i feel for you. Sincerely hope you're able to go. Hopefully they'll sort out their problems before then and call off the strike. Typical though, high season!! I know they do that intentionally but it still doesn't help!
we've just returned from a short break in Spain...just a word of warning - wear your flight socks. I did, and still had that awful heavy leg feeling for a full 12hours after we landed. Drink plenty (water 🥂) and stretch out often. Hate to think how I'd have felt I felt I hadn't worn them😳
Hope you're able to go - keep us posted.
Really fed up today, so here is my rant alert!
After diagnosis I had to cancel the "holiday of a lifetime" that my husband and I had booked to celebrate our 40th wedding anniversary. We re-booked for July this year and it has been a beacon of hope in front of me throughout treatment.
We we are flying to San Francisco to join a cruise through the Panama Canal.
So so why the rant? We are flying with British Airways and are scheduled to fly during the strike they announced yesterday 😨
They may may sort it out I know but I can't get it out of my head that we may not get out there to board the ship. I'm not even sure our travel insurance would pay out in the case of a strike, so there would not be another booking.
I feel really selfish posting this when so many people in London have lost everything. As A survivor of cancer. I feel pretty lucky in comparison but it is still hard to get my head round this. It has been so much a focus for me during the dark days of chemo it's hard to accept it may not happen......
Apologies again for sounding off on this glorious Saturday morning!!
Sue O x
Missmc, I like the idea of bottle of nice red
I will make a note of Anastrazole and if the Onc decides to change my medication will certianly ask him about it, I will be on tablets for 10 years so need to get the right ones.
I agree with Anita. I'm also on anastrazole and haven't noticed any huge side effects other than the joint pains/stiffness and some mood swings (randomly from enthusiastic for my new life to depressed and fed up). It hasn't been as bad as I feared - which is good as I'm stuck with it for 5 years.
Did notice some facial hair growing though! Will have to start shaving it off as I don't fancy sideburns!!
Sue O xx
I'm on Anastrozole and although I do have joint pains, my side effects seem to be more manageable than what you're describing. My oncologist said Anastrozole was the most recent and a better version of the hormone therapy than Letrozole. Just thought I'd share that with you.
All the best
Finished Rads at the end of March I have been on Letrozole since then, I had my follow up appointment with the Oncologist yesterday, managed to get answers to all my questions, I explained that I had absolutely no appetite, I am losing weight, joint pains and very bad mood swings, he said to stop the tablets for 4 weeks and see if things improved, will see him again in July to change medication if necessary.
Amazingly he had the perliminary results of my bone scan from Monday which showed no spread, will have physio for my shoulder but could take 6 months to recover from effects of Rads, good news is that as of yesterday I am officially NED (no evidence of disease):smileyvery-happy:
Fairycake2, I will see my surgeon in October to discuss reconstruction but have already decided on Diep flap if possible, although it won't happen until next year.
Hugs and Best Wishes
To those who replied to my recent post about intrusive strangers asking about treatment - thank you! I didn't think it could be just me that that has happened to!
I finish radiotherapy treatment next Wednesday and am also feleing very apprehensive about 'life after treatment.'
Is anyone thinking about reconstruction yet? I went to a meeting last night at the local hospital where a reconstructive surgeon asnswered questions and some women who had already had the operation showed us the results. It's much better than seeing photos - somehow doesn't look so bad in the flesh! Having had a skin sparing mastectomy and a prosthesis inserted at the time, I think the DIEP flap seems to be the best option, although I wouldn't be having that done for at least a year. Any thoughts?
I was diagnosed last July. I have a review appt with my Consultant in June. I requested a mammogram prior to this appt. The nurse on the phone said you dont have one until a year after your previous one. I will discuss it at my appt.
I agree that after active treatment you are left completely on your own....you go from lots of appts and medical staff looking after you so well...to nothing. I am on Herceptin every 21 days but I get a quick phone call prior to it and am in and out so quickly with just a quick chat with the administering nurse. We need a system to give us support over the first few months.
It is such a shock to have to to deal with strangers mentioning our illness. I believe they are not trying to upset us but it is hard not to be upset. I think that saying you dont want to discuss it is a good tactic and would work. When I go back to work I am going to say that if anyone asks me. I will say it in a cheerful way and immediate ask them how they are or ask about something else....hope it goes ok.
I still go to the Macmillan yoga class on a Wednesday and meet up with lots of women who have gone through BC.....that is my way of getting support. I recommend Macmillan or Action Cancer classes....really great fun and a laugh.
Stay positive and strong......Aine XX
Good Morning Ladies,
Fairycake - so sorry to hear about you encounter with an ignorant member of the public. I wholeheartedly agree with SueF. Ignorance is no excuse for rudeness.
We have all been through so much and learnt so much about not only our own bodies, but about people in general - the professionals around us and our own friends and family. For the most part those around us have been fabulous and very supportive.
i was lucky enough not to have lost my hair (cold cap worked) so my illness has not been too visible to those who do not know me, but I too have had 'friends' come up close for a 'look' , and relatives whom I've not seen or heard from in years making curious unexpected contact, which has bothered me far more than it should have.
Head up, shoulders back, chest front🙄 And walk on by.
have my final rads this week👍Then it will be the end of active treatment for me - feeling very emotional as I write this....
had bone density test last week as a marker for the Letrozole and was borderline, so will be monitored closely, and have booked into a Moving Forward Course in June.
hugs to everyone having treatment this week. Fingers crossed for your scan results, Mary.
It's been a while but hope you are all doing well, I have my bone scan tomorrow for this flipping shoulder which is still causing problems, should get results when I see my Consultant on the 8th June, not too concerned but just want some answers so I can stop worrying.
Fairycake, I agree with Sus12, hold your head up and walk on by, remember your hair will grow again. they unfortunately will always be ignorant
Hugs and Best Wishes
I was upset today by an encounter I had in a shopthat I had never been in before. I was wearing my headscarfand the shop assistant, a woman in hner forties, asked me, "You going through something? " I batted the comment away and shook my head to show that I did not want to talk about it. I was looking for the correct money in my purse when she had another go, " You on chemo, darling?" I mumbled something and got out of there as quickly as I could. But what I saw in her eyes wasn't sympathy, it was just nosiness. I've never come across anything quite as crass before, although the taxi driver who asked me whether I'd got the mild sort of cancer comes a close second.
I've only been wearing the headscarf for a few days as the wig is uncomfortable and hot, but if I keep getting these sorts of comments I may have to rethink!
Anyone else had to put up with this sort of thing?
I just realised that my long reply didnt post....
I am just delighted with all your photos of great looking wigs.....Mine looks like a lot of yours and yes my family and a few friends have said that it looks really believable tied back.
You all look so healthy and normal in your photos...who would know you had had such a rough time lately!
Hugs from Aine xx
Hi ladies, the caffeine shampoo I've been using is called Alpecin which I bought in Boots, expensive but you only need to use the tiniest amount so will last for ages. I went swimming with a friend yesterday and she was convinced she could see my hair growing in the pool 😆😆.
Annie, I tie both my wigs back in a loose ponytail so that it doesn't pull the sides of the wig
Not sure why they came out sideways
There are several shampoos. I use Plantur 39 but I have heard great reports of Nioxin too. No need to go to a specialist shop, I found some at Boots 🙂
Hope that helps. Good luck!
I think caffeine shampoo is the way forward. I've been using it since the end of chemo - no downside so ii's definitely worth a try to stimulate hair growth.
OMG ladies!!!!! OMG..
Im glad I asked a few days ago about hair regrowth!
What a response!!!!!
I have just checked in and am delighted to see your photos.....omg you are all looking great.
Not the sick, sunken face I have had for the past 6 months but healthy, bright-eyed smiling faces!!!
You are all Amazonians!!!
I cant tell you how heartened I am tonight by your photos. I am spending quite a bit of time staring at myself in my bathroom mirror and trying to calculate if my hair has grown a millimetre since yesterday! I hear it grows one centimetre per month. Mine is growing slowly but surely and I probably have a Sinead O Connor by now. (My nieces live near her and say she does always have short hair).
Truey you are the closest to me in terms of dates....but your hair is much better than mine...yours just looks like a short cut you would never know you had been on chemo. Lucky you you are over the worst. Mine is nowhere near ready to ditch the wig. I have started to tie mine back in a low hair clasp and it looks much better. The problem now is covering the sides as the edges of the wig show easily.
JoJo ....what a great photo...I think your grandson is winning so far but you will catch up very soon!
The rest of you....aw it is great you are getting there...well done.
Hair dyeing......I couldnt stand the grey/white so I have already dyed mine. Got it from Holland and Barrett. It looks sooo much better blonde and the bits showing at the hairline are the same colour as the wig so arent that bad looking yet.
I have to go back to school in 7 weeks for a day so will have to wear the wig. I am dreading it but I will try to avoid people in case they start telling me how well my hair looks. School goes back in 14 weeks so I am trying to figure out what my hair will be like in 14 weeks. 3 cms longer? its not enough really. So I might have to start September wearing a wig. I just dont know what to do. I suppose I should not be worrying yet
Anyway it was so interesting seeing your photos.
Keep on being good to yourselves and keep exercising. I felt very fatigued this morning but forced myself to get out and walk and it gave me so much energy all evening.
Oh Ladies, loving the hair photos, it's so nice to have things returning, though now need a bikini wax prior to my holiday, (that's just not fair).
I had my last chemo on the 22nd February and like you Sue, was completely bald. I've been using caffeine shampoo so not sure if that has helped or whether this would have been normal growth. It stated coming back very white but the colour has appeared in the last week or so.
Thank you for the lovely comments on my baby pics, he's my stepson's, OH is a bit older than me, haha, so my theory is that I'm not old enough to be a nanny. We're obviously very young grandparents though as the girl in Mothercare asked if we want to join their membership, ha ha. We left there feeling good.
What fabulous photos Ladies...😍😍
would feel a bit of a fraud taking mine as I didn't loose my hair - cold cap worked.
Fabulous photo JoJo, congratulations on the birth of your Grandson - very special
Loving the pictures I thought I would join in, this is me a lot greyer than I used to be, last chemo Feb and finished Rads 29/3, eyebrows and eyelashes doing ok, no hair on arms yet, have been going out without any heasd cover for about 2 weeks now so much nicer.
JoJo45 great picture enjoy the new grandson, no grandchildren for me yet ,
You all look beautiful
Sue F: I think you are a month ahead of me. I had my final chemo on 8th March, and final rads 3rd May. I was also pretty much bald following 2nd chemo as I had to shave off the whisps that were left. Might dig out a photo of the pre-shave whisps - they were pretty awful.
I agree - You look far too glam to be a grannie JoJo.
I am on Letrozole too - started at the same time as my rads (10th April). So far (touch wood) I havent noticed any drastic side effects. I was already having hot flushes & night sweats as I am officially post menopausal now 😞 Also have joint aches, but apparently have some osteoarthritis in my hip joints so cant blame that on the Letrozole either. Just hope its not making my hair thinner than it already was!!
(PS I think I have attached a pre-shave post chemo cycle 2 whispy hair photo....but Im not sure. ha ha)
We were blessed with a grandson on Friday, now the race is on to see who can grow hair the fastest, I think he's winning so far. ❤️
I had my last infusion on 11th Jan, so "finished" chemo by the end of Jan. My hair is growing but is still very short. It has grown back evenly and the same colour (white)..... But it is now curly and I have had straight hair, that I loved, all my life!! No idea what to do with it. I'm having my first haircut on Wednesday - eek - so hope my lovely stylist who has been very supportive throughout can tidy up the sticky out bits and give me some pointers......
Better luck with my brows and eyelashes, both of which are more or less back to normal.
On the down side, the hairs on my arms are thicker and darker but I suspect that is probably due to the anastrazole.
Sue O X
I took the plunge about 3 weeks ago and ditched the wig. My hair is about an inch long and the wig kept slipping and was hot. Can honestly say no one seemed to care! Out and about people seem to just think I have a Sinead O'Connor complex ( younger ladies, look that one up!). Having first haircut next week - Yay!!
Now so used to it that I can't see me wearing the wig again. Just have to remember to wear a hat in the sun to protect the bits of scalp you can still see through the hair.
My advice is just go for it!!
Sue O xx
Swampy - thankyou for your reply...I have actually ordered another wig but they are sooo slow at getting it...over 5 wks but I hope to get it soon.
I got one on the NHS but it was horrible. I ordered a much better one but had to pay £120...didnt care. They are ordering the same one again on the NHS. It is not thick and has a proper parting where you can see your scalp a bit so looks very real.
Im getting very self-conscious about the wig now my hair is growing back a bit. I wear a baseball cap and dress in exercise gear so it looks like Im always just back from a run!!!
How are you ladies coping with the wig and the 'itch or ditch' problem????
Maryminder ....great you are exercising - you will really notice the improvement in your well-being will speed up now. Im thinking of going to TaiChi soon - I have never done it but hear its great.
Today I came home from the Herceptin injection (80 miles round trip) and felt really tired. I chose to take the dog to the park immediately and not lie down. I walked for an hour and boy I felt so good after that.
It is the way forward ladies!!!
Keep moving and carpe diem!!
So nice to read everyones posts and to see we are all moving forward, booking holidays etc, have started to swim again and joined a couple of exercise classes, not been able to track down a Tai Chi class yet really want to try it so will keep looking.
Finally gave in re my shoulder and asked for a referral last week, and saw my surgeon today, he believes it's damage caused by treatment but has arranged a bone scan to rule out any nasties, not too worried as he said to continue with swimming etc and he will see me again in 3 weeks, will let you know what happens.
If any of you get a chance to go on a BCC Move Forward Course do it, so far have found it full of relevant information, a great chance to meet other ladies who have all been through the same thing, most of the conversations are very positive and upbeat, a very enjoyable few hours.
Hugs and Best Wishes