Hope you don't mind me jumping in, but am feeling a bit rubbish almost three weeks post radio, with a tight feeling inside like I can't breathe quite properly and like someone is standing on my chest, not to mention fatigue. I saw you had a lung problem and wondered if this might have happened to me. I wondered how you found out. Did they x ray you to see this? Will it get better- Im really worried about it but feel every time I mentuon things they just think Im anxious! Can you help at all.
Thank you Katykookabura, and I hope you are doing much better xx
Sukimk - Sorry nobody has replied. Threads in this forum are very difficult to keep track of so maybe, like me, they just didn't see your post.
I hope your RT went OK - wasn't it starting Thu? If I were you I wouldn't wait for your Occupational Health to contact you but call them yourself and also keep in touch with your management at work to let them know what's going on. Don't try to go back until you feel ready.
I am due to start rads on the 30th September 25 sessions, consultant rang me yesterday and said he forgot to mention that i was to have rads to my collar bone as well, has any one else had to have this as well? bit worried now.
good luck to all of you going through this,
JF, if you can't even think about going back to work then don't. I think everyone on these discussion groups has learnt the hard way to listen to their bodies - and hearts. In our digital always-connected world we've got away from using our instincts and our gut feelings. These months of forced inactivity have allowed those inner voices to come back. So listen to them!!! Then you'll know when it's time to think and time to do.
Ah yes, just when you think you're winning ...! I was forewarned by a friend who'd had radiotherapy that the effects really hit big time about 10-14 days after your last session. He had it for colo-rectal cancer, but he was absolutely right. It got worse for a few days, then you do start to come back up again, promise! I had far fewer than you, only 15, but as the effects are cumulative it doesn't sound surprising that it's affecting you more.
As to the how long does it last question? Looking on other breast cancer sites the answer seems to be 'as long as it takes'. You're not a wimp if you don't feel ready to go back to work just yet. I think that even thinking about it sounds like pushing it. Does your work have a part-time capacity? But please, please, be kind to yourself. Don't beat yourself up if you don't feel you can make 23rd. It sounds awfully ambitious to me!!
Don't ever forget that radiation is a very powerful weapon, but because we just lie under a whirring machine for a few minutes we lose sight of that. It's killing cells, which is a good thing as it's very targeted, but our bodies need to get over the 'hey lady, what the heck do you think you're doing to me?' reaction, and on with the 'OK, let me catch my breath and then get back to building you back up again. Please don't do that again!' reaction.
I'm 5 weeks after finishing, still needing an afternoon lie-down half the time, but feeling better everyday. But I'm mostly retired, what work I do is at home on the computer, and I'm old enough to have learnt that my energy is not boundless!