then though.
Happy Easter to you all
Sus12 - Sorry to hear that you are still suffering with post rads side effects - it can be very sore as I found out for myself. I was prescribed Hydrogel by my GP and was told to be liberal with it and used it 3/4 times daily at its worst as it was so soothing and cool. I think it's the heat that makes these things so uncomfy would a cooling ice pack help at all? As for the fatigue - that's all normal - I'm now a month post any active treatment and one day have all the energy of a Duracell bunny and the next I'm like - who took the batteries out?? But you do pick up and improve - everyone says to me how well I look (which can only mean I did look blooming awful while going through treatment!!) but it's amazing how much better you begin to feel once all the active treatment is over.
Mary - the tightness seems to hang around for a little while - I seemed to develop large areas of hard necrosis in my reconstructed boob but a few weeks on it seems to be softening up again but then massaging with E45 could be helping with that!!
Suebond - I'm glad that your seroma has improved and that you will soon be moving on with your next stage of treatment. I'm not on Letrozole but Tamoxifen is just as capable as its counterparts of producing new side effects. The problem is working out which is a throw back from Chemo/Radio or the Hormone therapy!!
I don't think we ever really know our limits lol - we are so keen to get back to pre BC normal that we forget the treatment we have all had is a lot harsher than we ever believed it would be. I have been on occasion - really emotional over really ridiculous things and live in dread of having a total meltdown. I've not been for proper counselling yet but had a really good complementary therapist at our hospice who has been a wonderful shoulder to lean on throughout my treatment. It will be interesting to see what happens on the Moving Forward course in May as hopefully I will be in the middle of my phased return to work and might be a raving loony by then.
had ad a pre radio appointment with my Oncologist and set the process in motion - should go to the hospital for a pre rad appointment within the next few days. Seroma has settled down - am at Clinic this afternoon to have a follow up.
Have been put on Letrozole.......anyone else on this? Am concerned as the side effects include osteoporosis and joint pain - as I already have arthritis in my hands and my mum has severe osteoporosis, am not looking forward to it! 😳 My Oncologist says to not worry as they will monitor me (bone density test surgery etc). and will change my tablets if necessary......can't help but worry though as I'll be on them (like everyone else) for 5 years. Must admit the hormone therapy is worrying me more than radiotherapy.
It's my husbands 60th birthday this weekend, so looking forward to a weekend of celebration/commiseration although neither of our kids will be in the country😒 We should have been celebrating together but this bc reared it's head Andy I can't fly 😔
Sorry, sounds as if I'm feeling a bit sorry for myself at the moment. On the other hand, physically I'm pretty good at the moment with only a few side effects from the Chemo lingering.
hope everyone has a fabulous Easter weekend 😍
I finished Rads 2 weeks ago today, my breast area is still quite red and feels tight, it is not sore but certain areas are really itchy sometimes, still slapping on the E45 morning,noon and night.
Like you tiredness is a problem but considering what we have gone through i think this is something we will have to deal with for quite some time, as you say some days are better than others, I am trying to do a little at a time but it is so frustrating.
The other day I had to stop halfway through doing something and was getting quite upset when the quote from Harry Enfields character Mr Chumley Warner popped into my brain 'Women Know Your Limits' and I found myself laughing out loud instead, OH thought I had finally gone mad
Youngest son will be home tomorrow for Easter:smileyvery-happy, looking forward to spending some family time all together, when he was home last I was still having Chemo so not the best of times.
Wishing you and everyone a lovely Easter
I forgot that one!! the toe nails!! Some of mine are lifting but have not gone yet and my fingernails have little ridges like tree rings!! Probably one for each chemo treatment lol!!
It's good that you are planning to be more active - I have been persuaded to do a 5K run (it'll be a walk!! in my case!!) for Charity with my sister and niece in July so that will be fun.
I finished Radiotherapy on the 29/3 seemed really strange not to be at a hospital, hair is growing back and like you Swampy poeple have begun to comment on how well I am looking ( must have been a right mess before ), one SE of chemo which has waited until now to rear it's ugly head is the loss of my finger and toenails they went a really strange colour and have now started to peel off but only the top half !!
I began the wonderful hormone tablets and ibandronic acid after rads and am hoping that joints etc will settle down after a while, I do not work so am trying to be more active, I get out walking most days, and i am planning on joining a couple of local support groups one of which has exclusive access to a swimming pool, so no need to worry about things popping out when in the water, and I have also decided at long last to join a choir, something I have always talked myself out of due to lack of confidence but I love singing and if I can deal with BC i can do anything .
I am also booked on a Moving Forward course in May, will see my Oncologist in May to review treatment and then Surgeon in October to disuss reconstruction early next year, until then will enjoy the sunshine and recuperate.
Hugs to all
How are you all getting on? I know the majority of us have completed or are very near to finishing our treatment regimes but it's always good to catch up.
After all the aggravation of my skin breaking down after the radiotherapy I'm happy to report that following lots of loving care and loads of Hydrogel!! my skin is now back to normal and I can wear a bra without a dressing/padding etc.
I still have a few lingering side effects - still have the occasional weepy eyes, peripheral neuropathy in both hands and feet - not painful but still aggravating. My husband said I was out for the count the other night but my feet were dancing a jig in bed - he ended up getting up to make himself a brew because it was so maddening to him (bless him!!) The eyebrows, eyelashes and yes hair!! are all beginning to show themselves. I cold capped throughout treatment so the new hair is so far is white - it remains to be seen if it stays that way or if it starts to grow with colour in. My hair is now growing the coloured hairdressers part, my normal hair colour and lots of gray/white which would have been covered by my regular hairdresser visits. Now I'm trying to decide whether just to let my hair do its own thing - I'm reluctant to colour while I have new growth as a BC friend said her hair was so porous that blonde went bright yellow and to leave off colouring for as long as possible. But my daughter thinks I'm too young to go grey!! and thinks it will make me look older and discussions about being on trend with grey are for younger people!! lol!! I am getting aches and pains particularly in my back (similar to when I was on the gcsf injections) but that could be down to being more active - gardening etc but nothing seems to ease it - tried heat packs, painkillers, rest, gentle walks - I suppose if nothing else I could try the anti-histamines again - they worked before lol!! But then again it could just be a side effect of the lovely Tamoxifen!!
But the best thing is how finishing treatment seems to switch on a real healing vibe. People comment about how much brighter and how well I look (make up helps here - the Look good feel Better course is coming into its own now lol!) I do feel loads better - maybe it's because the treatment does really drag us down and we don't realise it.
I do have fatigued days which are frustrating but I'll have to live with those and see how things go when and if I start my phased return to work in May. But a final decision on that will be made when I see the oncologist in three weeks time. Still waiting on my next appointment with the plastic surgeon for when the next phase of mastopexy and tidying up of my reconstruction jobby will be discussed but other than that life is good and there for the living!! Oh and I'm booked onto to a Moving forward course in May because I still feel I need to sort stuff out in my head but not gone the full counselling route yet. My Hospice worker has been an angel with chats and things when I go for my reflexology treatments but sadly they are coming to an end so it remains to be seen if I need any further help there - my GP says to see how things go - it's always an option later.
So that's my update - how about everyone else? It would be good to hear how you are all getting on. We will all have good and bad days in the future but the lovely sunny days we have been having are a sign of good things to come.
Good morning everyone
so good to hear that most of you have finished the radiotherapy treatment. What a great feeling although emotional to reach the end of the treatment journey...onwards and upwards now, with the help of this fabulous spring weather!👍😍
i have yet to start my radio treatment. I had a second surgery 2 weeks ago, and although my follow up is on Friday I went to the Breast Centre yesterday as my left boob had become sore and swollen. My surgeon was actually there, and aspirated 125ml of fluid - I think the term is a Seroma? Anyway, I am a lot more comfortable now, and a bit less worried as he also told me that the biopsy results came through clear👍 And that the Chemo had actually done it's job as there were signs of 'killed off' cancer cells. So all those treatments, cold capping and side effects were worth it...
my medical team are having a meeting on Thursday to discuss the next stage of my treatment, which will probably be radiotherapy, will find out on Friday. So I've been keenly following all your comments and advise re dealing with the radiotherapy.
here's to us Ladies 👍 And fingers crossed this fabulous weather continues...it does make you feel good 🌞🌞