Hi mate, give yourself time you have an awful lot to take in. I am sure that they will miss you much more than you will miss them and that they will keep in touch with you whilst you are away.
Hugs back at you xxxx
We are all here with you supporting you all the way my darling
Hey, how are you today xx
You will be there soon with your treatment as well, it is quite weird I must admit because you appear to be on this constant conveyor belt of hospital appointments and then someone seems to just turn the machine off and wham thats it. I have a review with my oncologist in March and then clinic apt sometime Sept/Oct but that is it now, compared to being there everyday for 5 weeks. Mind I do not miss it :).
Appointments are like buses, none for ages and then they all come at once. Let us know how you get on tomoz.
Well I have done another 5 hours today and am feeling ok. I am aiming for 20 hours this week. The big day will be Thursday as I have not done one since Oct last year, eecckkk.
Post rads I have not had any major problems skin has been good, the nip has settled back down and the fatigue I have experienced has not been that bad at all.
It is so great to hear from you, have really missed your posts. It will get better honestly, just remember how far you have come my friend, you've done so well. I know its a pain when you can not have a wash/shower or anything like that. Hopefully this will bring a smile to your face, my excitement when I finished my rads and got past the two week post rads:
I can shave my armpits (and believe you me they were BAD)
I can wear deoderant
I can put on my own moisturiser
I can spray perfume all over my chest
The simple things in life 🙂
This is a huge huge huggle winging its way over the virtual web to you
Just come across this on another forum and thought I would post info. It's a charity called Smalls for All who donate lightly worn bras to women living in poverty in Africa. I hope post-surgery women don't think I'm being insensitive but I thought there might be drawers full of unsuitable underwired bras lying around.I'm not at your stage as I'm chemo first and don't know if this seems a bit of a crass thing to post? Anyway the link is http://www.smallsforall.org/
What time is you rads appointment today Strudel - cause I'm following you around the threads like a lost sheep. I start typing and by the time I have posted - you have already sneaked in
Good morning. Lexxy I can certainly relate to some of the things you are saying. Potentially I could be off work for up to a year & that is frustrating me. My mother is going out shopping this morning & I'm feeling upset that I can't go with her to help
After yesterday's op I'm feeling a bit wobbly on my feet. I slept okay last night and was even able to lie on my right side where the wound is. I've just done some simple arm exercises I have to do 4 times a day & I'm exhausted.
I'm taking it easy today. I've no other option as difficult as it might be for me to do so...
Holy moly macaroni - guess who's got an appointment with the Chemo nurse tomorrow at 10am?
Sarah - I shall join you on the mediterranean diet - we shall book tickets and fly off somewhere nice
Hi Emma, it's good to hear from you. I looked like I had been beaten and rolled in a carpet and chucked in a dumpster. I was purple, blue and yellow everywhere. I didn't wash my hair for over a week, but I did cheat and used deoderant wipes from day one. I just did the bit in my armpit. No matter what your histology report comes up with, they will sort it, I knew that if it was in my nodes I would have to go in for another operation (and I really didn't want to, especially as I was sick twice when I came round), but I would have done it. If you have to have chemo, we will all be bald together my darling. I hope you have a lovely day with your daughter.
Strudel - I'm with you on the weight issue, although I have a lot more than a couple of stones to lose. I've never been bothered about being fat - I'm healthy and use to be able to walk for miles, but since I've done my knee (they won't replace it for another 10 years) I need to get the weight off to relieve the pain. I know we talked about it before, but maybe we should set up a fat thread and put down how much we have lost each week to encourage each other, whether it is on here or on FB. Good luck for your rads today.
Jane - I can't believe you are nearly at the end of your treatment, I wish I was where you are now. Although, I'm not sure how I will feel once it has all finished, probably just burst in to tears. Hugs to you.
Helena - Good morning my lovely lady.
Hugs to everyone.
Thought I'd better make an appearance. The last few days have been a bit of a struggle and whilst I've read the posts, it's been kind of difficult to put anything into words. I've had my dressings off and look such a mess. I have tissue expanders that haven't got anything much in them yet (they inject saline a bit at a time over a few weeks so the skin stretches ready for proper reconstruction at a later date). They look lop sided and all puckered with all sorts of dents and of course there are the scars right across. Looks like a bit of a battle ground. Then there's the fear of the lymph nodes and the histology in general. The reconstruction nurse who took my dressings off confirmed that they went further into my armpit on the right side which is the side that had the small ductal cancer not the one with the big lobular cancer which seems a bit strange. My right side is more swollen and painful than the left. Anyway just the talk of it made me feel panicked.
Basically my body looks and feels like a war zone, I stink and I keep bursting into tears.
I can't can't imagine more of a contrast with the way I look and your lovely photo 3 days post op Alex! You look amazing. And your comment made me laugh Susan! Can relate to that. Alex you seem to be doing amazingly well.
And talking of lovely photos, your glamorous granny with beautiful boy and super stylish headscarf bobbed up through the morphine haze when I was in hospital Ali and I don't think I commented! Fabulous!
I will get a grip today I'm sure. My daughter's coming round which will be lovely. She will help me get back on track I know and won't let me wallow too much.
Lexxy and Sarah I hope you are feeling ok this morning. I can see the chemo is a shock but hope that now you know everything you can start looking forward to ticking things off and making progress. It sounds as though you are taking a very practical and positive approach to it. I am glad for you that there is so much amazing support, knowledge and experience from ladies on here who have been through the same.
Emily I am so happy for you that you have avoided it and yes it does seem odd the be offered mx at this stage and can see why you wouldn't want that!
Strudel I'm afraid I'm with you on the weight loss thing. As if we don't have enough to worry about! I need to shift a couple of stone if I'm honest and thinking about how I can change my diet to have more cancer busting stuff and fewer calories. Doesn't sound like too much fun - and then there's the drinking too aggghhh!! I'm sure there's a big opportunity here for a better, healthier life after all this is over but sometimes it's hard to keep that vision and resolve.
Elizabeth, it sounds as though they were lovely in the hospital which makes such a difference. It can feel a bit of a shock when you get home so be kind to yourself and take it slow.
i am going to make sure I keep up with this thread today and try to re-engage with the world a bit xxx
Phew, Emily. I fell asleep on the sofa before you reappeared, so I'm glad it was nothing worse than cooking etc that delayed you.
Strudel, I really hope today goes well.
We've got pretty well the whole gamut going on here, from op plus rads, through plus chemo, to the backwards ones like me and Scotty with chemo first. It's weird how quickly it seems normal to go through it. I'm pretty sure that this forum helps far beyond the superficial support outsiders might see.
Anyway, enough of musing, I am going to grab a long bath before anyone else is up.
See you all later,
I'm okay thanks Helena. Coped fine throughout radiotherapy, but emotions are a bit to the fore again. Think it's partly because the daily treatment is coming to an end, and I have my first counselling session on Saturday, so a bit apprehensive about the emotional response that will bring. It's got yo be a positive move forward though.
It was only an extra hour today but I am planning to do 20 hours this week 🙂 it will be interesting to see how it goes as I will be working on Thursday as well and it is the first time I have done that since October, but I will be sensible if I feel I cant do it.
You ok xxxx
lol Stru I was very honest when he asked me what I drank so I am now on a dry feburay..march ...april roll lol!
Definitely no MX . I was like, why offer it again now, I have already had surgery!!!
the radiotherapy is very doable, you just need to make sure that you drink plenty of fluid, moisturise well and get plenty of rest xxxx
Yay well that is great news and must be such a relief xxx
To be honest a couple of weeks after I started taking it I had times when I felt very emotional and sensitive but that has now passed off xx
Really good to hear from you
OMG I'm sooo sorry I didn't mean to worry anyone, thank you so much for your messages xxx I just got lost in friends and family and cooking tea xxxxxxxx
I have oncotype score of 17 so no chemo. Oncologist was lovely....what did you think Lexxy? I'm almost disapointed that its not chemo, I had myself worked up to it lol! But I'm having the 3 weeks plus the 5 boosters of radiotherapy....I was quite shocked that I was offered a mastechtomy if I didn;t want radiotherapy!!
I'm sorry sarah and Lexxy both have to have chemo. xxxxxxxx
I'm really reallysorry for worrying everyone xxx
I was thinking the same thing myself xxx
I feel okay but just need to remember to keep taking pain killers every 4 hours to keep pain at the bare minimum.
Next for me is an appointment with the oncologist on Wednesday & will get an appointment with my GP on Thursday to get a sick line for work & ask him or her to look at my wound.
I asked my friend Gail if she would come with me to chose a whig & then we can go for lunch afterwards