Hi ladies - hope everyone is well this evening. Thanks for all the good wishes for my 2nd treatment y,day. All went well and apart from feeling slightly queasy and tired so far so good.
Monica B and Beverly, I hope you're feeling ok after this week's treatment.
Lulu 34 I hope you're feeling ok? You're regime sounds very tough going and all the advice you offer is much appreciated. You've really been through the mill these last few years.
Sarah 1974, Tracey and teffy, good luck to you all tmrw, hope everything goes well.
Dawn 211, welcome. Hope you're feeling better? The scar pain was one of the worst side effects for me too and I was told its quite normal but was also very worried about it. Hope it's eased up a bit now.
Sarah I hope your hairs hanging in there. I had 2nd fec t y,day and I,'ve still got a good amount of hair. Just being very gentle with it but I don't imagine it'll last much longer. Hope yours is ok for Friday.
Hope everyone else is keeping well. As the lovely nurse said to me yesterday that's me a third of the way through chemo and that feels good! Xxx
Sam, I would never have considered having my hair cut short if it wasn't for this treatment, I was stuck in a style rut! But it has surprised me that I actually really like the short look and all my friends and family love it, so maybe take the plunge and go for it!!
I've been very quiet since joining the forum, busy getting myself prepared for my first round of FEC and having my hair cut. I went from a shoulder length bob to a short 'do' and really like it! It takes 10 years off me! It has put my mind at rest that I can get away with having short hair.
I had my first round yesterday with the cold cap. It all went very well, not too traumatic at all. The first 10-15 mins of the cold cap were brutally cold and quite painful, but once I got past that bit it wasn't so bad. I just snuggled up warm under a fleecy blanket, drank lots of hot drinks and distracted myself with a pile of trashy mags.The actual treatment itself was fine, although I felt sad knowing what was pulsing through my veins.The nurses were fab, there was endless drinks and food offered and overall a good experience. I had a bad night's sleep last night, felt a bit 'wired' not sure if that is the effects of the steroids or just anxiety. But feel absolutely fine today, obviously a bit early for main side effects to kick in, but hoping they won't be too bad when they do. Many of you on here seem to have been ok with side effects for your first rounds.
Good luck to all going for their second rounds - hope they are as positive as the first.
Sarah - good luck for Thursday - hope your experience is a positive one. At least it will be one round closer to the end of treatment.
P.S. Please say a prayer for my hair everyone! Meant to be going to a reunion Fri night and don't fancy wearing a wig. That'll be day 15 for me, already had it cut into a long bob so fingers crossed xxx
Orr lulu, sorry you've been through the mill the last few days...keep ya chin up hun and stay strong as we all know you are.
Sam I'm sure you're feeling unwell because of all the stress and anxiety your experiencing at the moment. I think it gets to us when we don't even know it. I also have previously had no problems sleeping but keep waking up during the night! I do get to sleep fine (8.30 last night ), but woke at 12.30-5am! Had to get up with the kids at 6! I'm sure there's subconsciously loads going on in my tiny wee brain!
#knackered, but aren't we all! Ha!
Hi dawn, welcome to the group.
Day 12 of first fec for me. I had a bit like morning sickness for the first week, and now I feel practally back to normal but keep going a bit light headed. Still have full head of hair, however I know this won't be for long. I was also told to keep a diary as I have a review of the past 3 weeks the day before my next dunk. My mastectomy area is also feeling sore and my seroma fluid has changed shape, I rang my bcn and she said this was normal and it would probably happen throughout treatment.
Hope you feel better soon.
Hope lulu and flower are feeling okay?
Thanks for your support
I dont think the hospital where I am being treated has the Paxman cold cap. I was told they had updated to cold air cap...never heard of it so not sure how effective it is.
I know what you mean about treating your hair carefully, I havent started chemo yet but treat my hair like it might fall out already ha ha.
Thanks for the tips will definately do my best to keep my hair and keep those grandkids from pulling my wig off.
Take care Janey x
Yes, Dawn, I know what you mean about the fuzzy head. It's not exactly a headache but a feeling of being squashed! I know it sounds daft but last night I kept changing sides because my head felt uncomfortble when I lay on one side too long!
glad you posted - sorry things have been so bad for you this week. The side effects are so tough at times. I felt sick for the first day or two after the first chemo. Then the nausea/sickness settled down but I felt tired and could not eat much for a few days. But then I found that it lifted after about 5 days from the start and although I was still tired, I got my taste buds back. It was a big shock to the system to go from feeling great the day before treatment to being straight into side effects. But I tell myself this is what I have to do for the next few months.
How sore is the area around the scar - is it a new feeling? I've no medical knowledge myself, so can't advise. Did you mention it to the care nurse - they're bound to have some good suggestions.
Dawn221, I had my pre-assessment for the next chemo yesterday and met with the doc then. It was a good chance to go over how the first round went. The doc is going to give me some additional tablets to help with nausea/sickness for this time. I'm just mentioning this because hopefully you will have the same chance to report back on how things have been for you. And hopefully the docs will be able to advise or give you something to make round#2 better for you.
Take care and be good to yourself. Let us know how you are getting along. Hugs xx
Hi everyone and happy birthday sally. Hope you have a nice day. Hope all has gone well for you today flower, and you too lulu.
Hi Monica, I know it's really difficult dealing with all these emotions but hope those of you who are feeling guilty for not working...please, please, please try to focus on getting well. This is only my opinion but I think it would just be an extra layer of something else to deal with. At the end of the day hopefully in a few months time this will all be a memory that we will no doubt never ever forget, and I'm sure will change us in some ways.
I know we're all different and some people choose to work but if not try to enjoy it...why not!
Hugs to all Sarah x
All the best for Thur Sarah_1974. They will look after you in the clinic and just ask if there is anything worrying you. We'll be here too - safety in numbers xx
Good luck to Teffy Jill and Tracy too - we're all moving along with this. And Lulu - hope alls going ok with you.
Happy Birthday Salkei!!! have a good day with your pals. Nice to have plans for the new year too - yes why not have 2 birthdays Its great to have things to look forward to when this is over
Morning lovely OO's
Will be thinking of you on Thursday Sarah xx Just remember your imagination makes these things seem a lot worse.
Off out to meet up with pals as today is my 53rd birthday! Planning on having a big blow out once treatment is over in the New Year, if the queen can have 2 birthdays so can i lol!