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October 2016 starters

1,371 REPLIES 1,371
Snail888
Member

Re: October 2016 starters

Hi sue
My brother works for ba. He says the strike is only.a small number of cabin crew and mixed fleet. He doesn't think any flights will be cancelled. Last time they had a strike it didn't affect any flights and he also thinks there will be a last.minute agreement anyway. I hope that helps settle.your mind since you deserve this holiday x
suebond88
Member

Re: October 2016 starters

Oh Sue,

 

i feel for you.  Sincerely hope you're able to go.  Hopefully they'll sort out their problems before then and call off the strike.  Typical though, high season!!  I know they do that intentionally but it still doesn't help!

we've just returned from a short break in Spain...just a word of warning - wear your flight socks.  I did, and still had that awful heavy leg feeling for a full 12hours after we landed. Drink plenty (water 🥂) and stretch out often.  Hate to think how I'd have felt I felt I hadn't worn them😳

Hope you're able to go - keep us posted.

SueBxxx

Sus12
Member

Re: October 2016 starters

I really hope that you can still go Sue. Keep your fingers crossed maybe they will sort it out before you go!
If you've booked the 2 things separately then you can't claim from BA for missing the cruise but if you've just paid the cruise people inc the flight then they have to sort it out or refund you.
You may well know this though!
Hope it works out for you and you get your hol 🙂
Hope everyone is ok and doing well. Thinking of you all.
Sue F xx
Truey
Member

Re: October 2016 starters

Hi Everyone,

 

Really fed up today, so here is my rant alert!

 

After diagnosis I had to cancel the "holiday of a lifetime" that my husband and I had booked to celebrate our 40th wedding anniversary. We re-booked for July this year and it has been a beacon of hope in front of me throughout treatment.

We we are flying to San Francisco to join a cruise through the Panama Canal. 

 

So so why the rant? We are flying with British Airways and are scheduled to fly during the strike they announced yesterday 😨

 

They may may sort it out I know but I can't get it out of my head that we may not get out there to board the ship. I'm not even sure our travel insurance would pay out in the case of a strike, so there would not be another booking.

 

I feel really selfish posting this when so many people in London have lost everything. As A survivor of cancer. I feel pretty lucky in comparison but it is still hard to get my head round this. It has been so much a focus for me during the dark days of chemo it's hard to accept it may not happen......

 

Apologies again for sounding off on this glorious Saturday morning!!

 

Sue O x

maryminder
Member

Re: October 2016 starters

Hi All

Missmc, I like the idea of bottle of nice red Smiley Happy

I will make a note of Anastrazole and if the Onc decides to change my medication will certianly ask him about it, I will be on tablets for 10 years so need to get the right ones.

Take care 

Mary x

 

miss.mc
Member

Re: October 2016 starters

Hi all
Great news MaryMinder - perhaps a bottke of 'The Ned' (nice red wine) to celebrate! 😊

I had an immediate DIEP flap reconstruction when I had my mastectomy on 2nd September last year. I am very happy to share my experiences or answer any questions if it would be helpful to others.
I will try to post a photo of my tummy scar (which I always think looks like a big smile. Actually, combined with my belly button (nose) & breasts (eyes), my while torso now resembles a big smiley face!! 😂

Karen x
Sus12
Member

Re: October 2016 starters

Hi all. I think it must be very individual. I've been on Letrozole for just over 2 months now and no se's at all so far so keeping my fingers crossed lol. I guess it's just down to what suits you.
Great news Mary re your bone scan and NED result :). Hope your other issues get sorted asap.
Sue F xx
Truey
Member

Re: October 2016 starters

Hi Maryminder,

 

I agree with Anita. I'm also on anastrazole and haven't noticed any huge side effects other than the joint pains/stiffness and some mood swings (randomly from enthusiastic for my new life to depressed and fed up). It hasn't been as bad as I feared - which is good as I'm stuck with it for 5 years.

 

Did notice some facial hair growing though! Will have to start shaving it off as I don't fancy sideburns!!

 

Sue O xx

fairycake2
Member

Re: October 2016 starters

Hello maryminder

I'm on Anastrozole and although I do have joint pains, my side effects seem to be more manageable than what you're describing.  My oncologist said Anastrozole was the most recent and a better version of the hormone therapy than Letrozole.  Just thought I'd share that with you.

All the best

Anita

maryminder
Member

Re: October 2016 starters

Hi All

 

Finished Rads at the end of March I have been on Letrozole since then, I had my follow up appointment with the Oncologist yesterday, managed to get answers to all my questions, I explained that I had absolutely no appetite, I am losing weight, joint pains and very bad mood swings, he said to stop the tablets for 4 weeks and see if things improved, will see him again in July to change medication if necessary.

 

Amazingly he had the perliminary results of my bone scan from Monday which showed no spread, will have physio for my shoulder but could take 6 months to recover from effects of Rads, good news is that as of yesterday I am officially NED (no evidence of disease):smileyvery-happy:

 

Fairycake2, I will see my surgeon in October to discuss reconstruction but have already decided on Diep flap if possible, although it won't happen until next year.

 

Hugs and Best Wishes

 

Mary x

fairycake2
Member

Re: October 2016 starters

Hi everyone

To those who replied to my recent post about intrusive strangers asking about treatment - thank you! I didn't think it could be just me that that has happened to!

I finish radiotherapy treatment next Wednesday and am also feleing very apprehensive about 'life after treatment.'

Is anyone thinking about reconstruction yet? I went to a meeting last night at the local hospital where a reconstructive surgeon asnswered questions and some women who had already had the operation showed us the results.  It's much better than seeing photos - somehow doesn't look so bad in the flesh! Having had a skin sparing mastectomy and a prosthesis inserted at the time, I think the DIEP flap seems to be the best option, although I wouldn't be having that done for at least a year.  Any thoughts?

livvy
Member

Re: October 2016 starters

Hi everyone,
Just to let those of you with mammogram's coming up know, I had my first one last week and to say I was petrified is an understatement! However I was in and out within 15 minutes it wasn't painful at all but I did take painkillers an hour before my appointment just incase.they said I would get my results by letter in 3 weeks,well I got them in a week! And it was satisfactory,could of been worded a bit better but its the term they use apparently. So i feel ecstatic and ready to enjoy the summer finally! Good luck to everyone and I hope everyone one of you gets good results! Xx
Aine
Member

Re: October 2016 starters

Hi everyone!!!

I was diagnosed last July.   I have a review appt with my Consultant in June.  I requested a mammogram prior to this appt.  The nurse on the phone said you dont have one until a year after your previous one.  I will discuss it at my appt.

 

I agree that after active treatment you are left completely on your own....you go from lots of appts and medical staff looking after you so well...to nothing.   I am on Herceptin every 21 days but I get a quick phone call prior to it and am in and out so quickly with just a quick chat with the administering nurse.  We need a system to give us support over the first few months.

 

It is such a shock to have to to deal with strangers mentioning our illness.  I believe they are not trying to upset us but it is hard not to be upset.  I think that saying you dont want to discuss it is a good tactic and would work.  When I go back to work I am going to say that if anyone asks me.  I will say it in a cheerful way and immediate ask them how they are or ask about something else....hope it goes ok.

 

I still go to the Macmillan yoga class on a Wednesday and meet up with lots of women who have gone through BC.....that is my way of getting support.   I recommend Macmillan or Action Cancer classes....really great fun and a laugh.

 

Stay positive and strong......Aine XX

 

 

miss.mc
Member

Re: October 2016 starters

Good luck with your final rads SueB. I also felt really emotional about finishing mine. The routines of treatment have taken over our lives for so long - and then suddenly they come to an end. I felt quite lost and tearful at that point. It felt like there ought to be something to mark the end of treatment, and some kind of 'debrief to help us process & help us come to terms with what has happened. I am on a couple of research trials & have found that helpful in a way. Yes it's a bit of a drag having to go in every so often for bloods, clinics, checks.... but I am grateful for the continued contact and monitoring.
My (now annual) mammogram is coming up in about 2 weeks. I can't believe it's been almost a year since my 1st one & the diagnosis. Feeling a little apprehensive. Has anyone else had a mammo since diagnosis?
K x
suebond88
Member

Re: October 2016 starters

Good Morning Ladies,

 

Fairycake - so sorry to hear about you encounter with an ignorant member of the public.  I wholeheartedly agree with SueF.  Ignorance is no excuse for rudeness.

 We have all been through so much and learnt so much about not only our own bodies, but about people in general - the professionals around us and our own friends and family.  For the most part those around us have been fabulous and very supportive.

i was lucky enough not to have lost my hair (cold cap worked) so my illness has not been too visible to those who do not know me, but I too have had 'friends' come up close for a 'look' , and relatives whom I've not seen or heard from in years making curious unexpected contact, which has bothered me far more than it should have.

Head up, shoulders back, chest front🙄 And walk on by.

have my final rads this week👍Then it will be the end of active treatment for me - feeling very emotional as I write this....

had bone density test last week as a marker for the Letrozole and was borderline, so will be monitored closely, and have booked into a Moving Forward Course in June.

hugs to everyone having treatment this week.  Fingers crossed for your scan results, Mary.

sueBxxx

 

miss.mc
Member

Re: October 2016 starters

Hi Fairycake
Sorry to hear about your upsetting encounter. I mostly get glances & smiles from people when I go out in a headscarf or just with my stubbly head.
I have had a few people ask if I am having chemo - but I don't think they intended to be offensive or anything. I just said 'yes'. 1 or 2 then wished me well and asked how it had been, so I told them. They were definitely curious, but not in a nasty way. They seemed to appreciate the likelihood of cancer affecting themselves or a loved one & i think they were pleased to see that it can be survivable & that I was walking around doing something normal (I was at a flower show at the time).
I guess there will always be some people however who can be pretty insensitive & not pick up on the vibes that you dont want to talk. I agree with Mary Minder - some people are rather ignorant, or just simply not very bright. Your shop assistant doesnt sound like the quickest of wits. As you say Mary - our hair will grow back, but they will probably always be ignorant! (Sadly).
Would you be comfortable saying "yes, but I don't want to discuss it" if it happens again? That should put a stop to further insensitive queries and might even ellicit an apology!
I do hope you don't have any more difficult encounters. Stay strong - remember, we have all got through the hardest physical elements of this thing.
Big hugs. xxx
Karen
maryminder
Member

Re: October 2016 starters

Hi All

It's been a while but hope you are all doing well, I have my bone scan tomorrow for this flipping shoulder which is still causing problems, should get results when I see my Consultant on the 8th June, not too concerned but just want some answers so I can stop worrying. Smiley Sad

Fairycake, I agree with Sus12, hold your head up and walk on by, remember your hair will grow again. they unfortunately will always be ignorant Smiley Happy

 

Hugs and Best Wishes 

Mary x

 

Sus12
Member

Re: October 2016 starters

Hi Fairycake.
Unfortunately there are some ignorant people out there (and I mean that in the true since of the word). They really don't have a clue what to say or how to behave when they come across someone who may be going through or have had cancer. I've had people stare and sometimes re stare! I lift my chin in the air and stare back at them!! They usually then look uncomfortable and stop and hopefully realise that it's not a nice thing to experience and may think twice if they think about doing it to someone else. It is very different from just a brief glance which is fair enough - we all do that. I have found though that thankfully these people are by far in the minority. Most people are either too busy getting on with whatever they are doing or just smile if they catch your eye like you would normally do and so I just smile back :). I haven't even had to put up with the 'sympathy look' so far lol. It is hard though when you're trying to deal with the emotions of having lost all or most of your hair and having to go out with a headscarf or even no headgear at all (which is what I'm doing). It's too hot for me to wear a scarf all the time and I ditched the wig because it was too hot and also annoying me some time ago. I think you just have to try and let it go when you get the odd stupid comments. Just have to try and ignore it and not let it get you down. Generally people are very good. I worked for years with children with a disability, some severely so and you should have heard some of the equally ignorant and stupid comments made! Unfortunately a few people are just like that :(.
Hold your head up high with or without your headscarf and just think of a suitable retort if you feel like saying something should it happen again so you're prepared!
My two daughters came up with yes I have had breast cancer what's your excuse? :D. Too much for me to say but I'd probably say yes I've had breast cancer which affects 1 in 8 women so I hope you won't be one of them......
Big hugs
Sue F xx
fairycake2
Member

Re: October 2016 starters

Hello all

I was upset today by an encounter I had in a shopthat I had never been in before.  I was wearing my headscarfand the shop assistant, a woman in hner forties, asked me, "You going through something? "  I batted the comment away and shook my head to show that I did not want to talk about it.  I was looking for the correct money in my purse when she had another go, " You on chemo, darling?"  I mumbled something and got out of there as quickly as I could.  But what I saw in her eyes wasn't sympathy, it was just nosiness.  I've never come across anything quite as crass before, although the taxi driver who asked me whether I'd got the mild sort of cancer comes a close second.

I've only been wearing the headscarf for a few days as the wig is uncomfortable and hot, but if I keep getting these sorts of comments I may have to rethink!

Anyone else had to put up with this sort of thing?

Aine
Member

Re: October 2016 starters

Hi everyone!

I just realised that my long reply didnt post....

 

I am just delighted with all your photos of great looking wigs.....Mine looks like a lot of yours and yes my family and a few friends have said that it looks really believable tied back.

 

You all look so healthy and normal in your photos...who would know you had had such a rough time lately!

 

Hugs from Aine xx

JoJo45
Member

Re: October 2016 starters

Hi ladies, the caffeine shampoo I've been using is called Alpecin which I bought in Boots, expensive but you only need to use the tiniest amount so will last for ages.  I went swimming with a friend yesterday and she was convinced she could see my hair growing in the pool 😆😆.  

 

Annie, I tie both my wigs back in a loose ponytail so that it doesn't pull the sides of the wig 

IMG_1909.JPGIMG_2716.JPG

Not sure why they came out sideways 

xx

Truey
Member

Re: October 2016 starters

Hi again,

 

There are several shampoos. I use Plantur 39 but I have heard great reports of Nioxin too. No need to go to a specialist shop, I found some at Boots 🙂

 

Hope that helps. Good luck!

 

Sue

miss.mc
Member

Re: October 2016 starters

Oooh - think I will try the caffeine shampoo too. Haven't been using any shampoo as there's not enough hair to wash really 🤣 What's it called?
miss.mc
Member

Re: October 2016 starters

Morning everyone
I am getting into a nice routine of checking the chat thread while I have my 1st cuppa & take my Letrozole each day. 😊 Good news for today is that I have finally received some unpaid wages & redundancy money from the Government insolvency department. Hurrah! 🤗 Its not as much as I would/should have got for my grade, (as the government amount is capped), but it's something - and I'm very pleased to get it.

I have spent lots of time worrying about what I will/can do in the future, since I don't have a job to go back to. I am not in a position to start applying for a new job yet (lots more appointments & autumn surgery) - but I want to do something positive in the meantime. I have been thinking for some time about doing a blog/website that would help other people undergoing treatment, and had decided to focus on the challenges of hair loss (as it's almost harder to deal with than some of the treatments). My very dear friend Ayesha has hair loss due to alopecia, so we have decided to work on it together. We have chosen a name for it & started brainstorming the kinds of things we want to include. Am very excited about it - it feels really good to do something creative and positive. Will keep you posted on progress 😊

I am due to start on the PALLAS research trial next week. Have to go for bloods & clinical appointment to see if I'm randomised to take palbociclib alongside my Letrizole. Anyone else on this? If so, how have you found it?

Aine: I also found my hospital wig looked better pulled back in a low clip. I pulled a few strands out above the front of my ears to avoid that problem of seeing the wig edge. It worked ok. Is that something you could try with yours? Try not to worry about September - easier said than done I know!! 3cms is quite a bit - that would be a cute pixie crop. 😙 Could you have a chat with your head (or a colleague you are close to) and explain that you understand people want to be supportive & mean well, but would rather no one commented on how you looked. They could let other staff know before you go in. I did something similar when I was diagnosed & everyone needed to know - I knew I wouldn't cope well with everyone being sympathetic & concerned at school. They were great about it & it helped me.

JoJo - love your story about Mothercare. What a boost. You do look fabulous though - I can see why they thought you were mum.

Hope everyone has a good day
Much love
Karen x
Truey
Member

Re: October 2016 starters

Hi Aine,

 

I think caffeine shampoo is the way forward. I've been using it since the end of chemo - no downside so ii's definitely worth a try to stimulate hair growth. 

 

Sue x

Aine
Member

Re: October 2016 starters

OMG ladies!!!!!  OMG..

 

Im glad I asked a few days ago about hair regrowth!

What a response!!!!!

 

I have just checked in and am delighted to see your photos.....omg you are all looking great.

Not the sick, sunken face I have had for the past 6 months but healthy, bright-eyed smiling faces!!!

You are all Amazonians!!!

 

I cant tell you how heartened I am tonight by your photos.  I am spending quite a bit of time staring at myself in my bathroom mirror and trying to calculate if my hair has grown a millimetre since yesterday!  I hear it grows one centimetre per month.  Mine is growing slowly but surely and I probably have a Sinead O Connor by now.  (My nieces live near her and say she does always have short hair). 

 

Truey you are the closest to me in terms of dates....but your hair is much better than mine...yours just looks like a short cut you would never know you had been on chemo.  Lucky you you are over the worst.  Mine is nowhere near ready to ditch the wig.  I have started to tie mine back in a low hair clasp and it looks much better.  The problem now is covering the sides as the edges of the wig show easily.

 

JoJo ....what a great photo...I think your grandson is winning so far but you will catch up very soon!

 

The rest of you....aw it is great you are getting there...well done.

 

Hair dyeing......I couldnt stand the grey/white so I have already dyed mine.  Got it from Holland and Barrett.  It looks sooo much better blonde and the bits showing at the hairline are the same colour as the wig so arent that bad looking yet.

 

I have to go back to school in 7 weeks for a day so will have to wear the wig.  I am dreading it but I will try to avoid people in case they start telling me how well my hair looks.  School goes back in 14 weeks so I am trying to figure out what my hair will be like in  14 weeks.  3 cms longer?  its not enough really.  So I might have to start September wearing a wig.  I just dont know what to do.  I suppose I should not be worrying yet

 

Anyway it was so interesting seeing your photos.

 

Keep on being good to yourselves and keep exercising.  I felt very fatigued this morning but forced myself to get out and walk and it gave me so much energy all evening.

 

Aine x

 

 

 

 

JoJo45
Member

Re: October 2016 starters

Oh Ladies, loving the hair photos, it's so nice to have things returning, though now need a bikini wax prior to my holiday, (that's just not fair).  

I had my last chemo on the 22nd February and like you Sue, was completely bald.  I've been using caffeine shampoo so not sure if that has helped or whether this would have been normal growth.  It stated coming back very white but the colour has appeared in the last week or so.  

 

Thank you for the lovely comments on my baby pics, he's my stepson's, OH is a bit older than me, haha, so my theory is that I'm not old enough to be a nanny.  We're obviously very young grandparents though as the girl in Mothercare asked if we want to join their membership, ha ha.  We left there feeling good.  

 

Xx

suebond88
Member

Re: October 2016 starters

What fabulous photos Ladies...😍😍

would feel a bit of a fraud taking mine as I didn't loose my hair - cold cap worked.  

Fabulous photo JoJo, congratulations on the birth of your Grandson - very special

SueBxxx

maryminder
Member

Re: October 2016 starters

Hi Ladies

Loving the pictures I thought I would join in, this is me a lot greyer than I used to be, last chemo Feb and finished Rads 29/3, eyebrows and eyelashes doing ok, no hair on arms yet, have been going out without any heasd cover for about 2 weeks now so much nicer.

JoJo45 great picture enjoy the new grandson, no grandchildren for me yet Smiley Sad

You all look beautiful

Hugs

Mary xmary hair.jpg

 

miss.mc
Member

Re: October 2016 starters

And currently (2 months + after final chemo)

 

Brows and lashes doing well - hair still has a way to go.

 

WIN_20170515_16_45_33_Pro.jpg

miss.mc
Member

Re: October 2016 starters

Well that clearly didnt work!

2nd attemptIMG-20161113-WA0002.jpeg

miss.mc
Member

Re: October 2016 starters

Sue F: I think you are a month ahead of me.  I had my final chemo on 8th March, and final rads 3rd May. I was also pretty much bald following 2nd chemo as I had to shave off the whisps that were left.  Might dig out a photo of the pre-shave whisps - they were pretty awful.

 

I agree - You look far too glam to be a grannie JoJo.

 

I am on Letrozole too - started at the same time as my rads (10th April).  So far (touch wood) I havent noticed any drastic side effects.  I was already having hot flushes & night sweats as I am officially post menopausal now 😞   Also have joint aches, but apparently have some osteoarthritis in my hip joints so cant blame that on the Letrozole either.  Just hope its not making my hair thinner than it already was!! 

 

Karen x

 

(PS I think I have attached a pre-shave post chemo cycle 2 whispy hair photo....but Im not sure. ha ha)

Sus12
Member

Re: October 2016 starters

You've got more than I have! 😄
My last infusion was the 9th Feb so I guess if you add the 3 weeks onto that it would be around the 2nd March. I was pretty much totally bald after the last round of chemo.
Sue F xx
Truey
Member

Re: October 2016 starters

Hopefully this uploads correctly! Here is my "new" hair......

 

 

image.jpg

Snail888
Member

Re: October 2016 starters

Hi you are a very glamorous grand mother! I thoight that was your baby!
My hair is wild so I'm embracing the birds nest look by putting birds in it!
Sus12
Member

Re: October 2016 starters

Walking not walling! 😄 Although I could take the dry stone type up around here 😄
Sue F x
Sus12
Member

Re: October 2016 starters

Lovely photos Jo :). Now you can enjoy your new grandson! I finished my last chemo on Feb 9th. Will try and post a pic of hair growth since then if like you Karen I can workout how to :D. I have more than Jo but a lot lot less than Snail!
Anyone else started on Letrozole? I've been on it for 4 weeks and no se's yet......I'm particularly worried about weight gain as I've put on half a stone since diagnosis with not swimming, walling and cycling :(.
Sue F xx
miss.mc
Member

Re: October 2016 starters

Gorgeous photos JoJo xx
miss.mc
Member

Re: October 2016 starters

Thanks for sharing ladies. I hadn't heard of the Toppik fibre thingy - though not sure I have enough yet for any fibres to attach to 🤣
Snail 888: Looovve the bird. You have heaps of hair - it looks great! 🤗
SueF: how long ago was your last chemo?
If I can work out how to do it, I will post a pic of my patchy head. 😂
Karen x
JoJo45
Member

Re: October 2016 starters

We were blessed with a grandson on Friday, now the race is on to see who can grow hair the fastest, I think he's winning so far.  ❤️

IMG_3881.JPGIMG_3883.JPG

JoJo45
Member

Re: October 2016 starters

Snail love the hair.  

Sus12
Member

Re: October 2016 starters

Lovely not white curly hair! 🙂
Sue F xx
Snail888
Member

Re: October 2016 starters

Here's how to handle widely curly hair!20170513_202159.jpg

Truey
Member

Re: October 2016 starters

Hi Karen,

 

I had my last infusion on 11th Jan, so "finished" chemo by the end of Jan. My hair is growing but is still very short. It has grown back evenly and the same colour (white)..... But it is now curly and I have had straight hair, that I loved, all my life!! No idea what to do with it. I'm having my first haircut on Wednesday - eek - so hope my lovely stylist who has been very supportive throughout can tidy up the sticky out bits and give me some pointers......

 

Better luck with my brows and eyelashes, both of which are more or less back to normal.

 

On the down side, the hairs on my arms are thicker and darker but I suspect that is probably due to the anastrazole.

 

Sue  O X 

Sus12
Member

Re: October 2016 starters

Hi Karen
Great to hear you managed to get a few days away. I've managed a few but desperate to have a longer holiday. Nowhere exotic but near the sea would be good and quiet so I can really chill out.
Re the hair. When mine was thinning and I was losing some with chemo I was told about Toppik hair building fibres which was brilliant. Just made my hair look so much better. I got it from livebetterwith.com. Mine is luckily coming back evenly now although too slow for my liking lol so I haven't needed to use it anymore. You made me laugh about the gypsy or pirate thing :D. Totally agree but I found that easier than bothering with my wig in the end or going out bald.
My hair was very baby downy soft and white at first but that is now growing out and darker hair beginning to show at some of the roots now. Still very very short but is even all over, so far straight and seems a bit thicker. My hair was naturally fine and very straight before and also mostly very fair / dark blonde but not now lol. Who knows what it will be like in the next 6 months to a year??!!! :D. My mum said my hair was darker when I was born so maybe
Glad to hear your dad is improving but must have been a difficult time losing two people close to you in such a short time :).
Hope you get your money stuff sorted.
Hugs, Sue F xx
miss.mc
Member

Re: October 2016 starters

Hi everyone
Lovely to hear about some positive things from many of you. I'm hoping to plan a holiday of some sort soon - just have to find somewhere to squeeze it in between exams (child 1 A levels, child 2 AS levels); results day; partners work; further checks & appointments for me! I did manage to grab a long weekend in Somerset with my sister & her partner a week after my rads finished on the 3rd. That was lovely.
Congratulations to both Sues on ditching the wig. 🤗 Its quite liberating once you have taken the plunge and had a couple of days to get used to it. I managed it during chemo once I had got to the point where my remaining hair looked utterly ridiculous & we had to shave it off. I have found the regrowth post-chemo harder to cope with in many ways as it is quite patchy. My hair has always been pretty fine anyway, but I have a large patch middle front, and 2 patches either side at the back, which are noticeably more sparse than the rest. I have felt the need to keep covered with wigs and hats etc. I practised with some new ways to tie scarves & am much better at that now - previously when I have tried scarves I ended up looking like a pirate or a gypsy so I avoided them! 😂. A friend bought me some lovely soft cotton beanie hats to wear around the house as the combo of post-menopausal flushes & warmer weather made all my woolly hats & wigs pretty unbearable.
I thought for a while that I was going to be left with 3 permanently bald patches, but they have started to 'sprout' a bit recently - so fingers crossed. It's still thinner in those areas, but my OH clippered the rest of my hair to a number 3 which makes it look a bit better. You can still see the difference but it's not quite so pronounced as it was. My daughter suggested drawing on some hairs (like we have been doing for eyebrows). Genius!! I didn't use an eyebrow pencil, but experimented with brown & black eyeshadow - just stippling a bit on the sparse areas. It didn't look half bad! I walked in to show my other daughter and she genuinely thought my hair had had a growth spurt and said as much before I had had the chance to ask her if my new scalp make-up looked ok. Hurrah! It gave me enough confidence to go out again without a wig or hat - which was great.
My eyebrows and eyelashes are growing really well now & they seem to be getting back to normal, but I'm really not sure what hair I will end up with. I do wonder if it will always be like this now. It is soooo fine and babylike even though I finished chemo in March. Is anyone else further ahead? Did you have downy baby hair that has thickened up at all? I'd like to hear others experiences.

On the topic of exercise I agree that it definitely helps once you have taken that 1st step of hauling yourself off the sofa/bed. I try to walk the dog most days and went for a 4 mile walk with my sister at the weekend. I was pretty shattered the following day, but glad I had done it. Felt quite proud of myself. 😊 Interesting to hear some of you mention Tai Chi - I have never done it before, but a few people have suggested it & I am trying to find a local class. Have any of you started it yet?

I have had a couple of sessions of counselling now (at the South East Cancer Help Centre) and they are really helping me. It's not just the physical & emotional effects of the cancer itself. It creates ripples into many areas & has made me view many things from a different perspective. I am still waiting for my unpaid salary & redundancy money from the Govt insolvency department & wondering about my future - though my counsellor has advised focusing on getting myself well again first. Sensible advice I know, but still hard not to worry about these things. We lost a very dear family friend to Parkinson's a couple if weeks ago & my aunt died last week. Trying times.
On the plus side my dad is gradually improving. He has had some physio and can now drive again and get to Sainsburys & the Dr. All good as he seems happier and I don't need to do his food shopping any more. He's also eating better and regaining some of the weight he lost in hospital. 😊

Hope you are all enjoying the warmer weather & are getting out in the garden with a nice glass of something chilled.

Karen x
Sus12
Member

Re: October 2016 starters

I braved it weeks ago as I got fed up with all the headgear and the wig and it was getting warmer and I was getting hot! It looks OK and I haven't had many people staring at all. It's coming back silvery with darker edges and my daughters think it looks quite cool lol. Nice long earrings help! I had to laugh when I heard on the radio that Cara Delivigne has opted to go bald :D. What with many of the youngsters rocking the silvery grey look as well we're weirdly in fashion :D. You have to laugh really. As to the numpties who may cause us a momentary issue my daughters decided they might get 2 or 3 t shirts printed... 1. This isn't a fashion statement I've had breast cancer 2. I've had breast cancer what's your excuse? 3. I'm rocking the Cara look! 😄 . Or not! Made me laugh though!
Hugs to everyone
Sue F xx
Truey
Member

Re: October 2016 starters

Hi Everyone,

 

I took the plunge about 3 weeks ago and ditched the wig. My hair is about an inch long and the wig kept slipping and was hot. Can honestly say no one seemed to care! Out and about people seem to just think I have a Sinead O'Connor complex ( younger ladies, look that one up!). Having first haircut next week - Yay!!

 

Now so used to it that I can't see me wearing the wig again. Just have to remember to wear a hat in the sun to protect the bits of scalp you can still see through the hair.

 

My advice is just go for it!!  

 

Sue O xx

Aine
Member

Re: October 2016 starters

Swampy - thankyou for your reply...I have actually ordered another wig but they are sooo slow at getting it...over 5 wks but I hope to get it soon.

I got one on the NHS but it was horrible.  I ordered a much better one but had to pay £120...didnt care.  They are ordering the same one again on the NHS.  It is not thick and has a proper parting where you can see your scalp a bit so looks very real.

 

Im getting very self-conscious about the wig now my hair is growing back a bit.  I wear a baseball cap and dress in exercise gear so it looks like Im always just back from a run!!!

How are you ladies coping with the wig and the 'itch or ditch' problem????

 

Maryminder ....great you are exercising - you will really notice the improvement in your well-being will speed up now.  Im thinking of going to TaiChi soon - I have never done it but hear its great.

 

Today I came home from the Herceptin injection (80 miles round trip) and felt really tired.  I chose to take the dog to the park immediately and not lie down.  I walked for an hour and boy I felt so good after that.

It is the way forward ladies!!!

 

Keep moving and carpe diem!!

Aine x

maryminder
Member

Re: October 2016 starters

Hi Ladies

 

So nice to read everyones posts and to see we are all moving forward, booking holidays etc, have started to swim again and joined a couple of exercise classes, not been able to track down a Tai Chi class yet really want to try it so will keep looking.

 

Finally gave in re my shoulder and asked for a referral  last week, and saw my surgeon today, he believes it's damage caused by treatment but has arranged a bone scan to rule out any nasties, not too worried as he said to continue with swimming etc and he will see me again in 3 weeks, will let you know what happens.

 

If any of you get a chance to go on a  BCC Move Forward Course do it, so far have found it full of relevant information, a great chance to meet other ladies who have all been through the same thing, most of the conversations are very positive and upbeat, a very enjoyable few hours.

 

Hugs and Best Wishes

Mary x