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Our Journey Together - diagnosed Sept 2011, Op October.

Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hi Julie

Just offering you a warm welcome to the gang lol
you didnt go on at all - its really nice to get a bit of background about each other actually.

I found my lump via accident laying in bed one morning -like you..i just KNEW -call it 6th sense whatever.... intuition.

I start Chemo this Wednesday along with a couple of other girls on here. They could see one tumour on Mammo and ultrasound but there is another one in there which pathology found at the edge of my excision - so straight to chemo and Mastectomy in 6 months for me.

Im truly crapping myself for Wednesday but the girls on BCC are making it easier for me to deal with. Just fear of the unknown I guess.

Re: Our Journey Together - diagnosed Sept 2011, Op October.

Mirador - you are an inspriation to us all. I will ask and see what happens, if they say NO I will remember your words and stamp my feet - promise!!
Tankgirl, good luck for tomorrow let us know how you get on as soon as you can. Not sure if you can take a laptop in with you, think it may 'interfere' with machinery etc - worth a try maybe!! Could be very interesting reading what you have to say immediately after the op when we are all a bit 'spaced out', moderator may not allow some of the things you would wish to say!!!
Did not introduce myself properly, so here goes ....
I am 68 years old and have 2 grown sons and 6 grandchildren, I live in Essex and attend Broomfield Hospital in Chelmsford. Found a 'thickening' in September and eventually told Doc, Hospital appt on 3rd October for Mammagram, ultra sound etc, not told that day but I KNEW that it was cancer. One week later (10th Oct) hospital appt, and informed that it was cancer (already knew that so no surprises there), op on 3rd November, had the radio active injection the day before. Found it was like a taking off, suddenly my life was taken over with appointments etc and life seemed to look so different, very emotional without any cause at times, cry at stoooopid things and get cross with myself. However I love dogs and breed them and show them, they are keeping me sane I think, I even went to a dog show yesterday and won with my 9 month old puppy - this made me feel good even if many of my doggy friends did not know about my op and asked what the big bruise was on my hand (happened when needle removed) and therefore ended up telling them all about it - lots of support and care, phone call in the evening from a doggy friend in Manchester!! She had heard the news - the dog world is a very small one I think!!
I am very lucky with the support I get and this forum is wonderful, it seems to answer so many of my questions before I even have time to think of them - keep it up girls.
Hugs to you all xxxxxxxxxxxxxxx
Julie
Sorry I have gone on a bit .....

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hello Keepingpositive,

I had second op last week as they seen something more which did not show at first, feeling OK i accepted last op a bit better albeit bigger dent on side of booby, just think we will weigh less haha.

i new what to expect this time took it more in my stride, even so cant stop feeling scared of results on 17th.

Our surgeons try to conserve our breast as best as they can plus we will have more time to weigh up our options as it is OUR decision.

Keep positive Pat xx

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Herbi - good luck for tomorrow, will be thinking of you and following you on the 10th!
i have had no scans yet either nad wondering why as everyone else seems to have. but prob do after.

Julita - i am always worried that it has gone to other parts, any ache then it has spread but i keep those worries to myself and don't tell OH as he would be a basket case!

Sunflower - went to local fireworks and i can't tell you how many **doggy doe eyed look** and **head tilts on side** i had. Made me chuckle how you described it!!

Off to pack my bags now.....can you take in a laptop???? Got my Mamma Mia DVD with me!!!!

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hello Julita,

Yippee you have found us dont forget to save thread as it will make it easier for you to find us.

Yes our anxiety can get better of us at times, i say to my partner brace yourself for the worse relax after.

I would ask for all test to be done and stamp your feet until you get what you want, i only wish i had done this, you have to fight for everything, i accepted what i was told at beginning.now it is dire.

Keeping fingers crossed for all of us, we have to be brave.

Keep pecker up Pat xx

Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hi everyone
I am joining you at Miradors suggestion, I had my op in November, but hope I am still welcome!!
Reading all your posts I wonder why I am bothered at all, I feel a bit of a fraud now as I have had my operation on the 3rd and my lovely surgeon managed to deal with the sentinel Lymph node bit via the incision for the tumour removal, so I have only one incision and seem to be able to move my arm without any bother at all, in fact apart from the massive bruising and the pain from that, I am just fine, a little more tired than usual but that is all.
I am now managing to frighten myself with wondering if it has gone to the other breast, or to other parts of my body, do you others do that too? I would love to have a full body scan to find out, but doubt that it will be offered to me, can ask I suppose, they can only say NO. So I am with you 'keeping positive', but without much reason really.
My results on 14th November, so just one week to wait, not so long, but does seem like an age sometimes.
Julita

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hi All

I haven't been on the site for a couple of days as I am trying to come to terms with having another operation. I am scheduled to have it on 22 November. I am due to have more of my breast tissue removed and an auxillary clearance. All sorts of thoughts have been crowding my mind. A friend suggested I ask for a masectomy straight away, I have also been thinking about secondary cancer - not good thoughts. I have so many questions and have asked my breast care nurse for counselling as I also have bipolar and need to keep an eye on my stress levels. I have decided to go back to work for the next couple of weeks to help keep my mind off things.

This is such a good thread and everyone is so supportive of each other. Thinking of you on the 8th heridacious and wishing all the rest of you ladies well.

Much love
Gillian xx

Re: Our Journey Together - diagnosed Sept 2011, Op October.

Best wishes for the 8th herbidacious 1 You have a superb group of people rooting for you on the forum thread "diagnosed Sep."...... I have been glancing through various postings because surprise surprise sleep is eluding me. On this posting everybody is talking so well about emotional as well as physical problems and that is just what you need. It is so easy for the emotional to be hidden with bravado. The operation will probably be much less of a problem than you think. If you are upset don't worry people are there to give you a cuddle if you want one. I found a bilateral mastectomy and node clearances surprisingly pain free ... So I hope you do too.
It is not unusual for tests such as C.T. Scans to be done after surgery. Particularly if it would make no difference to your treatment. They might not have wanted to delay surgery just to conduct an imaging test. Perhaps there was a delay in getting one done.
Anyway lots and lots of thought go with you for Tuesday.
Big Hug
Cackles xxx

Re: Our Journey Together - diagnosed Sept 2011, Op October.

hi all,
my mx on the 8th nov is looming and starting to feel really nervous. I'm really worried i'm just going to cry all day and be thourghly embarassing! and i hate not being prepared for stuff and i hate not knowing how i'm going to feel when i see myself afterwards.
i'm also concerned that, as yet, i have been offered no scans. i know my nodes are effected and are being removed but although i asked about ct scans nothing has happened, any one else had this or is it just living in the west country where everything is slow!
Herbi x

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Evening all,

Mirador - Hope things get better for you soon lovely. I have got history of blood clots in the family but i am seeing the ONC nurse tomorrow so will double check.

Sunflower - I know the feeling about friends, some have been ace while others have already wrote me off, even went as far as saying God its everywhere isn't it? everyones dying of cancer!! I was like ummmm well no thats not the blinking plan, it is bad having any kind of cancer but they can be treated needless to say that put me in a bad mood. Best thing to do is talk to friends that can support you and be positive rather than others who seem quite negative.

Sleep fairy came to me late last night at 2am and i slept through till nearly 10am this morning woo hoo result or could of that been the 3 larger shandys i had 😉 xxxx

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

morning ladies
I am loving your abbreviations excellent!

I love coming on here now to see what everyone is up to
Pat hope you feel better today sounds like you are having a bit of rubbish time of things

had a lovely time at a party last night good to catch up with lots of friends,but does anyone find that some people who you aren't so close to give you that **doggy doe eyed look** and **head tilts on side** and they say "how are you, how are you feeling" I know they mean well but I just want to scream "how the bleeping hell do you think I am feeling?!" and I am usually quite a nice person hehehe

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hi to pink buds,

I thought i was being clever in not wearing bra. what a mistake booby soon filled up, bra rapidly put on to ease pain then that funny feeling of trickling down inside isnt it weird kept on thinking it was wound leaking.feeling fiesty today some names i am calling gremlin good job neighbour cant hear.

PP,
reason why you are not having TAX i was told any history of blood clots they dont like giving it.

Sunflower, applestreet,
Hope you are keeping pecker up, a few more days after you when i will now what my plan will be.

Thinking of you all Pat xx

Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hi

I've decided FEC stands for FECIN HORRID and TAX is just going to be TAXING from what I've read I know I need them but they sound like just what I've written!!! M

Nana nap was just what the doctor ordered (no pun intended!) but at bedtime the sleep fairy lost the key to my front door!!!

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hey everyone,

Mirador - your right having no hair for a while will save me at least £60 every 6-8 weeks.

tankgirl - Im have the same feeling about chemo the sooner it starts the sooner it finishes.

Libralady - Glad the hickman line went well something i will have to think about so its nice to read some positive stories on this.

applestreet - nana naps are ace!!

Sunflower - Im still learing all the lingo too, im having FEC although i dont FECing want to, not sure why i can't have TAX did ask the ONC but didn't get much of a reply, they will prob give me more info on monday when i see the nurse.

I spent the night at my dads last night with my son, put my feet up and got waited on hand and foot brill night, and tonight im off to pick up an old friend who i grew up with and we are off to worcester for the fireworks.

Hope everyone has a good weekend xxxxxxx

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hi as we are all moving from newly diagnosed to treatment I found I was struggling with some of the abbreviations, looked in the glossary and answeres weren't there. I eventually found the link below - hope it works- it has all the abbreviations and acronyms in so I now know what FEC and TAX is wish we didn't have to know what these words were 😞

http://www.breastcancercare.org.uk/forum/abbreviations-and-acronyms-used-on-the-forum-t24993s0.html

Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hi

thanks for all the positive vibes, I needed them this morning!!!!

Onc was a lady one so she didn't mind me crying all over her office!! Starting chemo 14th nov, 3 fec 3 tax so at least I'll be able to get 2 over and done with before xmas. Got to go to get wig sorted on fri 11th so that I won't be a baldy nana on the xmas day photos!!! Had a good talk to a chemo nurse, she was lovely, then tour of the chemo suite. They have complementary therapy, might partake in a bit of that!

Sorry couldn't join in coffee morning was having a nervous breakdown at the hossie!! Spent the afternoon having a nana nap after all the drama.

Best wishes to everyone and enjoy the fireworks if you like them. M

Re: Our Journey Together - diagnosed Sept 2011, Op October.

Tankgirl - I understand what you mean - although im not over the moon about my chemo(who would be) - but Im desperate to get it going as im aware there is still this damn cancer inside of me and I want the chemo to kick ass....maybe we are weird lol!

Mirador........maybe we can "pimp your ride" and put some bling alloys on the scooter! But sorry you are achey today - heres a (((HUG)) - and yes I agree we could do with a cyber mother - ya'll know some of us will need to be kept in check! ha ha ha

Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hi keepingpositive & Jube 🙂

Applestreet hun – keep your chin up – we are here

Sorry I couldn't join you for coffee this morning ladies - I was at the hospital having my Hickman line put in. Went OK, didnt end up having any sedation - a little uncomfortable at times admittedly but not unbearable.

Im a little sore now im home, mostly in the neck area but the said it should pass in a few days.

Jube, my treatment plan is similar to yours, im having x4 FEC and x4 Tax, I had 2 positive lymph nodes. Im starting Chemo next week and having an Mx when chemo is done along with removing the rest of the lymph nodes - then RADS at QE then onto reconstruction 12 months after that.

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Great to have amazing friends and family - sis has just brought me an amazing fattening chorizo risotto which i just have to zap in micro!! yum, yum!

Friends brought cake and tea so no butler needed just yet, maybee next week...

countdown to next Thurs and mx....

strangly excited?! is that wierd???

Mirador - i was watchin Loose women too!!! Lady in my town has a 3 wheeler scooter that looks like a harley davidson motorbike, maybee you can customize!?

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hello to our team of buddies,

I am going to be mummy to you all, now then where do we start,

PP, our kids do find it strange at times with any change in our appearance, i have a head tremor well the remarks and stares,family children ask why are you always saying no, surgeon said with your Parkinson disease. WHAT i asked, no such thing.

A nice choice of scarfs, less money for hairdressers as we can highlight our own wigs what a saving.we may attract a TV crew.to join us at our own virtual DOWNTOWN pink tea party join in girls tea arriving ooppss cant lift tea pot butler where are you?.

I now use a mobility scooter granddaughter thought it is great wanted a photo taken on it, i bl--dy dont, saying that just seen a clip on TV series Benidorm with 2 Loose Woman having fun on one.

I wish i could be there holding your hand when you are waiting for results feel my aura around you as i am thinking of you all.

I am having lot of pain today dont feel like putting on bra,tablet needed, hurt a lot yesterday better day tomorrow, hope you all enjoy bonfire night.

The aroma of your cooking PP is drifting my way.

Keep pecker up Pat xx

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Afternoon Ladies,

Well i never thought i would enjoy housework but have a nice clean house and feel much better for it, taken my mind off negative thoughts and have even have some honey and mustard chicken cooking away in the slow cooker!

That coffee and biscuit was just what i needed sunflower, thank you

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

will be thinking about you today applestreet and all our lovely ladies on here

Welcome to the new ladies we will all learn so much from each other I know I do, at least when we get to our appointments we sort of understand what they are saying to us

Coffee Morning!(changed my profile photo especially for this occasion!)

Just made a cuppa got a biscuit so hope you will all join me in a 'virtual coffee morning' crazy I know but being slightly crazy keeps me going through all this madness!

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Good Luck Applestreet

thinking of you (((HUGS)))

xxxx

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Holding your hand applestreetXXX
good luckXX

Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hi applestreet,
Hope it all goes well today, it will be better wen u know wat is going on, sending u a cyber hand hold,
Herbi x

Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hi

Off to see onc today, am absolutely scared stiff. Have been awake on and off all night worrying. Have been reading threads all week and must say all the posts have been keeping up my spirits. Please hold my hand ladies I am so terrified of all this....M

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hi Jube,

I never heard the term belt and braces untill i had my results, why did you have both FEC and TAX?

My RADS will be for 6 weeks every other day, wish i could have reconstruction as they have taken both implants out but the surgon said no. Yes i live in Kempsey just outside worcester, i might be going back to the safari park on sunday if i dont overspend sat night at the warriors for disney fireworks lol. Im glad i found this site too as everyone knows what we are going through together.

Love and (((HUGS))) to all

Pinky xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hi Ladies, I'd like to join in please! I have just finished 3xFEC 3XTAX on Tues. Diagnosed April Grade 2 invasive Ductal, no vascular invasion, one lymph node involvement. MX May, belts and braces Chemo treatment Russells Hall Hospital Dudley.Just a couple of low white cell counts with two cycles a few aches & pains with TAX but ALL DOABLE. Its the fear of the unknown before it all starts. I like the Downton Abbey threads, I havn't missed one episode! I go back to Onc tommorow to see when I will have rest of lymph nodes removed, I think its in a few weeks time when effects of chemo have settled, then rads for 4 weeks & reconstruction next DEC, 12ths time. Pink Princess I think you might live fairly close to where I live! The Safari Park at Kiddi is close to Hagley where I live.The posts on here really do offer support & comfort, I would't have coped without them. I'm joining you with tea & cake! Love and hugs to you all on this journey.xxx

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Thanks Mirador,

I Know i have to do it but i'm completly Sh***ing myself, ONC said im not high risk of it coming back but not low risk either, wouldn't let me have a body or a bone scan. I asked why am i not having FEC and TAX she said you only need FEC no explanation just FEC, she also said if you feel unwell temp etc i have to go to cheltenham hospital not worcester and said people have died from infections!! (thanks Luv) came out feeling like i did when i was DX.

Although i have a date its still the waiting room, i'm rowing with OH about crap thats not really important and i just feel like i want to leave home and stay somewhere noone will find me untill i have finished treatment so i dont hinder anyone.

Bought a scalf off internet even though i wasn't going to bother and just wear a wig and tried it on and the kids take the P**s out of me. I shouted well its not my bl**dy fault im going to be bold, then i spend the rest of the day feeling guilty for saying it!!

Wish there was a magic pill we could all swollow feel like poo for a day or 2 and be cured for life(Such a nice thought)

Lots of love Pink-Princess xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hi Pink-princess,

You know your plan now sounds daunting, you will get through it.
Like a lot of our buddies has said we will look back at it all in a year time not nice for you at the moment we are fighting together.

group hug all around you Pat xx

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hi Girls,

Hope everyone is ok (or as well as they can be) and welcome to other that have joined the thread.

Just came back from seeing the ONC and felt like i was rushed and she couldnt wait to get out the room (nice lady tho). Didn't have time to ask all the questions i wanted so all i know is i am having 6 lots of FEC 3 weeks apart then 6 weeks of RADS every other day then 18 lots of herceptin followed by 5 years of tamoxifen.

oh and i will loose my hair and maybe have a sore mouth and feel tired (state the obvious). So glad i found this site as now can read through and get loads more info then what i had today.

I will be starting on 21st November.

xxx

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hello Keepingpositive,

Gillian nice to read you are joining our happy band of ladies who through our trauma are keeping each other together.

It is a shock when you receive your results, few of us can take it all in what we have been told at first,this is where are BC nurses are helpful to put our fears in perspective, when we return home reality sets in all things said to us sound like monsters.

There is a lot of inspirational ladies on here who can give you their uplifting stories which has been a great help to me and now for you.

I am waiting for another result day it seem to go on forever had second op Tuesday feeling a bit sore looking yuck now.
op three looming slowly being prepared for this,
boob job at end great.

Thinking of you Gillian, keep pecker up. Pat xx

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Libralady - thanks for the prayers XX
feel soooo much better today - went to my first local BC group. My Bcn was there and felt good to talk to women in similar situation.
Then went to prayer meeting with another friend, and i am not a regular church goer. But a minister was there who prayed for me and i don't know why but i do feel fantastic this morning compared to yesterday.
Won't start chemo till after xmas and healed properly after mx op.
So can relax a bit.
Praying for you all and major hugsXX
PS looking forward to Dowington Xmas special gonna be good!!!!

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hi everyone. Firstly what a lovely thread this is, I have been reading it for a while and wanting to join in but couldn't seem to bring myself to before getting my results yesterday.

About my journey so far

Diagnosed 28 September invasive ductal cancer 24mm grade 2.
19 October WLE with blue dye inserted and 6 lymph glands removed.
Results yesterday showed cancer in margins and in one of lymph glands. Still Dx as grade 2. I have been told that I need a reinsision and auxillary clearance and will more than likely have chemo.

I was absolutley floored and am finding it difficult to sleep which is why I am writing this at 4 in the morning. Have spent the last hour re-reading this thread from start to finish and I have to say it has brought me immense comfort. Lots of hugs flying around. Thank you sunflower for starting it.

Happy go lucky - I live near to sheffield. It would be good to be in touch with you.

Libra lady - I loved your story about your surprise telephone call, it really does help to restore your faith doesn't it.

Well my OH has just popped down so I am off back to bed feeling much better than I did before I re-read this thread.

Gillian x

Re: Our Journey Together - diagnosed Sept 2011, Op October.

libra lady - what a lovely story about tel call from your old client, its amazing how many people want to help and support you at a time like this
and i don't think there is anything wrong with letting it all out and having a good cry, so long as you're able to pull yourself together after
i had a good blub in the dentist chair on monday, had an extraction, due to have very large cyst on root, had to come out due to starting chemo on thurs, nearly had the dentist and her nurse crying with me.

Pat - i was laughing about you shouting at someone to stop snoring, my 2nd night in hosp i asked for sleeping tablet so i wouldn't have to hear any noise, well it worked 🙂

Herbi - i hope a bit of retail therapy will sort you out, and i know what you mean about feeling like a piece of meat, i like your description of being a penguin, good luck on the 8th, you'll find all the staff do their best to put you at ease and take your mind off it, the staff where i was, were all brilliant, mind you i did go under crying and woke up crying!! but they really do understand

right i need to go back to bed, 1st chemo at 9.30 and i only got up for a hot choc to try and help me sleep!

All the best to everyone

Gill x

Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hi all, thought I'd join in as my mx is on 8th Nov. Seems like I'm not the only one having a wobbly day today. Have been feeling pragmatic and resolute but had my pre or yesterday and am now feeling like one of those penguins running away from the killer whales on 'frozen planet' . I hate the thought of surgery and being vulnerable, and I'm scared of how I will feel about how I look afterwards. And most ridiculous of all, I had 2 lots of bloods done by different nurses and the second nurse has left me with a 2 inch wide bruise and a huge lump on my arm and it's really upset me that I'm in pain before treatment even started. Am feeling like a piece of meat 😞 . Never mind, day off and shopping tomorrow,
Sorry about the rant
Herbi x

Re: Our Journey Together - diagnosed Sept 2011, Op October.

hey ladies. .
downton is a must. watch it on iplayer lasses

i think ur all doing really well. n u will get down days and emotional. just go with it.

i went for my results today of the lump i had on my operation area. they lost my results, and found they had gone to cheltenham in error. by this point i was nearly passing out with fear. . anyway after a wait they were obtained, and was clear. crying flooded out, then i went asda and got some high in calories cookies. no butler for me tonight

xxxx

ps i love robbie savage, and holly valance is amazing

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Ahh Libralady... great big cyber hugs to you (((HUGS))). Thank you for your prayers I am sending them right back at ya! You reminded me that when you need spiritual help the most it is there for you. Hope your evening with friends is uplifting too, am sure it will be.

Was feeling down a little today too. Had lymph nodes removed yesterday and feeling a little bit sore and swollen. Also came home this evening to an empty house having stayed with my sister and her family last night. Have cooked a good nutritious supper and watching strictly Take 2 is cheering me up.

Take care everyone

D xx

Re: Our Journey Together - diagnosed Sept 2011, Op October.

Mirador - sending you some cyber hugs (((HUGS))) - glad you are home safe and sound. My lumpectomy also showed a 2nd type of cancer at the margins of the first one. The consultant said as the breast is unstable its in my best interest to have a Mx after Chemo - I have accepted and dealt with that quite easily - I dont know why? Its not that I dont like my breasts - but for me if they are a threat to me - then Id rather heed the consultants advice.

Sunflower & Tankgirl - also sending you both some cyber hugs (((HUGS))) -

I too had a wobble today, i kinda of felt lowish yesterday but didnt quite fall off the wagon so to speak. I feel ok for a week or so, then I just break and have a real cry, a heart sobbing God please help me cry. I tell no lie...I was sobbing today as I had an empty house and had silence which sent me down dark thoughts & gremlin road....the phone rang and i wasnt going to answer it as I didnt recognise the number and I was all sniffly...but something made me answer it. It was an old client of mine who had heard via my boss of my BC Dx.As I heard his voice I remembered his wife had BC a few years ago - she has just had her 5th year all clear check up...he wanted to speak with me and offer me just an ear and shoulder.....he expressed so much emotion - he knows what im going through and as he knows my hubby he is gonna call him to offer him some support.....im so grateful to him....right when I was at my lowest point for a week or so....he just calls....God works in mysterious ways....I felt like he was sending me support right at that moment. I have my faith and I just felt lifted, we prayed together on the phone and it has lifted my spirits. His wife is going to call me in a couple of days so we can talk, she also belong to a localish support group which may be good for me.

Whatever you all have that will lift your spirits you must try to visit it, whether its just talking it out to a close friend, having a cry to release pent up emotions or just closing your eyes and thinking beautiful thoughts....try and see yourself a year from now, past the treatment, getting better.....dont ever be afraid to believe that we WILL ALL be there in a year from now despite any barriers we may face on the way....we will face them together as much as possible because we know what each one of us us going through.

Please know that I pray for all of us, whether you believe or not it doesnt matter, you are all sisters to me.

A few of my friends are taking me out this evening for a drink and a meal....i honestly felt/feel like cancelling....I know they will understand...but im going....they are my friends and I need some energy from them...im delicate today and Lord knows I dont want to get emotional in front of them as I want to protect them from my pain.

If I dont get on here again this evening.....all of you have a great evening.

Much Love and Blessings in abundance to you all
xxxxx

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hello Ladies,

Just returned home from yep another op took it more in my stride this time, had to stay overnight because of drain, whish i took ear plugs, there was someone snoring so loudly forgot where i was and shouted keep quite thought i was shouting at OH I did not own up,
very surprised what i have been told, reason a second op docs found a large lump in deep tissue only found on Gamma scan when dye inserted. dont some surgeons use funny terminology to describe lymph nodes i wonder what he meant removed 2 very lively nodes and this large gremlin.

Waiting for results on next appointment 17th nov asked to sign consent form for mx i think i know what they are going to say.

My butler has turned into chauffer these past few days,
now i am home he can return to his butler duties again dear off him, yep he even had a glass of wine without me, sackable offence isnt it my lord. hope you all enjoyed sunday episode? last one next sunday

There is a premier going to be showed on tv over xmas great.
Downtown Abbey lovely book put on your xmas list

Keep pecker up on this chicken run together. Pat xx

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

libralady - i first found lump in bottom of breast, doctor found another in armpit and mamogram showed another at the top which i had no idea of! hence mx. "Lumpy bumpy" was the exact termanology!!

low day today, took my 2 year old to playgroup, he fell and smacked head on concrete and i had to carry him and it wiped me out!!! iv'e got another week to mx!!! soooo tired and tearfull today.

off to catch up on america's next top model......i don't know why i watch brainless tv.....

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hi tankgirl and welcome to our little gang.

Pinkprincess you are right about the results went in today to ask for my results again! they said they leave this long so that as soon as I get the results the treatment - whatever that will be- starts straight away. Would really like to know now though.

Thanks for good wishes re: physio was awful, not in a painful way she was lovely but I have cording and first signs of lymphoedema, so not fair! I have been doing my exercises eating well walking regularly and this still happens, absolutely fed up!!!!

sorry 😞

Re: Our Journey Together - diagnosed Sept 2011, Op October.

Pink princess - my 1st onc appoint, weighed, bloods taken, mx wound checked
the onc discussed the treatment plan, se's, i was given a folder with some general info, contact nos, what drugs i'll be on and the se's then i was shown the cancer and they got me my prescription of steroids to take before chemo
they pretty much covered everything, i asked about using cold cap, i'm not sure whether that would have been offered as the nurse then had to go and get another leaflet for my folder
just from reading other threads seems like most units are done differently
And i know what you mean about kids tv, i'm just glad my daughter has now moved on to cbbc rather that cbbeeies!!

Libralady, it's on my xmas list (if its out on dvd)

Gillx

Re: Our Journey Together - diagnosed Sept 2011, Op October.

Ladies ladies ladies - Ya'll NEEEEEEED to watch Downton Abbey - but watch the last series first.

Dont say I never told ya! lol

Welcome Tank Girl 🙂

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Gill - I don't get to watch much tv as if its not hubby with F1 and docs then its the kids with their programmes. I have to record my soap and watch it when their all busy Grrr.

Does anyone know what i should expect from my first ONC appointment on thursday? Is there anything i should ask them? and how long does the appointment last for approx??

Thanks
Pink Princess xxx

Re: Our Journey Together - diagnosed Sept 2011, Op October.

you're like me Pink princess, i've not seen Downton either, and i've got a feeling its too late for us to catch up, think its the last one next week..

Gill x

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Another quick log on at work lol

thanks Libralady (((HUGS))) are ace 🙂

Welcome tank girl to the thread sorry your here tho. Loads of lovely ladies on here and together we will get through this.

Im yet to watch this downtown thing on tv is it any good?

(((HUGS))) (((HUGS))) xxxx

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

ok if i join thread too?? diagnosed Oct, mx next week on the 10th. Die hard Dowington fan too.... feeling tired and thankfull to the more energetic grandparents for keeping my 2 yr old occupied this morning!!!
Not sure what i am feeling is due to illness or shock or both, but your comments make me smile and feel better
XX

Re: Our Journey Together - diagnosed Sept 2011, Op October.

Hugs right back at ya princess (((HUGS)))

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Re: Our Journey Together - diagnosed Sept 2011, Op October.

Gingersmithy - Good luck hope all went well.

Applestreet - thanks for the flamethrower, needed it.

sunflower - maybe they will start your treatment as soon as you have your results, i have read something like that instead of having them sooner but then waiting another few weeks before starting treatment?? hope the physio went well?

popppy - good luck with your results for tomorrow-sure you will be fine 🙂

right I had better go seen as i am at work whoops hehe!!

(((HUGS))) to all