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Operation booked

13 REPLIES 13
swampy1901
Member

Re: Operation booked

I have been doing the exercises and I am starting to be more active. But activity then wipes me out and I have to rest again but this I'm told is normal so if a wash in the morning takes 10 minutes it's usually followed by a 10 minutes flop back on the bed 🙂  but the activity bursts are getting longer and the snoozes are no longer happening which has the good knock on effect of sleeping properly at night.

The Hospital I had my operation at is 40 odd miles away from my home even though my local general hospital is only 3 minutes away but that is the price we pay for specialist centres of excellence. The Breast care unit at my local hospital is superb and can do simple mastectomies and WLEs but not plastic surgery and while I have been under the care of two consultants in different areas - both have seen me while I was in hospital. My local consultant offered to do the dressings but the plastics unit prefer to do the first dressings change so they are both interactive and work effectively side  by side for me anyway.

The Results are being transferred to my local unit and my appointment is set for next Friday so hopefully we'll be discussing the next stage of my treatment.

 

traceylois
Member

Re: Operation booked

Hi, I feel the same, 'moving around very gingerly' yep Deffo doing that I have a little boy who likes to jump on me so I'm always on edge! I don't have a nurse visiting me and chose to change my own dressing rather than go back in to hospital. I have started leaving the house just with my mam to look for nice things for the garden. I am looking forward to feeling myself again, are you managing with the exercises? My main worry now is the test results x
Janey2
Member

Re: Operation booked

Hi Swampy. So glad it went well and hope you're now enjoying sleeps rather than counting them. I dint much like roller coasters as a kid and the emotional one is not fun at all. Hugs xx
swampy1901
Member

Re: Operation booked

HI 

It went well thank you. I came out of hospital on Wednesday and went back in today for dressing changes and a district nurse will call in and see me next week. All seems to be healing well but the district nurse will check one or two areas more for caution than concern - But I'm ok with that.

I'm still moving around very gingerly and trying to get on board with the fact that I have had a major operation. A bit shell-shocked if I'm honest and emotionally although I'm told that is all normal.

How was your operation traceylois? Was everything straightforward?

traceylois
Member

Re: Operation booked

How did it go? I had my op on 18th too!
swampy1901
Member

Re: Operation booked

Hi Janey

 

Well it sounds like sleeps are the way to go - if I could sleep through them all as well as the bus it would all be so much better lol x

Janey2
Member

Re: Operation booked

Hi Swampy. Counting in sleeps is the best way to count and getting the op out of the way felt like such a great hurdle to have leapt. I just wish we could be as speedy as Jessica Ennis Hill at clearing them all quickly! The bus will get you, but it seems to be past the worst after a further 3 or 4 sleeps! X
swampy1901
Member

Re: Operation booked

Not sure if I'm being ridiculous or not- I keep counting how many sleeps until I go in to HospitalCat Surprised Dreading it but also wanting it all over with as soon as possible. Feel a bit of a fraud in that I feel really well and that generally I am rarely poorly and know that this operation could well leave me feeling like like I've been run over by a bus. I could be the patient from hell and not know it!!Cat LOL

swampy1901
Member

Re: Operation booked

Hi Clair

My BCN has been brilliant - phoned me if she's not heard from me to check all is ok - updated information on appointments, gone through my histology reports, nothing is too much trouble for her.

My pre op tests went well today and didn't take too long - there were no queues for xrays, bloods or ecgs - so that was a bonus.

I also saw the consultant who gave me a brief update on my CT scan and gave me the news that due to the size of some of my blood vessels I made need to have a TRAM flap rather than a DIEP flap but they won't know until I'm on the operating table. But whatever the results will be very similar but there could be a different of possible complications but then they have to tell you the worse case scenario of everything anyway. So consent has been filled in and signed and I just need to pack a bag and turn up next Thursday!!

Like you I have High Grade DCIS but with multiple foci of Grade ll invasive ductal cancer but because it measured 93mm and I have DCIS all over - it has to be a mastectomy - I may escape radiotherapy but it's all a guessing game. They need to examine everything they remove to give definite information but Tamoxifen is on the cards!!

I'll be thinking about you on Monday as I should be relatively alert by then but then I'm in for around a week before I'm discharged - apparently I need to learn to inject myself - that'll be fun - NOT!! lol

Lots of Luck - you're going to be fine xx

Cla46
Member

Re: Operation booked

Hi, I've got DCIS high grade and I had my pre op and a chat with the BCN today for my WLE on Monday 25 th. I'm having a wire put in first then surgery , I was petrified yesterday with all sorts going through my head but the BCN was amazing she showed me my mammogram and the size and situation of it and explained everything fully I'll probably be having radiotherapy after I've recovered but it all depends on my results . My advice if your at all worried about anything at all is to ring your BCN and have a chat. I felt I didn't want to bother them but mine didn't mind at all good luck with everything love Clair xxx
Caroluna
Member

Re: Operation booked

Hiya Swampy

Every best wish for a smooth and successful op. I'm 6 weeks post MX/DIEP, all going well but still taking it easy.

You'll get loads of support and info here, xx C

Jill1998
Community Champion

Re: Operation booked

Good luck Swampy,it's daunting but it does feel so much better after op when you know they have taken the bugger out!!!
Lizzy_BCC
Member

Re: Operation booked

Hi swampy1901, 

 

I am sure some users will be along soon to offer their support. I have moved your post to the Surgery board to give users more of a chance to see it and respond. You can also find out more about DIEP flap Reconstruction on our website.

 

In the meantime please do call our helpline at 0808 800 6000 who will be able to talk you through any questions you may have and offer a friendly ear. The opening hours are below. 

 

Monday-Friday, 9am-5pm
Late opening Wednesday 9am-7pm
Saturday, 9am-1pm

 

Best wishes, 

 

Lizzy 

swampy1901
Member

Operation booked

Had my CT scan yesterday and then today had a phone call to say Pre-op tests booked for 11th August. My Sentinel Node biopsy is booked for the 18th with my operation for MX plus DIEP flap reconstruction booked for 19th August. Better start packing a bag...........:Cat Sad