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Oncologist appointment tomorrow, terrified

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Re: Oncologist appointment tomorrow, terrified

Ladies, just a quickie but I wanted to say that not everyone struggles with chemo. I coped really well, I was sick after my first one but my Meds were adjusted and I was never sick again. I continued to work full time, albeit from home and look after my then 4 year old daughter. Radiotherapy was during the summer holiday from school and I had my appointments first thing before my husband went to work and still managed to run the house, work and take my little girl for days out etc. We went on holiday 3 weeks after I finished radiotherapy. That was nearly 4 years ago, I've been in Tamoxifen since, also with no problems. The thought of chemo is more often than not, far worse than the reality. Take care all xxx

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Re: Oncologist appointment tomorrow, terrified

You will have no problem getting a refund on your flights Tina but not sure about apartment unless you booked it through an travel agents, from a radiotheraphy point of view i flew abroad two weeks after they finished but i hadnt had chemo as well so hopefully someone else can answer better than me, you will start to get your head around it all but just a day at a time Xx
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Re: Oncologist appointment tomorrow, terrified

Well im booked in for my fec 20th may, the day after my birthday! Pre chemo chat(whatever that is )on 18th. 

Im giving the  cap a go. She talked about other stuff like when  the herceptin parts added, about self injecting with something  or other further along too but i couldn't retain the info.i think she booked me in for a bone scan and something  else to put my mind at rest.....cant remember! Ill just take it a day at a time i suppose. People keep asking how i am,how i feel ......what can they do to help......I've  no idea.

Im not gonna sit my littlest one down and chat about it,  im just going to  again see how it goes and address  things as they arise.

Ive worked out my last session before radiotherapy and hormone therapy is 2nd September. ...so.....in your opinion when wouldi be well enough to actually go abroad on the holiday weve already booked. I need to call airline and seeif they'dbe so kind as to let us defer our flight dates. Then email the apartment and ask the same question. Is there anything practical youd suggest i do now or buy before 20th? 

Tina xx

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Re: Oncologist appointment tomorrow, terrified

Hi Tina Hope you got on ok & they answered all your questions. x
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Re: Oncologist appointment tomorrow, terrified

Hello Tina Jinks

 

Thinking of you today as you attend a your appointment.  I think one of the most difficult things in all of this is the 'no guarantees', second only to the interuption into my plans.  I am one of lifes planners, i had to cancel a 21 day cruise and a holiday in Zante for a wedding.... livid.   I was very scared of the Chemo, actually based only on films, my Mum died at 42 but she never received Chemo.

 

Husband is gorgeous but not medically minded, unable to explain symptoms or understand why everybody has a different recommended pathway.  He was surprised when somebody mentioned NICE guidelines.  He thought this was something me and our Son had made up.....We are both Clinical Nurse Specialists, me in Mental Health and Son in Renal Medicine.....

 

I was amazed at how resourceful he turned out to be and just the stuff we were able to talk about.  He is a Mindfulness convert.  If we want to do something, we do it now..... we don't plan to do it in a few years.  We have had a few excellent 'road trips' around the UK visiting all the places we went camping as kids and a couple of barge holidays,  such fun..  We are staying in London at the end of May in the Shan gri La Hotel which is in the Shard....... You have this 'new normal' to look forward to.  Our Son describes me now as Random, loosely translated as reckless and spending his inheritance.

 

Hubby did come to all my Chemo's with me except the second one where my Sister insisted on coming.  My Sister was also a rock.  I then had surgery. then radiotherapy.  By the time i had my radiotherapy i had managed to convince him i was fine.  I drove myself on the way to the gym for Yoga / Pilates.  My Radiotherapy was only 4 miles away from house and I requested all early appointments, one was as early as 6am but most between 7 and 8 am and you had an alloted parking space. I know that is not always the case. 

 

If you are Her2+ Herceptin is recommended and this has to be given with Chemo.  The Chemo really is carefully monitored, you are given steroid and anti sickness.  You have a helpline number and you can always go to A & E.   The best way to described the feeling after Chemo is like really bad Flu and the side effects are different from FEC to Taxol.  I used to have mine on Thursday, i worked from home on the Friday and Monday then went in Tuesday.  My Trust did not allow me to be client facing, so i did Duty which is a desk based role for clients (this is usually on a rota system).  Work helped to keep some normality in my life but you have to do what works for you. 

 

You will be able to join the monthly threads and ask for advise at the time,  get support on bad days and you can rant about useless Husbands and Kids and particularly about the odd things people say that are laughable.......It was sometimes surreal when everybody else was getting on with their lives and you are going through this but you really will get through it.  Just listen to you body.    

 

Have you got a Haven or a Maggies in your area.  I haven't but we have a small Cancer Care trust and i had Reiki there and went to a couple of coffee mornings which is not my usual thing but was helpful.  Always planned a treat before the next Chemo when i was feeling at my best, facial, day out etc   

 

It is now more than 3 years since i finished Chemo, have had surgeries and rads since.  Initial disgnosis was IDC 6.5cm tumour in right breast ER+8 PR+8 grade 2 stage 3. 

 

Let us know later how you get on...Take Care of yourself.  Butterfly x      

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Re: Oncologist appointment tomorrow, terrified

Thats pretty shocking Tina, what a mistake to make!! All letters ive recieved are from a surgeon not my BCN, yes i remember the Brittas Empire! Maybe shes a raving alcoholic too 😉mine was really sweet and came to my oncology appoint but i understand why you declined her kind offer!! Xx
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Re: Oncologist appointment tomorrow, terrified

Hi

Yes it indeed turned out to be a mistake in the letter from the bcn. I was annoyed obviously and surgeon apologised profusely.  I rang said nurse too just to let her know how upsetting it was. Theyre now changing the policy so bcns dont also send out the results. This bcn isn't  my cup of tea anyway! She sat literally 3cm from my face telling me about wigs n chemo n stuff in my appointment. ..shes the absolute spit of mrs brittas if you remember that program. ....anyways she asked if as a special treatment id like her to attend my oncology meeting tomorrow with me ......err....no thanks! Xx

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Re: Oncologist appointment tomorrow, terrified

Hi Tina, I'm guessing you got the mix up over your HER 2 status sorted? Your oncologist isn't there to lay down the law about what you should and shouldn't do, they will give you the facts and their recommendation and explain why they feel you need this course of treatment, they cant give you any guarantees and they have to tell you this but I know it's these things that stick in your mind , it all comes down to you living with the decision you make, hopefully after your appointment you will feel a bit better Xx Jo 

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Oncologist appointment tomorrow, terrified

Well its finally here, appointment tomorrow at 11.

I feel like im going to be  defense council for my body!

Im grade 3 her2 er positive,  so the dreaded CH for me im guessing. I will ask about alternatives but i think ill just be clutching at straws. I have 3 girls 21,18 and 7. I had a lump 7 years ago and it turned out that it was hormonal ie pregnant! 

Not sure at my age id of preferred it to be the same this time lol, i was 42 then!,....weird that the lumps in the exact same place. I think the surgery was a walk in the park  compared to what lies ahead! Gutted as my dream holiday is booked for august so i suppose thatll be a no go unless hubby takes them alone. 

I watch my dad struggling through his chemo and itll be the hardest thing ill have to do is tell him..

Anyway.....sorry to waffle, just helps a little to type it out as im a verry private person. ...my family dont talk about things any deeper than the weather! So although i know its not healthy, i keep myself  to myself. My husband is the biggest sress head ever born....thats hard to handle so i play everything down. Although i did make him come to my results appointment and hd nearly fell off his chair when CH was mentioned. The thing he....and me really struggle with is the words he said when he stated theyd be recommending CH but it doesn't guarantee itll scoop up any rogue cells, nor will it guarantee it wont return! My friend had exact same stats as me 2 years ago and hers has returned! My other friend refused CH 5 years agk and shes fine so far! Anyway ill clear off now....will update tomorrow if my heads up to it.

Ps....i wont be able to work either in my amazing job....i work in a school with children with severe learning difficulties 

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