Yes, hope all goes well Sarah.
I think my festive plans are to be snug, watching some good telly, ( +my niece lent me her entire Harry Potter dvd collection, bless her!), seeing family + friends, reading, walking on the beach and hopefully catching some comedy shows/ live performances ( providing nobody sneezes near me lol)
Feeling ok thank you Biddlybee, just constant nausea as usual but the tablets relieve it.
Glad you're starting to feel ok again.
Hope everyone's getting on ok.
Thanks Potts for your information re neutrophils, sorry to hear so many of you have had to be admitted to hospital. Mine came up from 0.8 to 1.4 last week, and by Monday had come up to 1.5 so i just scraped by to have my 3rd FEC.
Apandy i will (touch wood) be starting Docetaxel on the 23rd, don't know yet about side effects but Nikki has a pretty good idea, so i kind of know what to expect. I've had conflicting information about hair re-growth, i'm still hanging onto my eyebrows and eyelashes so far, and was told they're unlikely to come out now...but i've also been told the Docetaxel can cause hair loss, meaning my hair won't start to grow back again until all the chemo is over.
So much conflicting information but maybe part of that is we're all individuals!
Lulu i will get round to attempting FB, i think i need someone to sit and go through it with me. Doh! But a lot of the girls seem to be back on the forum now, which is very supportive.
Take care everyone, be strong, we are getting through this x
Hi Pots. I suffered with severe constipation after chemo 1 and yes got the dreaded piles. Told my onc who gave me movicol and to take it the day after chemo day , 2 sachets per day for a couple of days and never got bunged up again. Just had round 4. He gave me Anusol ointment for the pile that cleared up so all ok now. Hope this helps. Xx
I agree with a lot of what Nikki69 said. On the constipation front, tax is meant to give you the trots. I seem to be normal with it but with fec I got a bit bunged up with the 2nd cycle. All bran and "go cake" (you'll find the recipe on tips for getting through chemo) got me sorted; tried the same thing with cycle 3 - no go! Ended up with suppositories (which you shouldn't have if you're neutropenic - but I was desparate and would have done anything). I'm still suffering now in that it's painful and I bleed everytime I go (am not sure if I have a piles or more likely a tear - need to speak to my GP, but am putting it off hoping it gets better on it's own) Have regular all bran now, movicol if I need it and my little stool for putting my feet up on to get into a better position. I never want to experience that again! - I'm sure you won't be stupid and leave it nearly 12 days like me! Sorry to talk about poo, but sometimes that's just what us girls need to do.Hope you manage to go soon.
Hi Shelley8 and October Optimists
just popping in from Sept Stars. am on fec-t and part way through 1st tax
With my 1st fec I had 5 injections (called GCSF - it's just a generic name, but it encourages your bone marrow to produce while blood cells) from day 5 to 10. It didn't help. My neutrophils (the main type of white cell dropped so low they couldn't detect them and I was admitted into hospital for isolation, more GCSF and intravenous antibiotics for a few days. They let me come home when my neutrophils were 0.9. In my area they will give you the next chemo if your count is 1.5 or above as long as the Consultant is happy (although they prefer it to be 1.7).
I specifically asked my oncologist what I could do to give my neutrophils a boost and the answer is you can't. Eating as healthily as you feel able to will help you generally, but you might want to save your money on loads of supplements etc. My injections were increased to 10 days every cycle, I try to keep away from ill people during the infection vulnerable days and that's kept me out of hosptial and my white count has managed to recover enough for the next blasting. If it hadn't, my oncologist talked about a dose reduction (which I was not keen on or applying to see if they could get funding for another type of injection which might have worked better). Fortunatley for me we haven't needed to go down this route.
Hope this is of some help.
ps can't remember who asked, but yes you do get achy with the injections.
you're doing better than me then....hope mine come up over the weekend....keeping snug and warm and eating and sleeping.
Ps Dear Moderator ladies, is it possible i could have a different picture under my name, as i'm not sure what it is but every time i look at it, it reminds me of a hairdryer (which i packed away ages ago, along with the straighteners, brushes, etc) and a head with some spiky hair on!
I think i have definately developed the chemo-fog brain thingy.
The injection i self administer 24 hours after chemo is Neulasta, to 'reduce the duration of neutropenia' ( copied it off the information leaflet! ).
Then i take steroid tablets for 3 consecutive days.
I found the following information which might help, i know we're all different but anything's worth a try. Ps i don't want to mislead anyone, it's only what i've found on the internet.
Vitamin C, zinc, garlic and green tea seem to come up a lot.
Other things are vegetables like broccoli, pumpkin, carrots, asparagus, beetroot, spinnach, cauliflower; fruits like melons, oranges, figs, strawberries, also dairy products, yogurt, walnuts and almonds, lean meat and fish (i'm a veggie tho'!), Omega 3, foods containing beta-carotene, vitamin A, selenium, olive oil, ginseng, and plenty of water!
I've been having Manuka honey since i was diagnosed, i don't think we can go wrong with that if it's the good stuff.
It also says to restrict sugar-rich foods and vegetable oils with polyunsaturated fats.
Oh and regular exercise, and reducing stress (yeah, right!) as well as common sense things like safe food preparation and regular handwashing.
Phew! Think that's about it! xx
Hmmm, i didn't know anything like that was available, but hopefully my bloods will be back up again by next week. There seems to be a lot of conflicting information re diet, etc as well, to increase white blood cell count.
Hope your side effects are small ones,
What injections do you mean? I have a steroid injection 24 hours after chemo, is this what you mean or is there something else?!
Bit confused, glad you had your FEC 3 yesterday, i guess i thought 'cos the first 2 had gone ok, the others would but it don't work like that!
Hi Lulu, hello everyone
It was supposed to be my 3rd FEC today but neutrophilis too low. Gutted. Thought i would be halfway through it.....has anyone else experienced this, and does it generally just come back up again? Grrrrrrr!
On a positive note i have a great new SHORT wig which i love sooooo much. The long one didn't feel right anymore. So i have made the transition to short hair after nearly 30 years of long hair.
Hope you're all doing ok.....hope i have my FEC next week.
I'm a newcomer to the forum like yourself; i haven't joined FB yet but intend to (once i know what i'm doing!).
Wish i could help you with your query but unfortunately not that clued up on all this.
Mid January is a long time to wait, do you have a breast care nurse who can advise you? Mine is great, i took a list of questions as i needed clarification on some things i didn't understand, and she explained things clearly.
Hope you are able to speak to someone who can give you proper information/advice. I think if we have information that we are able to understand, the more able we are to make informed decisions.
Our helpliners are around until 5pm if you are able to call to talk your queries over?
0808 800 6000
i also haven't had a line fitted but hope we can offer you support in our little group.
Please come over to fb if you can.