I think the problem is that if you are posting in the Facebook group then you are duplicating if you are posting the same things here too!
Oh that sounds great. I'm booked on Lgfb On the 18th, now I can't wait. Know what you mean beejayP, it will be nice (if you know what I mean ) meeting people face to face that is walking this journey.
I have to go to Newcastle for mine which I think is about 18 mile from where I live but sounds worth it.
I don't know who's up this week but hope you're all well.
Hope bridget and lulu are holding up.
Seems to be quiet on our little group, are people using Facebook more?
Hugs to everyone Sarah xx
Thanks BeejayP - hope you are well rested today.
I went to the workshop this morning and it was really good. It was a bigger group, maybe 16 of us and there was a chance to chat as well. Would highly recommend it to anyone and many thanks to the LGFB team who looked after us so well.
Hope everyone is doing ok and good luck to all who are in for dunking this week xxx
MonicaB - Sorry meant to post last night about my LGFB workshop but was so tired. It was fab, really enjoyed it, the lady running it decided to take pictures of us before and after which was really good to see difference. There were 6 of us and all the girls helped with putting our make up on etc it was lovely. It was also nice to meet local people going through it, I have now got details of local group which meet up weekly for a natter and coffee, then i think sometimes they arrange events as well so will try and get down there for some of those, its a 18 mile round trip so its not always going to be possible. Hope you enjoy your workshop xxx
Good luck to all those having treatments today. Hope all goes well.
Good luck Biddlybee - it seems awful to wish a dunking for you, but I do hope it can go ahead this time.
Aw Sarah, your little girls comment made me smile - its all ok as long as everyone can say whats on their mind - even the little ones!
BeejayP - thats a good idea about the puzzles and lego kits and about keeping the tv for the bad days. I will have to be more organised about how to deal with the time. Thankfully I'm now into a good week - have been out today already. Let us know how you get on on the LGFB workshop - I'm booked on one tomorrow.
Hi emma, pleased to have you back...wish it was in better circumstances though. So sorry you're struggling with se's hun. I had my second fec on Fri, I was quite poorly last time, sickly feeling went on day 5 and I did feel light headed for a week or so. I was lucky enough not to be knocked off my feet though.
This time round I took extra tablets and didn't vomit but felt very unwell, as the weekend has gone on I just feel more tired this time round. Just forced a little bit porridge down but just for energy as been awake since 2.30 and had to be up with kids!
I had my hair cut from long to a bob a couple of weeks ago then shaved it on a 3 on Fri, which I didn't mind. Wasn't walking around with bonce out though, wigs and scarves at hand. However this was really uncomfortable and it was just falling out, getting in all my scarves and pillows and basically just being a pain, this was also itchy. So last night my hubby shaved it down to the bone. When I looked in the mirror I did have a few tears which I wasn't expecting (only 3rd time I've cried in 4 month). Also my little girl said I wasn't pretty anymore and even had a pretend mammy yesterday with long hair! But she'll get used to it.
Sorry for long winded post but can only share my experience emma and send you my best positive strong wishes and remember to keep posting and take care.
good luck Biddybee for your treatment today, my 2nd treatment is 15th Nov which seems like ages away but is only next week.
Sorry you have had a rough time of it Emma, hope you start having good days soon, sending big hugs xxx
With regard the hair thing, I have to agree about having long hair and chopping it with clippers is helping me take control of things, my husband who loves my long hair cut it with scissors first then went all over with clippers, he said it hurt him to do it but it gave him a sense of being part of this. I haven't started losing my hair yet but it has had the odd tingle, not sure how i will feel once it starts going, there may be tears at that point!
I have stocked up on jigsaw puzzles, books (mainly chick lit easy reading) and lego kits for my good days. I dont want to spend too long in front of tv as saving that for my bad days, I also have a cross stitch on the go for good days, what are other people doing to keep busy?
I have my Feel Good Look Better workshop today, which i am really looking forward to. Has anyone else been on theirs yet?
Sorry things are so hard for you now Emma - this is the best place for a little moan. I had my second round of FEC just before you and I've had low energy more or less since then, but I think I turned a corner today and felt much better. That's the thing - for me anyway - it changes day to day.
I did feel a bit dizzy after the first go and I didn't like the feeling at all. I think it can mean different things. Did you mention it to the onc unit at all? They do seem to have advice and/or medications for most things. It does seem like bad luck to be admitted to hospital on the first round, but better than struggling with sickness at home. I also feel sick/nauseous for about 3-4 days after chemo. Then the fatigue sets in. What fun!
In the last couple of years, a couple of people close to me have also had a BC diagnosis. I've seen them go through chemo, hairloss the whole thing and I've also seen them come out the other side and doing and looking very well now. They both have their hair back to its original length, colour etc. You would never know all that they have been through. I think that has helped me accept the treatment for what it is - the best chance to remove all traces of BC.
I don't think its ridiculous at all for you to keep your hair if that's what you want to do. It's a very personal thing and everyone has their own response to it. Have you been using a cold cap - has it not worked as well as you wanted? I had a very ichy scalp in the first few weeks, but I have all but lost my hair now and the ichy-ness has gone. I had my hair cut right down before losing the bulk of it, so I didn't have to see lots of it in my hand. That's bound to be hard to take, but once its done its done. There's no going back - it's onwards towards the end of treatment - that's the goal.
You sound like you have been so positive and you have already had 2 cycles with side-effects - so you do already have a lot of strength to see this through.
We'll be here all the way xx
Yes I got that cookery book bridget, some nice recipes and I'm sure I can tweak some of them to be low fat.
Yes listening to my body is good advice Monica, hence the pie for breakfast yesterday-ha!
Sounds like a plan karen, doing what we like when we can. Just giz a shout when you want to meet, no hurry, we've got so much going on at the moment.
Don't know about you lot but I'm meeting up with people who I've never seen for a while, which is nice. Going to friends on weds to get pedicure, meeting with uni buds on Thursday and going for meal with the girl's on Fri. Hope it all goes to plan.
Got my wig on for first time today, going food shopping (exciting), just hope it doesn't blow off in the wind!
Hugs to everyone Sarah xx
Sorry to hear about the thrush Tracy - do you have something that can help with it? I have a few sore spots on my tongue today and am just hoping that it doesn't develop into something more.
I've also gained weight - don't know how much but its there. I've been eating more sweet stuff and more chips (I almost never ate them before) and exercising a lot less (too tired). Not ideal, but there'll be plenty of time later to go back to a more healthy plan. In the meantime, its just about getting through the chemo and if I feel like chips I'll have them
I was super tired the last 2 days (day 10 and 11) and didn't feel up to doing much. The fatigue is really getting to me, I'm used to being out and about and now I'm turning into a tv addict. The nurse in the GP clinic said to me to listen to my body and not to push it if I'm feeling tired - but oh to be out and about all day without thinking about it!
take care everyone xx
Hi everyone. Hope we're well today! Had second dunking yesterday...when I went for review the other day she gave me some of them emend tablets as I was vomiting quite a bit the last time. Your meant to take one an hour before, but in typical sarah style; and getting kids out to be watched I forgot. I was poorly, however no where near as bad as last time. Was in bed at 6 and managed to sleep 9-4 so wasn't too bad. Didn't actually vomit but felt very unwell. But on the bright side feel loads better today. Had home made pie that my sister mad for breakfast though...just coz that's what I fancied! Took my tablets today and just chilling out.
Hope you have a good well deserved night out Tracy!
BeejayP I haven't drank tea or coffee for about 5 year but now sometimes fancy a cup of black tea! Strange!
However got weighed yesterday and I've gained a stone over the last couple month! Anyone else gained?
Don't believe it karen I live in seaham! We'll have to meet for cuppa!
Hugs to everyone Sarah xx
Morning everyone, hope you are feeling ok this morning.
Thank you for all your great messages, it really cheered me up.
I'm having my cup of green tea, gone off tea and coffee completely, luckily i have other teas on standby.
What is everyone up to this weekend?