Not been on here for a while as tired myself out with visitors and christmas prep.
I'm starting docetaxel this friday, but am reading that the people on it are taking steroids before hand, i haven't been given anything to take before. Because i dont know what side effects i'm going to have i have now said no more visitors for a while, hubby and i will spend christmas together quietly which i am looking forward to. Luckily we dont do the big family christmas. Have got the scrabble out will get fire lit.
Hope everyone manages to enjoy christmas as best they can.
Thank you Shelly for your kind words, it is much appreciated by all the moderation team here. We'll do our best to support you and all your fellow forum users. On behalf of us all, have a good Christmas and hope you have a healthy and happy New Year.
Have just done a food shop and was absolutely useless, it was so busy and felt completely drained afterwards; OH did everything, AND sorted out the freezer which had decided to defrost itself while we were out, so no fish fingers for tea.
I have started the steroids in preparation for Monday's Docetaxel, they usually send me a bit hyper but not much energy at all today. Fingers crossed i can have it on Monday, Beejay P are you starting on it next week?
Just wanted to wish everyone all the best, and also thank you to the BCC forum and moderators, who provide a place for us to come and support eachother.
You tell 'em Galleygirl! Hope you're doing ok, i think i am becoming pretty thick skinned with all this....reminder to self (and others!)...make sure the curtain is fully closed in changing rooms when whipping off wig to try on clothes..gulp, hope that made you laugh.
Anne keep us updated if you can on how the Docetaxel is going. Not particularly looking forward to feeling like i've been run over by a steam roller, which is how the onco said i MAY feel.
The main thing is, we're all getting through it, even though some of us have had setbacks and time in hospital. There is light at the end of the tunnel!
Best wishes to everyone
Galleygirl hope you're doing ok and will be out soon.
BeejayP i also admire all the ladies with children who are coping with all this. I also feel guilty as OH doing practically everything. I have a picc line in which is behaving itself now but can't do heavy lifting.
Hope all goes well for you Anne with the Docetaxel, is it tomorrow? Mine's Monday if bloods ok, fingers crossed. xx
Leamangobird - all of your list applied to me and will follow them, unfortunately when we get to a good day we try and catch up on the millions of jobs that need doing that we tire ourselves out too easily. I have been trying to do a bit in morning then resting in afternoon, or if i have visitors planned try and rest at some point. I haven't tried the Asda one yet as do all food shopping online, even that OH and I have down to a fine tee as he signs for it then I'm allowed to sit at kitchen table and check it off while he unpacks it all and puts it away.Bless him!!!
It is very hard sitting watching people doing stuff for you, even housework and i never thought i would say that, but you have to do it, i get a bit annoyed at visitors trying to make me drinks, although my house is fairly open in that i love people to feel comfortable coming in and slipping kettle on, at moment it seems to be my ultimate goal to make visitors a drink, using the expression 'i'm not an invalid!!!'
Its very hard with christmas and the millions of jobs that go with it, I am glad i dont have children as just cant imagine how you cope especially on the real bad days and especially if children are quite young so dont understand what's going on.
Today i am going to put up christmas tree, OH is getting stuff out loft and then i can just decorate, Probably going to not do the room decorations just tree in lounge and one in dining room, have got two naughty kittens to contend with who have never seen christmas before so that might be a bit interesting, then later OH is going to help me do my christmas nails, hands not steady enough so he volunteered to help me, oh and friend coming over to show me his kindle as trying to get organised for longer treatments and hospital stay in new year!!!
Had my echo cardiology appoint yesterday ready for this preventative drug, and asked if everything was ok, apparently he wasn't allowed to give me the results, its my body for goodness sake!!!! what is the matter with these people???
I would just add:
7) I will treat myself every day....even if it's the simplest thing.
On the subject of moisturising, i've bought 2 Dr Organic moisturisers, coconut oil and royal jelly, it's buy one get another one for half price at Holland and Barrett at the moment (hope i'm allowed to put this!)
No parabens or SLS, i've become really conscious (or obsessed) about what i'm putting on my skin. Moisturising constantly in preparation for the Docetaxel, not looking forward to it but in a way i am, because then it will be just 2 more to go.
I've got a small tube of E45 cream for the rough bits on my scalp, not sure about the paraffin it contains though?
I'm sure i will be obsessing about what hair colours to use in a few months time, lol.
Hope everyone is doing ok xx
Hey Shelly 8 - at moment am recycling same four or five pounds as seem to lose the week after chemo, but then get these urges for eating in the following two weeks, but have to be careful as its almost as though my brain doesn't tell my stomach its full and if not careful will over eat and feel sick from that, but i tend to go with what foods my brain is asking for at the time so peanut butter sandwiches for breakfast etc.
Galleygirl - that's interesting about the aching on the 'T' part of the FEC-T, the oncologist did say i would feel less nausea and more aching, so do you feel that just for the week after chemo or the whole 3 weeks. With regard the skin, i have hopefully got a big pump dispenser of equivelant of E45 cream waiting for me as my skin is so dry now, have you requested something for your skin.
In general am feeling ok a week after chemo now, the injections were all ok this time around, last time i was feeling rough 1st thing in morning and last thing i wanted was the nurse giving me the immune injections, and also i had two big bruises from them. This time i seemed to have a bit more control over how i was feeling, so hardly had any side effects so was a lot more relaxed when they were done.
Got my appointment for my heart check tomorrow ready for my herceptin, but not having the drug until the January one.
Hope everyone is feeling ok and keeping warm, sending big hugs xxxxxx
Food is my passion at the moment. I have three breakfasts (no kidding) which is porridge with healthy seeds sprinkled on the top, followed by a cooked breakfast, then toast with Manuka honey. When i was working i was lucky if i grabbed a banana before i left the house.
I'm really craving savoury foods and ate 2 tubes of Pringles while watching my Harry Potter dvd's!
I was only 8 stone and a size 6/8 before my op so not bothered if i put some weight on! I find myself thinking about what i/'m having for my tea during the day!
I will eat anything and everything at the moment, (don't eat meat/fish though, although i do eat the odd fishfinger!)
Hope you have a better day xx
Thanks for info on the Herceptin injections, interesting that i wasn't given any choice, although luckily for christmas etc i wont be starting this treatment til middle of Jan so will definately query my options.
I spent all day wrapping presents yesterday, which tired me out completely, i kept wrapping stuff then forgetting what i had wrapped, also the nurse's box was on table at same time so someone may have got medical stuff as their present as was getting really confused by end of it!!!
Feel a lot better today about things, head is clearer this morning which helps and fed up with waking up in a confused cloud, hopefully i can have a better day.
I never thought i would say this but craving vegetables to the point of dreaming about big fat juicy carrots and greenery. Think this is just the come down from eating microwave/tinned meals the first week from chemo, does anyone else get this??? Obviously eat veg but it tends to be frozen or already in something so i will be so excited at peeling some carrots or chopping something and having what I call a proper homecooked meal.
Big hugs to everyone xxxxx
It seems to be wobbly week all round, not been on here for a while as just not having good days emotionally. Had my 3rd lot of FEC-T last week and although been ok with s/e emotions are running really wild.
Hubby not been well for two of my chemo's, the doctor prescribed penicillin for him as he was experiencing sore throat despite the fact that he was allergic and he reacted badly to that, then they gave him flu jab last week and it appears he has got cough,cold whatever after that, between us have tried to take preventative measures to be careful with bugs and it just seems he is getting it full in face which is obviously stressing me out!!! On top of that something showed on CT scan on womb which they now are investigating which on I have to go in on 24th Dec for Hysteroscopy.
Anyway go over to the Taxotere on 27th Dec, not sure what side effects to expect with that.
The Oncologist also wants to put me on Herceptin asap, wanted to do that with treatment for 27th but with everyone catching up for christmas etc, it was a bit much as have to have echocardiogram before then and also have to be monitored for 4 hours after treatment. Again anyone on this already?
The Herceptin is to be done every 3 weeks for a year, the Oncologist wants me to keep picc line in as easiest option, but this means i wont be able to do spa days, swimming etc for a year (was looking forward to some sort of relaxation after all this is over!!!) what are my options with this? Also realistically was looking forward to some part time work but worried about the implications of continual appointments to do this, that and everything else!!! Hosp is 45 mins away at least and bad for parking and so on so its not just an afternoon's jaunt, it usually turns into a full days trip!!! Also are there bad side effects to this??
Sorry everyone else is having rubbish times, but we can and will get through this, just feels a bit pants at the moment!!!
I'm feeling exactly the same today, i've cried for ages feeling a bit sorry for myself. I am really positive about 95% of the time, and then sometimes it sort of overwhelms me. My OH is so supportive and there for me but i find the forum so helpful as we're all in it together, and understand what we're going through.
Yesterday i felt fine, went for a long walk on the beach, then slept like a log. Today i've got all these thoughts of the treatment ahead, it's like a fear of the unknown.
I don't know if you are having any complementary therapies, but i really want to try something like mindfulness or meditation. I'm having the Alexander Technique once a week at the mo which is helping.
I don't know about you, but i find walking really helps if you feel up to it (don't like the lack of sunshine/daylight at the moment).
The steroids make me a bit hyper too!
I think we have a good reason to cry, it's done me good anyway! Maybe it is partly the side effects, but for me i think i'm just having a bit of a wobbly day!
Tomorrow i know i will be ok again and so will you. Hang on in there! Sorry for the long post but when i read it i thought that's exactly how i feel, i need to tell Leamangobird (what a lovely name!) she's going to feel better.
Hey that looks really good, not a paraben in sight and it's affordable too! Constantly having to moisturise at the moment.
Leamangobird hope you're ok and got sorted out.
Pots i'm hoping i've got strong hair follicles too as i've still got a tufty bit at the side of my head that looks like it's here to stay, also still got 'bits' of hair i can feel on my scalp.
Hope everyone's doing ok xx
agree with Biddlybir. I would definitely ring the chemo nurses - they may well want to check your bloods especially as you say you don't normally get a temp when you're ill. They'll want to keep you on track for your next chemo.
Selley8 - I'm due my 2nd tax (4th treatment of fec-t) on tuesday and noticed this morning my hair's already growing back, which sent me into a little panic thinking the tax wasn't working. Have done a bit of research on the forum and now know it's quite common (means have got strong hair follicles), although for some the re-growth doesn't start until the end of treatment. There's never a straight answer with this is there - always seems to be "it depends"